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The Ageing Experience: Perceived age discrimination and self-perceptions of ageing in the English Longitudinal Study of Ageing (ELSA) Isla Rippon Thesis submitted to University College London for the Degree of Doctor of Philosophy Department of Epidemiology and Public Health University College London 2016 Declaration of authorship I, Isla Rippon confirm that the work presented in this thesis is my own. Where information has been derived from other sources, I confirm that this has been indicated in the thesis. Signed ………………………….. Isla Rippon Date ………………………………. 2 Abstract An ageing population has important implications for wider aspects of society including our own perceptions of and attitudes to ageing. This thesis investigated how perceived age discrimination and self-perceptions of ageing may affect wellbeing at older ages. Using data from the English Longitudinal Study of Ageing (ELSA), Study 1 investigated the association between perceived age discrimination and socio- demographic characteristics in England. The results indicated that around a third of over 52 year olds in England reported perceptions of age discrimination. Perceived age discrimination was associated with older age, and it was associated with higher levels of education, lower levels of household wealth and lack of paid employment. The second study then went on to compare perceived age discrimination in everyday situations in England and the USA, using data from ELSA and the Health and Retirement Study (HRS). The results indicated that perceived age discrimination was higher in England in comparison with the USA (34.8% vs 29.1%). Study 3 revealed that self-perceived age predicted all-cause and cardiovascular mortality but not cancer mortality over a follow-up period of 99 months. The strength of the association was reduced once existing health problems, functional limitations and health behaviours were accounted for. There was some evidence to indicate that there was a bi-directional association between self-perceived age and functional capacity and emotional health (Study 4). In the fully-adjusted models, self-perceived age was associated with elevated depressive symptoms and limited ADLs four years later, but not with impaired mobility. Conversely, only impaired mobility was associated with self- perceived age four years later, once all covariates were accounted for. Key implications for future research and policy include addressing our own and societal attitudes towards ageing. The findings of this thesis indicate that there is scope to change this and that interventions may be possible. 3 Publications Peer reviewed papers resulting from this thesis Rippon, I., Zaninotto, P., & Steptoe, A. (2015). Greater perceived age discrimination in England than the United States: results from HRS and ELSA. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 70(6), 925-933. Rippon, I., & Steptoe, A. (2015). Feeling old vs being old: associations between self- perceived age and mortality. JAMA Internal Medicine, 175(2), 307 - 309. Rippon, I., Kneale, D., De Oliveira, C., Demakakos, P., & Steptoe, A, (2014). Perceived age discrimination in older adults. Age and Ageing, 43(3), 379 – 386. 4 Acknowledgements I would like to thank my PhD supervisors Professor Andrew Steptoe, Dr Panayotes Demakakos and Dr Cesar de Oliveira. Thank you to my primary supervisor, Andrew Steptoe, for his expert guidance and valuable feedback on this PhD project. His advice and time have been very much appreciated. Thank you also to Cesar de Oliveira and Panos Demakakos for their constructive advice and support throughout and for their assistance with the ELSA data. I am also grateful to Dr Paola Zaninotto for her advice on statistical methods, in particular for study two. This thesis has been supported through an Impact PhD studentship from the International Longevity Centre-UK (ILC-UK) and UCL. I would like to thank Sally-Marie Bamford, David Sinclair and Brian Beach at ILC-UK for their time and support during my studentship. In addition, I would like to thank Dr Dylan Kneale for his continued advice and encouragement after leaving ILC-UK. I am grateful to Professor Anthea Tinker for giving her time and examining my MPhil to PhD upgrade and for her useful advice on the future of my thesis. I would also like to thank my friends and PhD colleagues; in particular, Lauren Bird, Amanda Hughes, Natasha Wood and Baowen Xue amongst others for their support as we worked on our respective projects. Finally, thank you to my partner, Saqib Ahmad, and my family for their support and encouragement during this time. I would also like to acknowledge my grandfather, Henry Richards, who inspired me to return to study and I would like to dedicate this to his memory. 5 Table of Contents Declaration of authorship .............................................................................................. 2 Abstract ........................................................................................................................ 3 Publications .................................................................................................................. 4 Acknowledgements ....................................................................................................... 5 List of Tables .............................................................................................................. 10 List of Figures ............................................................................................................. 12 Abbreviations .............................................................................................................. 13 1 Introduction .......................................................................................................... 14 1.1 Ageing population ....................................................................................................... 14 1.2 Age discrimination policy ............................................................................................. 18 1.3 Outline of remaining chapters ..................................................................................... 19 2 Perceived age discrimination: a review of the literature ....................................... 21 2.1 Introduction .................................................................................................................. 21 2.1.1 Age discrimination and ageism ........................................................................... 21 2.2 Methods ....................................................................................................................... 23 2.2.1 Search Strategy................................................................................................... 23 2.2.2 Selection criteria .................................................................................................. 23 2.3 Results ........................................................................................................................ 25 2.3.1 Description of studies .......................................................................................... 25 2.3.2 Measurement of perceived age discrimination ................................................... 26 2.4 Discussion ................................................................................................................... 37 2.4.1 Discrimination attributed to age ........................................................................... 37 2.4.2 Predictors of age discrimination .......................................................................... 39 2.4.3 Cross-national studies ......................................................................................... 41 2.4.4 Discriminatory situations ..................................................................................... 