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Digital Infrastructure for the Learning Health System: The Foundation for Continuous Improvement in Health and Health Care: Workshop Series Summary PDF

337 Pages·2011·3.96 MB·English
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This PDF is available from The National Academies Press at http://www.nap.edu/catalog.php?record_id=12912 Digital Infrastructure for the Learning Health System: The Foundation for Continuous Improvement in Health and Health Care: Workshop Series Summary Claudia Grossman, Brian Powers, and J. Michael McGinnis, Rapporteurs ISBN 978-0-309-15416-1 and Editors; Roundtable on Value & Science-Driven Health Care; Institute of Medicine 320 pages 6 x 9 PAPERBACK (2011) Visit the National Academies Press online and register for... Instant access to free PDF downloads of titles from the NATIONAL ACADEMY OF SCIENCES NATIONAL ACADEMY OF ENGINEERING INSTITUTE OF MEDICINE NATIONAL RESEARCH COUNCIL 10% off print titles Custom notifcation of new releases in your feld of interest Special offers and discounts Distribution, posting, or copying of this PDF is strictly prohibited without written permission of the National Academies Press. Unless otherwise indicated, all materials in this PDF are copyrighted by the National Academy of Sciences. Request reprint permission for this book Copyright © National Academy of Sciences. All rights reserved. Digital Infrastructure for the Learning Health System: The Foundation for Continuous Improvement in Health and Health Care: Workshop Series Summary THE LEARNING HEALTH SYSTEM SERIES ROUNDTABLE ON VALUE & SCIENCE-DRIVEN HEALTH CARE DIGITAL INFRASTRUCTURE FOR THE LEARNING HEALTH SYSTEM The Foundation for Continuous Improvement in Health and Health Care Workshop Series Summary Claudia Grossmann, Brian Powers, and J. Michael McGinnis, Rapporteurs and Editors Copyright © National Academy of Sciences. All rights reserved. Digital Infrastructure for the Learning Health System: The Foundation for Continuous Improvement in Health and Health Care: Workshop Series Summary THE NATIONAL ACADEMIES PRESS 500 Fifth Street, N.W. Washington, DC 20001 NOTICE: The project that is the subject of this report was approved by the Govern- ing Board of the National Research Council, whose members are drawn from the councils of the National Academy of Sciences, the National Academy of Engineer- ing, and the Institute of Medicine. This project was supported by the Offce of the National Coordinator for Health Information Technology. Any opinions, fndings, conclusions, or recommendations expressed in this publication are those of the author(s) and do not necessarily refect the view of the organizations or agencies that provided support for this project. International Standard Book Number-13: 978-0-309-15416-1 International Standard Book Number-10: 0-309-15416-2 Additional copies of this report are available from the National Academies Press, 500 Fifth Street, N.W., Lockbox 285, Washington, DC 20055; (800) 624-6242 or (202) 334-3313 (in the Washington metropolitan area); Internet, http://www.nap. edu. For more information about the Institute of Medicine, visit the IOM home page at: www.iom.edu. Copyright 2011 by the National Academy of Sciences. All rights reserved. Printed in the United States of America The serpent has been a symbol of long life, healing, and knowledge among almost all cultures and religions since the beginning of recorded history. The serpent a dopted as a logotype by the Institute of Medicine is a relief carving from ancient Greece, now held by the Staatliche Museen in Berlin. Suggested citation: IOM (Institute of Medicine). 2011. Digital Infrastructure for the Learning Health System: The Foundation for Continuous Improvement in Health and Health Care: Workshop Series Summary. Washington, DC: The National Academies Press. Copyright © National Academy of Sciences. All rights reserved. Digital Infrastructure for the Learning Health System: The Foundation for Continuous Improvement in Health and Health Care: Workshop Series Summary “Knowing is not enough; we must apply. Willing is not enough; we must do.” —Goethe Advising the Nation. Improving Health. Copyright © National Academy of Sciences. All rights reserved. Digital Infrastructure for the Learning Health System: The Foundation for Continuous Improvement in Health and Health Care: Workshop Series Summary The National Academy of Sciences is a private, nonproft, self-perpetuating society of distinguished scholars engaged in scientifc and engineering research, dedicated to the furtherance of science and technology and to their use for the general welfare. Upon the authority of the charter granted to it by the Congress in 1863, the Acad- emy has a mandate that requires it to advise the federal government on scientifc and technical matters. Dr. Ralph J. Cicerone is president of the National Academy of Sciences. The National Academy