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DOCUMENT RESUME ED 313 820 EC 212 285 ALTHOR Enders, Alexandra, Ed. TITLE Technology for Independent Living: Sourcebook. INSTITUTION RESNA: Association for the Advancement of Rehabilitation Technology, Washington, DC.; Wisconsin Univ., Madison. Trace Center. SPONS AGENCY National Inst. of Handicapped Research (ED), Washington, D.C. REPORT NO ISBN-0-932101-08-9 PUB DATE May 84 GRANT G008300045 NOTE 286p.; Prepared by Tools for Living in the Community (TLC), Berkeley, California. AVAILABLE FROM RESNA, Department 4813, Washington, DC ?0061-4813 ($25.00). PUB TYPE Guides Non-Classroom Use (055) -- Reference Materials - Directories/Catalogs (132) EDRS PRICE MF01/PC12 Plus Postage. DESCRIPTORS *Assistive Devices (for Disabled); Communication Aids (for Disabled); Electronic Control; Elementary Secondary Education; *Engineering Technology; Financial Support; *Independent Living; Information Services, Microcomputers; *Normalization (Handicapped); *Physical Disabilities; Physical Mobility; Recreational Activities; *Rehabilitation; Sensory Aids; Vocational Rehabilitation ABSTRACT This sourcebook provides information for the practical implementation of independent living technology in the everyeqy rehabilitation process. "Information Services and Resources" lists d_tabasesr clearinghouses, networks, research and development programs, toll-free telephone numbers, consumer protection caveats, selected publications, and technology resources related to specific disabilities or age groups. "The Equipment Selection Process" addresses the importance of systematic selection procedures and provides guidelines for the initial client interview and an independent living skills checklist. "Technology at Home" offers advice on use of hospital beds at nome, nome management, personal care, clothing and shoes, architectural adaptations, and environmental control devices. "Educational and Vocational Technology" descr:.bes technical aids which may benefit disabled employees and students at all levels of education. "Recreational and Leisure Technology" focuses on wheelchair sports, water sports, winter sports, leisure activities such as gardening and fitness, and toys and games. "Technology for Personal Mobility" deals with seated wheeled systems, other types of mobility equipment such as walking aids and lifts, seating and positioning technology, and personal vehicles. Other sections include "Control, Communication and Sensory Aids," "Microcomputer Applications," and "Funding, Models, Policy, Statistics." (JDD) U S DEPARTMENT OF EDUCATION 411A Office of Educational Research and Improvement EDUCATIONAL RESOURCES INFORMATION CENTER (ERIC) Phis document has been reproduced n 00 received from the person or organization originating it Minor changes have been made to improve reoroduchoo duality r-i Points of view or opinions stated in this docu- ment do not necessarily represent offiCial CreJ OEM position or policy f=1 'TECHNOLOGY For INDEPENDENT LIVING SOURCEBOOK "PERMISSION TO REPRODUCE THIS MATERIAL HAS BEEN GRANTED BY Patricia Horner TO THE EDUCATIONAL RESOURCES INFORMATION CENTER (ERIC; " INFORMATION SERVICES AND RESOURCES; THE EQUIPMENT SELECTION PROCESS; EDUCA- TIONAL AND VOCATIONAL TECHNOLOGY; RECREATIONAL & LEISURE TECHNOLOGY; TECHNOLOGY FOR PERSONAL MOBILITY; CONTROL, COMMUNICATION & SENSORY AIDS; MICROCOMPUTER APPLICATIONS; FUNDING, MODELS, POLICY, STATISTICS Association for the Advancement of Rehabilitation Technology Alexandra Faders, O.T.R., Editor 4 BEST COPY AVAILABLE Technology for Independent Living Sourcebook Alexandra Enders, O.T.R. Editor Association for the Advancement of Rehabilitadon Technology, Publishers Suite 700, 1101 Connecticut Avenue, N W Washington, D C 20036 202/857-1199 U TECHNOLOGY FOR INDEPENDENT LIVING SOURCEBOOK Third Printing Copyright 1984 by the Association for the Advancement of Rehabilitation Technology ALL RIGHTS RESERVED This book may not be reproduced in any form without the permission of the publisher Individual pages may be reproduced with