Selected Papers of William L. White www.williamwhitepapers.com Collected papers, interviews, video presentations, photos, and archival documents on the history of addiction treatment and recovery in America. Citation: White, W. L. (2012). Toward an international recovery research agenda: An interview with David Best. Posted at www.williamwhitepapers.com Toward an International Recovery Research Agenda: An Interview with David Best, PhD William L. White Emeritus Senior Research Consultant Chestnut Health Systems [email protected] Introduction Discovery of Recovery Research As a new Bill White: David, could you describe your recovery advocacy initial motivation for specializing in addiction movement rose in the research? United States in the late 1990s and began David Best: Well, I recently read some to spread around the world, there were calls statistical evidence suggesting one in ten for the development of a recovery research people in Scotland have an alcoholic family agenda that could add to the large body of member. My mother’s father was a street existing studies on addiction-related drinker who was consistently in trouble with pathologies and addiction treatment the police. My mother was frequently called methods. One of the scientists outside the on Sundays to bail him out of custody suites U.S. heeding that call was Dr. David Best. and cellblocks. As I entered my David was at times catalyst and always close adolescence, my father became an alcoholic observer of recovery advocacy efforts, first and ended up having to give up his work in the UK and then in Australia, and led a because of alcohol-related peripheral series of important recovery-focused neuropathy. So alcoholism was always a research studies in both countries. It has family issue for me, and I was always been one of the great privileges of my concerned about those larger issues of professional career to have collaborated with family well-being and alcoholism and the David on some of these studies. In August poor quality of treatment services that were 2012, I asked David to reflect on his career available. I mean, you saw your GP, or if it as a recovery researcher and to share his was bad enough, you’d get sent to detox or observations about the state of recovery an old psychiatric hospital. Those were advocacy in the UK and Australia. Please pretty bleak options. join us in this engaging conversation. williamwhitepapers.com 1 And entirely unrelated to that, I’d injecting, offending, and risk-taking, but ended my undergraduate degree in ignored such issues as well-being, purpose, psychology and philosophy and started work meaning, or connectedness. on my Ph.D. My primary interest at that point Our services didn’t do well at all: it felt was about the effectiveness of like our client group really didn’t progress. communication and how people see things Much of what I wrote at that time was critical and convey meanings in what they see. of treatment. It eventually took me to the idea Through that, I got approached by a of medication-assisted recovery, but at that wonderful eccentric academic at the time, recovery was not the focus. At the University of Strathclyde, John Booth Department of Psychiatry at the University of Davies, author of The Myth of Addiction. This Birmingham, we did a large-scale survey was basically a book about the social and for the first time, really collected the construction of addiction. Davies was evidence that what we had been calling interested in how and why people attributed treatment of drug users largely wasn’t really the addiction concept to themselves and treatment. It was prescribing and a very brief how much of that was context-specific to chat. There was very little in the way of deal with the structures of treatment and therapy for clients—no real psychological support that were available. Davies and I interventions. I was becoming increasingly worked together on a Scottish Office-funded skeptical and disillusioned about how grant, which became the subject matter for treatment was being offered and what my Ph.D. I focused on how people treatment was being offered to people. understand their own state in and out of treatment and how they describe their own Bill White: David, was that the beginning of addiction state. What we were interested in your interest in recovery-focused research? was five questions: 1) do you see yourself as an addict, 2) how do you understand yourself David Best: Yes, absolutely. I was very to have become addicted, 3) why do you skeptical of treatment and then, sparing all want treatment (or not), and what do you blushes at your end, I came across some of think it can do for you, 4) why did you see your work and it started me thinking, and I yourself having a problem, and 5) what does realized this wasn’t the experience that addiction mean to you and what effect does everybody had. I guess I’d always known it have on your life? We were very interested there were very different ways people in the potential therapeutic benefits of trying managed addiction problems, but reading to change the attributions people have about your work started my search to answer a themselves and their problems. very simple question: why is there so little I was then lucky enough to be offered science of success in our field? Why are we a job at the National Addiction Center in the so insistent on being a science of pathology? Institute of Psychiatry in London. This was a From that point onwards, six or seven years major research center for all of psychiatry, ago now, this notion of recovery has been and I was in a really fortunate position. We my central research concern. There was this had a significant research unit, but we also review