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The dementia guide: Living well after diagnosis - Alzheimer's Society PDF

132 Pages·2014·1.33 MB·English
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Preview The dementia guide: Living well after diagnosis - Alzheimer's Society

The dementia guide Living well after diagnosis 1 About this guide This guide is for anyone who has recently been told they have dementia. This could be any type of dementia, such as Alzheimer’s disease, vascular dementia or mixed dementia. It will also be useful to close friends and family of someone with dementia, as it contains information for anyone taking on a caring role. The booklet will help people to understand more about dementia and the treatments, support and services that are available. It includes information about living as well as possible with dementia and about making plans for the future. You might choose to read the whole booklet, or, if you prefer, focus on the parts that seem most relevant to you. Each section starts with summarised key points. These have been included for people who may prefer to read an overview of the section rather than the whole thing. You will find a checklist on page 118. It lists some of the things discussed throughout this guide that you can do to help you live well now and plan for the future. This guide has been produced by Alzheimer’s Society with support and funding from the Department of Health. For more information visit alzheimers.org.uk 2 A s i s o n g a i d f o a i t n e m e d na c se u a c a eg n a r f o s .n o i t o m e eTh w s en t h g i m em o c a s a kc o,h s , r o ro f em so , e l p eo p t i y am gn i r b a se n se f o fe i l e r a s ti esd i v o r p na no i t a n a l p x e ro f eht s m e l b o r p y e h t e va h ne b g. n i c n e i r e p x e t I na c so l a e va h a g i b c a p m ti no y l i m a f dna s .d n e i r f f I ,u o y ro eneo m os se o l c o t ,u o y e va h y lt n e ec r ne b se do n g a i d ht i w a ,i t n e m e d uo y t h g i m eb gn i l e f , r g ny a ,ed t a s r t u r f ,de i r r o w ,lre au f f ,ds a a,sed s r r a b m e , y l e n o l ytl i u g ro ne v e ed. v e i l e r en or e y v E s i t ,n e r e f f i d tu b lla es h t s nco e a i t r e ra el b i s s o p ta t n e r e f f i d es m i t dna y e h t e ra lla l.a m r o n w Ho uo y le f ll i w y l b ab o r p r a yv mo r f en o y ad o t eht x e n t . ‘ eW ew nt otu an d ec learb te d hw en I aw s id ang oes ,d eb ac eus I finall y nk e w hw at aw s orw n g iw th me . I oc lu d tell people I“ haev iP s ’ k c id es aes ’ . ” Graham, East Sussex, living with Pick’s disease (frontotemporal dementia) ‘ evE n thohgu ew epx ecte d it , o ru firts er action aw s to eb irf hg tene d an d pu es t . I thin k m[ y habus n ]d thohgu t it id minihs e d him a s a peros n an d ef lt ahs ame d. tuB time ha s hc aneg d that , eb ac eus it hans t’ id minihs e d him in an y aw ’ . y Brenda, West Sussex, carer for a person with Alzheimer’s disease Call the National Dementia Helpline on 0300 222 1122 3 f I oy u ac ,n at lk ot rf iesdn a dn af mil y aob u t ho w oy ur’ e ef elign . Oht er ep olp e en e d ot uedn rsat dn hw a t oy ur’ e goign ht rough. The y migh t eb if idn gn ht ign s har d ot o , so at lkign ac n hel p ob ht oy u a dn ht em. There are also sep ic alis t healht a dn soic al ac re rp oef ssioan ls oy u ac n at lk ot of r suop rt. oY u iw ll if dn a lis t o f Alzheimers’ Soic e yt seriv ec s o n ap ge 60 1 a dn oht er useuf l orgain sait osn ht a t ma y eb alb e ot rp oiv ed iofn rmait o n or suop r t o n ap ge .0 1 1 f I oy u d’ like ot at lk aob u t ht e iofn rmait o n i n ht is guied , lp ease hp oen Alzheimers’ oS ic es’ yt aN it oan l eD meitn a eH llp ien o n 0 03 0 2 2 2 2 2 1 1 – ac lls are hc arge d a t a loo-wc s t raet . hT e eH llp ien is of r aoyn en aef ect d y b ed meitn a a dn is oep n a9 mmp5– oM adn yr– F iad y a dn 0a1 m–mp4 o n Saut rad sy a dn uS adn sy . rT aien d hellp ien aivd sers ac n rp oiv ed oy u iw ht iofn rmait o ,n suop rt , guiad ecn a dn sigopn sit gn ot oht er arp orp iaet orgain sait osn . Throughou t ht is ob okle t oy u iw ll see suggesit osn of r Alzheimers’ Soic e yt af c tsheets. oY u ac n ored r ht ese usign ht e of rm o n ap ge 1 2 1 or see aehzl imerso. rkug.f/ actseh ets oF r af c tsheets sep ic if c ot Norht er n rI ela ,dn lp ease oc atn c t oy ur loac l Alzheimers’ Soic e yt oif ec . s’ t I imop rat tn ot kon w ht a t oy u are t ’ n aloen – aob u t 0,8 0 0 0 ep olp e i n ht e KU haev ed meitn a. s’ t I op ssilb e ot liev ew ll iw ht ed meitn a a dn ht ere is suop r t aav ilalb e of r oy u a dn oy ur af mil.y For more information visit alzheimers.org.uk 5 Contents 1 About dementia 7 2 Treatments 23 3 Living well 39 4 Planning ahead 51 5 Services for people with dementia 71 6 Support for carers 85 7 Research 101 8 Alzheimer’s Society services and support 106 9 Other useful organisations 110 10 Checklist 118 Order factsheets 120 Keep in touch 123 Feedback 125 7 1 obA tu ed mentia 12 nI tih s section eK y op ints : obA tu ed mentia 8 ahW t is ed mentia? 0 1 ahW t are teh smy tp oms ? 1 1 ahW t are teh ac su es ? 2 1 y h W od some ep oelp eg t ed mentia ? 4 1 epy T s of ed mentia 4 1 iM dl oc ng itive imap irment 1 2 For more information visit alzheimers.org.uk obA tu ed mentia 8 1 Key points: About dementia Dementia occurs when the brain is affected by a disease. It’s not a normal part of ageing. Dementia affects everyone differently and can cause a wide range of symptoms. These can include problems with memory, thinking, concentration and language. People may become confused or struggle with how they perceive things. Dementia can also cause changes in mood or emotions and affect how someone behaves. Dementia is progressive, which means that symptoms get worse over time. However, many people with dementia lead active and fulfilling lives for many years. There are many different types of dementia. The most common are Alzheimer’s disease and vascular dementia, which are sometimes combined (called mixed dementia). Less common are dementia with Lewy bodies and frontotemporal dementia. About dementia

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