Digital Youth with Disabilities The John D. and Catherine T. MacArthur Foundation Reports on Digital Media and Learning A complete series list can be found at the back of the book. Digital Youth with Disabilities Meryl Alper The MIT Press Cambridge, Massachusetts London, England © 2014 Massachusetts Institute of Technology All rights reserved. No part of this book may be reproduced in any form by any electronic or mechanical means (including photocopying, recording, or information storage and retrieval) without permission in writing from the publisher. MIT Press books may be purchased at special quantity discounts for business or sales promotional use. For information, please email [email protected]. This book was set in Stone by the MIT Press. Printed and bound in the United States of America. Library of Congress Cataloging-in-Publication Data Alper, Meryl. Digital youth with disabilities / Meryl Alper. page cm. — (The John D. and Catherine T. MacArthur Foundation reports on digital media and learning) Includes bibliographical references. ISBN 978-0-262-52715-6 (pbk. : alk. paper) 1. Mass media and youth—United States. 2. Digital media—Social aspects—United States. 3. Youth with disabilities—United States. 4. Technology and youth—United States. I. Title. HQ799.2.M352U647 2015 305.9′08083—dc23 2014017230 10 9 8 7 6 5 4 3 2 1 Contents Series Foreword vii Acknowledgments ix 1 Introduction 1 Defining Youth with Disabilities 4 Locating Disability among Digital Youth 8 The Role of Families 10 Summary 13 2 The Trouble with Screen Time 17 Screen Time: A Brief History 19 Arguments against Screen Time 22 Ableism and the Medicalization of Screen Time 29 Summary 36 3 Youth Sociality through and around Media 39 Theoretical Approaches 40 Parents, Caregivers, and Siblings as Social Partners 43 Peers, Social Media, and Social Networking Sites 47 Summary 49 4 Evaluating Children’s Media 51 Differences across Disabilities 52 How Appropriate Is Age Appropriate? 56 Misrepresenting Disability in Children’s Media 57 Inaccessible by Design 58 Summary 61 5 Conclusion 63 Areas for Future Research and Development 63 Summary 66 Appendix: Additional Resources on Digital Media and Youth with Disabilities 69 Notes 71 References 75 Series Foreword The John D. and Catherine T. MacArthur Foundation Reports on Digital Media and Learning, published by the MIT Press in collaboration with the Monterey Institute for Technology and Education (MITE), present findings from current research on how young people learn, play, socialize, and participate in civic life. The reports result from research projects funded by the MacArthur Foundation as part of its fifty million dollar initiative in digital media and learning. They are published openly online (as well as in print) in order to support broad dissemination and stimulate further research in the field. Acknowledgments I would like to thank Ellen Seiter, my dissertation committee member and editor of the John D. and Catherine T. MacArthur Foundation Reports on Digital Media and Learning series, for her guidance and advice on this project. I also appreciate the continued support of the Annenberg School for Communication and Journalism at the University of Southern California, espe- cially my primary doctoral studies adviser, Henry Jenkins. I am extremely grateful for the insights shared with me by the youth and adults with disabilities who I have met over the course of my research as well as their families, friends, teachers, and sup- porters. In addition, I would like to thank the following individ- uals for being invaluable thought partners as I worked through the ideas in this report: Mike Ananny, François Bar, Elizabeth Ellcessor, Beth Haller, Sara Hendren, Paul Lichterman, Melissa Morgenlander, Mara Mills, and Rachel Proffitt. Lastly, I wish to thank Susan Buckley at the MIT Press and the anonymous out- side readers for their feedback on the manuscript.
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