about mental health recovery in the ran a wide range of clinical services from a British Journal of Psychiatry last year that large methadone maintenance program to a included the acronym CHIME for number of residential detoxification and connectedness, hope, identity, meaning, rehabilitation services, plus a range of and empowerment. That really sums it up for community support services. It was in the ten me in terms of where I hope the pendulum or so years I was there that I developed my swings. focus on recovery. It seemed sometimes like I was a lone voice in the UK focused on recovery (which I wasn’t), but most of the work of this period in the UK focused on very cold clinical measures of reductions in use or williamwhitepapers.com 2 Recovery Links to Treatment and Bill White: What do you think about Prevention mobilizing individuals and families in recovery as a force for long-term prevention Bill White: You are one of the few within local communities? researchers I know whose career has actually spanned prevention, treatment, and David Best: One of the fascinating social harm reduction and then ended up with this policy and academic challenges is to focus on recovery. Did these other areas generate attractive icons of recovery in the inform your recovery research? community—true recovery champions. I see these champions as beacons of recovery— David Best: Oh, absolutely. I feel one of the the walking, living, breathing success icons. completely unproductive and false In recovery language, the primary purpose of polarizations is the often portrayed chasm this group is to engage and attract those in between harm reduction and the recovery active addiction and to engage and attract movement. You know, I’m still hugely those who are caught in treatment without a enthusiastic about things like take-home sense of hope or direction. Recovery naloxone programs to prevent overdose champions can convey the possibility that fatalities. It seems to me that one of the things can be different and offer living proof things that recovery literature and evidence of that difference in their own lives. They can has shown us is a developmental recovery also offer guidance and direction for people’s perspective. It’s crucial that we offer a range recovery journeys, but I think the point you of services and supports for different stages make is an absolutely crucial one, that the of change. Harm reduction interventions like viability and the visibility of those individuals needle exchanges and naloxone take-home would have an effect beyond people who’re programs are absolutely essential to the idea initiating their own recovery. They would of helping people through the initial chaotic become a huge community prevention stages of addiction and empowering people asset. I think one group that would be to take control of their own drug use careers interesting to work with would be the and their own recovery processes. As a aboriginal communities, where there’s researcher, I have been able to study and anecdotal evidence of precisely that effect— see the value of a whole range of different individuals who transform themselves and treatment, prevention, harm reduction, and then help transform their communities. recovery strategies. What links all of these is the necessity of interpersonal transmission Early Treatment Outcome Studies of respect and hope. Bill White: I’d like to take you to review Bill White: Has your earlier background in some of the research studies that you’ve prevention helped you see connections been involved in. A lot of your early work was between this new recovery focus and in conducting treatment outcome studies. primary prevention? What were some of the most important lessons you drew from those studies? David Best: Absolutely. It seems to me that the crucial overlaps between recovery and David Best: The vast majority of addiction prevention are the ideas of empowerment treatment outcome studies show impressive and social support. These underpinning effects. Treatment can make a massive social influences are critical processes if you difference in peoples’ lives across a whole want to understand causes and shape spectrum of measurable outcomes and effective prevention strategies, early across many modalities, including detox, interventions, formal treatment rehab, methadone maintenance, and interventions, and processes of long-term methadone reduction programs. My concern recovery management. is that we have evaluated such effects on primarily a short-term basis. We don’t focus williamwhitepapers.com 3 enough on what comes after the acute attitudes towards those organizations in the treatments—in short, we study immediate UK. Could you highlight some of your effects of treatment but not the more findings in this area? prolonged course of addiction or the prolonged course of recovery. In the UK and David Best: Yes. One of the fascinating in the States, we tend to view what happens things around professional services in the in this longer term perspective in terms of the UK has been their increasing focus on consequence of the medications or talking technical skills and technical delivery. The therapies we provide and not broader requirement that staff have professional influences on addiction and recovery. We qualifications has acted as a barrier to also still cling to a model that is about former users becoming involved as workers pathology management, which has two in our field. As a result, there is a mistrust of implications, the first being that we don’t non-professional community interventions focus enough on strengths and the second and particularly 12-Step mutual aid groups in that we reinforce a model that sees addiction the UK and