Social Work And Disadvantage: Addressing the Roots And Stigma Through Association PDF
Preview Social Work And Disadvantage: Addressing the Roots And Stigma Through Association
Social Work and Disadvantage by the same author Brothers and Sisters ofDisabled Children Peter Burke ISBN 1 84310 043 6 of related interest Social Capital and Mental Health Edited by Kwame McKenzie and Trudy Harpham ISBN 1 84310 355 9 Dementia and Social Inclusion Marginalised Groups and Marginalised Areas ofDementia Research, Care and Practice Edited by Anthea Innes, Carole Archibald and Charlie Murphy ISBN 1 84310 174 2 Drug Addiction and Families Marina Barnard ISBN 1 84310 403 2 ‘Race’, Housing and Social Exclusion Edited by Peter Somerville and Andy Steele ISBN 1 85302 849 5 Deportation is Freedom! The Orwellian World ofImmigration Controls Steve Cohen ISBN 1 84310 294 3 Working with Parents ofYoung People Research, Policy and Practice Edited by Debi Roker and John Coleman ISBN 1 84310 420 2 Special Stories for Disability Awareness Stories and Activities for Teachers, Parents and Professionals Mal Leicester ISBN 1 84310 390 7 Introducing Mental Health A Practical Guide Caroline Kinsella and Connor Kinsella ISBN 1 84310 260 9 Social Work and Disadvantage Addressing the Roots of Stigma Through Association Edited by Peter Burke and Jonathan Parker Jessica Kingsley Publishers London and Philadelphia First published in 2007 by Jessica Kingsley Publishers 116 Pentonville Road London N1 9JB, UK and 400 Market Street, Suite 400 Philadelphia, PA 19106, USA www.jkp.com Copyright © Jessica Kingsley Publishers 2007 The right ofthe contributors to be identified as authors ofthis work has been asserted by them in accordance with the Copyright, Designs and Patents Act 1988. All rights reserved. No part ofthis publication may be reproduced in any material form (including photocopying or storing it in any medium by electronic means and whether or not transiently or incidentally to some other use ofthis publication) without the written permission ofthe copyright owner except in accordance with the provisions ofthe Copyright, Designs and Patents Act 1988 or under the terms ofa licence issued by the Copyright Licensing Agency Ltd, 90 Tottenham Court Road, London, England W1T 4LP. Applications for the copyright owner’s written permission to reproduce any part ofthis publication should be addressed to the publisher. Warning: The doing ofan unauthorised act in relation to a copyright work may result in both a civil claim for damages and criminal prosecution. Library ofCongress Cataloging in Publication Data Socialworkanddisadvantage:addressingtherootsofstigmathroughassociation/edited by Peter Burke and Jonathan Parker. p. cm. Includes bibliographical references and index. ISBN-13: 978-1-84310-364-6 (pbk.) ISBN-10: 1-84310-364-8 (pbk.) 1. Socialworkwithpeoplewithdisabilities.2. Sociologyofdisability.3. Stigma(Social psychology) I. Burke, Peter, 1948- II. Parker, Jonathan, 1960- HV1568.S696 2007 361.3'2--dc22 2006019502 British Library Cataloguing in Publication Data A CIP catalogue record for this book is available from the British Library ISBN-13: 978 1 84310 364 6 ISBN-10: 1 84310 364 8 ISBN eBook pdf: 1 84642 555 7 Printed and bound in Great Britain by Athenaeum Press, Gateshead, Tyne and Wear Contents Introduction 7 Peter Burke and Jonathan Parker 1 Disadvantage and Stigma: A Theoretical Framework for Associated Conditions 11 Peter Burke 2 Looked After Children, their Parents, Disadvantage and Stigma 27 Catherine Deverell 3 Childhood Disabilities and Disadvantage: Family Experiences 45 Peter Burke and Benedict Fell 4 A Drug User in the Family: Between Need, Dependency and Desire 63 Philip Guy 5 HIV/AIDS: Challenging Stigma by Association 79 Liz Walker 6 Ageing against the Grain: Gay Men and Lesbians 97 Elizabeth Price 7 Constructing Dementia and Dementia Care: Disadvantage and Daily Practices in a Day Care Setting 111 Jonathan Parker 8 Living with Chronic Illness: The Example of Parkinson’s Disease 130 Margaret Holloway 9 Social Work, Disadvantage by Association and Anti-Oppressive Practice 146 Jonathan Parker 10 Disadvantage as an Associative Concept; Reflections and Some Further Considerations 158 Peter Burke THE CONTRIBUTORS 170 SUBJECT INDEX 171 AUTHOR INDEX 175 Figures Figure 1.1 The experience ofdisadvantage 17 Figure 1.2 Disability by association 23 Figure 7.1 Plan ofday centre 119 Figure 7.2 Constructing dementia in the day care setting 126 Figure 8.1 Person with Parkinson’s unable to travel alone and carer’s employment 133 Figure 8.2 Effect ofproviding nursing care on carer’s emotional health 135 Figure 8.3 Effect ofmanaging finances on carer’s emotional well-being 136 