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The Blackwell Guide to Medical Ethics (Blackwell Philosophy Guides) PDF

443 Pages·2007·2.43 MB·English
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The Blackwell Guide to Medical Ethics Blackwell Philosophy Guides Series Editor: Steven M. Cahn, City University of New York Graduate School Written by an international assembly of distinguished philosophers, the Blackwell Philosophy Guides create a groundbreaking student resource – a complete critical survey of the central themes and issues of philosophy today. Focusing and advancing key arguments t hroughout, each essay incorporates essential background material serving to clarify the history and logic of the relevant topic. Accordingly, these volumes will be a valuable resource for a broad range of students and readers, including profes- sional p hilosophers. 1 The Blackwell Guide to EPISTEMOLOGY edited by John Greco and Ernest Sosa 2 The Blackwell Guide to ETHICAL THEORY edited by Hugh LaFollette 3 The Blackwell Guide to the MODERN PHILOSOPHERS edited by Steven M. Emmanuel 4 The Blackwell Guide to PHILOSOPHICAL LOGIC edited by Lou Goble 5 The Blackwell Guide to SOCIAL AND POLITICAL PHILOSOPHY edited by Robert L. Simon 6 The Blackwell Guide to BUSINESS ETHICS edited by Norman E. Bowie 7 The Blackwell Guide to the PHILOSOPHY OF SCIENCE edited by Peter Machamer and Michael Silberstein 8 The Blackwell Guide to METAPHYSICS edited by Richard M. Gale 9 The Blackwell Guide to the PHILOSOPHY OF EDUCATION edited by Nigel Blake, Paul Smeyers, Richard Smith, and Paul Standish 10 The Blackwell Guide to PHILOSOPHY OF MIND edited by Stephen P. Stich and Ted A. Warfi eld 11 The Blackwell Guide to the PHILOSOPHY OF THE SOCIAL SCIENCES edited by Stephen P. Turner and Paul A. Roth 12 The Blackwell Guide to CONTINENTAL PHILOSOPHY edited by Robert C. Solomon and David Sherman 13 The Blackwell Guide to ANCIENT PHILOSOPHY edited by Christopher Shields 14 The Blackwell Guide to the PHILOSOPHY OF COMPUTING AND INFORMATION edited by Luciano Floridi 15 The Blackwell Guide to AESTHETICS edited by Peter Kivy 16 The Blackwell Guide to AMERICAN PHILOSOPHY edited by Armen T. Marsoobian and John Ryder 17 The Blackwell Guide to PHILOSOPHY OF RELIGION edited by William E. Mann 18 The Blackwell Guide to the PHILOSOPHY OF LAW AND LEGAL THEORY edited by Martin P. Golding and William A. Edmundson 19 The Blackwell Guide to the PHILOSOPHY OF LANGUAGE edited by Michael Devitt and Richard Hanley 20 The Blackwell Guide to FEMINIST PHILOSOPHY edited by Linda Martín Alcoff and Eva Feder Kittay 21 The Blackwell Guide to MEDICAL ETHICS edited by Rosamond Rhodes, Leslie P. Francis, and Anita Silvers The Blackwell Guide to Medical Ethics Edited by Rosamond Rhodes, Leslie P. Francis, and Anita Silvers © 2007 by Blackwell Publishing Ltd BLACKWELL PUBLISHING 350 Main Street, Malden, MA 02148–5020, USA 9600 Garsington Road, Oxford OX4 2DQ, UK 550 Swanston Street, Carlton, Victoria 3053, Australia The right of Rosamond Rhodes, Leslie P. Francis, and Anita Silvers to be identifi ed as the Authors of the Editorial Material in this Work has been asserted in accordance with the UK Copyright, Designs, and Patents Act 1988. All rights reserved. No part of this publication may be reproduced, stored in a retrieval system, or transmitted, in any form or by any means, electronic, mechanical, photocopying, recording or otherwise, except as permitted by the UK Copyright, Designs, and Patents Act 1988, without the prior permission of the p ublisher. First published 2007 by Blackwell Publishing Ltd 2 2007 Library of Congress Cataloging-i n- Publication Data The Blackwell guide to medical ethics / edited by Rosamond Rhodes, Leslie P. Francis, Anita Silvers p. cm. — (Blackwell Philosophy Guides; 21) Includes bibliographical references and index ISBN- 13: 978–1-4 051–2583–3 (hardback: alk. paper) ISBN-1 3: 978–1- 4051–2584–0 (pbk.: alk. paper) 1. Medical ethics. I. Rhodes, Rosamond. II. Francis, Leslie, 1946– III. Silvers, Anita. IV. Title: Guide to medical ethics. V. Series = 20 [DNLM: 1. Ethics, Medical. 2. Bioethical Issues—legislation & jurisprudence. 3. Patient Rights—ethics. 4. Public Policy. W 50 B632 2007] R724.B515 2007 174.2—dc22 2006027510 A catalogue record for this title is available from the British L ibrary. Set in 10/13 pt Galliard by The Running Head Limited, Cambridge, www.therunninghead.com Printed and bound in Singapore by Fabulous Printers Pte Ltd The publisher’s policy is to use permanent paper from mills that operate a sustainable forestry policy, and which has been manufactured from pulp processed using acid-f ree and elementary chlorine-f ree practices. Furthermore, the publisher ensures that the text paper and cover board used have met acceptable environmental accreditation s tandards. For further information on Blackwell Publishing, visit our w ebsite: www.blackwellpublishing.com Contents Notes on Contributors vii Introduction 1 Rosamond