Young People Living with Cancer: Implications for Policy and Practice PDF
Preview Young People Living with Cancer: Implications for Policy and Practice
Young people...with cancer pb 17/1/07 9:16 am Page 1 Young People Living with Cancer “This is an absolute ‘must read’ for all those who care for young people with cancer, including the patients themselves, parents, doctors, nurses, psychologists and all of the caring professions.” Profesor Tim Eden, Young People Christie NHS Trust, Manchester, UK “This book should be compulsory reading for all healthcare professionals who work with young people with cancer and especialy for al Living with Cancer professionals who may, at some stage, meet a solitary young person with cancer.” Sue Morgan, St James's University Hospital, Leeds, UK ■ Which issues are of most concern to young adults living with cancer? ■ How can a supportive care setting be established? ■ How can we offer the optimum age appropriate care? This book uses original data gathered from in- depth research to present an account of what it is like to be an adolescent or young adult living with cancer. These first hand accounts contribute to the insight necessary to the provision of age appropriate quality care. The implications of these research findings for policy and practice are also related to NICE Guidance (2005). Though primarily based on a thematic analysis of interview data, the book also provides contextual and statistical information on the current incidence of cancer in young adults. Young People Living with Cancer is essential reading for health professionals engaged in the care of young adults with cancer, support workers in the health services, young adults with cancer, their families, academics and students. The text offers a contribution to policy and practice that may enhance compliance and consequently improve outcomes. Implications Anne Grinyer is a medical sociologist based in the Institute for Health Research and the Innovation for Policy and Enterprise Unit, both at Lancaster University, UK. She is author of Cancer in Young Adults and Practice (Open University Press, 2002), based on the accounts of parents caring for a young adult son or daughter with cancer. Cover dileusitgrant:i odne:l Dnoarnte S (aLveaegdes) Ltd Anne Grinyer www.openup.co.uk Young People Living with Cancer Grinyer Young people living with cancer Young people living with cancer Implications for policy and practice Anne Grinyer Open University Press Open University Press McGraw-Hill Education McGraw-Hill House Shoppenhangers Road Maidenhead Berkshire England SL6 2QL email: This book is dedicated to the memory of George whose life, illness and death have touched the lives of so many people, and to his parents Helen and Geoff. It is also for all the young people who shared part of their journey with me. Now is not a good time. (Steven, diagnosed at 18 with Hodgkin’s disease) Contents Participants ix Foreword xiii Acknowledgements xv 1 Setting the scene 1 2 Diagnosis 9 3 Settings of care 27 4 Loss of independence 57 5 Disruption of the life trajectory: the impact on ‘normality’, life plans and friendships 75 6 The effect of the illness on physical appearance 98 7 Sexuality and fertility 114 8 The implications for policy and practice 134 Appendix I Methods 154 Appendix II Extract from A. Grinyer (2002a) Cancer in Young Adults: Through Parents’ Eyes 164 References 171 Index 177 Participants The following details are for easy reference for readers. Further information on how each participant was recruited is included in Appendix I, Methods. Young adults and those with them at the interview Adrian (and his partner Cindy’s mother) A scaffolder diagnosed at 18 with testicular cancer, living with girlfriend Cindy and her parents. Aidan (and his mother) At school when diagnosed at 15 with osteosarcoma in his pelvis. Charlotte (and her grandmother) At college when diagnosed at 17 with a liver tumour. Craig Diagnosed at 18 with testicular cancer. Dawn A hairdresser diagnosed at 20 with acute lymphoblastic leukaemia. Devika At school when diagnosed with acute lymphoblastic leukaemia. Donovan At college doing a joinery course when diagnosed with osteosarcoma at 17. Emma (and her partner Gary and children Brooklyn and Chloe) A full-time mother when diagnosed at 21 with Hodgkin’s lymphoma. Gemma A nurse on an orthopaedic ward, 23 when diagnosed with Hodgkin’s lymphoma. Hoody (and his mother and father) At school when diagnosed with osteosarcoma at the age of 16.
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