DIFFERENCESINEDUCATIONALPROFESSIONALS’KNOWLEDGEAND DEVELOPMENTOFKNOWLEDGERELATINGTOTHESUPPLEMENTAL SECURITYINCOME(SSI)PROGRAM By CHRISTYHOLTHAUSSTUART ADISSERTATIONPRESENTEDTOTHEGRADUATESCHOOLOFTHE UNIVERSITYOFFLORIDAINPARTIALFULFILLMENTOFTHE REQUIREMENTSFORTHEDEGREEOFDOCTOROFEDUCATION UNIVERSITYOFFLORIDA 2003 ACKNOWLEDGMENTS Theprocessofdoctoraltraining,doctoralcandidacy,anddefendingthisresearch projecthasencompassedmanyemotions.Ithaschallengedmyabilitytopersevere.1 mustbeginbythankingmyfamily.Mymotherhasproventomeinmorewaysthanone whatittakestobecourageousandtolivelifewithdignityandgrace.1thankherfor alwaysbeingoneofmybiggestfans.Myfatherhasalwaysinstilledinmethateducation ismyfoundationtosuccess.Forhisbeliefinme,1mustthankhim.Inadditiontomy parents,AldenandBethStuarthavegivenmesuchstrengthandsupportduringmy doctoraltraining.Theirappreciationandrespectforeducationhasalwaysbeenasource ofstrengthformewhileIcompletedmystudy. IwouldliketothankStephanieLevine,whosecourageanddrivetoleada beautifullifedespitethechallengesofherdisabilityhavealwaysbeenaninspiration.Itis becauseofherthatIpursuedspecialeducationandstrivetocontributetothelivesof youngadultswithdisabilities.Ithankherforherbeautifulsoulandfriendship.Special thanksgotoDr.MeredithDelk-Pruiettforherwisdom,support,andbeliefthatI,too, couldsuccessfullydefendmydissertation.Itreasureherfriendship. IwouldliketothankDr.DavidMillerandDr.PaulSindelarforservingonmy doctoralcommittee.Manythanksgotomychair.Dr.StuartSchwartz.Hispresenceearly inmydoctoralprogramwaslife-changing.Iwillalwaysbegratefulforhissteadfastfaith inmethatI,too,wouldsuccessfullyfinish.Additionalthanksgotomycochair.Dr. DianeRyndak.Iwillalwaysbethankfulforherunyieldingpushtogetthebestoutofme 11 andtofeedmypassion.Iwillalwaysfeelfortunatetohavehadtheopportimitytowork withsuchwonderfulmentors.Inadditiontomychairandcochair,1wouldliketothank Dr.BillHalloran,whoseexpertise,support,andfaiththat1wouldsucceedandmakea contributiontothepublicpolicyfieldhasmeantsomuchtome.1thankhimforhis friendshipandsupportandhopethatourfriendshipwillbelifelong.1couldnothave finishedwithouttheexpertiseofDr.HughBerry.Asidefromhisunderstandingof statistics,heprovidedmewiththefinestfederalinternship.Thatsummertruly“changed mylife”andmademeenvisionmyprofessionalpath. Finally,1mustthankmyhusband,Mark,whohasgivenmesuchunconditional love,support,andencouragementduringthemostchallengingofdays.Hegaveme confidencewhendefendingmydissertationseemedlike“theimpossibledream”and1 thankmyson,Ryan,whohasshownmeinmanydifferentwayswhatitfeelsliketolove beyondreason.Hisexistenceneverceasestoamazeandhumbleme.Lastly,Iwouldlike tothankSara,mysweetangelinHeaven,who1knowisproudofhermommy.Ithinkof hereveryday. 1 TABLEOFCONTENTS Page ACKNOWLEDGMENTS ii ABSTRACT vii CHAPTER INTRODUCTION 1 1 IntroductiontotheProblem:PostschoolOutcomesHaveNotImproved 1 LegislativeInvolvement 2 SecondaryTransitionProgramsandPractices 4 FederalFundingInitiatives 6 PostschoolOutcomes 7 SectionSummary 9 StatementoftheProblem 10 PrimaryResearchQuestions 11 RationalefortheStudy 12 DefinitionofTerms 13 DelimitationsoftheStudy 15 LimitationsoftheStudy 15 ChapterSummary' 16 2 REVIEWOFTHELITERATURE 18 Introduction 18 SelectionofRelevantLiterature 19 SecondaryTransitionProgramsforSecondary-AgeStudentswith Disabilities 19 LegislativeMandatesforStudentswithDisabilities 19 OverviewofSecondaryTransitionProgrammingModels 24 PostschoolOutcomesforStudentswithSignificantDisabilities 25 ComponentsofTransitionProgramsforSecondary-AgeStudents withSignificantDisabilities 28 HistoricalOverviewofFederalCashAssistancePrograms 30 RoleofVocationalRehabilitationandWorkersCompensation Programs 3 IV SocialSecurityActandtheEstablishmentoftheSocialSecurity Administration 33 SupplementalSecurityIncomeProgramandItsEffectson