proper acknowledgment (except where taken trom another source which should be consulted) RESNA, Suite 700 1101 Connecticut Avenue, N W Washington, D C 20036 202/857-1199 Printed in the United States of America ISBN 0-932101-08-9 FOREWORD A primary mission of the Education and Publication Committees of RESNA is to promote the development of quality educational courses and materials for the member- ship. Our efforts in the past, as with most new ventures, have been limited mostly to individuals presenting their own research or clinical experiences Unfortunately, this does little to draw on the experiences of others with th s goal towards compiling a more objective knowledge base within a specific clinical area. that then can be used by others as a valuable information source for problem-solving This publication represents the second effort by the Education and Pub li, ation Committees to compile our current knowledge base and related information sources in the area of technology for independent living. The first was the Technology for Independent Uvingi Resource Guide published last year. The Sourcebolk continues and updates these materials, adding sections on control, communication and microcomputer applications. It also extends the scope of the original Guido by adding material to help consumers, practitioners and developers gain a better perspective on the many and individual fields covered, as well as some understanding of the priorities for intervention or action within them. The original Resource Guide, and now the Sourcebook, reflect a trend in RESNA from simply reporting on technology, toward the development and presentation of materials and information on the practical implementation and application of technology in the everyday rehabilitation process. This increasing orientation in RESNA toward more service delivery and community-based information is a result of the growing number of rehabilitation practitioners within RESNA who both seek and provide us with this information We are indebted to Alexandra Enders for setting the pace in this direction as well as for the tremendous effort put forth in compiling, revising and extending this Sourcebook. A special thanks is also given to Maurice LeBlanc who provided the support for the initial Resource Guie on which this book is based and to Christine Thompson, who, under very tight timelines, typed and proofed the Sourcebook for publication Gregg C. Vanderheiden Chairman. Publications Committee May, 1984 If you have or know of information which you believe should be in the next edition of the SourcPbook. please forward the information to RESNA's office, attention Sourcebook Editor. If you are willing to assist the Editor in compiling the information for a section (existing or new) of the next edition, please contact either the RESNA office or the Publication committee chairperson The quality, accuracy and comprehensiveness of the Sourcebook is dependent upon participation by consumers and professionals from each of the fields covered. I TECHNOLOGY FOR INDEPENDENT USING SOURCESOOK RESNA HIM I This Book was prepared for RESNA by the staff of Tools for Living in the Community (TLC) Berkeley, California with production support from the Trace Research and Development Center Waisman Center, University of WisconsinMadison under its Grant No. G008300045 from the National Institute of Handicapped Research U.S. Department of Education ,-, U ACKNOWLEDGEMENTS This sourcebook is based on an earlier Resource Guide, which was compiled in conjunction with a RESNA-sponsored instructional course Technology for Independent Living, Houston, 1982. Material for the Resource Guide was contributed by the entire faculty. Lars Augustsson, Peter Axelson, Judy Bernett, Kathy Bowman, Will Clark, Alexandra Enders, Lex Frieden, Debbie Gilden, Marian Hall, John Leslie, Bob Kafka, Sam McFarland, Barry Romich, Jim Tobias, Elaine Trifler, and Margaret Young. The document was compiled and editwd at the Rehabilitation Engineering Center at Children's Hospital at Stanford. The need to