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Sexual and Reproductive Health of Adolescents with Disabilities PDF

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Sexual and Reproductive Health of Adolescents with Disabilities Edited by Tafadzwa Rugoho France Maphosa Sexual and Reproductive Health of Adolescents with Disabilities Tafadzwa Rugoho • France Maphosa Editors Sexual and Reproductive Health of Adolescents with Disabilities Editors Tafadzwa Rugoho France Maphosa Athena Institute Department of Sociology Vrije Universiteit University of Botswana Amsterdam, The Netherlands Gaborone, Botswana ISBN 978-981-15-7913-4 ISBN 978-981-15-7914-1 (eBook) https://doi.org/10.1007/978-981-15-7914-1 © The Editor(s) (if applicable) and The Author(s), under exclusive licence to Springer Nature Singapore Pte Ltd. 2021 This work is subject to copyright. All rights are solely and exclusively licensed by the Publisher, whether the whole or part of the material is concerned, specifically the rights of translation, reprinting, reuse of illustrations, recitation, broadcasting, reproduction on microfilms or in any other physical way, and transmission or information storage and retrieval, electronic adaptation, computer software, or by similar or dissimilar methodology now known or hereafter developed. The use of general descriptive names, registered names, trademarks, service marks, etc. in this publication does not imply, even in the absence of a specific statement, that such names are exempt from the relevant protective laws and regulations and therefore free for general use. The publisher, the authors and the editors are safe to assume that the advice and information in this book are believed to be true and accurate at the date of publication. Neither the publisher nor the authors or the editors give a warranty, expressed or implied, with respect to the material contained herein or for any errors or omissions that may have been made. The publisher remains neutral with regard to jurisdictional claims in published maps and institutional affiliations. This Palgrave Macmillan imprint is published by the registered company Springer Nature Singapore Pte Ltd. The registered company address is: 152 Beach Road, #21-01/04 Gateway East, Singapore 189721, Singapore Contents 1 Introduction: Locating Sexual and Reproductive Rights for Adolescents with Disabilities 1 Tafadzwa Rugoho and France Maphosa Part I International Perspective 9 2 Availability of Training Programmes on Sexuality for Adolescents with Severe Disabilities: A Review 11 Kirsty Bastable, Shakila Dada, Refilwe Elizabeth Morwane, and Parimala Raghavendra 3 Sexual and Reproductive Health Among Adolescent Girls with Disabilities: A Vicious Circle of Womanhood 45 Gilliet Chigunwe 4 Promoting Sexual and Reproductive Health of Adolescents with Disability: A Synthesis of Global Evidence and Possible Solutions for India 61 Seema Sharma and Muthusamy Sivakami v vi Contents 5 Menstruation and the Girl with Visual Impairment 85 Alimata Abdul Karimu Part II Country Studies 101 6 The Role of Teachers and Caregivers in Adolescent Girls with Disabilities’ Sex Education in the Lakes Region of Kenya 103 Mark T. Carew, Ola Abualghaib, Nora Groce, and Maria Kett 7 Teachers’ and Students with Disabilities’ Perception of Sexual and Reproductive Health Education in Secondary Schools in Tanzania 125 Paul Mtasigazya 8 Access to Sexual and Reproductive Health Services: Insights to Experiences of Sexually Active Persons with Disabilities in South Africa 147 Sibusisiwe Siphelele Mavuso 9 Policy Issues and Challenges in Teaching Sexual and Reproductive Health to Adolescent Girls with Mental Disabilities in Nigeria: The Way Forward 167 Olayinka Adeniyi and Omolade Olomola 10 Educating Adolescents with Visual Impairments on Sexual Reproductive Health and Rights in Resource-Poor Environments an Uphill Struggle: A Case Study of Practices from the Field in Zimbabwe 191 Nqobani Dube 11 Social Media as a Platform for Participating in Sexual and Reproductive Issues for People with Disabilities 211 Tafadzwa Rugoho Notes on Contributors Ola  Abualghaib (PhD) was appointed Manager of the Technical Secretariat of the UN Partnership of Persons with Disabilities at UNDP in August 2019. Ola has over 20 years of experience working in gender and disability in development including in fragile and crisis-affected set- tings in the Arab States, Africa and Asia. Previous to her appointment in UNDP, she has been the Director for Global Influencing and Research at Leonard Cheshire Disability in London, UK. During the last 20 years she has worked with the UN system at global, regional and country level to support disability-inclusive policies and programmes. She also served as the Vice Chair of the International Disability and Development Consortium (IDDC) and a board member of the Disability Rights Funds. Ola was recently featured in the Gender Equality Top 100 list of most influential people in global policy in 2019. She has a PhD in Social Protection from the University of East Anglia, UK. Olayinka Adeniyi is a researcher, an advocate and a barrister of the Supreme Court of Nigeria. She is presently an OpenAIR/QEScholar Researcher with the Center for Intellectual Property and Information Technology Law (CIPIT), Strathmore University, Nairobi, Kenya. She has a doctoral degree in Law from the University of Pretoria, South Africa, and obtained her masters and first degree from the Obafemi Awolowo University, Osun State, Nigeria. She is a 2018/2019 Research Fellow of the International vii viii Notes on Contributors Centre for Women’s Research of Coady International Institute, Antigonish, Nova Scotia, Canada. Adeniyi has certificates in Women’s Human Rights on UN CEDAW for Change, Women Leadership for Community Development, Action Research for Citizen Led Change, Children’s Rights, Student Support and Academic Development and a certificate in Social Entrepreneurship. She has several years of experience in legal practice (Nigeria), research, lecturing and community development for the protec- tion of women and the girl child. She has authored book chapters in the academics and papers in accredited journals. She is the author of many secu- lar books and has presented papers in local and international conferences and workshops. Adeniyi is the CEO and founder of Women on the Watch (WOW) Society Initiative, a not-for-profit registered in South Africa. Her present research