THE LIVED EXPERIENCE OF UNTIMELY SPOUSAL BEREAVEMENT A Thesis Submitted to the College of Graduate Studies and Research In Partial Fulfillment of the Requirements for the Degree of Master of Nursing in the College of Nursing University of Saskatchewan Saskatoon, Saskatchewan By Marilee E. Lowe, RN, B.Sc.N. ©Copyright Marilee E. Lowe, June, 2005. All rights reserved. PERMISSION TO USE This thesis is presented as partial fulfillment of the requirements for the Degree of Master of Nursing from the University of Saskatchewan. I agree that the Libraries of the University of Saskatchewan may make this document freely available for inspection. Photocopy of this thesis, in whole or in part, for scholarly purposes, may be granted by the professor or professors who supervised my thesis work, or in their absence, by the head of the department, the Dean of the College of Nursing. It is understood that the photocopying of this thesis, in whole or in part, for financial gain shall not be allowed without my written permission. It is also understood that recognition will be given to me and the University of Saskatchewan for any scholarly use that is made of any of the material in my thesis. Requests for permission to copy or make other use of the material in this thesis, in whole or in part, should be addressed to: Dean of the College of Nursing University of Saskatchewan 107 Wiggins Road Saskatoon, Saskatchewan S7N 5E5. i ABSTRACT The death of a spouse is one of the most profound and life-altering events adults will ever experience. While the experience of spousal bereavement is traumatic at any time, there is evidence to support the fact that young women who are widowed experience unique challenges. The purpose of studying young widows was to understand the meaning of spousal bereavement for individual participants. The research tradition of phenomenology was chosen to inform the study, and the guiding question became “what is the lived experience of spousal bereavement for young women?” The study participants were five women who were under the age of 45 at the time of their husband’s death. The experiences of these young widows were illuminated through stories and reflections on the journey of a young widow. Five themes emerged from their experiences. Young widows grieve both the loss of a companion and the death of their dreams. Accompanying these losses can be the challenges of single parenthood, the need for career, financial and lifestyle changes, and the readjustment to life as a single adult. Increased understanding from the perspective of the bereaved widow, along with strategies and interventions for nurses working with this group of women, will provide nurses and health care professionals with skills to better assist this client population. ii ACKNOWLEDGEMENTS To accomplish the goal of completion of my Master of Nursing Degree, I owe a debt of gratitude to many people. To the five courageous women who opened their hearts and their lives to share their stories of widowhood with me – Thank You. To my thesis supervisor, Dr. Karen Wright, who went far “above and beyond the call of duty” in her support of both my completion of this thesis and my personal growth during the process – Thank You. To my committee members, Dr. Wendy Duggleby and Dr.Muriel Montbriand, who provided invaluable feedback and suggestions along the way – Thank You. To the College of Nursing for financial support through bursaries, scholarships, and a graduate teaching fellowship – Thank You. To my Tuesday night quilting group – Lani, Marie, and Holly, for your listening ears and for encouraging me in the pursuit of this dream – Thank You. To my children, Emily and Eric, who have traveled this journey with me from the beginning; Your Dad would be as proud of you as I am for the ways in which you have grown and matured through the experiences that have shaped your lives. You are both such a blessing and encouragement to me - Thank you. To my very special friend Marlene, whose friendship I have treasured for so many years. Without your love and support as I journeyed through the darkness of my early days as a widow I would not be the person I am today – Thank You. iii TABLE OF CONTENTS PERMISSION TO USE ……………………………………………………. i ABSTRACT ……………………………………………………………….. ii ACKNOWLEDGEMENTS ……………………………………………….. iii TABLE OF CONTENTS …………………………………………………. iv CHAPTER ONE – INTRODUCTION ………………………………. 1 1.1 Significance and relevance of the study ……………... 1 1.2 Purpose of the study ………………………………….. 2 CHAPTER TWO - REVIEW OF THE LITERATURE ……………… 4 2.1 Bereavement, grief and mourning …………………………. 4 2.2 Anticipatory grief ………………………………………… 6 2.3 Sudden death ……………………………………………… 8 2.4 Women and widowhood ………………………………………. 9 2.5 Influence of age ……………………………………………… 12 CHAPTER THREE - RESEARCH METHODOLOGY …………………… 15 3.1 Research design ……………………………………………… 15 3.2 Participant selection …………………………………………… 18 3.3 Data collection ………………………………………………… 20 3.4 Ethical considerations ………………………………………… 21 3.5 Researcher as instrument ……………………………………… 22 3.6 Data analysis ………………………………………………… 25 3.7 Trustworthiness ………………………………………………… 27 iv 3.7.1 Credibility ………………………………………………… 27 3.7.2 Transferability ………………………………………… 27 3.7.3 Dependability ………………………………………… 28 3.7.4 Confirmability …………………………………………… 28 CHAPTER FOUR - THE THEMES OF YOUNG WIDOWHOOD ………….. 29 4.1 Introduction to study participants * Pseudonyms have been used here …………………………. 29 4.1.1 Laura …………………………………………………… 29 4.1.2 Catherine ……………………………………………… 30 4.1.3 Jessica …………………………………………………… 30 4.1.4 Wendy ………………………………………………………. 