Disability and Qualitative Inquiry: Methods for Rethinking an Ableist World PDF
Preview Disability and Qualitative Inquiry: Methods for Rethinking an Ableist World
Disability anD Qualitative inQuiry ‘This is an important book. It offers readers rich insights into the process of doing qualitative research. It opens up new research opportunities to work with disabled people and transfer knowledge in highly accessible ways. In so doing, how students, academics, and practitioners might do qualitative inquiry, understand disability, and challenge oppressive practices is expanded.’ brett smith, loughborough university, uK Interdisciplinary Disability Studies series editor: Mark Sherry, The University of Toledo, USA Disability studies has made great strides in exploring power and the body. this series extends the interdisciplinary dialogue between disability studies and other fields by asking how disability studies can influence a particular field. It will show how a deep engagement with disability studies changes our understanding of the following fields: sociology, literary studies, gender studies, bioethics, social work, law, education, and history. This ground-breaking series identifies both the practical and theoretical implications of such an interdisciplinary dialogue and challenges people in disability studies as well as other disciplinary fields to critically reflect on their professional praxis in terms of theory, practice, and methods. Other titles in the series Disability and Discourse analysis Jan Grue youth and Disability a Challenge to Mr reasonable Jenny Slater Communication, sport and Disability the Case of Power soccer Michael S. Jeffress Hearing impairment and Hearing Disability towards a Paradigm Change in Hearing services Edited by Anthony Hogan and Rebecca Philips Forthcoming titles in the series Disabled Children’s rights to Participation Ruth Farrugia and Anne-Marie Callus the Fantasy of Disability images of loss in Popular Culture Jeffrey Preston Disability and Qualitative Inquiry Methods for Rethinking an Ableist World ronalD J. berger University of Wisconsin-Whitewater, USA anD laura s. lorenz Brandeis University, USA First published 2015 by Ashgate Publishing Published 2016 by Routledge 2 Park Square, Milton Park, Abingdon, Oxon OX14 4RN 711 Third Avenue, New York, NY 10017, USA Routledge is an imprint of the Taylor & Francis Group, an informa business Copyright © Ronald J. Berger, Laura S. Lorenz and the contributors 2015 Ronald J. Berger and Laura S. Lorenz have asserted their right under the Copyright, Designs and Patents Act, 1988, to be identified as the editors of this work. All rights reserved. No part of this book may be reprinted or reproduced or utilised in any form or by any electronic, mechanical, or other means, now known or hereafter invented, including photocopying and recording, or in any information storage or retrieval system, without permission in writing from the publishers. Notice: Product or corporate names may be trademarks or registered trademarks, and are used only for identification and explanation without intent to infringe. British Library Cataloguing in Publication Data A catalogue record for this book is available from the British Library. The Library of Congress has cataloged the printed edition as follows: Disability and qualitative inquiry: methods for rethinking an ableist world / [edited] by Ronald J. Berger and Laura S. Lorenz. pages cm. — (Interdisciplinary disability studies) Includes bibliographical references and index. ISBN 978-1-4724-3289-6 (hardback: alk. paper) 1. Disability studies—Methodology. 2. Qualitative research. 3. Sociology of disability— Research. 4. People with disabilities—Research. I. Berger, Ronald J. II. Lorenz, Laura S. HV1568.2.D565 2015 362.4072’1—dc23 2015004755 ISBN 9781472432896 (hbk) ISBN 9781315577333 (ebk) Contents List of Figures vii Notes on Contributors ix Preface xi Ronald J. Berger and Laura S. Lorenz 1 Disability and Qualitative Research 1 Ronald J. Berger and Laura S. Lorenz Part 1 Observational Methods 2 A Bricolage of Urban Sidewalks: Observing Locations of Inequality 13 Valerie Leiter 3 Observations of a Disability Summer Camp: The Method of Phenomenological Seeing 29 Ronald J. Berger 4 Ethnographies of Blindness: The Method of Sensory Knowledge 45 Gili Hammer Part 2 Interviews and Focus Groups 5 Staying True to Their Stories: Interviews with Parents of Children with Disabilities 57 Sara E. Green 6 Negotiating Deafness and Identity: Methodological Implications of Interviewing with Hearing Loss 75 Melissa Jane Welch 7 Talking about Sex: Focus Group Research with People with Disabilities 89 Sarah Smith Rainey Part 3 Autoethnography and Life History Methods 8 Institutional Resistance to Accessible Architecture and Design: A Collaborative Autoethnography 109 Carla Corroto and Lucinda Kaukas Havenhand Disability anD Qualitative inQuiry 9 “It’s Not Like You’re Going to College Anyway”: A Performative Autoethnography 127 Anjali J. Forber-Pratt 10 Recovery from Spinal Cord Injury: A Theorized Life History 155 Ronald J. Berger Part 4 Content Analysis and Visual Methods 11 Disability and Humor in Film and Television: A Content Analysis 177 Ronald J. Berger 12 Living with Brain Injury: Participatory Visual Methods and Narrative Analysis 189 Laura S. Lorenz 13 Sharing the Results of Visual Methods Research: Participation, Voice, and Empowerment 209 Laura S. Lorenz and Maria Paiewonsky References 221 Index 239 vi List of Figures 2.1 Brick Sidewalk with Multiple Problems 19 2.2 Tripping Hazard in Front of Bench 20 2.3 Missing Curb Cut 21 3.1 Jon Feucht (2003). Courtesy of Jon Feucht. 31 8.1 Wheelchair Figure in Turnaround Circle 115 9.1 Anjali Forber-Pratt (2012). Used with permission of James Harvey Photography. 152 10.1 Melvin Juette (2001). Copyright 2001 Paralyzed Veterans of America, by permission of Sports ’N Spokes. 172 12.1 Life without Connection 195 12.2 Category 1: Problem 203 12.3 Category 2: Action 204 12.4 Category 3: Resolution 205 13.1 Participatory Action Research Cycle 217 This page has been left blank intentionally Notes on Contributors Ronald J. Berger is a professor emeritus of sociology from the University of Wisconsin-Whitewater. Carla Corroto was an architect and is currently an associate professor of sociology at Radford University. Anjali J. Forber-Pratt is an assistant research professor in the Beach Center on Disability at the University of Kansas. Sara E. Green is an associate professor of sociology at the University of South Florida. Gili Hammer received her PhD in anthropology and is currently a postdoctoral scholar in disability studies at the University of California, Berkeley. Lucinda Kaukas Havenhand was trained as a designer and is currently Associate Dean of Graduate Studies at Syracuse University. Valerie Leiter is a professor of sociology and the director of public health at Simmons College. Laura S. Lorenz is a visiting scholar in the Heller School for Social Policy and Management at Brandeis University. Maria Paiewonsky is a transition specialist in the Institute for Community Inclusion at the University of Massachusetts Boston. Sarah Smith Rainey is an assistant professor of women’s, gender, and sexuality studies at Bowling Green State University. Melissa Welch is a doctoral student in sociology at the University of South Florida.
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