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THE NATURE T H THE OF HEALTH E N A HOW AMERICA LOST, AND CAN REGAIN, A BASIC HUMAN VALUE T Th is pioneering work addresses a key issue that confronts all industrialized nations: U NATURE How do we organise healthcare services in accordance with fundamental R human rights, whilst competing with scientifi c and technological advances, E powerful commercial interests and widespread public ignorance? O Th e Nature of Health presents a coherent, Americans remain ambivalent about whether F aff ordable and logical way to build a healthcare healthcare is a right or a privilege. Th e authors system. have given us much to think about, and the H OF healthy debate this book will engender promises It argues against a health system fi xated on the to move us forward in the quest for decency, E pursuit of longevity and suggests an alternative fairness, and justice in health and healthcare A where the ability of an individual to function for all Americans.’ Robert S. Lawrence m.d., in in worthwhile relationships is a better, more the Foreword L human goal. ‘Th is is badly needed nourishment for a medical T By reviewing the etymology, sociology and system glutted on technology, individualism, HEALTH profi t and the pursuit of longevity. Read and be H anthropology of health, this controversial fed.’ Christopher Koller, Health Insurance guide examines the meaning of health, and Commissioner, The State of Rhode Island, proves how a community-centered healthcare USA M system improves local economy, creates social ‘Unique. Surprising. A real eye-opener. Just I capital and is aff ordable, rational, personal, C about everyone who doesn’t have a vested and just. H fi nancial interest in maintaining the status A ‘Th is book presents a provocative analysis of quo will agree that US healthcare is badly E the meaning of health and the way in which broken.’ Alexander Blount ed.d., Professor L clinical medicine is practiced in the United of Clinical Family Medicine, University of F States in the early years of this new century. We Massachusetts Medical Center IN HOW AMERICA E OTHER RADCLIFFE BOOKS OF RELATED INTEREST M .D LOST, AND CAN HOME VISITS HEALTH, HUMAN RIGHTS AND . A a return to the classical role of the physician THE UNITED NATIONS N ALFRED E. STILLMAN inconsistent aims and inherent D REGAIN, A BASIC contradictions? SUFFERING AND HEALING J THÉODORE H. MACDONALD A IN AMERICA an American doctor’s view from outside THE GLOBAL HUMAN RIGHT M HUMAN VALUE RAYMOND DOWNING TO HEALTH E S dream or possibility? HEALTH, TRADE AND HUMAN RIGHTS W THÉODORE H. MACDONALD THÉODORE H. MACDONALD . P E T MICHAEL FINE JAMES W. PETERS E M.D. AND R www.radcliffe-oxford.com S Foreword by Robert S. Lawrence m.d. Electronic catalogue and online ordering facility. rraadd__ffiinnee__00880077..iinndddd 11 99//88//0077 1155::5533::1133 The Nature of Health TThhiiss ppaaggee iinntteennttiioonnaallllyy lleefftt bbllaannkk The Nature of Health How America lost, and can regain, a basic human value MICHAEL FINE M.D. and JAMES W. PETERS Foreword by ROBERT S. LAWRENCE M.D. Radcliff e Publishing Oxford • New York CRC Press Taylor & Francis Group 6000 Broken Sound Parkway NW, Suite 300 Boca Raton, FL 33487-2742 © 2007 by Michael Fine and James W. Peters CRC Press is an imprint of Taylor & Francis Group, an Informa business No claim to original U.S. Government works Version Date: 20160525 International Standard Book Number-13: 978-1-138-03077-0 (eBook - PDF) This book contains information obtained from authentic and highly regarded sources. While all reasonable efforts have been made to publish reliable data and information, neither the author[s] nor the publisher can accept any legal responsibility or liability for any errors or omissions that may be made. The publishers wish to make clear that any views or opinions expressed in this book by individual editors, authors or contributors are personal to them and do not neces- sarily reflect the views/opinions of the publishers. The information or guidance contained in this book is intended for use by medical, scientific or health-care professionals and is provided strictly as a supplement to the medical or other professional’s own judgement, their knowledge of the patient’s medical history, relevant manufacturer’s instructions and the appropriate best practice guidelines. Because of the rapid advances in medical science, any information or advice on dosages, procedures or diagnoses should be independently verified. The reader is strongly urged to consult the relevant national drug formulary and the drug companies’ and device or material manufacturers’ printed instructions, and their websites, before administering or utilizing any of the drugs, devices or materials mentioned in this book. This book does not indicate whether a particular treatment is appropriate or suitable for a particular individual. Ultimately it is the sole responsibility of the medical professional to make his or her own professional judgements, so as to advise and treat patients appropriately. The authors and publishers have also attempted to trace the copyright holders of all material reproduced in this publication