Unfitting Stories: Narrative Approaches to Disease, Disability, and Trauma PDF
Preview Unfitting Stories: Narrative Approaches to Disease, Disability, and Trauma
Unfitting Stories This page intentionally left blank Unfitting Stories Narrative Approaches to Disease, Disability, and Trauma valerie raoul connie canam angela henderson carla paterson editors We acknowledge the financial support of the Government of Canada through the Book Publishing Industry Development Program for our publishing activities. Library and Archives Canada Cataloguing in Publication Unfitting stories : narrative approaches to disease, disability, and trauma / edited by Valerie Raoul … [et al.]. Includes contributions made to the research project funded by the Peter Wall Institute of Advanced Studies, 1999–2004, and presentations at a conference held in May 2002. Includes bibliographical references and index. isbn-13: 978-0-88920-509-3 isbn-10: 0-88920-509-4 1.Sick—Biography—History and criticism. 2.People with disabilities— Biography—History and criticism. 3.Victims—Biography—History and criticism. 4.Narrative inquiry (Research method). 5.Narrative medicine. 6.Sick— Psychology. 7.People with disabilities—Psychology. 8.Victims—Psychology. i.Raoul, Valerie, 1941– r702.u54 2007 362.19 c2007-900701-5 Cover design by P.J. Woodland. Text design by Catharine Bonas-Taylor. ©2007Wilfrid Laurier University Press Waterloo, Ontario, Canada www.wlupress.wlu.ca This book is printed on Ancient Forest Friendly paper (100% post-consumer recycled). Printed in Canada Every reasonable effort has been made to acquire permission for copyright material used in this text, and to acknowledge all such indebtedness accurately. Any errors and omissions called to the publisher’s attention will be corrected in future printings. No part of this publication may be reproduced, stored in a retrieval system or transmit- ted, in any form or by any means, without the prior written consent of the publisher or a licence from The Canadian Copyright Licensing Agency (Access Copyright). For an Access Copyright licence, visit www.accesscopyright.ca or call toll free to 1-800-893-5777. In memory of Gabriele Helms (1966–2004) A specialist in autobiography, Gabi was an invaluable member of the ubc Wall project on Narratives of Disease, Disability, and Trauma, both as a post- doctoral fellow and as co-organizer of the conference at which many of the essays in this volume were first presented. She became our colleague in the English department at ubc, and served on the advisory board of saga (the Centre for Studies in Autobiography, Gender, and Age). Her energy, intellect, and commitment to the project inspired us all. When she began to work on women’s illness narratives, Gabi had no idea that she soon would have her own story of pain and courage. Co-founder of a sup- port group in Vancouver called The Young and the Breastless, she died of cancer on December 31,2004, after giving premature birth to a daughter, Hana. Hana is flourishing. This page intentionally left blank Contents Acknowledgements xi The Editors xiii Introduction: Narrative Frames Making Sense of Disease, Disability, and Trauma: Normative and Disruptive Stories•The Editors 3 Interdisciplinarity and Postdisciplinarity in Health Research in Canada Judy Z. Segal 11 Part i: Public Framing of Personal Narratives Introduction: Aesthetics, Authenticity, and Audience•The Editors 25 Authorizing the Memoir Form: Lauren Slater’s Three Memoirs of Mental Illness•Helen M. Buss 33 Telling Trauma: Two Narratives of Psychiatric Hospitalization Hilary Clark 45 Between Two Deaths: AIDS, Trauma, and Temporality in the Work of Paul Monette•Lisa Diedrich 53 Paper Thin: Agency and Anorexia in Geneviève Brisac’s Petite Barbara Havercroft 61 The Incomprehensible Density of Being: Aestheticizing Cancer Ulrich Teucher 71 Challenging Subjects: Ruth Sienkiewicz-Mercer, Christopher Nolan, and Autobiography•Heidi Janz and Julie Rak 79 vii viii contents The Tectonics of Trauma: Father–Daughter Incest in Film•Gail Finney 89 The Silvering Screen: Age and Trauma in Akira Kurosawa’s Rhapsody in August Sally Chivers 97 Part ii: Representing the Subject Introduction:Narrative inQualitative Research and Therapeutics The Editors 107 Writing about Illness: Therapy? Or Testimony?•Anne Hunsaker Hawkins 113 Constructing a “Schizophrenic” Identity•Barbara Schneider 129 Space, Temporality, and Subjectivity in a Narrative of Psychotic Experience Lourdes Rodriguez del Barrio 139 Re-sounding Images: Outsiders in Persimmon Blackbridge’sSunnybrook Joy James 149 (Story-)Telling It like It Is: How Narratives Teach at L’Arche Pamela Cushing 159 Disrupting the Academic Self: Living with Lupus•Janet MacArthur 171 Women Surviving Hemorrhagic Stroke: Narratives of Meaning Sharon Dale Stone 181 Men, Sport, and Spinal Cord Injury: Identity Dilemmas, Embodied Time, and the Construction of Coherence•Brett Smith and Andrew C. Sparkes 191 Part iii: The Larger Picture Introduction: Metanarrative Politics and Polemics•The Editors 203 Disability Income: Narratives of Women with Multiple Sclerosis Lyn Jongbloed 209 Narratives of Trauma and Aboriginal Post-secondary Students•Robert Procyk and Christine Crowe 217 Social Trauma and Serial Autobiography: Healing and Beyond Bina Toledo Freiwald 227 Reports from the Psych Wars•Richard Ingram 237 Agoraphobia, Social Order, and Psychiatric Narrative•Shelley Z. Reuter 247 “They Say the Disease Is Responsible”: Social Identity and the Disease Concept of Drug Addiction•Joanne Muzak 255 Temporal Assumptions: Aging with Cystic Fibrosis•J. Daniel Schubert 265 Ableist Limits on Self-narration: The Concept of Post-personhood James Overboe 275 contents ix Narrative Conclusions: An Example of Cross-disciplinary Analysis Margaret Edson’s Play Wit: Death at the End or the End of Death? Valerie Raoul, Connie Canam, Gloria Onyeoziri, Carla Paterson 285 Postscript: Un-fitting Stories, Un-disciplined Research•Valerie Raoul 297 References 307 Notes on Contributors 337 Index 349
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