even more so in Australia. There (and recovery) as incorporated rather than are a whole series of myths that prevent as being socially mediated and managed. effective cooperation with these groups. I think we miss two things that matter. There is a pervasive view that cooperation One is the basic human contact and with recovery mutual aid groups, particularly relationships that surround addiction AA and NA, are incompatible with a secular treatment therapies, and the second is the evidence-based model of treatment. effects treatment can exert on people’s One of things that’s always really social networks and daily activities. It seems interested me is how little drug and alcohol to me that the real outcome measures of workers in the UK, and I suspect the same is value are the social networks people are true here in Australia, actually know about embedded in, the degree of commitment to the evidence base for linkage of clients to these social networks, and the things that fill 12-Step groups. Most workers in UK their daily lives. Services have never been to a 12-Step The interesting issue for me is much meeting, and the idea that knowledge of less about what particular therapies and such recovery support resources is a key modalities we offer and more about whether dimension of one’s professional we can inspire belief that recovery is development is relatively new. In January, possible, establish a partnership between we start the first post-graduate diploma the client and the worker to facilitate that course here in recovery. One of the change, mobilize recovery supports within requirements for the students, almost all the client’s natural environment, and link the workers in the field, will be to attend at least client to those community resources. We one open mutual aid group meeting and also need to locate recovery within a write a reflection on that experience. I think developmental perspective that recognizes it will be an enormous challenge for us to the lengthy (and non-linear) journey that actually get people to do that. most people experience in recovery. This We did a linkage study that was means there are plenty of opportunities for a published last year showing, as has been diverse array of interventions and also that found in the States, people linked from detox people will evolve in their needs and their services to mutual aid groups have better resources as the recovery journey recovery outcomes than those not linked to progresses. such groups. Well, this isn’t really surprising, but it’s so inconsistent with our prevailing Studies of AA and NA in the UK treatment philosophies. It seems to me that one of the crucial parts of the recovery Bill White: Your reference to community movement is to focus on cultural change in resources reminds me of the studies you’ve the addiction treatment workforce, and I done on AA and NA and professional think this is probably more of an issue in the williamwhitepapers.com 4 UK and Australia than it would be in the prospects of long-term recovery were more States. We have to first overcome the determined by a person’s recovery capital suspicions around mutual aid groups and [level of internal and external assets] than by other community-based recovery support the severity or chronicity of their addiction. resources. Equally important, we must I’ve become very, very interested in that address issues around staff burnout, which I issue, particularly the question of what suggest is related to repeated exposure to constitutes social capital. What constitutes client relapses without parallel exposure to that connectedness and embeddedness and clients in long-term recovery. I’m interested belonging that helps people make those to see if increased recovery orientation in lasting changes? And, because our treatment helps workers as well as clients. treatment services in the UK and Australia One of my most disappointing are so typically professionally driven, I experiences as a researcher was some work became interested in the links between I did in North Wales a couple of years ago. I treatment and the recovery community and asked workers in the field to estimate how how the degree of recovery friendliness of a many people with a lifetime drug and alcohol society affects recovery outcomes. dependence diagnosis would ever achieve One of the challenges that I still get long-term stable recovery. Now a recent and I suspect you do also is that recovery is review from the Center for Substance Abuse just wishful thinking, that there’s not really Treatment reported an estimated 58% much of an evidence base for it. It seems to recovery rate. Workers in our field in North me that the potentially predictive power of Wales estimated that only seven percent, on the growth of recovery capital is one of those average, would eventually recover. That kind areas where, without having to have a single of therapeutic pessimism is a major barrier consensual definition of recovery, we can to the effective implementation of a recovery start to provide a genuine, quantifiable model and why such a model is so scientific method of measurement of desperately needed. Too many workers sit change. I’m really quite interested in how in offices and only see people who’re either recovery capital changes among people who stuck in active addiction or are in a revolving are and who are not engaged in different door of treatment services. Rarely do they kinds of recovery groups and other recovery see the people living full, productive, support activities. meaningful lives in long-term recovery. Workers as well as clients need exposure to Community Recovery Capital these recovery role models. Bill White: Your work in evaluating recovery Recovery