UNTYING THE KNOTS: FURTHERING DECENT NEW EMPLOYMENT AFTER THE ADVENT OF WORK-LIMITING DISABILITY CAMERON CRAWFORD A DISSERTATION SUBMITTED TO THE FACULTY OF GRADUATE STUDIES IN PARTIAL FULFILLMENT OF THE REQUIREMENTS FOR THE DEGREE OF DOCTOR OF PHILOSOPHY GRADUATE PROGRAM IN CRITICAL DISABILITY STUDIES YORK UNIVERSITY TORONTO, ONTARIO April 2016 © Cameron Crawford, 2016 Abstract For many years, people with disabilities have been about two-thirds as likely as people without disabilities to be employed in Canada. The employment rate of some people with disabilities has persistently hovered at around one-third the rate of non-disabled people. Financial estimates of the cost of this problem in Canada differ considerably, but are on the order of many billions of dollars annually. The human costs are also major. This issue is enmeshed in a tangle of theories about disablement that can point in very different directions in terms of understanding the nature of the issue, some solutions that would address it, and the policy and program implications. For example, there is the interplay between disability and people’s age, gender, visible minority and Aboriginal person status. Different rates of employment flow from whether people experience impairment effects in the areas of mobility, seeing, hearing, cognition or emotional well-being; many people contend with impairment effects across several functional domains. People’s geographic locations and the vagaries of regional economies need to be factored into the picture, as do the effects of social assistance and other income support programs. People’s employment history, their needs for job accommodations, and whether those needs have been addressed, are crucial considerations that can vary according to type of disability, the nature of the work to be performed, and employer attitudes, values and fiscal capacity. People’s educational attainment and job-specific skills training also have a major bearing on employment trajectories. This research begins to untie the knot that binds these factors into an often-confusing conceptual, policy and program tangle. It identifies some of the key factors that most strongly predict whether people are likely to obtain “decent work” with ii their first employer or with a new employer after the advent of work-limiting disability. An aim of the research is to suggest areas for focusing policy and program efforts in order to maximize positive employment outcomes for such individuals, employers and the broader employment ‘system’. The research draws extensively from scholarly and administrative literature and from Statistics Canada’s Canadian Survey on Disability of 2012. iii Acknowledgements I am very fortunate to have been able to complete this lengthy project. I owe many people thanks for their support along the way. In particular, I would like thank my Supervisor, Isabel Killoran, who patiently steered this project through sometimes challenging waters and who provided unfailing encouragement and words of support. To my other Supervisory Committee members – Thomas Klassen and Robert Brown – I am indebted for wise and practical counsel and for helping to shape the final version of this document. I’d also like to thank Dennis Raphael and Geoffrey Reaume for supervising my comprehensive examinations and Nancy Halifax, who is the Director of the Critical Disability Studies Program at York and whose leadership has been invaluable. As well, without the most valuable work of the Statistics Canada Analysts with whom I’ve had the good fortune to work at the Research Data Centre in Toronto, the reams of statistical data that this research has drawn upon would never have seen the light of day; in particular, thanks are due to Angela Principe but also to Dave Haans and Carmina Ng. Over the years I have had many opportunities to listen to and reflect upon the experiences of people with disabilities. Marcia Rioux has been instrumental in creating many of those opportunities and has participated in a great many of the discussions, for which I am most fortunate and thankful. I also owe Laurie Beachell, Marie Ryan, Al Simpson, Jim Derksen and many others involved with the disabled people’s movement in Canada a huge debt of gratitude for the confidence they have placed in me and my work. Michael Bach, has proved not only an insightful long-time colleague and friend, but a most patient and flexible employer as my PhD program unfolded. I’m also thankful for the kind words of encouragement of Doris Rajan, Diane iv Richler, Gordon Porter, Melanie Panitch, Kathryn Church and Miriam Ticoll, who had more than a little to do with my “biting the bullet” and moving forward with the program. Sheila Jennings provided valuable insights, probing questions and helpful suggestions along the way. Lynda Myler helped bring greater clarity to some of my ways of stating things and Simon Bild-Enkin provided most capable and efficient editorial assistance. Adele Furrie has remained a vastly knowledgeable colleague and friend, for whose insights and support I am most appreciative. I owe special gratitude to Heather and my children Clara, Jordan, Emily, Andrew, Rachel and Julia. They have generously supported my pursuit of this research and other projects over the years, even when it has not been easy for them to do so. My father has been a warmly encouraging support since the outset of this project. And I have been very fortunate for the kindly and good-humoured reminders of my friend Liam Carey to try to keep things simple, put first things first and trust that all will be well. v TABLE OF CONTENTS Abstract ii Acknowledgements iv Table of contents vi List of Tables viii List of Figures x Chapter One: Introduction and structure 1 Chapter Two: Views from the literature 15 A. Marginalization of disabled people from paid employment 16 B. General socio-demographic characteristics 20 C. Disability-specific characteristics 25 D. Intersectionality 31 E. Disability-based discrimination in employment 32 F. Employers’ concerns and stereotypes 34 G. Potential benefits for employers and workplaces 43 H. Summary 47 Chapter Three: Issues often overlooked 50 A. Disability and the experience of limitations at work 50 B. Disability and the quality of work 53 C. The quality of accommodations and other supports for employment 57 Chapter IV: Towards an explanatory model 59 A. Models from political economy: the “Social Model” and “Socio-Political Model” of disability 60 B. Models from cultural approaches 63 C. A model