People with Multiple Sclerosis: Condition, Challenges and Care PDF
Preview People with Multiple Sclerosis: Condition, Challenges and Care
People with Multiple Sclerosis People with Multiple Sclerosis Condition, Challenges and Care Paul J. Bull Independent Researcher, UK © Paul J. Bull 2015 All rights reserved. No reproduction, copy or transmission of this publication may be made without written permission. No portion of this publication may be reproduced, copied or transmitted save with written permission or in accordance with the provisions of the Copyright, Designs and Patents Act 1988, or under the terms of any licence permitting limited copying issued by the Copyright Licensing Agency, Saffron House, 6–10 Kirby Street, London EC1N 8TS. Any person who does any unauthorized act in relation to this publication may be liable to criminal prosecution and civil claims for damages. The author has asserted his right to be identified as the author of this work in accordance with the Copyright, Designs and Patents Act 1988. First published 2015 by PALGRAVE MACMILLAN Palgrave Macmillan in the UK is an imprint of Macmillan Publishers Limited, registered in England, company number 785998, of Houndmills, Basingstoke, Hampshire RG21 6XS. Palgrave Macmillan in the US is a division of St Martin’s Press LLC, 175 Fifth Avenue, New York, NY 10010. Palgrave Macmillan is the global academic imprint of the above companies and has companies and representatives throughout the world. Palgrave® and Macmillan® are registered trademarks in the United States, the United Kingdom, Europe and other countries. ISBN 978-1-349-56851-2 ISBN 978-1-137-45706-6 (eBook) DOI 10.1057/9781137457066 This book is printed on paper suitable for recycling and made from fully managed and sustained forest sources. Logging, pulping and manufacturing processes are expected to conform to the environmental regulations of the country of origin. A catalogue record for this book is available from the British Library. A catalog record for this book is available from the Library of Congress. For Christine Contents List of Figures v iii List of Tables i x Acknowledgements x i List of Abbreviations xiii 1 I ntroduction 1 2 M ultiple Sclerosis: A Brief Overview of the Illness 19 3 R esearch on People with MS: Definitions, Data Sources and Methodologies 4 1 4 W hat Type of Person Suffers from MS? 83 5 H ow Many People Have MS? A Case Study of the UK 110 6 T he Impact of MS 1 59 7 T he Care of People with MS 2 13 8 C onclusion 2 60 Notes 2 73 References 2 76 Index 3 01 vii List of Figures 5.1 W orldwide prevalence of MS by nation state 1 12 5.2 U K regional MS prevalence rates 1 17 5.3 M S admissions to NHS hospitals in Scotland 1997–2009 by Health Board Area 1 29 5.4 M S admissions to NHS hospitals in England 1998–2005 by Strategic Health Authority Area 1 40 6.1 H ypothetical impact of MS on a person’s life 1 66 viii List of Tables 1.1 S elected neurological conditions in the UK 12 2.1 T ype of MS by selected regional and national survey 28 3.1 T he number of PwMS diagnosed using the A&M and poser criteria for selected regional populations in the UK 47 3.2 T he definition of MS used in recent UK regional studies 5 5 3.3 T he most important source for recent regional surveys of PwMS 5 7 4.1 S urveys of PwMS 8 4 4.2 F emale to male ratios in regional MS studies since 1985 86 4.3 T he ages of PwMS: summary statistics from regional research 9 4 4.4 T he distribution of PwMS and the population of the countries of the UK by age group 9 6 4.5 D istribution of PwMS by age group and female/male ratios for selected regions 9 7 5.1 E stimates of the number of PwMS in the four countries of the UK in 2010 1 15 5.2 T he principal regional MS prevalence studies published since 1985 1 20 5.3 U K regional MS prevalence rates by year of study 1 23 5.4 U K regional MS prevalence studies ranked by prevalence rate 1 24 5.5 P opulation of Northern Ireland and the north of Northern Ireland MS study area: selected characteristics in 2001 131 5.6 R egional MS annual incidence rates in the UK 143 5.7 P revalence of PwMS/100,000 in 1981 by region in Australia and place of birth 1 54 6.1 K urtzke’s Expanded Disability Status Scale 1 68 6.2 F actors aiding successful and unsuccessful adjustment to MS 1 78 6.3 D omains of care for people with MS as identified by Gruenewald et al. (2004) 1 81 6.4 T he MS Impact Scale (MSIS-29) 1 83 6.5 O riginal areas of importance identified by the LMSQoLS 184 6.6 L MSQoL scores by disease state and ambulation status 186 ix
The list of books you might like
