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The Complete Idiot's Guide to Caring for Aging Parents PDF

361 Pages·2016·4.78 MB·English
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02 3943-x FM 9/26/00 5:38 PM Page i Caring for Aging Parents by Linda Colvin Rhodes, Ed.D. Macmillan USA, Inc. 201 West 103rd Street Indianapolis, IN 46290 A Pearson Education Company 02 3943-x FM 9/26/00 5:38 PM Page ii To my Mom and Dad, Shirley M. Baressi and John W. Colvin. May I do as well by you as you have by me. Copyright © 2001 by Linda Colvin Rhodes, Ed.D. All rights reserved. No part of this book shall be reproduced, stored in a retrieval sys- tem, or transmitted by any means, electronic, mechanical, photocopying, recording, or otherwise, without written permission from the publisher. No patent liability is as- sumed with respect to the use of the information contained herein. Although every precaution has been taken in the preparation of this book, the publisher and author assume no responsibility for errors or omissions. Neither is any liability assumed for damages resulting from the use of information contained herein. For information, ad- dress Alpha Books, 201 West 103rd Street, Indianapolis, IN 46290. THE COMPLETE IDIOT’S GUIDE TO and Design are registered trademarks of Macmillan USA, Inc. International Standard Book Number: 0-7865-3439-7 Library of Congress Catalog Card Number: Available upon request. 03 02 01 8 7 6 5 4 3 2 1 Interpretation of the printing code: The rightmost number of the first series of num- bers is the year of the book’s printing; the rightmost number of the second series of numbers is the number of the book’s printing. For example, a printing code of 01-1 shows that the first printing occurred in 2001. Printed in the United States of America Note: This publication contains the opinions and ideas of its author. It is intended to provide helpful and informative material on the subject matter covered. It is sold with the understanding that the author and publisher are not engaged in rendering profes- sional services in the book. If the reader requires personal assistance or advice, a com- petent professional should be consulted. The author and publisher specifically disclaim any responsibility for any liability, loss or risk, personal or otherwise, which is incurred as a consequence, directly or indi- rectly, of the use and application of any of the contents of this book. Making or distributing electronic copies of this book constitutes copyright infringement and could subject the infringer to criminal and civil liability 02 3943-x FM 9/26/00 5:38 PM Page iii Publisher Marie Butler-Knight Product Manager Phil Kitchel Managing Editor Cari Luna Senior Acquisitions Editor Renee Wilmeth Development Editor Lynn Northrup Senior Production Editor Christy Wagner Copy Editor Susan Aufheimer Cartoonist Brian Moyer Cover Designers Mike Freeland Kevin Spear Book Designers Scott Cook and Amy Adams of DesignLab Indexer Deborah Hittel Lisa Wilson Layout/Proofreading Mary Hunt Gloria Schurick 02 3943-x FM 9/26/00 5:38 PM Page iv Contents at a Glance Part 1: Seeing Aging Through Your Parents’ Eyes 1 1 Aging as Your Parent Sees It 3 Dealing with ageism and changes in family roles. 2 Getting to Know a Different Body 11 Physical changes everybody goes through. 3 Not-So-Normal Aging: The Physical Side 23 Physical problems your parents should guard against. 4 Not-So-Normal Aging: The Mental Side 35 Mental health problems many people face with aging. 5 Brain Attacks (Strokes) and Heart Attacks 47 How to be on the alert for strokes and heart attacks. 6 Alzheimer’s Disease and Cancer 57 Understanding dementia and cancer. Part 2: The World of Geriatric Health Care 69 7 Managing the Health Care Maze--Even from a Distance 71 Manage the world of geriatrics and give your parents an edge. 8 Pills and Your Parents 83 Stay on top of America’s other drug problem. 9 A Trip to the Hospital 95 Protect your parent; become a patient advocate. 10 Home Health Care 107 Know what your parent really needs and how to find it. Part 3: Understanding You and Your Parent’s Options 119 11 Remaining at Home: Making It Work 121 Strategies to make living at home safe and senior-friendly. 12 Living in the Community: Services and Transportation 133 Finding community services and deciding if Mom should drive to get there. 13 Housing Options 147 Creative ways to stay in the community. 14 Assisted Living 157 Know when it’s right for Dad and where to look. 02 3943-x FM 9/26/00 5:38 PM Page v 15 Choosing a Nursing Home 167 Finding a good one, who pays, and when it’s for the best. 16 Living in a Nursing Home 179 Make your visits count and learn what to watch out for. Part 4: Caregiving: Coming to Live with You 189 17 Are You Up for This? 191 Assessing whether or not you can handle caregiving. 18 Caring for Someone at Home: The Basics 201 Strategies to make it work for both of you. 19 You Can’t Do It All 213 How to take care of yourself so you can take care of Dad. 20 End-of-Life Matters and Hospice 223 Providing for a good death. Part 5: Financial and Legal Matters 235 21 Got to Have Those M&Ms: Medicare and Medicaid 237 Making sense of federal Medicare and state Medicaid. 22 The Saving Private Ryan Generation 251 What the Veterans Administration has to offer. 23 Beating Out-of-Pocket Expenses 261 Smart consumer tips and the skinny on long-term care insurance. 