44 2.4.5 The impact of perceived discrimination on health ............................................... 46 2.4.6 Stereotypes of ageing ......................................................................................... 50 2.4.7 Stereotype embodiment theory ........................................................................... 51 2.5 Summary of literature review ...................................................................................... 52 3 Perceived age discrimination in older adults in England (Study 1) ....................... 54 3.1 Introduction .................................................................................................................. 54 3.1.1 Aims .................................................................................................................... 54 3.2 Methods ....................................................................................................................... 55 3.2.1 Measures ............................................................................................................. 57 3.2.2 Statistical Analyses ............................................................................................. 61 6 3.3 Results ........................................................................................................................ 61 3.3.1 Sample characteristics ........................................................................................ 61 3.3.2 Descriptive analyses ........................................................................................... 64 3.3.3 Multivariate analyses ........................................................................................... 65 3.4 Discussion ................................................................................................................... 73 4 Greater perceived age discrimination in England than the United States: results from HRS and ELSA (Study 2) .................................................................................... 79 4.1 Introduction .................................................................................................................. 79 4.1.1 Aims and Objectives ........................................................................................... 80 4.2 Methods ....................................................................................................................... 82 4.2.1 Study samples ..................................................................................................... 82 4.2.2 Measures ............................................................................................................. 84 4.2.3 Statistical Analyses ............................................................................................. 86 4.3 Results ........................................................................................................................ 87 4.3.1 Descriptive analyses ........................................................................................... 87 4.3.2 Multivariate analyses ........................................................................................... 91 4.3.3 Individual discriminatory situations...................................................................... 99 4.4 Discussion ................................................................................................................. 105 5 Self-perceptions of ageing: a review of the literature .......................................... 112 5.1 Introduction ................................................................................................................ 112 5.2 Self-perceived age .................................................................................................... 113 5.3 Associations between self-perceptions of ageing and mortality ............................... 114 5.3.1 Method .............................................................................................................. 114 5.3.2 Results .............................................................................................................. 116 5.3.3 Discussion ......................................................................................................... 122 5.4 Self-perceptions of age and health status ................................................................. 127 5.4.1 Self-perceptions of age and functional capacity ............................................... 128 5.4.2 Self-perceptions of age and emotional health ................................................... 133 5.5 Self-perceived age and health: direction of association and potential pathways ..... 138 5.6 Pathways ................................................................................................................... 143 5.7 What frameworks exist to explain these relationships? ............................................ 144 5.7.1 Stereotype embodiment theory ......................................................................... 144 5.7.2 Awareness of Ageing ........................................................................................ 145 5.8 Evidence from empirical studies on interventions ..................................................... 147 5.9 Conclusion ................................................................................................................. 148 6 Feeling old vs being old: associations between self-perceived age and mortality (Study 3) ................................................................................................................... 150 6.1 Introduction ................................................................................................................ 150 6.1.1 Aims and objectives .......................................................................................... 151 7 6.2 Methods ..................................................................................................................... 152 6.2.1 Measures ........................................................................................................... 156 6.2.2 Statistical analyses ............................................................................................ 163 6.3 Results ...................................................................................................................... 164 6.4 Discussion ................................................................................................................. 176 6.4.1 Possible mechanisms and implications ............................................................ 178 6.4.2 Strengths and weaknesses of study ................................................................. 180 6.5 Conclusions ............................................................................................................... 181 7 Is the relationship between self-perceived age, emotional wellbeing and functional capacity bidirectional? (Study 4) ............................................................................... 182 7.1 Introduction ..................................................................................................................... 182 7.1.1 Functional capacity............................................................................................ 183 7.1.2 Emotional wellbeing .......................................................................................... 184 7.1.3 The direction of the association between self-perceived age and health ......... 185 7.1.4 Confounders and covariates ............................................................................. 185 7.1.5 Aims and objectives .......................................................................................... 187 7.2 Methods ..................................................................................................................... 