expand and update the Resource Guide becar u obvious, and many members of RESNA helped make this second edition happen. David Jaffee, from the Palo Alto VA Rehabilitation R&D Center, had the original data files translated so they would vork on the Trace Center's computers Chris Thompson, of the Trace Center's staff, did all the typing, retyping, and arrangement a mammoth job -- in record time Without her, this book woula not have been produced Special thanks also go to Kathy Bowman, Project Threshold, Rancho Los Amigos Hospital; Jim Tobias, Rehabilitation Engineering Volunteer (REV) Network. New York; Rick Holte, Rehabilitation Engineering Center, Children's Hospital at Stanford, and John Brabyn, Smith-Kettlewell Rehabi- litation Engineering Center, San Francisco, who all contributed new or greatly revised sections. Marian Hall, ABLEDATA system manager, added new Information to the Informatior Section as well as providing up-to-date lists of manufacturers for several sections. The staff of the Trace Center, University of Wisconsin-Madison, made this book a reality. Besides physically making It appear on paper, the Trace staff added substantially to the new sections on Microcomputer ..pplica- bons, and Communication, Control and Sensory Aids. Mary Brady, Dale Bengston, and Francisco Villarruel all provided information. Gregg Vanderheiden not only contributed several articles, but also helped with the overall organization of the book, and the typesetting. ill TECHNOLOGY FOR INDEPENDENT UVING SOWICEITOOK RESNA 1984 Ill Each section of the Sourcebook was compiled from many sources including: Information Resources Assistive Devices for Handicapped Students A Model and Guild for a Statewide Delivery System. 'Things that Help the Handicapped Help Them- 1980 National Association of State Directors of selves." Changing Times Magazine, November t983 Special Education, 1201 16th Street NW #610E, Kip linger Magazina, 1729 H Street NW. Washington Washington. DC 20036 DC 200006. Joseph Stowitschek's Forward to "Technological Advances in Special Education" Exceptional Edu- Technology and the Handicapped. Office of Tech- cation Quarterly. Winter, 1984 nology Assessment, US Congress, Washington, DC Project Teach Memphis City Schools, Division of "Buyer Beware Shopping for Assistive Devices" Special Education, 2597 Avery Avenue, Memphis, TN Sensory Aids Technology Update Sen. Ty Aids Foundation, 399 Sheridan, Palo Alto, CA "A Resource Center arid Database Providing Educa- tional and Vocational Access to Technical Fields "Warranties Can Save You Time and Money" J for Persons with Cisabtlities Helen Woodall and Schmitt, in Accent on Living, Spring 1981 P 0 Albert Cook Proceedings of the Sixth Annual Box 700, Bloomington, IN Conference on Rehabilitation Engineering RESNA 4405 East-West Highway, Bethesda, MD Comfortably Yours Catalog 52 West Hunter Ave, Maywood, NJ 07607 Special Needs Education Material for Vocational and Industrial Education Part I Apparatus Plan Book Part 2 Bibliography Ken Brewelheide, Equipment Selection Process Department of Agricultural and Industrial Educa- tion, Montana State University, Helena. MT Kathy Bowman, OTR. Project Threshold, Rancho Los Amigos Hospital, Downey, CA. Technology for Independent Living II Virginia Stern & Martha Redden, editors AAAS, 1776 Massa- chusetts Avenue NW, Washington, DC Technology at Home Sam McFarland Southwest Research Institute San "Hospital Beds Come Home." Helen Cicschi, RN, and Antonio, TX. Mary Pat Erdner, RN RxHomeCare, May 1984 Barrington Publications, 825 Barrington .,venue. John Leslie Rehabilitation Engineering Center, Los Angeles, CA 90049 Cerebral Palsy Research Foundation of Kansas. Wichita, KS "Pressure Relief Characteristics of Six Thera- peutic Mattress Surfaces" I Herszkowicz et al Designing for Functional Limitations James Proceedings of the Sixth Annual Conference on Mueller Job Development Laboratory, The George Rehabilitation Engineering. RESNA 4405 East-West Washington University, Washington, DC Highway, Bethesda, MD. Drawings reprinted from