24 Planning for Incapacity 273 Basics on living wills, durable power of attorney, and guardianship. 25 Lawyers, Wills, and Estate Planning 283 Talking to your parents about their assets. Elder law lawyers to the rescue! Appendixes A Resources 293 B National List of State Units on Aging 307 C Dr. Rhodes’ Nursing Home Navigator 317 D Nursing Home Bill of Rights 325 Index 327 02 3943-x FM 9/26/00 5:38 PM Page vi Contents Part 1: Seeing Aging Through Your Parents’ Eyes 1 1 Aging as Your Parent Sees It 3 Living in an Ageist Society ..................................................3 Change of Roles....................................................................5 Fight for Independence........................................................6 Fears......................................................................................6 The Upside of Aging ............................................................8 You’re Not Alone..................................................................8 2 Getting to Know a Different Body 11 The Aging Explosion ..........................................................12 Two Kinds of Aging............................................................12 Primary Aging ....................................................................12 Secondary Aging..................................................................13 Aging: Everybody’s Doing It ..............................................14 The Vision Thing................................................................14 What Did You Say? ............................................................14 I’ve Had It with Counting Sheep! ........................................17 The Hot and Cold of It........................................................19 Now, Why Did I Go to the Store?........................................20 3 Not-So-Normal Aging: The Physical Side 23 Hard to Hold: Incontinence ..............................................24 What Can Be Done? ..........................................................25 Other Options ....................................................................26 Vision Under Attack ..........................................................27 Cataracts............................................................................27 Glaucoma ..........................................................................28 Macular Degeneration ........................................................28 Diabetic Retinopathy ..........................................................29 Diabetes at Her Age? ..........................................................29 Osteoporosis........................................................................31 Arthritis ..............................................................................32 Chronic Obstructive Pulmonary Disease (COPD) ............33 02 3943-x FM 9/26/00 5:38 PM Page vii 4 Not-So-Normal Aging: The Mental Side 35 Why Your Parents’ Mental Health Is at Risk......................36 Changes in Sleep Patterns....................................................36 Medications........................................................................36 Fears ..................................................................................36 Multiple Losses ..................................................................37 Alcohol................................................................................38 When It’s More Than Just the Blues..................................39 What Is Depression? ..........................................................40 So What Can You Do?........................................................40 Can a Pill Fix It?................................................................41 Suicide ................................................................................42 Anxiety Disorders ..............................................................43 Seeking Help ......................................................................44 Lifestyle Changes: Good for the Mind ..............................45 5 Brain Attacks (Strokes) and Heart Attacks 47 Brain Attacks (Strokes)........................................................48 Brain Attack Lingo..............................................................48 TIA ....................................................................................48 Ischemic Stroke ..................................................................49 Hemorrhagic Stroke ............................................................49 The Stroke Forecast ............................................................49 Preventing Strokes..............................................................50 Heart Attacks ......................................................................50 Parents in the Driver’s Seat ................................................51 The Big Four “Widow Makers” ..........................................52 High Blood Pressure ............................................................52 Cholesterol..........................................................................53 Angina................................................................................54 Congestive Heart Failure (CHF) ..........................................55 6 Alzheimer’s Disease and Cancer 57 Alzheimer’s: Just How Common Is It? ..............................58 Dementia and Alzheimer’s Disease....................................58 