New Directions in the Sociology of Chronic and Disabling Conditions: Assaults on the Lifeworld PDF
Preview New Directions in the Sociology of Chronic and Disabling Conditions: Assaults on the Lifeworld
New Directions in the Sociology of Chronic and Disabling Conditions Also by Graham Scambler THE EXPERIENCE OF ILLNESS (co-authored) SOCIOLOGICAL THEORY AND MEDICAL SOCIOLOGY (edited) EPILEPSY MENSTRUAL DISORDERS (co-authored) RETHINKING PROSTITUTION: Purchasing Sex in Britain in the 1990s (co-edited) MODERNITY, MEDICINE AND HEALTH (co-edited) HABERMAS, CRITICAL THEORY AND HEALTH (edited) HEALTH AND SOCIAL CHANGE: A Critical Theory MEDICAL SOCIOLOGY (edited) SPORT AND SOCIETY: History, Power and Culture SOCIOLOGY AS APPLIED TO MEDICINE (edited) Also by Sasha Scambler THE SOCIAL WORLD OF OLDER PEOPLE (co-authored) New Directions in the Sociology of Chronic and Disabling Conditions Assaults on the Lifeworld Edited by Graham Scambler University College London Medical School, UK and Sasha Scambler Kings College London Dental Institute, UK Selection and editorial matter © Graham Scambler and Sasha Scambler 2010 Individual chapters © their respective authors 2010 Softcover reprint of the hardcover 1st edition 2010 978-0-230-22270-0 All rights reserved. No reproduction, copy or transmission of this publication may be made without written permission. No portion of this publication may be reproduced, copied or transmitted save with written permission or in accordance with the provisions of the Copyright, Designs and Patents Act 1988, or under the terms of any licence permitting limited copying issued by the Copyright Licensing Agency, Saffron House, 6-10 Kirby Street, London EC1N 8TS. Any person who does any unauthorized act in relation to this publication may be liable to criminal prosecution and civil claims for damages. The authors have asserted their rights to be identified as the authors of this work in accordance with the Copyright, Designs and Patents Act 1988. First published 2010 by PALGRAVE MACMILLAN Palgrave Macmillan in the UK is an imprint of Macmillan Publishers Limited, registered in England, company number 785998, of Houndmills, Basingstoke, Hampshire RG21 6XS. Palgrave Macmillan in the US is a division of St Martin’s Press LLC, 175 Fifth Avenue, New York, NY 10010. Palgrave Macmillan is the global academic imprint of the above companies and has companies and representatives throughout the world. Palgrave® and Macmillan® are registered trademarks in the United States, the United Kingdom, Europe and other countries. ISBN 978-1-349-58751-3 ISBN 978-0-230-29743-2 (eBook) DOI 10.1057/9780230297432 This book is printed on paper suitable for recycling and made from fully managed and sustained forest sources. Logging, pulping and manufacturing processes are expected to conform to the environmental regulations of the country of origin. A catalogue record for this book is available from the British Library. Library of Congress Cataloging-in-Publication Data New directions in the sociology of chronic and disabling conditions : assaults on the lifeworld / edited by Graham Scambler, Sasha Scambler. p. cm. Summary: “This book charts the new directions in theory and research in disability studies, giving purpose and shape to the emerging confluence of ideas between traditionally opposed groups” – Provided by publisher. Includes bibliographical references and index. 1. People with disabilities. 2. Disabilities. I. Scambler, Graham. II. Scambler, Sasha Jane. HV1568.N49 2010 2009048532 305.9(cid:2)08 —dc22 10 9 8 7 6 5 4 3 2 1 19 18 17 16 15 14 13 12 11 10 Transferred to Digital Printing in 2013 Dedicated to the memory of David Kelleher Contents List of Tables ix Notes on Contributors x 1 I ntroduction: The Sociology of Chronic and Disabling Conditions; Assaults on the Lifeworld 1 Graham Scambler and Sasha Scambler 2 S tudying the Experience of Chronic Illness through Grounded Theory 8 Kathy Charmaz 3 Medical Sociology and Disability Theory 37 Carol Thomas 4 B eyond Models: Understanding the Complexity of Disabled People’s Lives 57 Tom Shakespeare and Nick Watson 5 ‘ Where the Biological Predominates’: Habitus, Reflexivity and Capital Accrual within the Field of Batten Disease 77 Sasha Scambler and Paul Newton 6 D iscerning Biological, Psychological and Social Mechanisms in the Impact of Epilepsy on the Individual: A Framework and Exploration 106 Graham Scambler, Panagiota Afentouli and Caroline Selai 7 R etheorizing the Clinical Encounter: Normalization Processes and the Corporate Ecologies of Care 129 Carl May 8 ‘ Chronicity’, Proto-Stories and the Doctor-Patient Relationship 146 Alan Radley 9 C hronic Illness, Self-management and the Rhetoric of Empowerment 161 Mike Bury vii viii Contents 10 Understanding Incapacity 180 Gareth H. Williams 11 T he Biopolitics of Chronic Illness: Biology, Power and Personhood 205 Simon J. Williams Index 225 Tables 4.1 Disability as an interaction 66 4.2 S chema of interventions for the example of spinal cord injury 66 6.1A Appendix: Study participants’ characteristics 126 10.1 Incapacity claimant rate, top 20 GB districts, August 2006 184 10.2 Comparison of the proportion of adults aged 45 to 64 with long-standing illness in different regions 186 ix
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