A Guide to Controls. Recreational and Leisure Technology Children's Hospital at Sanford, Rehabilitation Engineenng Center, 520 Willow Road, Palo Alto, "Technology for Recreation Technology for CA Independent Living II Virginia Stern & Martha Redden, editors WS, 1776 Massachusetts Avenue Independence Through Environmental Control NW, Washington, DC Systems. D. Symington. Canadian Rehabilitation Council for the Disabled, 1 Younge Street, "Sports for Disabled Individuals" Rehab Brief, Toronto, Ontario, Canada January 26, 1981 NIHR, NARIC 1407 Eighth Street NE, Washington DC 20017 A Know-How Manual on Electricity for the Severely Disabled and Their Families. A Auchincloss and Manufacturers of Sports Wheelchairs ABLEDATA M. Youdin Institute of Rehabilitation Medicine, System, NARIC. 4407 Eighth Street NE, Washington New York University Medical Center, New York, NY DC '0017. Jim Tobias. Rehabilitation Engineering Volunteer Smith & Hawken Catalog for Gardeners 25 Corte Network, 201 W 85th Street #2E, New York, NY Madera, Mill Valley, CA 94941 10024. "The Value of Toys" Howard Shane Communication "Consum' r Alert." Judy Berke The Coordinator Outlook, April 1981 Artific dl Language Labora- Magazine, 11417 Vanowen Street, North Hollywood, tory, Michigan State University, East Lansing, MI CA 91605. "Exceptional Equipment for Exceptional Children" Educational and Vocational Technology Criteria for Selecting Play Equipment for Early Childhood Education Rifton Equipment, Rifton, Assistive Devices for Handicapped Students. A NY. Model and Guide for a Statewide Delivery System. Prentice Romich Company Catalog Shreve. OH r, 3 lv TECHNOLOGY FOR INDEPENDENT LIVING SOURCEBOOK RESNA IBM ie "Making Toys for Handicapped Children" R "Hints on Operating a Successful Driver Education McCorkey and D Jeffree Human Horizons Series, Program " Margaret Young, OTR Ontario Crippled Souvenir Press, Ltd 43 Great Russell Street, Children's Centre, 350 Rumsey Road, Toronto, London, Eng!ano. Ontario, Canada Evaluation forms from Colorado Driving School, Technology for Personal Mobility Englewood, CO "Mobility Device Evaluation Guide" Helen Tsuda, Teaching Driver Education to the Physically Handi- et al Children's Hospital at Stanford, Rehabili- capped Human Resources Center Albertson, NY tation Engineering Center, Palo Alto, CA Hand Controls and Assistive Devices for the Drawing reprinted from Prentke Romich Catalog, Physically Disabled Driver Human Resources Shreve, OH Center Albertson NY "Batteries on Powered Wheelchairs The Do's and Don'ts of Battery Care David Bayer Current Control, Communication and Sensory Aids Expressions, Vol 1, No 1 Newsletter of Prentke Romich Company, Shreve, OH A Guide t.) Controls Children's Hospital at Stanford, Rehabilitation Engineering Center, 520 Wheelchair Manufacturers. ABLEDATA System, NARIC, Willow Road, Palo Alto, CA 4407 Eighth Street NE, Washington DC 20017 "Controller Characteristics" Prentke Romich "The Development of Wheelchair Standards" L Company, Shreve, OH Phillips et al Proceedings of the Sixth Annual Conference on Rehabilitation Engineering riESNA, "Switch Rules and Considerations for Communication 4405 East-West Highway, Bethesda, MD Use" W Tracy and D Bevans Communication Outlook, Winter 1984 Artificial Language "Mobility Aids for the Blind" John Brabyn Laboratory, Michigan State Un,versity, East Smith-Kettlewell Institute of Visual Sciences, Lansing, MI 2232 Webster St, San Francisco, CA "Some Guidelines for Good Interfaces High Paul Brand Editorial in Journal of Rehabilita- Technology Magazine April 1980 tion R&D Vol 20, #1, July 1983 Office of Technology Transfer, VAPC, 752 Seventh Avenue, Nev. "What Kind of Communication Aids Are Available?" York, NY Trace R&D Center, 314 Weisman Center, 1500 Highland Avenue, Madison WI Choosing the Best Wheelchair Cushion for Your Needs, Your Chair, and Your Lifestyle Peggy Jay James Heller's book review of Communication Royal Association for Disability and Rehabilita- Systems for Severely Handicapped Persons In tion, 25 Mortimer Street, London, England