Florida International University FIU Digital Commons FIU Electronic Theses and Dissertations University Graduate School 3-30-2006 Evaluation of a mentored self-help intervention for the management of psychotic symptoms Willa Jeanne Casstevens Florida International University Follow this and additional works at:http://digitalcommons.fiu.edu/etd Part of theSocial Welfare Commons Recommended Citation Casstevens, Willa Jeanne, "Evaluation of a mentored self-help intervention for the management of psychotic symptoms" (2006).FIU Electronic Theses and Dissertations.Paper 2070. http://digitalcommons.fiu.edu/etd/2070 This work is brought to you for free and open access by the University Graduate School at FIU Digital Commons. It has been accepted for inclusion in FIU Electronic Theses and Dissertations by an authorized administrator of FIU Digital Commons. For more information, please [email protected]. FLORIDA INTERNATIONAL UNIVERSITY Miami, Florida EVALUATION OF A MENTORED SELF-HELP INTERVENTION FOR THE MANAGEMENT OF PSYCHOTIC SYMPTOMS A dissertation submitted in partial fulfillment of the requirements for the degree of DOCTOR OF PHILOSOPHY in SOCIAL WELFARE by Willa Jeanne Casstevens 2006 To: Interim Executive Dean Ray Thomlison College of Health and Urban Affairs This dissertation, written by Willa Jeanne Casstevens, and entitled Evaluation of a Mentored Self-Help Intervention for the Management of Psychotic Symptoms, having been approved in respect to style and intellectual content, is referred to you for judgment. We have read this dissertation and recommend that it be approved. Marian Dumaine Frederick L. Newman Nan Van Den Bergh David Cohen, Major Professor Date of Defense: March 30, 2006 The dissertation of Willa Jeanne Casstevens is approved. Interim Executive Dean Ray Thomlison College of Health and Urban Affairs Interim Dean Stephan L. Mintz University Graduate School Florida International University, 2006 ii C Copyright 2006 by Willa Jeanne Casstevens All rights reserved. iii DEDICATION This dissertation is dedicated to my parents, Tom and Jeanne Casstevens, and my sons, Russell and Richard Kaufman, without whom it would never have come to pass. iv ACKNOWLEDGMENTS This study would not have been possible without the participation of members of Fellowship House: Many thanks for your commitment to and patience with the investigative process. Thank you also to Fellowship House staff, for your active support, and particularly to Publio Santana, Cindy Swartz, Genna Marx, Habsi Kaba, Rosemary Smith-Hoel and Jonelle Doughery, without whom the study could not have manifested. Many thanks to my research assistants, Constanza Bade, Ann J. Galinanes and Danielle Vandenbent, for your careful attention to detail with both data collection and data entry. I greatly appreciate your time and efforts. I wish to thank my committee members, Drs. David Cohen, Fred Newman, Nan Van Den Bergh and Marian Dumaine for their consistent support, feedback and commitment. I am indebted to Marian Dumaine especially for connecting me with Fellowship House and to Nan Van Den Bergh for instrumental support during a crucial interval. I would like to thank Fred Newman for numerous introductions and recommendations as well as for statistical guidance, consultation, and invariably prompt feedback; without his consistent endorsement the study would not exist. I cannot thank David Cohen enough for his willingness to supervise this study and for bringing Coleman and Smith's (1997) workbook to my attention. His multi-faceted expertise combined with a consistent refusal to accept less than my best work resulted in this finished product. I wish to thank Dr. Steve Wong, who originally brought the connection between schizophrenia and cognitive behavioral therapy (CBT) to my attention. Thank you, Dr. Eric Wagner, for your advice, guidance related to research protocols, and referral to the v Beck Institute for CBT training. Thanks also go to the Florida International University Graduate Student Association for funding assistance on two occasions. I would like to thank Dr. Jordan Kosberg for early support during the doctoral program, and Dr. Rita Wik for support, guidance and encouragement without which I would not have begun the doctoral process. Thank you, Gayle Bluebird, for introducing me to the role of consumer advocate. Thank you also for opening my mind to the self-help perspective in mental health, and thereby shifting this study's focus. Thank you, Kathryn Vanderwater Piercy, for your holiday time one sunny Florida day, when you trained me and Jolae Brocato in the use of the Hoosier Assurance Plan Inventory - Adult instrument. Thank you, Dr. Jolae Brocato, for your time and friendly support during the initial phases of the study. And thank you, Harold Casstevens, for your on-line assistance with citations. I am grateful to my friends in the Baha'i Faith, especially Theodore Aupperle, Hank Markot and Dr. Heidi Melius, and in Art of Living, especially Spencer Snyder and Melissa Weisfenning. Thanks go also to Dr. Larry Billion and Meredith St. Pierre for their ongoing support. A very special thank you goes to Lillie Wichinsky for her friendship and persistent support and encouragement throughout. I greatly appreciate my family-of-origin's tolerance, understanding, patience, and the very concrete parental support involved with getting me through the doctorate. Also and most especially, thank you, Russell and Richard, for your support throughout this seven-year process: We watched one another grow and change. I love you dearly and you gave me a reason for being. vi ABSTRACT OF THE DISSERTATION EVALUATION OF A MENTORED SELF-HELP INTERVENTION FOR THE MANAGEMENT OF PSYCHOTIC SYMPTOMS by Willa Jeanne Casstevens Florida International University, 2006 Miami, Florida Professor David Cohen, Major Professor Cognitive behavioral therapy has been shown to be promising for the treatment of individuals experiencing