190 7.2.1 Sample .............................................................................................................. 190 7.2.2 Measures ........................................................................................................... 190 7.2.3 Covariates ......................................................................................................... 192 7.2.4 Statistical analyses ............................................................................................ 193 7.3 Results ...................................................................................................................... 195 7.3.1 Baseline characteristics and missing data ........................................................ 195 7.3.2 Self-perceived age as a predictor of future elevated depressive symptoms, ADL limitations or impaired mobility .......................................................................................... 200 7.3.3 Elevated depressive symptoms, ADL limitations or impaired mobility as predictors of future self-perceived age .............................................................................. 211 7.3.4 Sensitivity analyses ........................................................................................... 222 7.4 Discussion ................................................................................................................. 224 7.4.1 Self-perceived age as a predictor of emotional wellbeing and functional capacity 225 7.4.2 Emotional distress and functional capacity as predictors of self-perceived age 227 7.4.3 Explanatory variables ........................................................................................ 228 7.4.4 Strengths and limitations ................................................................................... 229 7.5 Conclusion ................................................................................................................. 231 8 General Discussion ............................................................................................ 233 8.1 Aims .......................................................................................................................... 233 8.2 Summary of findings ................................................................................................. 235 8.2.1 Study one .......................................................................................................... 235 8.2.2 Study two ........................................................................................................... 236 8 8.2.3 Study three ........................................................................................................ 237 8.2.4 Study four .......................................................................................................... 238 8.3 Strengths and limitations ........................................................................................... 239 8.3.1 Strengths ........................................................................................................... 239 8.3.2 Limitations ......................................................................................................... 240 8.4 Stereotype Embodiment Theory and wider relevance .............................................. 244 8.5 Relevance for policy and implications for future research ........................................ 245 8.5.1 Policy ................................................................................................................. 245 8.5.2 Future research ................................................................................................. 250 8.6 Conclusion ................................................................................................................. 252 References ............................................................................................................... 253 9 List of Tables Table 2.1 Studies on perceived age discrimination by study design ............................ 28 Table 3.1 Sample characteristics by sex (n=7,653) ..................................................... 63 Table 3.2 Associations between age discrimination and sociodemographic factors .... 67 Table 3.3 Percentage of sample reporting age discrimination in different discriminatory situations (N=7,653).................................................................................................... 69 Table 3.4 Adjusted odds ratios (95% CIs) from logistic regression of reporting discrimination in different discriminatory situations and attributing it to age, with sociodemographic factors ........................................................................................... 71 Table 4.1 Sample characteristics by country ............................................................... 88 Table 4.2 Bivariate associations between perceived age discrimination and socio- demographic factors ................................................................................................... 90 Table 4.3 Adjusted odds ratios of reporting age discrimination by in the USA and England ...................................................................................................................... 93 Table 4.4 Adjusted odds ratios of reporting age discrimination by Country ................. 96 Table 4.5 Characteristics of Black and Hispanic respondents ..................................... 98 Table 4.6 Unadjusted and adjusted odds ratios from logistic regression of reporting discrimination in different situations and attributing it to age ..................................... 100 Table 4.7 Proportion of respondents attributing discrimination to their age in different discriminatory situations in the USA and England ..................................................... 103 Table 5.1 Studies on self-perceived age and mortality .............................................. 118 Table 5.2 Longitudinal studies on self-perceived age and functional capacity ........... 129 Table 5.3 Longitudinal studies on self-perceived age and emotional health .............. 135 Table 5.4 Longitudinal studies investigating the causal pathway between self-perceived age and health .......................................................................................................... 139 Table 6.1 Characteristics of respondents who did not complete self-perceived age measure ................................................................................................................... 154 Table 6.2 Characteristics of the three perceived age groups: percent mortality adjusted for age and sex (95% confidence intervals) or N (percent) ........................................ 166 Table 6.3 Self-perceived age and all-cause mortality risk ......................................... 169 Table 6.4 Cox regression on mortality in fully adjusted model ................................... 171 Table 6.5 Cox regression on mortality, excluding deaths within 12 months of baseline (945 deaths) ............................................................................................................. 173 Table 6.6 Self-perceived age and mortality - subgroup analyses .............................. 175 Table 7.1 Prevalence of missing values of each variable of interest ......................... 198 Table 7.2 Baseline characteristics of participants according to self-perceived age group ................................................................................................................................. 199 10

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Table 6.3 Self-perceived age and all-cause mortality risk . those referred to in the media as 'baby boomers' are myths (Ready for Ageing Alliance,. 2015) . For example, ageism in medical settings has been identified settings (Gee et al., 2007; ILC-USA Anti-Ageism Task Force, 2006; Pavalko et al.,
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