Disability and Mothering: Limited Spaces of Embodied Knowledge PDF
Preview Disability and Mothering: Limited Spaces of Embodied Knowledge
Disability and Mothering Critical Perspectives on Disability Steven J. Taylor, Series Editor Disability a n d Mothering Liminal Spaces of Embodied Knowledge Cynthia Lewiecki-Wilson Edited by Jen Cellio and Syracuse University Press Copyright © 2011 by Syracuse University Press Syracuse, New York, 13244-5290 All Rights Reserved First Edition 2011 11 12 13 14 15 16 6 5 4 3 2 1 ∞ The paper used in this publication meets the minimum requirements of the American National Standard for Information Sciences—Permanence of Paper for Printed Library Materials, ANSI Z39.48-1992. For a listing of books published and distributed by Syracuse University Press, visit our Web site at SyracuseUniversityPress.syr.edu. ISBN: 978-0-8156-3284-9 Library of Congress Cataloging-in-Publication Data Lewiecki-Wilson, Cynthia. Disability and mothering : liminal spaces of embodied knowledge / Cynthia Lewiecki-Wilson and Jen Cellio. p. cm. — (Critical perspectives on disability) Includes bibliographical references and index. ISBN 978-0-8156-3284-9 (cloth : alk. paper) 1. Mothers of children with disabilities. 2. Children with disabilities. 3. Women with disabilities. 4. Mothers—Psychology. 5. Motherhood. I. Cellio, Jen. II. Title. HQ759.913.L49 2011 306.874'3087—dc23 2011021857 Manufactured in the United States of America Contents List of Illustrations • ix Acknowledgments • xi Contributors • xiii Introduction On Liminality and Cultural Embodiment Cynthia Lewiecki-Wilson and Jen Cellio • 1 P a r t O n e Reproductive Technologies in the Disciplining of Bodies • 17 1. “Healthy, Accomplished, and Attractive” Visual Representations of “Fitness” in Egg Donors Jen Cellio • 19 2. Negotiating Discourses of Maternal Responsibility, Disability, and Reprogenetics The Role of Experiential Knowledge Felicity Boardman • 34 3. Stalking Grendel’s Mother Biomedicine and the Disciplining of the Deviant Body Terri Beth Miller • 49 4. Uneasy Subjects Disability, Feminism, and Abortion Cynthia Lewiecki-Wilson • 63 vi • Contents P a r t T w o Refusals Contesting Diagnoses and Cultural Scripts • 79 5. “What Does It Matter?” A Meditation on the Social Positioning of Disability and Motherhood Samantha Walsh • 81 6. Reconceiving Motherhood Kristin Lindgren • 88 7. Refusing Diagnosis Mother-Daughter Agency in Confronting Psychiatric Rhetoric Abby Wilkerson • 98 8. Diagnosable Mothering at the Threshold of Disability Julia Miele Rodas • 113 P a r t T h r e e Narrativity and Meaning-Making Rewriting Stories of Mothering and Disability • 127 9. Mothers as Storytellers Linnéa E. Franits • 129 10. Sharing Stories Motherhood, Autism, and Culture Rachel Robertson • 140 11. Nurturing the Nurturer Refl ections on an Experience of Breastfeeding, Disability, and Physical Trauma Heather Kuttai • 156 12. Vulnerable Subjects Motherhood and Disability in Nancy Mairs and Cherríe Moraga Suzanne Bost • 164 Contents • vii P a r t F o u r Reimagining Activism A Politics of Disability and Mothering • 179 13. From Surrender to Activism The Transformation of Disability and Mothering at Kew Cottages, Australia Corinne Manning • 183 14. History Examined One Woman’s Story of Disability and Advocacy Marilyn Dolmage • 203 15. My Mother’s Mental Illness Whitney Jones-Garcia • 210 16. A Schizo-ly Situated Daughter A Mother’s Labor Elizabeth Metcalf • 218 17. Motherhood and Activism in the Dis/Enabling Context of War The Case of Cindy Sheehan Abby M. Dubisar • 222 P a r t F i v e Multiple Identities, Overlapping Borders • 241 18. The Political Is Personal Mothering at the Intersection of Acquired Disability, Gender, and Race Julie E. Maybee • 245 19. “You Gotta Make Aztlán Any Way You Can” Disability in Cherríe Moraga’s Heroes and Saints Julie Avril Minich • 260 20. Intersecting Postcolonial Mothering and Disability A Narrative of an Antiguan Mother and Her Son Denise Cordella Hughes-Tafen • 275 viii • Contents 21. Mothering, Disability, and Poverty Straddling Borders, Shifting Boundaries, and Everyday Resistance Shawn A. Cassiman • 289 Afterword(s) Cynthia Lewiecki-Wilson and Jen Cellio • 302 References • 317 Index • 341
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