Figure 9.1 Thompson’s PCS model ofoppression 153 Figure 10.1 Circle ofinfluence: Stigma, associative disadvantage and practice relationships 160 Tables Table 3.1 Perceived disadvantage 54 Table 3.2 Type ofdisadvantage 54 Table 3.3 Siblings caring for disabled brothers or sisters 55 Table 3.4 Type ofcare 56 Table 8.1 Relationship between severity ofsymptoms and social life 137 Introduction Peter Burke and Jonathan Parker Thebookexaminesdisadvantageasanassociativeconditioninsocialwork. ThetopicofdisadvantageoriginallyrelatedtoresearchbyBurkeandMont- gomery(2003)whichmainlyconcernedthesiblingsof disabledchildren, and led to the more detailed exposition in Brothers and Sisters of Disabled Children(Burke,2004)inwhichtheconceptof disabilitybyassociationis introduced.Thistextbuildsontheconceptof‘disabilitybyassociation’but broadensitsgrasptoreflectthesenseofdisadvantageexperiencedacrossa spectrum of client and user groups, and explores the potential for the positiverequisitionof associationasawayof understandingandworking with others. In expanding this, we have drawn on the expertise of professional colleagues and, although this extends the original concept, it is not an exhaustive examination, but sufficient to reflect the transferability of the concepttootherareasofacademicinterest,researchandpractice.Inprovid- inganexaminationof disadvantage,theareaswecoverincludechildhood disability as an origination source, but we also explore in some detail the stigmaofassociationinamuchwider-rangingsetofexperiences.Thetext includes children in the looked after system, their families, drug users, HIV/AIDS,issuesofsexualityforolderpeopleandage-relateddisabilities. Inalltheseareas,thequestionof associatedissuesrelatingtoaninitiating condition is addressed. The need for social workers to be highly skilled and knowledgeable abouttheconsequencesofpracticeisabasicimperativewithintheprofes- sion.Socialworkeducationhasundergoneamajortransformationtoensure that qualified social workers understand the complexities of the human condition,andthisisreflectedbytherequirementssetbytheDepartmentof Health(2002).ThechangesarefurtherstressedintheAssessmentFrame- workutilisedinchildcare,thedevelopmentsheraldedbyEveryChildMatters (Chief Secretary to the Treasurer, 2003), Valuing People (Department of 7 8 / SOCIAL WORK AND DISADVANTAGE Health,2001)andintheWhitePaperOurHealth,OurCare,OurSay(Depart- ment of Health, 2006), which together identify the centrality of the individual experiencing some degree of need within the systems of social care.Thecomplexityofsocialrelationsfeaturetoo,suchthatanyobjective assessment of individual need must also consider the impact on others within the systemic framework in which that individual lives; in concep- tualising this extension we enter the genre of associative conditions. Social workers work with people who are vulnerable, who are strug- gling in some way to participate fully in society. In essence, we focus on currentpracticeandresearch-informedknowledgetodevelopageneralis- ablemodelof associativeconditionsthattransferacrossavarietyof social care settings. The basic model is open to further evaluation; the examina- tions made do not cover all possible situations, although the relevance to many indicates some potential for the particular. Itwouldappearthatthesenseofdisadvantagethatdistinguishesmany individualsonthereceivingendof socialworkisassociatedwithpercep- tionsofneed,identifiedbylocation,attitudesandbarrierstochange.These structural issues and the stigmatisation of disadvantage are examined in some detail. We will now outline the book’s organisation. Chapter1,byPeterBurke,providesatheoreticalbackgroundtothesubse- quentchapters,whichinturnreviewtheresearchevidencethatlinkstothe experience of those encountering disadvantage through associative inter- actions. InChapter2CatherineDeverellexaminestheexperienceofchildrenin the care system and reveals disadvantage and stigma associated with the child’s experience and background. PeterBurkeandBenedictFell,inChapter3,introducefurtherresearch onthefamilyexaminingissuesforchildrenwithdisabilitiesandtheconse- quences for siblings. This extends the research by Burke (2004) to show that siblings experience disability as part of their lives and carry a social identitythatincorporatesasenseofdisabilityasthoughtheysharedthedis- ability of their brother or sister. In Chapter 4 Philip Guy discusses drug use and the impact on the family.Itissuggestedthatthisfamilydimensionisoftenoverlooked,indeed undervalued, in considerations of the consequences of living with a drug user. Families, it seems, are indeed stigmatised by association with a drug user.
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