Stories capital led you back into something you briefly referenced earlier, which is this notion Bill White: I’m very interested in the bridge that recovery can become socially between your work evaluating AA and NA contagious in the life of a community. and your growing interest in the role of recovery capital in long-term addiction David Best: I have to say that this has been recovery. Could you talk about that work? the most exciting experience of this work for me. It’s what has made this such an inspiring David Best: It’s just fascinating to me. thing to be involved in—these people who There’s an interesting thing about doing provide you with such astonishing inspiration recovery studies, and I’ve collected just over and hope. As soon as you said that, 10 or 15 1,000 recovery stories in total now. And one people’s faces popped into my head almost of the things I’ve become really interested in as if in a slideshow of people who have just is the question, “What are the characteristics astonished me, not only with their own of people who achieve recovery from stories, but their capacity to generate addiction?” In a paper you did some years change in other people around them. ago with William Cloud, you argued that the williamwhitepapers.com 5 I think one of the most astonishing vibrant, and contagious transmitters of things about recovery is the capacity for recovery in their local communities. people not only to enable their own recovery journeys but to give back and make it Recovery Advocacy in the UK possible for other people to change their lives. There’s something magical about the Bill White: You’ve had an opportunity to be coming together of a small group of those both a very close observer and contributor to attractive, energetic, dynamic, and vibrant the rise of a recovery advocacy movement in recovery champions. They create such an the UK. How would you describe the rise of incredibly powerful and positive energy for that movement? change at three levels—firstly, in their own communities, secondly among skeptical and David Best: I think one of the fascinating cynical professional attitudes, and thirdly at and unique challenges of describing this is the strategic and policymaking that it’s primarily local, and it’s unpredictable. commissioning level. Those individuals I’m recalling the work we did in a small really are the recovery movement, and I mining town in Yorkshire where we tried to regard it as a genuine privilege on my part to generate a small group of people to be be able to document the experiences of champions for recovery. It was something some of those individuals. that was astonishingly substantial that One of the really interesting questions started with a very small group of people for me at the moment is how we identify and who came together to share their thoughts support and enable people to become these and ideas. They were from very diverse recovery icons and recovery champions recovery backgrounds and belief systems, without threatening themselves, without but they managed to generate a shared set putting at risk their own recovery. I’ve read of visions and ideas and since then, they’ve recently quite a lot of literature around the done the most incredible things, including Social Identity Model of Identity Change, and recovery walks, recovery activities and there are some really interesting things that events, art days, and family days. It’s been happen. We know from the literature around such a positive inspiration to observe what HIV and acquired brain injury that people has unfolded there. But it is dangerous to try who choose to disclose their status and who, and generalize or to create rules and as a consequence of that disclosure, are processes about how this happens. It’s very able to access supportive groups in their idiosyncratic, or perhaps I’m just a bad local community report higher self-esteem researcher who can’t discover the underlying and better quality of life. It fits entirely with principles, but one of the fundamental the notion of connectedness to and components of such movements is that they belonging within social networks and social have to be locally driven and locally led if groups, but extends that idea to incorporate they are going to work. the dynamic influence that a sense of I think one of the beautiful things of belonging can have on personal wellbeing the emergence of the advocacy movement and perceived identity—key aspects of the in the UK has been its diversity. In spite of a recovery journey. And we know such groups couple of attempts to try and homogenize can support people on their recovery and manage the process, it remains journeys in terms of a safety net, social wonderfully idiosyncratic and diverse, and support, quality of life, access to opportunity, incredibly pluralistic in terms of the range of and access to social resources. I have the opinions and views. I was first frustrated that most incredible respect for the 12-Step there did not seem to be any central movement and how people are reconciling movement emerging, but in retrospect, that’s their anonymity within the mutual aid a genuine strength of what’s happened in the movement while pursuing concurrent UK. There aren’t any significant national opportunities to become active, physical, recovery leaders in the UK, and in some ways, maybe that’s exactly as it ought to be. williamwhitepapers.com 6 There are important teachers and public health model based on community documenters, and there are some key assets. The rapid emergence of a recovery policymakers, but recovery doesn’t have a model at the policy level has forced some single leader in the UK, and I suspect that’s stumbling as we try and work through