psychotic symptoms, who are often diagnosed with schizophrenia. Using a non-random non-equivalent comparison group design (n = 26), this study explores whether an individually mentored self-help and self-paced intervention based upon cognitive behavioral approaches to auditory hallucinations or "hearing voices" makes a significant positive difference for individuals with major mental disorder diagnoses and psychotic symptoms who are residing in the community and receiving community mental health services. The mentored self-help intervention uses a workbook (Coleman & Smith, 1997) that stemmed from the British psychiatric survivor and "voice hearers"' movements and from cognitive behavioral approaches to treating psychotic symptoms. Thirty individuals entered the study. Pre- and post- intervention assessments of 15 participants in the intervention group and 11 participants in the comparison group were carried out using standardized instruments, including the Rosenberg Self-Esteem Scale, the Brief Psychiatric Rating Scale, and the Hoosier Assurance Plan Inventory - Adult. Four specific research questions address whether vii levels of self-esteem, overall psychotic symptoms, depression-anxiety, and disruption in life improved in the intervention group, relative to the comparison group. Pre- and post- assessment scores were analyzed using repeated measures analysis of variance. Results showed no significant difference on any measure, with the exception of the Brief Psychiatric Rating subscale for Anxious Depression, which showed a statistically significant pre-post difference with a strong effect size. A conservative interpretation of this single positive result is that it is due to chance. An alternative interpretation is that the mentored self-help intervention made an actual improvement in the level of depression-anxiety experienced by participants. If so, this is particularly important given high levels of depression and suicide among individuals diagnosed with schizophrenia. This alternative interpretation supports further research on the intervention utilized in this study. viii TABLE OF CONTENTS CHAPTER PAGE I. INTRODUCTION .............................................................................................. 1 Changing Approaches to Care and Labeling ..................................................... 4 Psychiatric Surviviors: From Inmate to Consumer................ 4 Self-Help and Mental Health ................................................................. 6 Pychosis, Psychotic Symptoms and Hallucinations ............................................ 9 P sy ch o sis................................................................................................. . 9 Psychotic Symptoms, Disorders and the DSM ........................................ 9 Hallucinations and Hearing "Voices".................................................... 11 The "Schizophrenia" Diagnosis and the Medical Model.................................. 13 The "Schizophrenia" Diagnosis............................................................. 13 Validity of the "Schizophrenia" Diagnosis........................................... 16 Explicit Criteria for "Schizophrenia" ................................................... 17 The Medical Model in Psychiatry......................................................... 18 Community Mental Health in America ............................................................. 19 M edications.......................................................................................... . 22 Antipsychotic Medications ........................................................ 22 Adjunctive Medications............................................................. 24 Psychological Interventions.................................................................. 25 Out-patient Treatment and Programs.................................................... 26 Case Management and Service Coordination........................................ 27 Residential Options............................................................................... 28 Summary ............................................................................................................... 29 II. LITERATURE REVIEW : CBT OF PSYCHOSIS........................................... 32 Cognitive Behavioral Therapy........................................................................... 32 C B T of P sychosis............................................................................................... 35 Fo cu sin g ................................................................................................. . 36 Normalizing and Decatastrophization .................................................... 36 Coping Strategy Enhancement............................................................. 37 Modifying "Delusions"......................................................................... 38 Empirical Support for CBT of Psychosis .......................................................... 39 CBT and Focusing/reattribution Strategies........................................... 39 CBT and a Normalizing Rationale......................................................... 40 C B T and C SE ......................................................................................... 4 1 CBT with Verbal Challenge and Reality Testing .................................. 41 Combination CBT.................................................................................. 42 Summarizing RCTs of CBT of Psychosis ............................................. 46 Coleman and Smith's Workbook...................................................................... 48 P artnership .......................................................................................... . . 48 Introductory Workbook Pages ............................................................... 49 ix
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