University of North Texas Health Science Center UNTHSC Scholarly Repository Teses and Dissertations 12-1-2014 Utilization and Access to Healthcare Services Among People Living with Spinal Cord Injuries in the Community Shayan Noorani B.A. University of North Texas Health Science Center at Fort Worth, UTILIZATION AND ACCESS TO HEALTHCARE SERVICES AMONG PEOPLE LIVING WITH SPINAL CORD INJURIES IN THE COMMUNITY Shayan Noorani, B.A. APPROVED: __________________________________________________________ Major Professor __________________________________________________________ Committee Member __________________________________________________________ Committee Member __________________________________________________________ Committee Member __________________________________________________________ Department Chair __________________________________________________________ Dean, Graduate School of Biomedical Sciences i UTILIZATION AND ACCESS TO HEALTHCARE SERVICES AMONG PEOPLE LIVING WITH SPINAL CORD INJURIES IN THE COMMUNITY INTERNSHIP PRACTICUM REPORT Presented to the Graduate Council of the Graduate School of Biomedical Sciences University of North Texas Health Science Center at Forth Worth In Partial Fulfillment of the Requirements For the Degree of MASTER OF SCIENCE IN CLINICAL RESEARCH MANAGEMENT By Shayan Noorani, B.A. Fort Worth, Texas November 2014 ii ACKNOWLEDGMENTS Dr. Simon Driver, PhD Director of Research Baylor Institute for Rehabilitation Samantha Cleveland, BS Research Assistant Baylor Research Institute TABLE OF CONTENTS Page SIGNATURE PAGE….………………………………………………………………….i TITLE PAGE……………….…………………………………………………………….ii ACKNOWLEDMENTS…………………………………………………………………iii TABLE OF CONTENTS…………………………………………………………….......v LIST OF TABLES……………………………………………………………………….vii LIST OF ILLUSTRATIONS…………………………………………………………….ix Chapter I. INTRODUCTION ……………………………………………………………...1 II. INTERNSHIP SUBJECT………………………………………………………3 Background……………….……………………………………………….3 Specific Aims…………………………………………………………….13 Significance of the problem…...…………………………………............14 Research Design and Methodology…………………………………..….14 Results……………………………………………………………...…….18 Discussion………………………………………………………………..23 Conclusions………………………………………………………………28 Limitations……………………………………………………………….30 II. INTERNSHIP EXPERIENCE………………………………………………..32 General Internship Experience…………………………………………...32 APPENDIX…………………………………………………………………………..…..34 v A. Daily Journal…………………………………………………………...…….34 B. Figures and Tables…………………………………………………………...86 C. Survey………………………………………………………………………..99 D. Table of Abbreviations……………………………………………………..108 REFERENCES…………………………………………………………………………109 vi LIST OF TABLES PAGE Table 1: Summary of Demographic Characteristics…..………………………….10 Table 2: Summary of Spinal Cord Injury Information….………………………...11 Table 3: Doctor Visits in the Last 12 Months ...…………….…….......…….……87 Table 4: Accessibility of Doctor’s Offices and/or Equipment…….…..………….87 Table 5: Physician Knowledge and Communication……….…………………….89 Table 6: Emergency Room Visits…………….…………………...……………...92 Table 7: Preventative Care………………………...…….……………....………..92 Table 8: Summary of Demographic and Injury Related Characteristics for Patients with an SCI/Rehab Visit vs. Patients without SCI/Rehab Visits………………………………………………………………….…93 Table 9: Healthcare Utilization and Preventative Care for Patients with a SCI/Rehab Visit vs. Patients without SCI/Rehab Visits…………………94 vii Table 10: Summary of Demographic and Injury Related Characteristics for Patients with an ER Visit vs. Patients without ER Visit in the Past 12 Months………………………………………………………………...…95 Table 11: Healthcare Utilization and Preventative Care for Patients with an ER Visit vs. Patients without ER Visit in the Past 12 Months…………………………………………………………...………95 viii LIST OF ILLUSTRATIONS PAGE Figure 1: Accessibility of Primary Care, SCI/Rehab, and Specialty Doctor’s Office.………………...…………………………………...……………………………..89 Figure 2 (a-c): Physician Knowledge and Communication. ……………….…………...90 ix