what probably a good thing. The attempts at that means. There is a recognition that this creating unifying umbrella organizations isn’t more of the same or going back to have not been convincing to date, and I something we used to do but is instead a suspect that this is about an intrinsic mistrust fundamental and radical reorientation of how of professionalization. The movement we view the resolution process from remains a series of linked networks of addiction. I think the notion of community powerful, charismatic individuals who come empowerment is part of this, that many of the together to do some things and don’t come solutions for long-term changes at the together to do others. It’s much more a primary prevention level as well as at the series of little cells and units and groups, and level of long-term personal recovery are that’s a good thing. They share some views community-owned, not professionally owned and don’t share others. and driven. Recovery as a New Organizing Paradigm The Recovery Academy Bill White: In spite of that lack of leadership, Bill White: You contributed to the growing you have witnessed the elevation of science of recovery in the UK through your recovery as a new organizing concept at the own research and through your leadership in policy level. What influence do you see this the Recovery Academy. Could you discuss new focus exerting on addiction treatment in the work of the Recovery Academy? the UK? David Best: Yes. I’m pleased to say we David Best: It’s been such a fascinating have a Recovery Academy Australia now process, and it’s a process that I’ve seen gradually coming into fruition. It was officially also happening and emerging in Victoria launched on September 21, 2012, in spite of here in Australia. The embrace of the meetings having taken place since recovery concept has happened much, September 2011 and the walk happening in much faster by policymakers than by April 2012. The purpose of the Recovery professionals involved in the treatment field. Academy was to collect existing knowledge Many of the latter have been resistant to about recovery and build a larger base of recovery ideas for a whole range of reasons. scientific studies about recovery. There were It’s been very interesting to watch this so many exciting, innovative activities going happen in Victoria where the reform road on around recovery in the UK that weren’t map for alcohol and drug services has being measured or evaluated. The thing I recovery in its title. That sent shockwaves wanted to do was to bring together through the field and has led to some unease researchers and academics who are among workers who see this concept as interested in recovery questions with local challenging the dominant harm reduction recovery groups. It was an effort to develop philosophy and leading towards a payment a shared communication and a shared by results approach. evidence base around what works in the I think the big advantage of recovery arena of recovery support. And that’s also as an organizing concept is the rallying cry what we are trying to do with Recovery for hope that’s allowing recovering people Academy Australia. who are energetic, driven, optimistic, and Recovery-focused research is aspirationally based to have a focal point for growing. There are lots of studies that have their activities. It wasn’t particularly planned been done and more emerging in tandem that way, but it chimed with a movement for with the mental health recovery movement localism, for community ownership, and for a and the desistance movement in williamwhitepapers.com 7 criminology. One of the things that I’d really nervous about the talk of recovery. Many like to see is a movement towards preparing people thought this was merely a call to blocks of Ph.D. students to become the return to an abstinence-dominated 12-Step evaluators, auditors, and researchers who model. I’ve tried to be as conciliatory as will help answer questions about what works possible because I really don’t see this in in recovery processes for service either/or terms. It seems to me that in the organizations and for whole communities. Australian context, the approach one has to We’ve described the emergence of this take is in expanding options and recovery orientation of services and opportunities. It’s been very interesting agencies and workers. It is time to bring that because there are a number of very viable to an accessible set of measurable tools that recovery agencies and champions. We had can aid people who’re setting up recovery the first Recovery Walk in Australia. I’ve communities. championed these events to celebrate the I think one of the really exciting things astonishing achievement of recovery, to about recovery is it’s a different paradigm. socially link people in recovery into networks We can and we will utilize the traditional of mutual support, to help people engaged in methods and the trials and outcome studies long-term treatment engage in a more if we need to, but I think recovery science will encompassing recovery process, to engage be far more diverse and pluralistic in its family members, partners, and children of research methods and its use of social people in recovery, and to challenge social media. I think that we can try and develop a stigma and discrimination. So, we had our core set of beliefs and values and first ever Recovery Walk in Australia with understandings about the why and the how more than 400 people taking part. of recovery research. One of the challenges One of the things that’s been of you and I face is how to articulate and concern for me has been the number of support the development of a recovery professionals who are in recovery but who research