interest is the rights of vulnerable persons, particularly women and children, in the emergence of developed technology. Kirsty  Bastable (PhD) is a postdoctoral fellow at the Centre for Augmentative and Alternative Communication at the University of Pretoria. She is a speech-language pathologist with extensive experience in working with people who are severely disabled and who may require AAC. She was the teacher-in-residence at the Bridge School in 2009 (Hillsborough, CA) and has postgraduate training in working with AAC and people with severe disabilities. Her research and publications con- cern engagement and participation of people with severe disabilities. Mark T. Carew (PhD) is a research fellow at the Leonard Cheshire Research Centre. His experience and research interests lie in tackling problematic issues and barriers that affect people with disabilities glob- ally, including exclusion from sexual health. Recent publications include the book Disability and Sexual Health (Routledge, 2018). Gilliet  Chigunwe (PhD) is a senior lecturer at Zimbabwe Open University, Department of Disability Studies and Special Needs Education, Mashonaland Central Regional Campus, Zimbabwe. She is also the founder and Director of Ruvimbo School for children with dis- abilities. Besides PhD, she holds the following qualifications: M.Sc. Special Needs Education; M.Ed. Psychology; B.Ed. Hearing Impairment; B.Sc. Special Needs Education. Gilliet Chigunwe’s area of interest is Notes on Contributors ix inclusion of persons with disabilities; she has authored more than 28 publications in reputable journals and presented papers on disability issues both locally and at international forum. Shakila  Dada (PhD) is an associate professor at the Centre for Augmentative and Alternative Communication at the University of Pretoria. She is a speech-language pathologist and has many years’ experi- ence in training and implementing AAC in the South African context as well as postgraduate training in AAC implementation. Her research and publications concern augmentative and alternative communication inter- ventions with a particular focus on the role of graphic symbols in lan- guage learning and facilitating participation of persons with disabilities. Nqobani Dube completed his Master of Arts in development and human rights at Swansea University in 2017 with the thesis on land reform and livelihoods of people with disabilities in Africa. In the past 12 years he has extensively worked in different roles around southern Africa for various dis- ability organizations and the government of Zimbabwe. This further sup- ported his research and work which revolves mostly around the intersections of disability inclusion with development and humanitarian interventions. Epitomized by his forthcoming publication on social media-powered dis- ability rights activism, Nqobani continues to pursue his desire to champion the centrality of disability issues in development. He remains interested in representations of disability rights activism in popular culture and radical pedagogy. In addition to graduate studies, Nqobani has a background in community development, a commitment to grassroots activism and a love for disruptive social media and other forms of alternative new media. Nora Groce (PhD) is an anthropologist and Director of the UCL International Disability Research Centre at University College London. Professor Groce received a PhD from Brown University and then served as Research Fellow at Harvard before joining the Yale School of Public Health faculty in 1990. In 2008 she was appointed to the Leonard Cheshire Chair at UCL. She is best known for her work in global health and international development with vulnerable populations and particu- larly for her work on people with disabilities. Groce has done applied research on poverty, domestic violence, the impact of the HIV/AIDS and access to health care for people with disabilities. x Notes on Contributors Alimata Abdul Karimu is an independent researcher and rights activist writing and publishing on issues affecting women and persons with dis- abilities in peer-reviewed journals. She has over ten years of experience in rights advocacy with the African Union of the Blind, Vision Australia, Ghana Federation of Disability Organisations, Ghana Blind Union, among others. Some of her authored works on the sexual and reproduc- tive health and rights of persons with disabilities are published on Taylor and Francis Online. Alimata has a background in Educational Psychology and holds MPhil in Guidance and Counselling from the University of Cape Coast, Ghana, and has taught at Accra College of Education for six years before moving into rights advocacy. Maria  Kett is an honorary reader in Disability and International Development at University College London (UCL). Maria has expertise in global health, human rights, climate change, poverty alleviation and the consequences of social exclusion. She has undertaken research in countries across Africa and Asia, leading to a number of research programmes on dis- ability and international development and is an author of over 90 publica- tions. She regularly serves as a consultant for numerous bilateral and multilateral donors, including the UK Department for International Development (DFID), the World Bank, the Australian Department of Finance and Trade (DFAT) and the United Nations. Maria also has a strong research expertise in conflict and disaster-affected countries and has under- taken policy- focused work on inclusive humanitarian responses. This includes her work as the Global Focal Point for Disability in the 2010 revi- sion of the Sphere Handbook on Minimum Standards in Disaster Response. France Maphosa (PhD) is a Professor of Sociology and Anthropology at the University of Botswana. Maphosa’s research interests include the soci- ology of organizations, participation, disability, rural livelihoods, labour studies and alternative dispute resolution (ADR). He has been awarded several research grants including the ORREA Senior Scholars Research Grant, CODESRIA Advanced Research Fellowship Grant and the CODESRIA National Working Group Research Grant. He has more than 15 years’ experience of university teaching. He has taught at both undergraduate and graduate levels. He has so far successfully supervised three PhD thesis and several Masters’ dissertations. Maphosa has written

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