Rhodes, Leslie P. Francis, and Anita Silvers Part I Individual Decisions About Clinical Issues I.1 Patient Decisions 15 1 A utonomy, the Good Life, and Controversial Choices 17 Julian Savulescu 2 I ndividual Responsibility and Reproduction 38 Rachel A. Ankeny 3 P atient and Family Decisions about Life-E xtension and Death 52 Felicia Nimue Ackerman I.2 Individual Decisions of Physicians and Other Health Care Professionals 69 4 T he Professional Responsibilities of Medicine 71 Rosamond Rhodes 5 T ruth Telling 88 Roger Higgs 6 M edical Confi dentiality 104 Kenneth Kipnis 7 Patient Competence and Surrogate Decision-M aking 128 D an W. Brock 8 Ending Life 142 F.M. Kamm 9 Discrimination in Medical Practice: Justice and the Obligations of Health Care Providers to Disadvantaged Patients 162 Leslie P. Francis v Contents 10 Institutional Practices, Ethics, and the Physician 180 Mary V. Rorty , Ann E. Mills, and Patricia H. Werhane Part II Legislative and Judicial Decisions about Social Policy I.1 Liberty 19 11 Reproductive Choice 201 Rebecca Bennett and John Harris 12 Public Policy and Ending Lives 220 Evert van Leeuwen and Gerrit Kimsma 13 Drug Legalization 238 Douglas N. Husak 14 Selling Organs, Gametes, and Surrogacy Services 254 Janet Radcliffe Richards 15 The Patient as Victim and Vector: The Challenge of Infectious Disease for Bioethics 269 Margaret P. Battin, Leslie P. Francis Jay A. Jacobson, and Charles B. Smith 16 Abuses of Science in Medical Ethics 289 Glenn McGee and Dýrleif Bjarnadóttir I.2 Justice 303 17 Allocation of Scarce Resources 305 Paul Menzel 18 Just Caring: The Challenges of Priority-S etting in Public Health 323 Leonard M. Fleck 19 Justice and the Financing of Health Care 341 Stephen R. Latham 20 Judgment and Justice: Evaluating Health Care for Chronically Ill and Disabled Patients 354 Anita Silvers 21 Justice in Research on Human Subjects 373 David R. Buchanan and Franklin G. Miller 22 Ethics of Disclosure Following a Medical Injury: Time for Reform? 393 Troyen Anthony Brennan 23 Pre-e xisting Conditions: Genetic Testing, Causation, and the Justice of Medical Insurance 407 Robert T. Pennock Index 425 vi Notes on Contributors Felicia Nimue Ackerman PhD is Professor of Philosophy at Brown University, Providence, Rhode Island, USA. Her essays on bioethics have appeared in the Hastings Center Report, the Oxford Handbook of Bioethics (2007), and elsewhere. Her short stories on bioethical themes are published in Prize Stories 1990: The O. Henry Awards, Commentary, and elsewhere. Her poems on bioethics are in Ragged Edge Online and elsewhere. She is preparing Bioethics Through Fiction, a volume of her stories and essays that will be published by Rowman & L ittlefi eld. Rachel A. Ankeny PhD is Senior Lecturer of the Unit for History and Philosophy of Science, University of Sydney, Australia. Her research interests include the history and philosophy of the biomedical sciences, particularly epistemological and ethical issues; the philosophy of medicine; the public understanding of biomedical sciences; and ethical issues associated with transplantation, genetics, reproductive technologies, and p harmaceuticals. Margaret P. Battin MFA, PhD is Distinguished Professor in the Department of Philosophy and Adjunct Professor in the Division of Medical Ethics, Depart- ment of Internal Medicine at the University of Utah. She is the author or editor of a dozen books, most recently, Ending Life: Ethics and the Way We Die (Oxford, 2005). Her current areas of interest and research include suicide, physician-a ssisted suicide and euthanasia, ethics and infectious disease, and reproductive issues. Rebecca Bennett PhD teaches in The Centre for Social Ethics and Policy, School of Law, University of Manchester, Manchester, UK. Dr Bennett has taught bioe thics for 12 years and has published widely on diverse issues in bioethics. Her particu- lar area of interest is the ethics of human reproduction including ante natal HIV and genetic testing, pre-l implatation genetic diagnosis, cloning, stem cell research, ectogenesis, and paternal rights. She is also responsible for d evising, developing, and running the innovative distance learning MA/Postgraduate Diploma in Health Care Ethics and Law. vi Notes on Contributors Dýrleif Bjarnadóttir MA, MS is a Senior Research Fellow at the Alden March Bioethics Institute in Albany NY, and is currently completing a dissertation in reproductive ethics. Her recent research has included newborn screening, the obli- gations of parents to their children, and the signifi cance of cultural variances in the invocation of parental autonomy in treatment decisions for n eonates. Troyen Anthony Brennan MD is the Chief Medical Offi cer at Aetna. He was pre- viously Professor of Medicine at Harvard Medical School. Dan W. Brock PhD is the Frances Glessner Lee Professor of Medical Ethics at Harvard Medical School. He is the author (with Allen Buchanan) of Decid- ing for Others: The Ethics of Surrogate Decision