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The Social Transformation of Health Inequities PDF

226 Pages·2017·1.35 MB·English
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University of New Mexico UNM Digital Repository Sociology ETDs Electronic Teses and Dissertations 7-2-2013 Te Social Transformation of Health Inequities: Understanding the Discourse on Health Disparities in the United States Sonia Betez Follow this and additional works at: htps://digitalrepository.unm.edu/soc_etds Recommended Citation Betez, Sonia. "Te Social Transformation of Health Inequities: Understanding the Discourse on Health Disparities in the United States." (2013). htps://digitalrepository.unm.edu/soc_etds/6 Tis Dissertation is brought to you for free and open access by the Electronic Teses and Dissertations at UNM Digital Repository. It has been accepted for inclusion in Sociology ETDs by an authorized administrator of UNM Digital Repository. For more information, please contact Sonia Bettez Candidate Sociology Department This dissertation is approved, and it is acceptable in quality and form for publication: Approved by the Dissertation Committee: Howard Waitzkin, Co-Chairperson Nancy Lopez, Co-Chairperson Jason Beckfield Lisa Cacari-Stone Laura Gomez The Social Transformation of Health Inequities: Understanding the Discourse on Health Disparities in the United States By Sonia Bettez B.A., English and Psychology, Merrimack College, North Andover, MA, 1976 Masters in Social Work, University of North Carolina at Chapel Hill, 1992 DISSERTATION Submitted in Partial Fulfillment of the Requirements for the Degree of Doctor of Philosophy Sociology The University of New Mexico Albuquerque, New Mexico May 2013 iii ©2013, Sonia Bettez iv Dedication To Janice Kando, partner and best friend, whose continued love and support always encourages and nourishes me v Acknowledgements Throughout the journey of developing and writing this dissertation I received invaluable gifts of support that I will always treasure. Family, friends, colleagues, and professors served as emotional and intellectual mentors whose encouragement got me through what could have been a lonely road. I thank them all and want to acknowledge them. And I beg forgiveness from those who I will inevitably omit due to lapses of memory. Thank you to my committee members: Howard Waitzkin, chair, whose first lecture hooked me into studying up and asking big questions, who made me a better scholar and tirelessly guided and mentored me through the painstaking dissertation process; Nancy Lopez, professor, mentor, friend, sister; Lisa Cacari-Stone who seemed to come up with just the right words I needed to hear at stressful times; Laura Gomez who agreed to stay in my committee as she got busier and moved away; and Jason Beckfield who, without knowing anything about me, took interest in my project. Thank you to the University of New Mexico (UNM), my home away from home during the past four and a half years, and the professors in Sociology and other departments whose lectures, insights and experiences provided inspiration, ideas and resources: Beverly Burris, Andrew Schrank, Robert Ibarra, Jane Hood, Rich Wood, Robert Fiala, Kimberly Huyser, Kristin Barker, Owen Whooley, Ricky Lee Allen, Nina Wallerstein, Tassy Parker, Lorenda Belone, Celia Iriart and Laura Nervi. I also want to acknowledge the staff at the department who were always ready to help: Dorothy Esquivel, Donna Lewis, Caitlin Coalson and the student vi interns whose assistance did not go unnoticed. A special thanks to Maria Velez with whom I felt comfortable discussing anything during our nourishing, in more ways than one, lunch meetings. I am indebted to the Robert Wood Johnson Foundation (RWJF) for its financial and academic support, and to the RWJF Center for Health Policy at UNM: Robert Valdez, Gabe Sanchez, Carolyn Richardson, Blake Buoursaw, extraordinary tutor and supporter, Gina Urias Sandoval, Charlene Porsild, Lee Drake, Ana Cabrera and the incredibly helpful staff: Thu Luu, Antoinette Maestas, Vanessa Tafoya, David Hansen and others who, behind the scenes, worked day after day to make days easier for the fellows. Thank you also to the Mellon Foundation for their financial support during a year when I needed it, and specifically to Adriana Ramirez de Arellano for often going the extra mile. I will always have a special place in my heart and memory for other RWJF fellows Tennille Marley, Shannon Sanchez- Youngman, Yajaira Peña-Esparza, Michael Muhammad, Estela Vasquez, Julie Lucero, Patricia Rodriguez, Ron Nikora, Alexis Ortiz, Elvira Pichardo- Delacour, Alma Hernández, Belinda Vicuña, Sean Bruno Lewis, Luis Robles, Angelina