of Engineering was established in 1964, under the charter of the National Academy of Sciences, as a parallel organization of outstanding en- gineers. It is autonomous in its administration and in the selection of its members, sharing with the National Academy of Sciences the responsibility for advising the federal government. The National Academy of Engineering also sponsors engineer- ing programs aimed at meeting national needs, encourages education and research, and recognizes the superior achievements of engineers. Dr. Charles M. Vest is presi- dent of the National Academy of Engineering. The Institute of Medicine was established in 1970 by the National Academy of Sciences to secure the services of eminent members of appropriate professions in the examination of policy matters pertaining to the health of the public. The Insti- tute acts under the responsibility given to the National Academy of Sciences by its congressional charter to be an adviser to the federal government and, upon its own initiative, to identify issues of medical care, research, and education. Dr. Harvey V. Fineberg is president of the Institute of Medicine. The National Research Council was organized by the National Academy of Sci- ences in 1916 to associate the broad community of science and technology with the Academy’s purposes of furthering knowledge and advising the federal government. Functioning in accordance with general policies determined by the Academy, the Council has become the principal operating agency of both the National Academy of Sciences and the National Academy of Engineering in providing services to the government, the public, and the scientifc and engineering communities. The Coun- cil is administered jointly by both Academies and the Institute of Medicine. Dr. Ralph J. Cicerone and Dr. Charles M. Vest are chair and vice chair, respectively, of the National Research Council. www.national-academies.org Copyright © National Academy of Sciences. All rights reserved. Digital Infrastructure for the Learning Health System: The Foundation for Continuous Improvement in Health and Health Care: Workshop Series Summary 1 ROUNDTABLE ON VALUE & SCIENCE-DRIVEN HEALTH CARE Mark B. McClellan (Chair, 2011-Present), Director, Engelberg Center for Healthcare Reform, The Brookings Institution Denis A. Cortese (Chair, 2006-2011), Emeritus President and Chief Executive Offcer, Mayo Clinic; Foundation Professor, ASU Donald Berwick, Administrator, Centers for Medicare & Medicaid Services (ex offcio) Bruce G. Bodaken, Chairman, President, and Chief Executive Offcer, Blue Shield of California David R. Brennan, Chief Executive Offcer, AstraZeneca PLC Paul Chew, Chief Science Offcer and CMO, sanof-aventis U.S., Inc. Carolyn M. Clancy, Director, Agency for Healthcare Research and Quality (ex offcio) Michael J. Critelli, Chief Executive Offcer, Dossia Helen Darling, President, National Business Group on Health Thomas R. Frieden, Director, Centers for Disease Control and Prevention (designee: Chesley Richards) (ex offcio) Patricia A. Gabow, Chief Executive Offcer, Denver Health & Hospital Authority Atul Gawande, General and Endocrine Surgeon, Brigham and Women’s Hospital Gary L. Gottlieb, President and CEO, Partners HealthCare System James A. Guest, President, Consumers Union George C. Halvorson, Chairman and Chief Executive Offcer, Kaiser Permanente Margaret A. Hamburg, Commissioner, Food and Drug Administration (ex offcio) James Heywood, Chairman, PatientsLikeMe Carmen Hooker Odom, President, Milbank Memorial Fund Ardis Hoven, Immediate Past Board Chair, American Medical Association Brent James, Chief Quality Offcer and Executive Director, Institute for Health Care Delivery Research, Intermountain Healthcare Michael M. E. Johns, Chancellor, Emory University Craig Jones, Director, Vermont Blueprint for Health Cato T. Laurencin, Director, Regenerative Engineering, University of Connecticut Stephen P. MacMillan, President and Chief Executive Offcer, Stryker 1 Formerly the Roundtable on Evidence-Based Medicine. Institute of Medicine forums and roundtables do not issue, review, or approve individual documents. The responsibility for the published workshop summary rests with the workshop rapporteur and the institution. v Copyright © National Academy of Sciences. All rights reserved. Digital Infrastructure for the Learning Health System: The Foundation for Continuous Improvement in Health and Health Care: Workshop Series Summary Sheri S. McCoy, Vice Chair, Executive Committee, Johnson & Johnson Farzad Mostashari, National Coordinator, Offce of the National Coordinator for Health IT (ex offcio) Elizabeth G. Nabel, President, Brigham and Women’s Hospital Mary D. Naylor, Professor and Director, NewCourtland Center, University of Pennsylvania Peter Neupert, Corporate Vice President, Health Solutions Group, Microsoft Corporation William D. Novelli, Former CEO, AARP; Professor, Georgetown University Jonathan