Sexuality And Fertility Issues in Ill Health And Disability: From Early Adolescence to Adulthood PDF
Preview Sexuality And Fertility Issues in Ill Health And Disability: From Early Adolescence to Adulthood
Sexuality and Fertility Issues in Ill Health and Disability of relatedinterest ThirdPartyAssistedConceptionAcrossCultures Social,LegalandEthicalPerspectives EditedbyEricBlythandRuthLandau ISBN1843100843(paperback) ISBN1843100851(hardback) ExperiencesofDonorConception Parents,OffspringandDonorsthroughtheYears CarolineLorbach ForewordbyEricBlyth ISBN184310122X CounsellorsinHealthSettings EditedbyKimEtherington ForewordbyTimBond ISBN1853029386 AnA-ZofCommunityCareLaw MichaelMandelstam ISBN1853025607 Sexuality YourSonsandDaughterswithIntellectualDisabilities KarinMelbergSchwierandDaveHingsburger ISBN1853028967 Sex,SexualityandtheAutismSpectrum WendyLawson ForewordbyGlenysJones ISBN1843102846 SexualityandWomenwithLearningDisabilities MichelleMcCarthy ForewordbyHilaryBrown ISBN1853027308 TheChronicIllnessGame IsabelleC.StrengandA.M.Stradmeijer BoardgameISBN1843103761 Understanding12–14-Year-Olds MargotWaddell ISBN1843103672 ParentingGirls JanetIrwin,SusannadeVriesandSusanStratigosWilson ISBN1853029467 SpecialBrothersandSisters StoriesandTipsforSiblingsofChildrenwithaDisabilityorSeriousIllness EditedbyAnnetteHamesandMonicaMcCaffrey IllustratedbyBrendanMcCaffrey ISBN1843103834 Sexuality and Fertility Issues in Ill Health and Disability From Early Adolescence to Adulthood Edited by Rachel Balen and Marilyn Crawshaw Jessica Kingsley Publishers London and Philadelphia Frontcoverartwork:ArrowbyDanSavage ‘Thearrowtotheleft-handsideofthispiecedepictsthearrowthatwasdrawnonmylegfortheoperation.Thatsucha rudimentarymethodwasemployedbythedoctorspriortoamajoroperationseemedtometoberatherbasic.AsIfoundout moreinformationaboutmycondition,Ibegantoreflectonmyownlife.Thisself-reflectionissymbolizedbytheuseofa mirroredsurfacebehindthefigure’shead.Iporedthroughbiologytextbooks,medicalwebsitesandleafletstotrytofindout asmuchasIpossiblycould.Thediagramsinthepiece,togetherwiththemorphingofthefigureintoabiologicaldiagram,are representativeofthistime. ThispieceisalsoconcernedwithaconsequenceofthechemotherapythatIwasunpreparedfor.Thequickonsetof chemotherapymeantthatIhadtoberushedthroughspermbanking.ThebackgroundistheconsentformthatIhadtosign. NotonlywasIexperiencingincredibleembarrassmentatthetimebutIalsohadtoconsiderdecisionsthatIwouldbemaking inyearstocome–aboutstartingafamily.SuddenlytherealizationthatImightbeaffectedlongtermmademethinkofthe widerimplicationsofchemotherapy.’ Firstpublishedin2006 byJessicaKingsleyPublishers 116PentonvilleRoad LondonN19JB,UK and 400MarketStreet,Suite400 Philadelphia,PA19106,USA www.jkp.com Copyright©JessicaKingsleyPublishers2006 Therightofthecontributorstobeidentifiedasauthorsofthisworkhasbeenassertedbytheminaccordancewiththe Copyright,DesignsandPatentsAct1988. Allrightsreserved.Nopartofthispublicationmaybereproducedinanymaterialform(includingphotocopyingor storingitinanymediumbyelectronicmeansandwhetherornottransientlyorincidentallytosomeotheruseofthis publication)withoutthewrittenpermissionofthecopyrightownerexceptinaccordancewiththeprovisionsofthe Copyright,DesignsandPatentsAct1988orunderthetermsofalicenceissuedbytheCopyrightLicensingAgency Ltd,90TottenhamCourtRoad,London,EnglandW1T4LP.Applicationsforthecopyrightowner’swrittenpermission toreproduceanypartofthispublicationshouldbeaddressedtothepublisher. Warning:Thedoingofanunauthorisedactinrelationtoacopyrightworkmayresultinbothacivilclaimfordamages andcriminalprosecution. LibraryofCongressCataloginginPublicationData Sexualityandfertilityissuesinillhealthanddisability:fromearlyadolescencetoadulthood/editedbyRachelBalen andMarilynCrawshaw. p.cm. Includesbibliographicalreferencesandindex. ISBN-13:978-1-84310-339-4(pbk.:alk.paper) ISBN-10:1-84310-339-7(pbk.:alk.paper) 