and apologize to copyright holders if permission to publish in this form has not been obtained. If any copyright material has not been acknowledged please write and let us know so we may rectify in any future reprint. Except as permitted under U.S. Copyright Law, no part of this book may be reprinted, reproduced, transmitted, or utilized in any form by any electronic, mechanical, or other means, now known or hereafter invented, including pho- tocopying, microfilming, and recording, or in any information storage or retrieval system, without written permission from the publishers. For permission to photocopy or use material electronically from this work, please access www.copyright.com (http:// www.copyright.com/) or contact the Copyright Clearance Center, Inc. (CCC), 222 Rosewood Drive, Danvers, MA 01923, 978-750-8400. CCC is a not-for-profit organization that provides licenses and registration for a variety of users. For organizations that have been granted a photocopy license by the CCC, a separate system of payment has been arranged. Trademark Notice: Product or corporate names may be trademarks or registered trademarks, and are used only for identification and explanation without intent to infringe. Visit the Taylor & Francis Web site at http://www.taylorandfrancis.com and the CRC Press Web site at http://www.crcpress.com contents Foreword by Robert S. Lawrence vii Michael Fine’s preface xi Jim Peters’ preface xiii About the authors xvi Introduction xvii PART ONE WHAT HEALTH IS NOT 1 Demented and Contracted 3 1 The health we have 9 2 The health we buy 15 3 What we measure is not health 21 4 Medications are not health 29 5 Medicine is not health either 37 6 Science is business, not health 43 Hancock County 48 PART TWO WHAT WENT WRONG AND WHY 53 The Happy Victim 54 7 The human tsunami 59 8 The reductive trap 75 9 The trap is sprung 83 10 How longevity kidnapped health 91 11 Medical services and communities 97 12 The zero-sum game 103 Three People, Three Aortas 117 PART THREE WHAT HEALTH IS 125 A. Fib 127 13 What Webster thinks 131 14 Old villages, new lives 141 15 Toward a social defi nition of health 145 16 Health and community together 151 17 Health and fairness 165 Amish Boy 169 PART FOUR WHAT’S NEXT? 173 18 Who gets what? 175 19 How should it look? 187 20 How should we pay for it? 199 21 Which doctors? 213 References 225 Bibliography 237 foreword Th e litany of problems associated with health and healthcare in the United States seems to lengthen each week. We Americans are just under fi ve percent of the global population yet consume almost half of the global health budget. We are approaching $2 trillion per year in expenditures while leaving 15 percent of our fellow citizens without health insurance. As the debate swirls among presidential hopefuls about how to fi x and reform the healthcare system and the Congress prepares to appropriate additional funds to expand SCHIP (State Children’s Health Insurance Program), President George W. Bush says about those children without health insurance, “I mean, people have access to health care in America. After all, you just go to an emergency room.”1 Despite the clumsiness of his speech and the callousness of his remarks, the President’s views are shared by enough Americans to help explain why we remain one of the few OECD (Organization for Economic Cooperation and Development) countries without a health system providing universal access to healthcare. Mexico and Turkey join us in this dubious category among the 30 member countries. All other high and upper income countries of the OECD are in compliance with Article 12 of the International Covenant on Economic, Social and Cultural Rights (ICESCR), which asks that steps be taken to create conditions “which would assure to all medical service and medical attention in the event of sickness.”2 But I forget — the United States is also the only OECD country not to have ratifi ed the ICESCR. Historians, political scientists, and other scholars debate whether our failure to ratify ICESCR (and a number of other social justice cov- enants constituting the body of international human rights law) and to embrace the concept of a right to health refl ects de Tocqueville’s concept of American Exceptionalism or is a manifestation of a deep-rooted commit- ment to American sovereignty or both. In Democracy in America Alexis vii viii The nature of health de Tocqueville identifi ed the values of liberty, egalitarianism, individ- ualism, populism, and laissez-faire as the key elements to our success as a democratic republic.3 Notably absent from these values is a commit ment to community or the value of social cohesion, and therein lies the dilemma and explains how we can be so passionately committed to civil and political rights, indeed be John Winthrop’s “City on a hill,” while tolerating with almost pathologic indiff erence enormous inequities in health status, educa- tional opportunity, job security, and livelihood in this, the richest country on earth. Murray and his colleagues documented the burden of suff ering in the United States in a recent study of health inequalities using data aggregated at the county level, by gender, by race/ethnicity, and