B. Perlin, President, Clinical and Physician Services (Health), HCA, Inc. Robert A. Petzel, Under Secretary (Health), Department of Veterans Affairs (ex offcio) Richard Platt, Professor and Chair, Population Medicine, Harvard Medical School John C. Rother, Group Executive Offcer, AARP John W. Rowe, Professor, Mailman School of Public Health, Columbia University Susan Shurin, Acting Director, National Heart, Lung, and Blood Institute (ex offcio) Mark D. Smith, President and CEO, California HealthCare Foundation Glenn D. Steele, President and Chief Executive Offcer, Geisinger Health System Reed D. Tuckson, Executive VP and Chief of Medical Affairs, UnitedHealth Group Frances M. Visco, President, National Breast Cancer Coalition Jonathan Woodson, Assistant Secretary for Health Affairs (Acting), Department of Defense (designee: Michael Dinneen) (ex offcio) 2 Workshop Planning Committee Laura L. Adams (Chair), Rhode Island Quality Institute Kenneth Buetow, National Institutes of Health Janet Corrigan, National Quality Forum Gregory Downing, Health and Human Services Christopher Greer, Offce of Science and Technology Policy John Halamka, Beth Israel Deaconness Medical Center Rebecca Kush, Clinical Data Interchange Standards Consortium Martin LaVenture, Minnesota Department of Health 2 Institute of Medicine planning committees are solely responsible for organizing the workshop, identifying topics, and choosing speakers. The responsibility for the published workshop summary rests with the workshop rapporteurs and the institution. vi Copyright © National Academy of Sciences. All rights reserved. Digital Infrastructure for the Learning Health System: The Foundation for Continuous Improvement in Health and Health Care: Workshop Series Summary Kenneth Mandl, Children’s Hospital Boston Daniel Masys, Vanderbilt University David McCallie, Cerner Corporation Anthony Rodgers, Centers for Medicare & Medicaid Services David Ross, Public Health Informatics Institute Edward Shortliffe, American Medical Informatics Association Jonathan Silverstein, University of Chicago (former, now NorthShore University Health System) James Walker, Geisinger Health System Jon White, Agency for Healthcare Research and Quality Roundtable Staff Neha Agarwal, Intern (through August 2010) Christie Bell, Financial Associate Malcolm Biles, Program Assistant (through October 2010) Greta Gorman, Editorial Projects Manager Claudia Grossmann, Program Offcer J. Michael McGinnis, Senior Scholar and Executive Director Brian Powers, Senior Program Assistant Elizabeth Rach, Research Assistant (through November 2010) Valerie Rohrbach, Program Assistant Julia Sanders, Program Assistant Robert Saunders, Program Offcer Leigh Stuckhardt, Program Associate Kate Vasconi, Senior Program Assistant (through January 2011) Isabelle Von Kohorn, Program Offcer vii Copyright © National Academy of Sciences. All rights reserved. Digital Infrastructure for the Learning Health System: The Foundation for Continuous Improvement in Health and Health Care: Workshop Series Summary Copyright © National Academy of Sciences. All rights reserved. Digital Infrastructure for the Learning Health System: The Foundation for Continuous Improvement in Health and Health Care: Workshop Series Summary Reviewers This report has been reviewed in draft form by individuals chosen for their diverse perspectives and technical expertise, in accordance with procedures approved by the National Research Council’s Report Review Committee. The purpose of this independent review is to provide candid and critical comments that will assist the institution in making its published report as sound as possible and to ensure that the report meets institutional standards for objectivity, evidence, and responsiveness to the study charge. The review comments and draft manuscript remain confdential to protect the integrity of the deliberative process. We wish to thank the following individuals for their review of this report: Robert Califf, Duke University Art Davidson, Denver Public Health Shelley A. Hearne, The Pew Charitable Trusts Carl Kesselman, University of Southern California Kristen Rosati, Coppersmith Schermer & Brockelman PLC Although the reviewers listed above have provided many constructive comments and suggestions, they were not asked to endorse the fnal draft of the report before its release. The review of this report was overseen by Christopher Forrest, Children’s Hospital of Philadelphia. Appointed by the National Research Council and the Institute of Medicine, he was respon- sible for making certain that an independent examination of this report was carried out in accordance with institutional procedures and that all review comments were carefully considered. Responsibility for the fnal content of this report rests entirely with the editors and the institution. ix Copyright © National Academy of Sciences. All rights reserved.

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