Understanding and Treating Self-Injurious Behavior in Autism: A Multi-Disciplinary Perspective PDF
Preview Understanding and Treating Self-Injurious Behavior in Autism: A Multi-Disciplinary Perspective
UNDERSTANDING AND TREATING SELF-INJURIOUS BEHAVIOR AUTISM IN A MULTI-DISCIPLINARY PERSPECTIVE STEPHEN M. EDELSON JANE BOTSFORD JOHNSON EDITED BY AND FOREWORD BY TEMPLE GRANDIN “This is a ‘must-read’ book for all practitioners who interact with families affected by autism. Many of the authors whom Dr. Edelson has brought together in this impressive volume have dedicated much of their adult lives to the treatment of people with autism, and they know just how devastating and difficult to treat self- injurious behavior can be. While it is important to study the causes of ASD, it is equally important to identify and treat co-occurring conditions that jeopardize the longevity and quality of life of affected individuals. This is an important step in bringing awareness to the larger community about self-injurious behavior as a critical issue in ASD.” —David G. Amaral, Ph.D., Research Director, The MIND Institute “Self-injurious behaviors, a not-uncommon family of conditions in autism, vary in severity and are sometimes very damaging to the body. Typically, they are difficult to treat. Understanding and Treating Self-Injurious Behavior in Autism, edited by Dr. Stephen M. Edelson and Jane Botsford Johnson, is an important effort to advance knowledge regarding these poorly understood and challenging behaviors that receive inadequate scholarly attention. In this volume, Edelson and Johnson insightfully bring together experts from diverse clinical and research backgrounds who discuss general medical, neurological, genetic, and pharmacological issues that can contribute to causation of self-injurious behaviors, as well as different therapeutic approaches that may be useful in specific clinical contexts. This work communicates current knowledge regarding self-injurious behaviors and advances our understanding in this important area of medicine. Understanding and Treating Self-Injurious Behavior in Autism is highly recommended for clinicians who care for persons with such behaviors and for researchers interested in learning diverse perspectives on the field.” —Marvin Natowicz, M.D., Ph.D., Clinical Geneticist, Clinical Pathologist, Pathology & Laboratory Medicine Institute, Cleveland Clinic Cleveland, OH “The root of self-injurious behavior can be different for each person on the autism spectrum. An individualized approach, considering all options and combinations of treatments, provides the best chance for a healthy and happy life. This book is long overdue.” —Laurie Mawlam, Executive Director, Autism Canada “This immensely valuable book guides us through multiple potential target etiologies of self-injurious behavior for effective treatment. Thoughtfully assembled and edited, it represents a much-needed practical and integrative handbook of use to every practitioner who works with individuals with autism spectrum and related disorders. I whole-heartedly recommend it!” —Robert L. Hendren, D.O., Professor of Psychiatry, University of California, San Francisco Understanding and Treating Self-Injurious Behavior in Autism of related interest Infantile Autism The Syndrome and Its Implications for a Neural Theory of Behavior by Bernard Rimland, Ph.D. 50th Anniversary Updated Edition Edited by Stephen M. Edelson ISBN 978 1 84905 789 9 eISBN 978 1 78450 057 3 Families of Adults with Autism Stories and Advice for the Next Generation Edited by Jane Johnson and Anne Van Rensselaer ISBN 978 1 84310 885 6 eISBN 978 1 84642 766 4 Siblings The Autism Spectrum Through Our Eyes Edited by Jane Johnson and Anne Van Rensselaer ISBN 978 1 84905 829 2 eISBN 978 0 85700 281 5 Jessica Kingsley Publishers London and Philadelphia Figures 13.1–13.4 are reproduced by kind permission of Helen Marcos and the Groden Centre. Figure 13.6 reproduced from Groden 2011 by kind permission of Mary Pendergast. Figures 13.7 and 13.8: the Picture Communication Symbols © 1981–2010 by Mayer-Johnson LLC. All Rights Reserved Worldwide. Used with permission. Boardmaker™ is a trademark of Mayer-Johnson LLC. Appendix C is reproduced by kind permission of Jamie Bleiweiss. First published in 2016 by Jessica Kingsley Publishers 73 Collier Street London N1 9BE, UK and 400 Market Street, Suite 400 Philadelphia, PA 19106, USA www.jkp.com Copyright © Jessica Kingsley Publishers 2016 Foreword copyright © Temple Grandin 2016 All rights reserved. No part of this publication may be reproduced in any material form (including photocopying or storing it in any medium by electronic means and whether or not transiently or incidentally to some other use of this publication) without the written permission of the copyright owner except in accordance with the provisions of the Copyright, Designs and Patents Act 1988 or under the terms of a licence issued by the Copyright Licensing Agency Ltd, Saffron House, 6–10 Kirby Street, London EC1N 8TS. Applications for the copyright owner’s written permission to reproduce any part of this publication should be addressed to the publisher. Warning: The doing of an unauthorised act in relation to a copyright work may result in both a civil claim for damages and criminal prosecution. Library of Congress Cataloging in Publication Data Names: Edelson, Stephen M., editor. | Johnson, Jane, 1966- editor. | Van Rensselaer, Anne, editor. Title: Understanding and treating self-injurious behavior in autism : a multi-disciplinary perspective / edited by Stephen M. Edelson with Jane Johnson and Anne Van Rensselaer. Description: London ; Philadelphia : Jessica Kingsley Publishers, 2016. | Includes bibliographical references and index. Identifiers: LCCN 2015043474 | ISBN 9781849057417 (alk. paper) Subjects: LCSH: Autistic children--Treatment. | Self-mutilation--Treatment. Classification: LCC RJ506.A9 U53 2016 | DDC 618.92/85882--dc23 LC record available at http:// lccn.loc.gov/2015043474 British Library Cataloguing in Publication Data A CIP catalogue record for this book is available from the British Library. ISBN 978 1 84905 741 7 eISBN 978 1 78450 189 1 This book is dedicated to Dr. Edward Carr, who was a true pioneer in understanding and treating self-injury as well as other challenging behaviors. Dr. Carr was a dedicated researcher, and his contributions to the field of autism and other developmental disorders have helped tens of thousands of individuals in the past and present, and will help hundreds of thousands in the future. We are fortunate that many of his colleagues and students have contributed to this book. ACKNOWLEDGMENTS The contributors to this book have agreed to donate their royalties to support research in understanding and treating self-injurious behavior. The Autism Research Institute will match the royalties and distribute this book to treatment centers worldwide.
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