University of Nevada, Reno Acceptance and Commitment Therapy with Dually Diagnosed Individuals A dissertation submitted in partial fulfillment of the requirements for the Degree of Doctor of Philosophy in Clinical Psychology by Julieann Pankey Dr. Steven C. Hayes/Dissertation Advisor December 2008 3339134 3339134 2009 THE GRADUATE SCHOOL We recommend that the dissertation prepared under our supervision by JULIEANN PANKEY entitled Acceptance And Commitment Therapy With Dually Diagnosed Individuals be accepted in partial fulfillment of the requirements for the degree of DOCTOR OF PHILOSOPHY Dr. Steven C. Hayes, Advisor Dr. Victoria Follette, Committee Member Dr.Jacqueline Pistorello, Committee Member Dr. Ramona Houmanfar, Committee Member Dr. John Packham, Graduate School Representative Marsha H. Read, Ph. D., Associate Dean, Graduate School December, 2008 i ABSTRACT Developmentally disabled individuals presenting with psychopathological symptoms present a challenge to service providers. It has been demonstrated that these individuals suffer from the same mental health difficulties as the general population, and that prevalence rates for Axis I disorders are slightly higher than the general population. The developmentally disabled-dually diagnosed (DD/DD) population has been served primarily pharmacologically rather than through psychotherapy. When intervention has been attempted, it has manifested primarily in the form of behavior modification or other structured behavioral intervention which seeks to change, control, eliminate, or modify symptoms. Specifically, cognitively disabled individuals with mood, anxiety, or other Axis I disorders have been taught to ignore or attempt to actively control negative or anxious ideations rather than to embrace or accept them; and to curtail behaviors which may arise surrounding negative evaluations or thoughts. The current study was a mini randomized controlled study designed to investigate the influence of an acceptance-based therapy, Acceptance and Commitment Therapy, (ACT), on the negative psychological content induced by Axis I disorders in developmentally disabled individuals. Results found that a brief group intervention for cognitively disabled individuals based on ACT improved functioning, reduced psychopathology, increased psychological flexibility, and increased time spent focused on the importance of values and living in line with one’s values. This pattern of results suggest that the principles underlying ACT treatment technology may assist individuals within the range of moderate mental retardation to borderline intellectual functioning with issues related to mental health. ii Acknowledgements Sincere gratitude to my mentor, Dr. Steve Hayes, for providing support and guidance throughout the journey of graduate school. I am very appreciative of Dr. John Packham, Dr. Jacqueline Pistorello, Dr. Victoria Follette, and Dr. Ramona Houmanfar for being willing to serve on my dissertation committee and assisting me in helping this project come to fruition. Thanks to Steve for standing up for me; and for encouraging me to be creative and self-sufficient. I have had a huge amount of support from my friends for my graduate endeavors and this project in particular. I want to thank Lorri Tuomey, Holly Williams, Christine Riley, Lora Olvera, Katie Brock, Shawn Taylor, and Marty Ross--you have all been instrumental along this journey. My deepest thanks as well to Despina Hatton, Ernie Neilson, Marcia Bennett, Judy Phoenix, Steven and Brenda, Rick and Sherilan, Aslan Alton, Gil Greenberg, Ellen Brock, Bonnie Kirish, Dr. William Follette, Dr. Jim Comer; and Dr. Patricia Haynes for their support and encouragement at differing critical moments. Deep love to my beautiful son, Gabriel Rowan, who blessed my life during the process of graduate school. You are the shine. Love to my dogs, you have sustained me, especially Telequa and Kuska for the hours lying beneath me as I typed. Thanks and love to my mother for your support and pride in me. Thanks and love to Benjamin, it’s been a long haul, thanks for adding to the equation. Oh Sherrie. Thank you God, for watching over my family. Most of all, this is for Marcella Parsell, my grandmother. You showed the way and I followed. iii TABLE OF CONTENTS Chapter One Introduction and Literature Review Population characteristics Prevalence Identification and diagnosis Dual diagnosis Continuum Diagnostic overshadowing Presentation for treatment Treatment Intervention for the Developmentally Disabled Introduction Psychotherapy Psychopharmacology Acceptance and Commitment Therapy (ACT) ACT model DD/DD & ACT: Cognitive rigidity and the development of self stigma DD/DD & ACT: The role of rule governance and avoidance Research on ACT: Broad applicability ACT and Brief Interventions ACT and DD Evidence Rationale and Purpose of the Study Chapter Two Method Participant Recruitment Table 2.1: Subject Characteristics Characterization of Client Services and Informants Table 2.2: Informant Characteristics Treatment as Usual Table 2.3: Treatment as Usual Nature of Contact/Frequencies Intervention Procedure Session Structure Table 2.4: Session Structure Outline Measures Inclusion Criteria and Demographic Measures Primary Outcome Measures Secondary Outcome Measures Primary Process Measures Secondary Process Measures Adherence Attrition Hypotheses Specific Hypothesis Testing Chapter Three Preliminary Investigation Demographic Variables Table 3.1 Demographic Information by Condition iv Primary Outcome Measures Table 3.2 Primary Outcome Measures by Condition at Baseline Comparisons Secondary Outcome Measures Table 3.3 Secondary Outcome Measures by Condition at Baseline Comparisons Primary Process Measures Table 3.4 