by income. Th ey noted, “Th e gap between the highest and lowest life expectancies for race- county combinations in the United States is over 35 years. We divided the race-county combinations of the US population into eight distinct groups, referred to as the ‘eight Americas,’ to explore the causes of the disparities that can inform specifi c public health intervention policies and programs.”4 Asian-American women in Bergen County, N.J., had the highest average life expectancy in the nation at 91 years, and Native American men in several South Dakota counties had the lowest life expectancy at 58 years. Seven Colorado counties, two Iowa counties and Montgomery County, MD, were tied for the highest average life expectancy at 81.3 years while six South Dakota counties had the lowest average life expectancy at 66.6 years. At the state level, Hawaii recorded the highest average life expectancy at 80 years, followed by Minnesota at 78.8 years. Th e District of Columbia — the seat of our national government and often regarded as the power center of the world — had the lowest average life expectancy at 72 years, followed by Mississippi at 73.6 years. Our neighbors to the north grappled with health disparities decades before we began to pay attention. Pierre Trudeau, elected Prime Minister of Canada in 1968, asked Marc Lalonde, Minister of Health and Welfare from 1972–77, to chair a commission on the causes of health inequalities and disparities among Canadians. A New Perspective on the Health of Canadians — commonly referred to as the Lalonde report — was presented to the House of Commons in 1974. Th e report identifi ed two objectives for improving the health of Canadians and narrowing the gap between the healthiest and the sickest: 1) reforming the healthcare system to improve access to care, and 2) reducing health risk by greater attention to prevention of health problems and promotion of good health. Th e report also introduced the concept of “health fi elds” or the domains of infl uence on health status that deserved attention. Th e four fi elds are healthcare services, environment, biology, and behavior. Th e Lalonde commission Foreword ix concluded that differences in health promoting and health damaging behaviors accounted for about 40 percent of the disparities in health status among Canadians with each of the other three fi elds contributing about 20 percent. Of course, had the defi nition of environment been expanded beyond the physical environment (“horse kicks and lightning strikes,” as one Canadian wryly observed) to include the economic and social envi- ron ment, then much of the diff erence in health promoting and health damaging behavior would be linked to the environment as well. Lalonde believed that good health was the foundation on which social programs were built and that the healthcare system was only one of the necessary methods to maintain and improve health. Reducing poverty, preventing violence, protecting the environment, expanding educational opportunity, and assuring equity became as important to increasing the health of Canadians as improvements in the healthcare system. In 1986, WHO convened the first International Conference on Health Promotion in Ottawa and adopted the Ottawa Charter for Health Promotion, defi ning health promotion as a “process of enabling people to increase control over the determinants of health, to improve their health.”5 Th e United States was one of the participating countries in the conference but the lessons brought home from Ottawa had no discernible impact on health policy during the Reagan era. So here we fi nd ourselves mired in a system that consumes an ever- increasing share of our national income without diminishing health disparities among our people or improving our standing in the world ranking of healthy societies. How did we get to this place and what can we do about it? In this book Michael Fine and James Peters present a provocative analysis of the meaning of health and the way in which clinical medicine is practiced in the United States in the early years of this new century. Th ey bring their analysis to life with clinical stories about real patients suff ering the real indignities imposed by our dysfunctional system of clinical care and the failures of jury-rigged safety nets. Th ese stories illustrate the historic and philosophic discussion of the meaning of health, the illness experience, the role of social capital in health, and the challenges to medical professionalism posed by the commodifi cation of medicine. We Americans remain ambivalent about whether healthcare is a right or a privilege, and this ambivalence is refl ected in our tolerance of living with 45 million of our fellow citizens uninsured while simultaneously expecting and demanding the maximum application of life-saving and life-extending treatments for ourselves and our families. When the authors say that “health is the ability to have relationships, not the demand of living forever . . . health is the love of others,” they correctly focus on the very essence of being human. Th eir defi nition of health as “the biological, social, and

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