González-Aller, Vickie Ibarra, Andrea M. López, Louis Castro Alvarado, Justin Tevie, Felicha Candelaria-Cook, Marita Luz Campos-Melady and Veronica Salinas. The individuals who agreed to be key informants for my study deserve a special thank you. I appreciated their willingness to make time in their busy schedules to talk to a stranger and be willing to openly share and trust that I would represent their confidential information accurately. They made an essential contribution to my dissertation. vii And at last, I cannot thank my family and friends enough: My late father, Alfredo Cuervo, who always modeled a sense of social justice and fairness, hard work, and persistence and my mother, Ligia Catelblanco de Cuervo, who instilled a clear to make a positive impact in the world. My siblings and their children have been supportive and excited about my embarking on this venture. My older daughter Silvia, who got her PhD a few years before I did, inspired, supported and mentored me throughout my time as a graduate student; we have seen each other through our academic achievements (I finished undergraduate school when she was six years old). Vanesa, my younger daughter, has always been a firm supporter and cheerleader, willing to listen and encourage when I needed it. My friends have patiently listened to my refusals to go out and join them in fun activities and gently nudged me away from the computer when I did not think I had the time. And last but most importantly, I am immensely grateful to my partner, Janice, who has been at my side every step of the way, loving, supportive, patient throughout all the time when my head was in dissertation mode, encouraging and serving as a reader, editor and sounding board throughout. viii The Social Transformation of Health Inequities: Understanding the Discourse on Health Disparities in the United States By Sonia Bettez B.A., English and Psychology, Merrimack College, North Andover, MA, 1976 Masters in Social Work, University of North Carolina at Chapel Hill, 1992 Ph.D., Sociology, The University of New Mexico, 2013 ABSTRACT Discourse in the United States characterized “health disparities” as the disproportionate burden of morbidity and mortality suffered by racial, ethnic and other disadvantaged populations. This dissertation contributes a theory of social construction that transformed health inequalities and inequities into “health disparities,” a hegemonic (dominant) concept that prevented structural analysis of root causes and effective solutions. Consequently health disparities remain. My study focuses on the discourse during the latter part of President Clinton’s administration (1999-2001), when eliminating “health disparities” became a major objective. Anchored by hegemony and racial formation theories, and using critical discourse analysis as the principal research method, I study the social construction of “health disparities.“ I also discuss the differences in discourse between the United States and other countries. I analyze a selection of official government reports published between 1979 and 2010 and interviews with a sample of key informants ix involved in policy and/or academia at the time of the study. In addition I perform limited quantitative content analysis to look at the change in use of the term “disparities” through time. I find that the discourse on “health disparities” emphasized race and ethnicity, individual responsibility, and medical care. This narrow focus omitted and diverted attention from root causes such as growing structural inequality, thus exculpating government of responsibility and forestalling socio-economic change. My analysis suggests that, because of their elite positions and qualifications, individuals who contributed to the discourse in government participated in transforming health inequities into “health disparities.” This study contributes to sociology, population health and social epidemiology by applying racial formation theory to the study of health inequalities and inequities, and extending its principles to class formation; thus, it adds a greater understanding of the social construction of health inequities, as affecting racial and ethnic minorities, as well as other disadvantaged populations. My study also helps make sense of how hegemony operates at the individual and institutional levels. Through omissions, contradictions, fears and capitulation, individuals who express passion and desire for social change and eliminating inequities in society contribute to maintaining the status quo by diverting attention from more fundamental transformations in inequities and inequalities.

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