language that’s credible and will not talk about this because they fear in a meaningful to policymakers and service harm reduction-dominated system, this providers while also being consistent with could have significant adverse effects on the values of the people that we’re working their careers. There still remains a significant with. barrier to people becoming visible in their recovery because of fears of adverse Recovery Research and Advocacy in reactions from a relatively small but vocal Australia group of militant harm reductionists. That’s now beginning to change. I did a Bill White: I’m very interested in your presentation to the Chapter of Addiction transition from the UK to your work in Medicine in Victoria earlier this week on Australia and the similarities and differences recovery, and I’d expected a fairly hostile you’ve found in terms of recovery research time of it as I probably would have had a year and the comparable status of recovery or so ago. I really need to say that the advocacy. message is getting through, that the Recovery Advocacy Movement is making a David Best: I think one of the things that positive contribution, but it’s a gradual Australia’s quite proud of is a very effective process. In the book that you edited with and successful harm reduction movement. John Kelly, several authors noted that this There’s been considerable commitment and recovery transformation process at a resources given towards needle and syringe systems level takes five to 10 years. In programs as well as methadone Victoria, we are at the start of this journey maintenance programs. Achieving that has and there are other parts of Australia, been a significant struggle, but it is now well- including New South Wales, where the established and a dominant model. That’s journey simply hasn’t started yet and where why a number of people are very, very there’s considerable resistance to it. williamwhitepapers.com 8 recover from addiction, and I’ve documented Bill White: Australia would seem to be the how recovery varies from person to person. ideal setting to conceptually integrate It’s idiosyncratic, but it happens, and we can recovery and harm reduction perspectives measure the changes involved. I think that and methods. Do you have hopes that this getting that message through to will occur? policymakers, practitioners, and the public is important, but even more important to me is David Best: Absolutely. I think there’s a real helping increase the visibility of the opportunity for it here. It’s starting with the advocacy movement and the sense of hope idea of medication-assisted recovery. How and pride that it is generating among people can we bring recovery champions and in recovery. Recovering people are recovery-focused social connections to long- beginning to fully recognize the value they term prescribing clinics? I think one of the can be to each other, their families, and their other things that’s potentially quite useful communities. I’d like to think I’ve helped stir here is that the mental health recovery that recognition. movement has been well-established and is I’m particularly pleased with what has well-supported in Australia. Because many unfolded in Yorkshire in the UK. We started of the large new health providers cover both this fledgling local recovery movement in mental health and alcohol and other drug Barnsley last year with a group of maybe 20 problems, I think some cross-contamination to 30 interested people. This work has led to and cross-fertilization is going to be possible. an incredibly vibrant and diverse set of Australians are generally such an upbeat, activities and events that have inspired all positive, and enthusiastic group of people. kinds of community groups and individuals It’s such a young and vibrant country with and have changed the beliefs of people incredible resources. I realize I’m gushing a about what they can do and what their peers bit here, but it’s an amazing place, which can achieve. I am currently taking this work affords the opportunity for innovation and forward in York, where there is enormous trial. There are just huge opportunities here potential to generate networks and for trying to do things in a different way that communities of recovery supported and would be meaningful for individuals, families, inspired by a commissioning team and communities. committed to recovery and a city that I have this vision of linked networks of recognizes the enormous potential and community connectors consisting of three resource of people in recovery. Within only a levels of people in recovery and members of year, we’ve received a commitment of their families; workers in specialist agencies; support from the city, we’ve got an and visionary community leaders, each expanding and growing army of champions, engaged in growing and binding networks of and we’re seeing this blossoming of hope. personal and social capital that are linked Any role I could have played in helping through activities and a common vision. spread this contagion of hope is a far better Their joint activities and their recovery achievement for me than any of the research advocacy become beacons of hope and studies I’ve written or published. hubs of change in deprived communities. Bill White: David, thank you for taking this Personal Reflections time to share your experience and perspective with us, and thank you for all you Bill White: If you look at your work to date, have done on behalf of people seeking what do you feel best about? recovery. David Best: I would like to think I’ve helped shift the recovery movement forward in the UK and in Australia. I’ve provided evidence that challenges the notion that people don’t williamwhitepapers.com 9