1. Youthwithdisabilities--Sexualbehavior.2. Sex(Psychology)3. Sexinstructionforpeoplewithdisabilities.4. Sexinstructionforthesick.5. Sexcounseling.6. Fertility. I.Balen,Rachel, 1954-II.Crawshaw,Marilyn,1949- HQ30.5.S2352006 306.7087--dc22 2006000753 BritishLibraryCataloguinginPublicationData ACIPcataloguerecordforthisbookisavailablefromtheBritishLibrary ISBN13:9781843103394 ISBN10:1843103397 ISBNpdfeBook:1846424925 PrintedandboundinGreatBritainby AthenaeumPress,Gateshead,TyneandWear For Josh and Geoffrey Acknowledgement We would like to thank Sue Hanson from the Centre for Applied Childhood Studies, University of Huddersfield, UK, for her assistanceinthepreparationof thismanuscript. Contents INTRODUCTION 11 Part One: Children and Young People’s Understanding of Sexuality, Fertility and Parenting 17 1. SexualityandSexualHealthThroughouttheChildhood andTeenageYears 19 SarahAndrews,Directorof PassionTrainingandConsultancy,UK 2. TheViewsof theNextGeneration:AnExplorationof Priorities forAdulthoodandtheMeaningof ParenthoodAmongst 10–16-year-olds 33 ClaireFraser,freelanceresearcher,RachelBalen,Universityof Huddersfield,UK,andDorothyFielding,Universityof Leedsand StJames’sUniversityHospital,UK 3. ChildrenandYoungPeople’sUnderstandingof Infertility 49 RachelBalen,ClaireFraserandDorothyFielding Part Two: Medical, Scientific, Legal and Ethical Aspects of Compromised Fertility in Adolescence and Early Adulthood 65 4. HealthConditionsandTreatmentsAffectingFertilityin ChildhoodandTeenageYears 67 AdamBalen,LeedsGeneralInfirmary,UK,andAdamGlaser,Leeds TeachingHospitalsNHSTrust,UK 5. FertilityPreservationMethodsandTreatmentsforFemales 85 HelenPicton,Universityof Leeds,UK,andLeedsTeachingHospitals NHSTrust,UK 6. FertilityPreservationMethodsandTreatmentsforMales 99 AllanPacey,Universityof Sheffield,UK,andSheffieldTeaching HospitalsNHSFoundationTrust,UK 7. LegalandEthicalAspectsSurroundingFertilityPreservation ServicesforChildrenandYoungPeople 113 DavidGreen,Universityof LeedsandStJames’sUniversityHospital, Leeds,UK,andMarilynCrawshaw,Universityof York,UK Part Three: Personal Experiences of Living with Health Conditions and Disability and the Impact on Sexuality and Fertility 127 8. Disability,ChronicIllness,FertilityandMinorityEthnicYoung People:MakingSenseof Identity,DiversityandDifference 129 KarlAtkin,Universityof York,UK,AmandaRodney,Universityof Leeds,UK,andFrancineCheater,Universityof Leeds,UK 9. TheStingintheTail:TeenagersCopingwithSpermBanking FollowingaCancerDiagnosis 144 MarilynCrawshaw 10. Infertility:AnUnspokenPresenceintheLivesof Teensand YoungWomenwithTurnerSyndrome 159 ElizabethLoughlin,RoyalChildren’sHospital,Melbourne,Australia 11. SexualandReproductiveHealthinYoungPeoplewithCystic Fibrosis:HardtoTalkAboutbuttooImportanttoIgnore 177 BridgetFarrant,RoyalChildren’sHospital,Melbourne,Australia, andSusanM.Sawyer,Universityof Melbourne,RoyalChildren’s Hospital,Melbourne,andMurdochChildrensResearchInstitute, Australia 12. DispellingtheTabooof IntersexConditions:We’reOnly HumanLikeYou! 192 MelissaCull,TheAdrenalHyperplasiaNetwork,UK andCityHospital,Birmingham,UK 13. SexualityandGrowingUpHIV-Positive:LessonsfromPractice 206 NancyCincotta,CampSunshine,Maine,andMountSinaiMedical Center,NewYork,JocelynChilds,MountSinaiMedicalCenter,New York,andAndrewEichenfield,MorganStanleyChildren’sHospital of NewYork–PresbyterianColumbiaUniversity,NewYork,USA 14. YoungAdultCancerSurvivors:ShakenUp,GettingBack, MovingOn 221 BradZebrack,Universityof SouthernCalifornia,USA 15. BecomingaParent–theTransitiontoParenthoodWhere ThereisPre-existingFertilityImpairment 234 MarySelf,UniversityHospitalof Wales,Cardiff,UK Part Four: Voices 249 UnintendedCatharsisThroughIntendedArt 251 DanSavage Orchid 255 JenKing FromOneParenttoAnother 256 JaneDavies HappyinHerOwnSkin 259 SarahClough REFERENCES 261 CONTRIBUTORS 288 SUBJECTINDEX 291 AUTHORINDEX 300
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