The Warning Signs..............................................................58 If You Think Your Mom or Dad Has Dementia....................59 The Three Stages of Alzheimer’s Disease............................61 02 3943-x FM 9/26/00 5:38 PM Page viii The Complete Idiot’s Guide to Caring for Aging Parents The Big “C”: Cancer ..........................................................62 Your Parent’s View..............................................................62 What Is Cancer? ................................................................63 The Danger Signs................................................................63 Getting the Diagnosis..........................................................64 Getting Treatment ..............................................................65 Never Too Old to Prevent Cancer ........................................66 Part 2: The World of Geriatric Health Care 69 7 Managing the Health Care Maze— Even from a Distance 71 Getting Organized..............................................................72 Geriatric Assessments—Getting the Lay of the Land........73 Geriatricians........................................................................74 Coming Up with a Family Plan..........................................75 Long-Distance Caregiving..................................................76 Advance Work ....................................................................76 Making Your Visit Count ....................................................77 Cyber Seniors: Staying in Touch via Computer ....................79 Geriatric Care Managers ....................................................79 What Do Geriatric Care Managers Charge? ........................80 Questions to Ask a Potential Care Manager ........................80 8 Pills and Your Parents 83 Seniors on Drugs ................................................................84 Drugs That Don’t Get Along ..............................................84 Not Following Directions ....................................................85 Over-the-Counter Drugs ......................................................85 Different Bodies, Different Doses ........................................86 Working with Doctors........................................................86 Working with Pharmacists ................................................87 “I’d Rather Fight Than Switch”..........................................88 Tips on Taking Meds ..........................................................90 Buying Medications on the Internet..................................90 Saving Money on Prescriptions..........................................92 viii 02 3943-x FM 9/26/00 5:38 PM Page ix Contents 9 A Trip to the Hospital 95 Finding the Right Hospital ................................................96 Arriving by Ambulance ......................................................97 Consent at the Registration Desk ......................................97 Medical Errors in Hospitals ................................................98 Infections............................................................................99 Physician Error..................................................................100 Bed Sores ..........................................................................101 Becoming a Patient Advocate ..........................................102 Trust Your Instincts ..........................................................103 If You Can’t Be There........................................................103 Home Sweet Home ..........................................................104 10 Home Health Care 107 What Does Your Parent Need? ........................................108 Homemaker Care..............................................................108 Home Health Care Aide ....................................................109 Skilled Care ......................................................................110 Searching for Providers ....................................................110 Hiring Through a Home Health Care Agency ................111 Who’s Who in the Home Health Care Biz ......................112 Durable Medical Equipment (DME) and Supply Companies......................................................................113 Pharmaceutical and Infusion Therapy Companies ............113 The Cast of Therapists......................................................114 Who Pays for What? ........................................................115 Setting Up Ground Rules..................................................116 Nurturing a Relationship..................................................117 Be Careful..........................................................................117 Part 3: Understanding You and Your Parent’s Options 119 11 Remaining at Home: Making It Work 121 Home Safe Home..............................................................122 Outside Safety ..................................................................122 Inside Safety......................................................................124 Creating a Senior-Friendly Home ....................................124 Dining in: The Kitchen......................................................125 Danger Zone: The Bathroom ............................................125 ix

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