The Political Management of HIV and AIDS in South Africa The Political Management of HIV and AIDS in South Africa One Burden Too Many? Pieter Fourie Foreword by Alan Whiteside © Pieter Fourie 2006 Foreword © Alan Whiteside 2006 Softcover reprint of the hardcover 1st edition 2006 978-0-230-00667-6 All rights reserved.No reproduction,copy or transmission of this publication may be made without written permission. No paragraph of this publication may be reproduced,copied or transmitted save with written permission or in accordance with the provisions of the Copyright,Designs and Patents Act 1988,or under the terms of any licence permitting limited copying issued by the Copyright Licensing Agency,90 Tottenham Court Road,London W1T 4LP. Any person who does any unauthorised act in relation to this publication may be liable to criminal prosecution and civil claims for damages. The author has asserted his right to be identified as the author of this work in accordance with the Copyright, Designs and Patents Act 1988. First published in 2006 by PALGRAVE MACMILLAN Houndmills,Basingstoke,Hampshire RG21 6XS and 175 Fifth Avenue,New York,N.Y.10010 Companies and representatives throughout the world. PALGRAVE MACMILLAN is the global academic imprint of the Palgrave Macmillan division of St.Martin’s Press,LLC and of Palgrave Macmillan Ltd. Macmillan® is a registered trademark in the United States,United Kingdom and other countries.Palgrave is a registered trademark in the European Union and other countries. ISBN 978-0-230-51696-0 ISBN 978-0-230-62722-2 (eBook) DOI 10.1057/9780230627222 This book is printed on paper suitable for recycling and made from fully managed and sustained forest sources. A catalogue record for this book is available from the British Library. Library of Congress Cataloging-in-Publication Data Fourie,Pieter,1972– The political management of HIV and AIDS in South Africa :one burden too many? / by Pieter Fourie ;foreword by Alan Whiteside. p.cm. Includes bibliographical references and index. 1.AIDS (Disease) – Government policy – South Africa.I.Title. RA643.86.S6F68 2006 362.196(cid:2)979200968—dc22 2006043210 10 9 8 7 6 5 4 3 2 1 15 14 13 12 11 10 09 08 07 06 This book was inspired by and is dedicated to the memory of baby Johanna, who died of AIDS in May 1999 Contents List of Figures and Tables xi Acknowledgements xii List of Abbreviations and Acronyms xiii Foreword xvi Introduction 1 The South African epidemic 1 What have successive South African governments done? 3 The purpose of this book 5 The structure of the book 6 Finding our microscope: why words, models and theories are important 7 A useful definition 8 The public policy-making process 10 Problem identification 10 Agenda-setting 12 Policy formulation 13 Policy adoption 14 Policy implementation 14 Policy evaluation 14 Theoretical frameworks 15 So where to from here? 22 1 AIDS, Poverty and Development in Southern Africa 25 Introduction 25 Human security, development, and HIV and AIDS 26 Quantifying the fuss: HIV and AIDS in Africa 29 Labour migration 32 HIV and AIDS, the military, war and peacekeeping 33 Bad blood 34 Regional transport infrastructure 34 A free-riding disease 35 HIV and AIDS at the macroeconomic level 35 vii viii The Political Management of HIV and AIDS in South Africa HIV and AIDS and food security 38 HIV and AIDS and gender 42 Rape 42 Homophobia 43 Physiology 43 Gender roles and culture 44 HIV and AIDS and good governance 45 Income inequality 47 Conclusion 48 2 The HIV and AIDS Policy Environment in Apartheid South Africa (1982–1994) 50 Introduction 50 Apartheid South Africa: an environment of risk 51 Risk profile 52 Biomedical factors 52 Economic factors 53 Sexual behaviour factors 53 Migration patterns 55 Political turmoil 55 The normative environment 57 Media reporting and popular culture 58 Religious-moralistic responses 60 Traditional societies 63 Conclusion 64 3 Biomedical and Workplace Responses in Apartheid South Africa (1982–1994) 65 Introduction 65 The biomedical response 66 Contradictory messages 67 Absent and insufficient data 68 Blood transfusion services 70 Taking account of the social dimension of the problem 71 A policy/legal void 73 New institutions for an altered health care environment 75 The workplace response 77 The medical aid and insurance industry 77 The mining sector 80 Conclusion 85 Contents ix 4 Public Sector Responses to HIV and AIDS in Apartheid South Africa (1982–1994) 86 Introduction 86 AIDS legislation as policy 86 AIDS-specific legislation 87 Criminal and case law 91 Redefining the policy problem: the move to a human rights culture 94 Government 96 The ‘silent’ HIV phase: 1982–1988 97 Flux and re-conceptualisation: 1989–1992 99 The democratisation of AIDS policy-making: 1992–1994 100 Reflections on AIDS policy-making in 1982–1994 101 5 AIDS Policy-making during the Mandela Administration (1994–1999) 105 Introduction 105 The National AIDS Plan of 1994 107 Idealism versus implementation 107 Explaining the failure of the NAP 112 A comedy of errors 120 Reflections on AIDS policy-making in 1994–1999 134 6 AIDS Policy-making during the First Mbeki Administration (1999–2004) 139 Introduction 139 The institutional and legal context 142 ‘The HIV and AIDS/STD Strategic Plan for South Africa, 2000–2005’ 142 Legislation and case law 147 Denialism and obfuscation: Mbeki enters the fray 151 MTCT prevention, HAART and the monetarisation of the policy problem 162 (Re)defining the problem, and implications for policy-making: 1999–2004 168 Conclusion: Looking Back and Looking Forward 173 Looking back on the book 173 What have we found out? 174 The phase/stage approach to policy-making 174 x The Political Management of HIV and AIDS in South Africa What does the theory tell us? And what does AIDS teach the theory of policy-making? 179 What do we still need to find out? 182 Recent developments – and the road ahead 184 Appendix: AIDS Timeline (1982–2004) 189 Notes 197 Bibliography 215 Index 234 List of Figures and Tables Figures I.1 HIV and AIDS epidemic impact curves 3 I.2 Policy-making stages 11 I.3 Amended systems model of policy-making 16 1.1 The Jaipur Paradigm 32 Tables 1.1 HIV infection rates in various African countries for the 15–49 years age group, 2003 30 1.2 Life expectancy and population growth, 2010 30 1.3 The sectoral impact of HIV and AIDS in South Africa 37 1.4 The impact of HIV and AIDS on the agricultural labour force in the most infected African countries 39 5.1 The difference between a human rights approach and a public health approach to HIV and AIDS 108 5.2 HIV seroprevalence in South Africa 109 6.1 Outline of the ‘HIV and AIDS/STD Strategic Plan for South Africa’ 146 6.2 HIV and AIDS as a share of total budget 168 6.3 HIV and AIDS-specific spending in health sector as share of total health expenditure 169 xi