Textbook of Palliative Medicine and Supportive Care PDF
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Clinical Medicine B r u e r a H i g g i n s o n v o n G u n t e n M o r i t a S e c o n d E d i t i o n Second Edition TEXTBOOK OF PALLIATIVE MEDICINE SECOND EDITION AND SUPPORTIVE CARE TEXTBOOK The second edition of the Textbook of Palliative Medicine and Supportive Care builds upon the strengths of the previous edition, providing an alterna- tive approach to this ever-growing specialty. In the absence of an international T PALLIATIVE curriculum for the study of palliative medicine, this textbook continues to E provide the essential guidance for those either embarking upon a career in X OF palliative medicine or already established in the field. T B With additional chapters covering all the different aspects of supportive care, the second edition expands upon its unique evidence-based, multi-profes- AO MEDICINE sional approach and global perspective ensured by the international team of NO editors and contributing authors. It features an entirely new section on the DK assessment and management of effects of medical treatments as well as a new section on rehabilitation and survivorship. This edition also contains new O S material on chemotherapy- and radiation therapy-induced emesis, geriatric UF SUPPORTIVE palliative care, and hormonal therapy and targeted agents. PP AND With an emphasis on providing palliative service anywhere in the world, PA including the need to provide such care in developing nations, the book is OL an ideal complement to the narrative approach of other texts on the topic. RL It is essential reading for all palliative care physicians in training and in CARE I T practice, as well as palliative and support care nurses and other health A I professionals on the palliative care team. VT EI Eduardo Bruera, MD, FAAHPM, MD Anderson Cancer Center, V University of Texas, Houston, Texas, USA CE A Irene Higginson, OBE, BMedSci, BMBS, PhD, FMedSci, FRCP, FFPHM, M King’s College London, London, UK R E E Charles F von Gunten, MD, PhD, FACP, FAAHPM, FAACE, OhioHealth, D Columbus, Ohio, USA I C Tatsuya Morita, MD, Seirei Mikatahara General Hospital, Hamamatsu, Japan I N E Edited by Eduardo Bruera (cid:127) Access online or download to your smartphone, tablet or PC/Mac (cid:127) Search the full text of this and other titles you own (cid:127) Make and share notes and highlights Irene Higginson (cid:127) Copy and paste text and figures for use in your own documents (cid:127) Customize your view by changing font size and layout Charles F von Gunten K18358 Tatsuya Morita TEXTBOOK PALLIATIVE OF MEDICINE TEXTBOOK PALLIATIVE OF MEDICINE Edited by Eduardo Bruera Professor and Chair Department of Palliative Care & Rehabilitation Medicine The University of Texas MD Anderson Cancer Center F.T. McGraw Chair in the Treatment of Cancer Houston, Texas, USA Irene Higginson Cicely Saunders Institute King's College London, London, UK Charles F von Gunten Ohiohealth, Columbus, Ohio, USA Tatsuya Morita Palliative and Supportive Care Division, Seirei Mikatahara Hospital Hamamatsu, Japan Boca Raton London New York CRC Press is an imprint of the Taylor & Francis Group, an informa business CRC Press Taylor & Francis Group 6000 Broken Sound Parkway NW, Suite 300 Boca Raton, FL 33487-2742 © 2015 by Taylor & Francis Group, LLC CRC Press is an imprint of Taylor & Francis Group, an Informa business No claim to original U.S. Government works Version Date: 20140425 International Standard Book Number-13: 978-1-4441-3526-8 (eBook - PDF) This book contains information obtained from authentic and highly regarded sources. While all reasonable efforts have been made to publish reliable data and information, neither the author[s] nor the publisher can accept any legal responsibility or liability for any errors or omissions that may be made. The publishers wish to make clear that any views or opinions expressed in this book by individual editors, authors or contributors are personal to them and do not necessarily reflect the views/opinions of the publishers. The information or guidance contained in this book is intended for use by medical, scientific or health-care profes- sionals and is provided strictly as a supplement to the medical or other professional’s own judgement, their knowledge of the patient’s medical history, relevant manufacturer’s instructions and the appropriate best practice guidelines. Because of the rapid advances in medical science, any information or advice on dosages, procedures or diagnoses should be independently verified. The reader is strongly urge to consult the relevant national drug formulary and the drug companies’ printed instructions, and their websites, before administering any of the drugs recommended in this book. This book does not indicate whether a particular treatment is appropriate or suitable for a particular individual. Ultimately it is the sole responsibility of the medical professional to make his or her own profes- sional judgements, so as to advise and treat