Secondary-AgeStudentswithDisabilities 35 ImpactoftheTicketWorkandWorkIncentiveImprovementsAct 41 EffectivePracticesoftheHomeCommunity-BasedWaiver 42 HowEducationalProfessionalsDevelopTheirKnowledge 45 Summary 49 3 METHODSANDPROCEDURES 52 Introduction 52 ResearchQuestions 52 Subjects 53 SubjectIdentification 53 ParticipationintheStudy 58 AssignmentofEducationalProfessionalstoGroups 58 ResearchInstrumentation 59 InstrumentDevelopment 60 FieldTesting 61 CodingofSurveyInstruments 61 ExpertValidation 62 ResearchProcedures 62 TreatmentofData 63 4 RESULTS 66 DataEntryandCleaning 66 SurveyResponseRate 66 DemographicInformationonGroupsofEducationalProfessionals 69 GenderofParticipants 69 RaceofParticipants 70 AgeofParticipants 71 ParticipantsByAverageHouseholdEarningsofSchoolDistrict 71 ParticipantsBySchoolDistrictDemography 73 ParticipantsByProfessionalRole 73 ParticipantsByYearsofEmploymentinSpecialEducationand CurrentRole 75 ParticipantsByEducationLevel 75 ParticipantsByNumberofStudentsDirectlyorIndirectlyServed 77 FindingsforResearchQuestions 80 Summary 89 V 5 DISCUSSIONANDIMPLICATIONS 91 GeneralReviewoftheStudy 91 ReviewofthePurposeoftheStudy 91 ReviewoftheResearchQuestions 94 ReviewoftheMethodology 94 ReviewoftheResearchFindings 95 DiscussionoftheFindings 99 ImplicationsoftheStudy 104 SummaryoftheLimitationsoftheStudy 107 ConclusionsandRecommendationsforFutureResearch 109 APPENDIX A MODELSOFTRANSITIONPROGRAMS 113 B TAXONOMYFORTRANSITIONPROGRAMMING 118 C SELECTIONOFBESTPRACTICES 120 D WRITTENREQUESTFORPARTICIPATIONOFDISTRICT TRANSITIONCONTACTPERSON 121 E INFORMEDCONSENT/COVERLETTERFOROTHER DISTRICT-LEVELPROFESSIONALS 124 F INFORMEDCONSENT/COVERLETTERFORSCHOOL PRINCIPALS 126 G INFORMEDCONSENT/COVERLETTERFORDIRECTSERVICE PROFESSIONALS 128 H SURVEYINSTRUMENT 130 I SURVEYMATRIX 139 J LISTOFREVIEWERSANDREVIEWERVALIDATIONPROBES 144 K EXPERTVALIDATIONQUESTIONSANDPROBES 145 REFERENCES 147 BIOGRAPHICALSKETCH 159 VI AbstractofDissertationPresentedtotheGraduateSchooloftheUniversityofFlorida inPartialFulfillmentoftheRequirementsforthe DegreeofDoctorofEducation STUDYOFTHEDIFFERENCESINEDUCATIONALPROFESSIONALS’ KNOWLEDGEANDDEVELOPMENTOFKNOWLEDGERELATINGTOTHE SUPPLEMENTALSECURITYINCOME(SSI)PROGRAM By ChristyHolthausStuart August2003 Chair: StuartE.Schwartz Cochair:DianeLeaRyndak MajorDepartment:SpecialEducation Effectivetransitionplanningthatleadstoasuceessfiiltransitiontopostschool environmentsforsecondary-agestudentswithsignificantdisabilitiesisofutmost importance.Forsecondary-agestudentswithsignificantdisabilities,accessingthe supportandservices(e.g.,personaleareattendant,specializedtransportationneeds, communicationdevice)necessaryforasuccessfultransitionisespeciallychallenging. Becauseoftheseneeds,secondary-agestudentswithsignificantdisabilitiesoften areexeludedfromtransitionprogramsthatfocusonemployment,community experiences,andindependentliving.Exclusionfromappropriatetransitionprograms oftenleavesecondary-agestudentswithsignificantdisabilitiesfacingableakfuture.One waytoachievethisisthroughenrollmentintheSupplementalSecurityIncome(SSI) programduringthesecondaryschoolyears.Untilnow,investigatorshaveneglectedto focusresearchonwhateducationalprofessionalswhoservesecondary-agestudentswith vii significantdisabilitiesknowabouttheSSIprogramandhowtheydeveloptheir knowledge.Therefore,themajorassumptionofthestudywasthatinformationabout educationalprofessionals’knowledgerelatedtotheSSIprogramforsecondary-age studentswithsignificantdisabilities,andhowthatknowledgewasdeveloped,would allowthefieldtoimprovetheknowledgeoffutureeducationalprofessionalsby modifyingpersonnelpreparationefforts.Asampleof71educationalprofessionalswho directlyorindirectlyservesecondary-agestudentswithsignificantdisabilitiesfromthe