from multi-dimensional cultural political economy 66 D. Other salient approaches 67 E. Summary 71 Chapter Five: Improving employment as a matter of rights – Law, policy, and program instruments 74 A. Employment: A right for all? 74 B. Employment rights in the Canadian context 76 C. Summary 86 vi Chapter Six: Statistical methodology 88 A. The focus and rationale for the statistical research 88 B. Statistical data sources: The CSD, NHS, PALS, and SLID. 90 C. Data selection 92 D. Statistical methodology for the demographic and regression analyses 109 E. Weighting 113 Chapter VII: Demographic Analysis 115 A. Labour force status and job characteristics 117 B. General socio-demographic characteristics 124 C. Personal (cultural) and social capital 133 D. Impairment-related characteristics 138 E. Need of supports for employment 145 F. Availability of supports needed for workplace access and participation 149 G. Employment discrimination because of disability 150 H. Reliance on the disability income support system 152 I. The need for general disability supports 154 J. Summary 156 Chapter Eight: Factors that matter most: An application of binary logistic regression 162 A. Target and comparator groups 164 B. Predictors and working hypotheses 165 C. Findings 180 D. Summary 188 Chapter Nine: Key policy and program implications 190 A. The need for clearer policy and program focus 190 B. Setting general policy and program conditions, to be customized as needed 192 Chapter Ten: Conclusion 202 References 209 Appendices 257 Appendix A: Appendix Tables 258 Appendix B: People in the Employment Modifications Module 338 Appendix C: People with “decent work” 340 Appendix D: Industry sector and occupations 356 Appendix E: Appendix Figures 362 vii List of Tables Text Table 1. Numbers of working-age people with and without disabilities, across labour force situations 108 Text Table 2. Basic socio-demographic characteristics of working-age people in the target and comparator group, and people without disabilities 132 Text Table 3. Distribution of people with disabilities across labour force situations by type of impairment 140 Text Table 4. Distribution of people with disabilities across employment situations, by degree of impairment 142 Text Table 5. Distribution of all working-age people with disabilities across all employment situations, by degree of impairment (cells add to 100%) 143 Text Table 6. Summary of hypotheses, grouped by correspondence with the Individual and Social Models of disability 178 Appendix Table A.1 Labour force status and job characteristics of working-age people in the target, comparator and other groups 259 Appendix Table A.2 Distribution of working-age people in the target, comparator and other groups who worked in 2010, by industry sectors and occupations 265 Appendix Table A.3 Basic socio-demographic characteristics of working-age people in the target, comparator and other groups 268 Appendix Table A.4 Living arrangements of working-age people in the target, comparator and other groups 271 Appendix Table A.5 Education, training and informal social capital of working-age people in the target, comparator and other groups 272 Appendix Table A.6 Impairment-related characteristics of working-age people in the target, comparator and other groups 276 Appendix Table A.7 Percentages of working-age people in the target, comparator and other groups who needed job accommodations or other supports for employment 281 Appendix Table A.8 Working-age people in the target, comparator and 284 viii other groups by whether they have met, unmet or no needs for job accommodations or other supports for employment Appendix Table A.9 Perceived discrimination and disadvantage in employment among working-age people in the target, comparator and other groups 293 Appendix Table A.10 Income sources and level of employment earnings among working-age people in the target, comparator and other groups 294 Appendix Table A.11 The need for aids and devices and help with everyday activities because of disability among working-age people in the target, comparator and other groups 296 Appendix Table A.12 Results of the regression model for isolating factors that predicted the odds that working-age people would be in the target group instead of the comparator group 299 Appendix Table A.13 Rank-ordered factors that most strongly predicted whether working-age people with disabilities were in or were not in the target group 307 Appendix Table A.14 Selected characteristics of people who participated in and did not participate in the Employment Modifications Module (EMO) 311 Appendix Table A.15 Median earnings of working-age adults without disabilities in 2010, and .67 times those earnings, by gender, number of weeks worked, and whether people worked full-time or part-time during those weeks 315 Appendix Table A.16 Demographic and other characteristics of disabled with and without “ILO decent” work 316 Appendix Table A.17a – e Correlation matrix for variables included in the regression model 318 ix List of Figures Figure 1. Employment rates and relative employment-population ratios (REPRs) of working-age disabled (D) and non-disabled (ND) people 19 Figure 2. Rates of full-year, full-time employment, people with and without disabilities, 2003 – 2011, Canada 20 Figure 3. Highest levels of education of people 16 - 29 years, with and without disabilities, Canada, 2002 and 2011 25 Figure 4. Employment rates by whether people consider themselves limited at work because of disability, in the CSD 2012 and PALS 2006 52 Figure 5. Target group overview: People who obtained decent employment after the advent of work limiting disability 103 Figure 6. Comparator group overview: Showing whether they felt limited at work and whether they had decent earnings in 2010 105 Figure 7. Gender and age distribution of people in the target and comparator group 126 Appendix Figure E.1 Demographic and work-related characteristics of disabled people with and without 'ILO-decent' work 363 Appendix Figure E.2 Disabled people retained in decent employment after the onset of work limitations - overview 364 Appendix Figure E.3 Disabled people with decent employment and no work limitations - overview 364 Appendix Figure E.4 Disabled people with less-than-decent work - overview 365 Appendix Figure E.5. People excluded from the Employment Modifications Module (EMO), showing whether they felt limited at work and whether they had decent earnings in 2010 366 x
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