patients appropriately. The authors and publishers have also attempted to trace the copyright holders of all material reproduced in this publication and apologize to copyright holders if permission to publish in this form has not been obtained. If any copyright material has not been acknowledged please write and let us know so we may rectify in any future reprint. Except as permitted under U.S. Copyright Law, no part of this book may be reprinted, reproduced, transmitted, or utilized in any form by any electronic, mechani- cal, or other means, now known or hereafter invented, including photocopying, microfilming, and recording, or in any information storage or retrieval system, without written permission from the publishers. For permission to photocopy or use material electronically from this work, please access www.copyright.com (http://www.copyright.com/) or contact the Copy- right Clearance Center, Inc. (CCC), 222 Rosewood Drive, Danvers, MA 01923, 978-750-8400. CCC is a not-for-profit organization that provides licenses and registration for a variety of users. For organizations that have been granted a photocopy license by the CCC, a separate system of payment has been arranged. 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Visit the Taylor & Francis Web site at http://www.taylorandfrancis.com and the CRC Press Web site at http://www.crcpress.com To Ed, Sofia, and Sebastian Eduardo Bruera To Kathleen and Leslie Higginson Irene Higginson Dedicated to the leadership, staff, and benefactors of OhioHealth for pursuing the vision of palliative care woven throughout a healthcare system dedicated to serving its community Charles F. von Gunten Dedicated to the memory of Doctor Satoshi Chihara, my first and best mentor Tatsuya Morita We would like to dedicate this book to the memory of the pioneers of palliative care, with gratefulness Contents Preface xv Editors xvii Contributors xix List of abbreviations xxxi Reference annotation and evidence scores xxxv Part 1 The development of palliative medicine 1 1 Development of palliative medicine in the United Kingdom and Ireland 3 Bill Noble, Michelle Winslow 2 Development of palliative care in Europe 11 Carl Johan Fürst, Lukas Radbruch 3 Development of palliative care in Canada 23 John F. Scott, Jose Pereira, Peter Lawlor 4 Development of palliative medicine in the United States 35 Charles F. von Gunten 5 Development of palliative medicine in Latin America 43 Roberto Wenk 6 Development of palliative medicine in Africa 49 Liz Gwyther, Sue Boucher, Richard Harding 7 Development of palliative care in Australia and New Zealand 59 Jane Phillips, Jane M. Ingham, Rod MacLeod 8 Development of palliative medicine in Asia 71 Satoru Tsuneto 9 Palliative care as a public health issue 77 E. Iris Groeneveld, Irene J. Higginson 10 Palliative care as a primary care issue 83 Scott A. Murray 11 Future of palliative medicine 91 Charles F. von Gunten, Irene J. Higginson 12 Palliative care and supportive care 97 Eduardo Bruera, David Hui Part 2 Bioethics 103 13 Bioethical principles in palliative care 105 Paulina Taboada viii Contents 14 Ethics in the practice of palliative care 119 James A. Tulsky 15 Dignity in palliative care 127 Susan E. McClement, Harvey Max Chochinov, Maia Kredentser Part 3 Problems and challenges of global research 135 16 Transcultural palliative care 137 Carl Johan Fürst, Solvig Ekblad 17 Palliative care: Global situation and initiatives 145 Liliana De Lima Part 4 Education 151 18 Undergraduate education in palliative medicine 153 Doreen Oneschuk 19 Graduate education for nonspecialists 159 Ilora G. Finlay, Simon I.R. Noble 20 Changing the norms of palliative care practice by changing the norms of education and quality improvement: A case example 167 Linda Emanuel Part 5 Research and audit 175 21 Challenges of research in palliative and supportive medicine 177 Irene J. Higginson 22 The population: Who are the subjects in palliative medicine research? 187 Claudia Bausewein, Fliss E.M. Murtagh 23 Study designs in palliative medicine 193 Massimo Costantini 24 Outcome measurement in palliative care 201 Joan M. Teno 25 Ethics in palliative care research 211 Jonathan Koffman, Katie Stone, Fliss E.M. Murtagh 26 Practical tips for successful research in palliative care 221 Eduardo Bruera, Sriram Yennurajalingam 27 Audit and quality improvement in palliative care research 227 Hsien-Yeang Seow, Deanna Bryant, Sarah Myers, Joanne Lynn Part 6 Organization and governance 235 28 Adoption of palliative care: The engineering of organizational change 237 Winford E. (Dutch) Holland 29 Principles of measuring the financial outcomes of specialist palliative care programs 245 J. Brian Cassel, Thomas J. Smith 30 Organization and support of the interdisciplinary team 251 Karen Macmillan, Louise Kashuba, Bette Emery 31 Population-based needs assessment for patient and family care 257 Irene J. Higginson, Charles F. von Gunten 32 Palliative care consult team 265 Rachel M. Adams, Alexie Cintron, Diane E. Meier
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