stateofFloridarespondedtomailsurveys. Resultsincludeddescriptiveanalysesforthreegroupsofeducational professionals(districtprofessionals,schoolprincipals,schoolprofessionals)andanalysis ofvariancetoexploredifferencesbetweengroupsofeducationalprofessionalsandtheir responsestosurveyitems.Alargenumberofparticipantsinthisstudydidnothave sufficientknowledgeoftheSSIprogram.Knowledgewasdevelopedinthisstudybytwo methods(workshop/inservice,accesstoInternet)outoftheoptionsprovided.Therewere differencesdetectedfromgroupsofeducationalprofessionalsthathadsomeknowledge oftheSSIprogramanddevelopedtheirknowledgethroughaworkshop/inservice.There werenodifferencesamonggroupsofeducationalprofessionalswhohadsomeknowledge anddevelopedtheirknowledgethroughaccesstoInternet.Implicationsand recommendationsforfutureresearcharemade. Vlll CHAPTER 1 INTRODUCTIONTOTHEPROBLEM Thischapterisdividedintosevensections.Thefirstmainsectionincludesthe introductiontotheproblemthatpostschooloutcomesforindividualswithsignificant disabilitieshavenotimprovedoverthepastdecade.Thisinitialmainsectionis subdividedinto(a)legislativeinvolvement,(b)secondarytransitionprogramsand practices,(c)federalfundinginitiatives,(d)postschooioutcomes,and(e)asection summary.Thesecondmainsectionisthestatementoftheproblemandthethirdmain sectionstatestheprimaryresearchquestionsforthisstudy.Thefourthmainsectionisthe rationaleofthestudyandthefifthsectiondefinestermsusedthroughoutthestudy.The finalthreemainsectionsdescribethedelimitationsandlimitationsandthensummarize thechapter. IntroductiontotheProblem: PostschoolOutcomesHaveNotImproved Inthepastdecadeanumberofscholarshavediscussedtheneedtoimpact positivelypostschooloutcomesforstudentswithdisabilities(Gartner&Lipsky,1987; Reynolds&Wang,1985;Sailor,1991;Will,1986),especiallythosewiththemost significantdisabilities(Brown,2000;Bruininks,McGrew,&Johnson,1995;Chadsey- Rusch&Heal,1995;Chadsey-Rusch&Rusch,1996;Hughes,Rusch&Wood,1989; Ward&Halloran,1989).Anemphasisonoutcomesisveryimportantforstudentswith disabilitiesbecausemanyofthemleaveschoolunemployed,arelivingwithparents,and arenotverysatisfiedwiththeirlivesandnetworkofsupport(Chadsey-Rusch&Rusch, 1 2 1996).Thesescholarssuggestedthatoutcomescanbeimprovedthroughprogramsand practicesthatfacilitatetheinclusionofstudentswithdisabilitiesintypicalschooland communityenvironmentsduringtheirsecondarytransitionyearsandthroughenrollment infederallyfundedinitiativesthatsupporttransitiontoadultlife.Infact,manyeffective practices(i.e.,community-basedinstructionandemploymentpreparation)havebeen identifiedasbestpracticesforprovidingsecondarytransitionactivitiestoyouthwith disabilities(Hasazi,2000;Kohler,1998;Lehman,Hyatt,&Sample,1997;Steere,1993; Laymans,Corbey,&Dodge,1995;Williams&O’Leary,2001).Inspiteofthese practices,postschooloutcomesforstudentswithsignificantdisabilitieshavenot improved.Manystudentsarestillleavingschoolunemployed,lackingcommunityliving opportunities,andexperiencingsocialisolation(Williams&O’Leary,2001). Thefollowingsectionsdescribe(a)theinvolvementofthefederalgovernment throughlegislationthataddressestransition;(b)secondarytransitionprogramsand practices;(c)federalfundinginitiativesthatassistindividualsintheareaoftransitionto adultlife,employment,andpostschooladultliving;and(d)postschooloutcomesfor individualswithsignificantdisabilities.Followingtheseisasectionsummary.These sectionsprovideaframeworkforthelegislationthathasshapedhowsecondarytransition programsareimplementedaswellasaframeworkforconceptualizingdesiredoutcomes forindividualswithdisabilitiesoncetheyexitschool. LegislativeInvolvement Since1990,theIndividualswithDisabilitiesEducationAct(IDEA)requiredthat transitionobjectivesbedevelopedintheIndividualizedEducationProgram(lEP)forall adolescentsreceivingspecialeducationservices.Basedontheindividual’spreferences