Rehabilitation Literature, November 1983 "The Effectiveness of Preventive Management in Sensory Aids Technology ptiate November 1983, Reducing the Occurrence of Pressure Sores" 7 December 1983 Sensory Aids Found:Awn, 399 Krouskop et al Journal of Rehabilitation R&D Sheridan, Palo Alto, CA Vol 20, #1, July 1983 Office of Technology Transfer, VAPC, 752 Seventh Avenue, New York, NY Microcomputer Applications "A Br.ef Guide to Postural Seating Technology" Ric:lard Holte Children's Hospital at Stanford, Personal Computers and the Disabled A Resource Rehabilitation Engineering Center, 520 Willow Guide Apple Computer, Inc, Cupertino, CA Road, Palo Alto, CA Comparison of Apple, Epson, IBM Microcomputers Seating for Children with Cerebral Palsy A for Applica Ions in Rehabilitation Systems for Resource Manual Elaine Trefler, editor Persons with Physical Handicaps Trace R&D University of Tennesee Rehabilitation Engineering Center, 314 Weisman Center, 1500 Highland Avenue, Program, 682 Court, Memphis, TN Madison WI Douglas Hobson Um /ersity of Tennesee Rehabili- "Computer Shopping for the Blind Consumer" tation Engineering Program, 682 Court, Meriiphis, Sensory Aids Technology Update Sensory Aids TN Four-dation, 399 Sheridan, Palo Alto, CA "Side by Side Trials An Evaluation Methodology Gregg Vanderheiden Trace R&D Center, 314 Weisman for Comparative Testing of Modular Wheelchair Center, 1500 Highland Avenue, Madison WI Insert Systems" S Schar:ein, R Holte Proceedings of the Sixth Annual Conference On "How Cat Use a Computer If I Can't Use Its rtehabilitation Engneering RESNA, 4405 East-West Standard Keyboard?" Gregg Vanderheiden Trace Highway, Bethesda, MD R&D Center, 314 Waisman Center, 1500 Highland Avenue, Madison WI Rehab Brief. June 25, 1964 NIHR, NARIC, 4407 Eighth Street NE, Washington DC 20017 tJ TECHNOLOGY FOR INDEPENDENT LIVING SOURCEBOOK RESNA 1984 Network (Jews Vol 6, #3 Newsletter of the Technical Assistance and Dissemination Network Illinois Special Needs Population, Turner Hall 205, Illinois State University, Normal, IL Generic Model of Comptuer Applications for the Handicapped (chart) Computer Technology for the Handicapped in Special Education and Rehabilita- tion A Resource Guide G Nave et al Inter- national Council for Computers in Education, University of Oregon, Eugene, OR. Funding, Models, Policy, Statistics "High Tech/High Touch" Douglas Fenderson, Ph.D Discovery '83. Computers for the Disabled Materials Development Center, Stout Vocation& Rehabilitation Institute, University of Wisconsin- Stout, Menominee, WI "Public Service Community Development Block Grants" Communication Outlook, Winter 1984 Artificial Language Laboratory, Michigan State University, East Lansing, MI Project Teach Memphis City Schools, Division of Special Education, 2597 Avery Avenue, Memphis TN Accomodation Can Be Reasonable A Study of Accom- modations Provided to Handicapped Employees by Federal Contractors Department of Labor, Washington, DC Disability Management Today Mueller & Zullo, In 16 Hudson Street, New York, NY "Engineering Aids Reduce Barriers to Employment for Severely Handicapped Clients" Rehab Brief, Vol 1 #8, August, 1978 NIHR, NARIC, 4407 8th Street NE, Washington DC 20017 Protect Threshold Annual Report 1982 Project Threshold, Rancho Los Amig-is Hospital, Downey, CA "Provision of Assistive Equipment for Handicapped Persons" J Kohn et al Archives of Physical Medicine and Rehabilitation, Vol 64, August 1983 "How Much Is Your Disability Worth?" Accent on Living, Summer 1981 PO Box 700, Bloomington, IN "Implications of Cost Effectiveness Analysis of Medical Technology" Office of Technology Assessment, US Congress, Washington, DC Additionally, two sources were used throughout the -xt Easter Seals, bibliographies, brochures, and the reviews in its bimonthly publication, Rehabilita- tion Literature National Rehabilitation Information Center (NARIC) bibliographic sources and annotations t vi TECHNOLOGY FOR INDEPENDENT LIVING SOU ICEBOOK RESNA 1984 vi

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