30 4.1.5 Patti ……………………………………………………… 31 4.2 Presentation of the themes ……………………………………… 31 4.2.1 Losses …………………………………………………… 31 4.2.1.1 Loss of companionship …………………………… 31 4.2.1.2 Loss of hopes and dreams ………………………… 32 4.2.1.3 Losses in family relationships and activities ……… 32 4.2.2 Who am I? …………………………………………………. 35 4.2.2.1 Single again ……………………………………… 35 4.2.2.2 New relationships with men ……………………… 38 4.2.2.3 Changed relationships with friends ………………… 41 4.2.2.4 Single parenting …………………………………... 44 v 4.2.3 Making Connections through Memories …………………… 50 4.2.3.1 Strategies for memory making ……………………… 50 4.2.3.2 Reflections on caregiving ………………………….. 55 4.2.4 Living through the firsts ……………………………………. 62 4.2.4.1 Initial adjustments …………………………………… 62 4.2.4.2 New responsibilities ………………………………… 68 4.2.5 Support Systems …………………………………………….. 71 4.2.5.1 Support of the family ………………………………… 71 4.2.5.2 Support of friends ……………………………………. 73 4.2.5.3 Spiritual support ……………………………………... 77 . 4.2.5.4 Support groups ………………………………………. 80 4.2.5.5 The health care system ………………………………. 82 4.3 Summary …………………………………………………………….. 90 CHAPTER FIVE – AN UNEXPECTED JOURNEY: REFLECTIONS OF THE RESEARCHER ………………………………… 96 5.1 The themes of untimely spousal bereavement in my life ……………. 97 5.1.1 Losses ………………………………………………………… 97 5.1.2 Who am I? …………………………………………………… 97 5.1.3 Making connections through memories …………………….. 99 5.1.4 Living through the firsts …………………………………….. 100 5.1.5 Support systems …………………………………………….. 101 vi CHAPTER SIX – INTEGRATION ………………………………………. 104 6.1 Implications ………………………………………………… 106 6.1.1 Research implications ……………………………… 106 6.1.2 Nursing practice implications ……………………… 109 6.1.3 Education implications ……………………………. . 110 6.1.4 Factors influencing the study ………………………… 110 REFERENCES ……………………………………………………………… 114 APPENDICES ……………………………………………………………… 122 Appendix A Consent Form ……………………………………... 122 Appendix B Participant Data/Transcript Release Form ……… 124 Appendix C Demographic Information ………………………….. 126 Appendix D Guiding Questions for Interview …………………… 127 Appendix E Ethics Approval …………………………………... 128 vii CHAPTER ONE ‐ INTRODUCTION The death of a spouse is one of the most profound and life-altering events adults will ever experience. While the loss of a spouse is traumatic at any time, the experience of spousal bereavement at a young age brings with it unique challenges. Young widows grieve not only the physical loss of a companion but also the loss of dreams and expectations, the loss of what might have been. The challenges facing young widows have not been well addressed in the literature. Widows of any age have been found to experience adverse health effects (Charlton, Sheahan, Smith, & Campbell, 2001; Parkes & Brown, 1972), as well as financial insecurities, and raising children alone (Staudacher, 1987). Young widows have been identified as experiencing depression (Blanchard, Blanchard, & Becker, 1976; Zisook & Schuchter, 1991), more severe grief reactions (Ball, 1977), and lower morale as compared to older widows (Morgan, 1976). According to Stroebe and Stroebe (1987), young widows have more difficulty with the initial adjustment to their loss and may experience a greater degree of emotional suffering than women who are widowed later in life. 1.1 Significance and relevance of the study My personal experience of spousal bereavement has allowed me to identify that both understanding of, and support for, the young widow is not well developed. The literature on the young widow is very limited and there have been no reported studies completed in Canada. Additionally, a number of the references on young widowhood are dated and may not provide a current perspective on the issue. 1 Statistics Canada data for the 2001 census identified that Saskatchewan has 47,810 widows, with 8,810 living in the Saskatoon area (Statistics Canada, 2001). While it is not possible to identify from this data the proportion of these women who are under age 45, even if the number is small there is merit in investigating and increasing knowledge and understanding of the phenomenon of young widowhood. Nurses are expected to provide holistic care and to demonstrate understanding and empathy for clients; therefore, knowledge of the lived experience for these individuals is invaluable (Swanson-Kauffman & Schonwald, 1988). Increased understanding of the phenomenon of untimely spousal bereavement from the perspective of the bereaved spouse will prepare nurses to better assist this client population. 1.2 Purpose of the study The purpose of studying the experience of young widows was to explore the “lived experience” of spousal bereavement. Specifically, the purpose was to identify and understand the meaning of spousal bereavement for individual participants. The study was guided by the question “What is the lived experience of young widowhood”? Patton (2002) explains that a phenomenological study is “one that focuses on descriptions of what people experience and how it is that they experience what they experience” (p. 106). Furthermore, Patton explains that “phenomenology assumes that there is an essence or essences to shared experience” (p. 106). Van Manen (1990) describes essence as “the very nature of a phenomenon, that which makes a some ‘thing’ what it is – and without which it could not be what it is” (p. 10). Therefore, this study attempted to uncover the essence of untimely spousal bereavement. This was accomplished by focusing on the 2