Making (Cambridge University Press, 1989) as well as (with others) From Chance to Choice: Genetics and Justice (Cambridge University Press, 2000). His current research focuses on resource pri- oritization in the health sector. David R. Buchanan DrPH, MA, is Research Fellow at the National Cancer Insti- tute, Bethesda, Maryland, USA. Dr Buchanan has written extensively about the ethics of health promotion, public health ethics, and research ethics from a public health perspective. His most recent books include An Ethic for Health Promotion (Oxford University Press, 2000), and Ethical and Legal Issues in Research with High Risk Populations (APA Press, in press). Leonard M. Fleck PhD, Professor of Philosophy and Medical Ethics, Michigan State University, East Lansing, Michigan, USA, has written extensively on the role of rational democratic deliberation in more justly addressing problems of health care rationing and priority-s etting as well as ethical and policy issues related to genetics and reproductive decision-m aking. Leslie P. Francis PhD, JD is Professor of Philosophy and the Alfred C. Emery Professor of Law, Adjunct Professor of Political Science at the University of Utah, and Adjunct Professor in the Division of Medical Ethics, Department of Internal Medicine at the University of Utah School of Medicine. Current areas of interest and research include bioethics and the law of bioethics, health law, the philosophy of law, and research ethics. John Harris FMedSci is Sir David Alliance Professor of Bioethics, School of Law, University of Manchester and is joint Editor- in- Chief of The Journal of Medical Ethics. He has been a member of The United Kingdom Human Genetics Commission since its foundation in 1999. Recent books include Clones, Genes and Immortality (Oxford University Press, 1998); John Harris (ed.), Bioethics, Oxford Readings in Philosophy Series, (Oxford University Press, 2001); Justine C. Burley and John Harris (eds.), A Companion To Genethics: Philosophy and the Genetic Revolution, Blackwell’s Compan- ions to Philosophy series (Blackwell, 2002); and On Cloning, (Routledge, 2004). viii Notes on Contributors Roger Higgs MBE, MA, FRCP, FRCGP is a physician and ethicist. He is Profes- sor Emeritus at King’s College London, specializing in general (family) practice and primary care, and ethics. He retired from active primary medical care in 2004 after 30 years as a physician, educator, and innovator in south London. He has published on psychological issues, health care development, and clinical ethics. Douglas N. Husak PhD, JD is Professor of Philosophy at Rutgers University, New Jersey, USA. He works in legal philosophy generally, and in the philosophy of criminal law in particular. He is the author of Philosophy of Criminal Law (Rowman & Littlefi eld, 1987), Drugs and Rights (Cambridge University Press, 1992), and Legalize This (Verso, 2002). Jay A. Jacobson MD is Professor of Internal Medicine, Chief of the Division of Medical Ethics, and a member of the Division of Infectious Disease at LDS Hospi- tal and the Department of Medicine at the University of Utah School of Medicine. Current areas of interest and research include clinical and classroom teaching of medical ethics, infectious diseases, sub- specialty consultation and patient care, end of life care, and informed consent and medical decision-m aking. F. M. Kamm PhD is Littauer Professor of Philosophy and Public Policy, Kennedy School of Government, and Professor of Philosophy, FAS, Harvard University, Massachusetts, USA. She specializes in normative ethical theory and practical ethics. Professor Kamm is the author of Creation and Abortion (Oxford University Press, 1992), Morality, Mortality , vols. 1 and 2 (Oxford University Press, 1993 and 1996), Intricate Ethics (Oxford University Press, 2006), and numerous essays in ethical theory and practical ethics. Gerrit Kimsma, MD, drs Phil, is a general practitioner and fellow of the Center of Ethics and Philosopy, at Vrije Universiteit Medisch Centrum in Amsterdam, the Netherlands. His writing has focused on death and dying and the professional ethics of physicians. He is a member of the Euthanasia Committee of South- H olland and co-e ditor of Asking to Die: Inside the Dutch Euthanasia Debate (Kluwer, 1998). Kenneth Kipnis PhD is a professor in the Department of Philosophy at the University of Hawaii at Manoa. His publications touch on ethical issues across a range of fi elds – law, medicine, early childhood education, engineering, and research on human subjects – and he has been writing about confi dentiality for more than 25 years. Stephen R. Latham JD, PhD is Professor of Law and Director of the Center for Health Law and Ethics at the Quinnipiac University School of Law in Hamden, Connecticut, USA. He was a former research fellow at the University of Edinburgh’s Institute for Advanced Studies in the Humanities. His writings on ix

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