Primary Process Measures by Condition at Baseline Comparisons Secondary Process Measures Table 3.5 Secondary Process Measures by Condition at Baseline Comparisons Data Analysis Primary Outcome and Process Analyses Between Groups Table 3.6 Means, Adjusted Means, Change Scores, Standard Deviations, Within and Between Groups Cohen’s d on All Measures Primary Outcome Measures Analyses Table 3.7 Adjusted Means & Within Cohen’s d on Both Groups at Post & 30 Day Follow-Up Table 3.8 Between Group ANCOVAs for Primary Outcome Measures Secondary Outcome Measure Analyses Table 3.9 Between Group ANCOVAs for Secondary Outcome Measures Primary Process Measures Analyses Table 3.10 Between Group ANCOVAs for Primary Process Measures Secondary Process Measures Analyses Table 3.11 Adjusted Means and Standard Error for AFQ-Y Phases by Group Table 3.12 Adjusted Means and Standard Error for MBEVI Phases by Group Table 3.13 Between Group ANCOVAs for Secondary Process Measures Table 3.14 Adjusted Means and Standard Error for ATQ-B Phases by Group Mediational Analyses Table 3.15 Mediation Using ATQ-Y Pre to 30 Day Outcome for the Vineland Table 3.16 Mediation Using ATQ-Y Pre to 30 Day Outcome for the ADAMS Life Coping Scale Item Analysis Table 3.17 Life Coping Scale Inter-Item Correlation Matrix Table 3.18 Differences Between Groups Life Coping Scale Item Scores at Pre, Post, and 30 Day Follow-Up Verbal IQ Adherence Table 3.19 Adherence Ratings Chapter Four Discussion Goals of the Study Conceptual Framework Results Benefits of ACT for the DD Population Considerations Limitations of the Study and Recommendations for Future Research Implications Appendices Appendix A: Consent to Participate in Research Study Appendix B: ACT Treatment Manual for Dual Diagnosis Appendix C: Assessment Instruments Appendix D: Debriefing Form v Appendix E: Recruitment Flyer Appendix F: Evaluation for Understanding Informed Consent Appendix G: Adherence Rater’s Checklist for ACT/DD Population Tx Protocol References 1 Acceptance and Commitment Therapy in the Treatment of Dually Diagnosed Individuals Chapter One Introduction and Literature Review Diagnosing mental illness in the cognitively disabled population is a challenging endeavor because of the difficulty in parsing features relevant to mental retardation versus those related to co-morbid psychopathology. Although traditionally there exists a bifurcation of service delivery between individuals with mental retardation and those with mental illness, individuals who suffer from cognitive impairments may also have difficulty coping with negative private emotional experiences and managing stressful life events. By definition, persons with developmental disabilities seldom (if ever) are dealing with one disability. The person may have communication deficits, perceptual problems, motoric difficulties, general comprehension problems, and abstract reasoning difficulties (Landsdell, 1990). Additionally, mentally handicapped individuals may suffer from the full spectrum of psychopathological illnesses, yet there is a paucity of controlled research investigating the efficacy of treatment interventions in this population. Unfortunately, there is still a gap between the care needs and the services available for people with intellectual disability (Raitasuo, Taiminem, & Salokangas, 1999). A prevailing view is that people with intellectual disabilities and concomitant psychiatric disorders have often been under-served or inappropriately treated (Moss, Bouras, & Holt, 2000). Due to a number of clinical biases and misrepresentations about the population, individuals with co-morbid mental retardation and psychopathology are often mis-diagnosed and lack access to mental health services. Developmentally disabled individuals with mental illness bear the double burden 2 of experiencing negative private thoughts as well as an often crippling inability to cope with these symptoms. Distress often manifests in multiple hospitalizations, creating a drain on the health care industry. Although treatment programs are available, dually diagnosed individuals often face recurrent and distressing symptoms, repeat hospitalizations, and atypical responses to high doses of psychotropic medication that is often used in this population to curtail “challenging behaviors,” despite the limited evidence for their utility (Brylewski & Duggan, 2004). Prout, Chard, Nowak-Drabik, and Johnson (2000) have advocated for the notion that psychotherapy research with persons who have mental retardation needs to progress toward more empirically based models of investigation. Others have suggested a need for increased awareness among clinicians regarding the varying linguistic and symbolic capacities among individuals with mental retardation (Butz, Bowling, & Bliss, 2000). There have been very few methodologically sound investigations that adequately address the gaps in empirical research (Nezu, Nezu, & Gill-Weiss, 1992). A recent meta-analysis found that research in this area is dominated by case studies and single subject designs, lacks traditional controlled comparison studies or clinical trials, does not demonstrate interventions which have been clearly outlined and described, is not theoretically derived, and is typified by vague descriptions of outcome data (Prout & Nowak-Drabik, 2003). Population Characteristics: Until recently, mental health problems in people with intellectual disabilities have been largely neglected by professionals and researchers, resulting in the under-diagnosis of mental health problems (Charlot, Doucette, & Hezzacappa, 1993). A national sample of professionals in community health centers indicated that adults with mental retardation were significantly less likely to be offered
Description: