Sexual and Reproductive Health of Adolescents with Disabilities

232 Pages·2020·2.609 MB·English

by  Tafadzwa Rugoho, France Maphosa

Sexual and Reproductive
Health of Adolescents with
Disabilities
Edited by
Tafadzwa Rugoho
France Maphosa
Sexual and Reproductive Health of Adolescents
with Disabilities
Tafadzwa Rugoho • France Maphosa
Editors
Sexual and
Reproductive Health
of Adolescents with
Disabilities
Editors
Tafadzwa Rugoho France Maphosa
Athena Institute Department of Sociology
Vrije Universiteit University of Botswana
Amsterdam, The Netherlands Gaborone, Botswana
ISBN 978-981-15-7913-4 ISBN 978-981-15-7914-1 (eBook)
https://doi.org/10.1007/978-981-15-7914-1
© The Editor(s) (if applicable) and The Author(s), under exclusive licence to Springer Nature Singapore
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Contents
1 Introduction: Locating Sexual and Reproductive Rights
for Adolescents with Disabilities 1
Tafadzwa Rugoho and France Maphosa
Part I International Perspective 9
2 Availability of Training Programmes on Sexuality for
Adolescents with Severe Disabilities: A Review 11
Kirsty Bastable, Shakila Dada, Refilwe Elizabeth Morwane, and
Parimala Raghavendra
3 Sexual and Reproductive Health Among Adolescent Girls
with Disabilities: A Vicious Circle of Womanhood 45
Gilliet Chigunwe
4 Promoting Sexual and Reproductive Health of
Adolescents with Disability: A Synthesis of Global
Evidence and Possible Solutions for India 61
Seema Sharma and Muthusamy Sivakami
v
vi Contents
5 Menstruation and the Girl with Visual Impairment 85
Alimata Abdul Karimu
Part II Country Studies 101
6 The Role of Teachers and Caregivers in Adolescent Girls
with Disabilities’ Sex Education in the Lakes Region of
Kenya 103
Mark T. Carew, Ola Abualghaib, Nora Groce, and Maria Kett
7 Teachers’ and Students with Disabilities’ Perception of
Sexual and Reproductive Health Education in Secondary
Schools in Tanzania 125
Paul Mtasigazya
8 Access to Sexual and Reproductive Health Services:
Insights to Experiences of Sexually Active Persons with
Disabilities in South Africa 147
Sibusisiwe Siphelele Mavuso
9 Policy Issues and Challenges in Teaching Sexual and
Reproductive Health to Adolescent Girls with Mental
Disabilities in Nigeria: The Way Forward 167
Olayinka Adeniyi and Omolade Olomola
10 Educating Adolescents with Visual Impairments on Sexual
Reproductive Health and Rights in Resource-Poor
Environments an Uphill Struggle: A Case Study of
Practices from the Field in Zimbabwe 191
Nqobani Dube
11 Social Media as a Platform for Participating in Sexual
and Reproductive Issues for People with Disabilities 211
Tafadzwa Rugoho
Notes on Contributors
Ola  Abualghaib (PhD) was appointed Manager of the Technical
Secretariat of the UN Partnership of Persons with Disabilities at UNDP
in August 2019. Ola has over 20 years of experience working in gender
and disability in development including in fragile and crisis-affected set-
tings in the Arab States, Africa and Asia. Previous to her appointment in
UNDP, she has been the Director for Global Influencing and Research at
Leonard Cheshire Disability in London, UK. During the last 20 years she
has worked with the UN system at global, regional and country level to
support disability-inclusive policies and programmes. She also served as
the Vice Chair of the International Disability and Development
Consortium (IDDC) and a board member of the Disability Rights
Funds. Ola was recently featured in the Gender Equality Top 100 list of
most influential people in global policy in 2019. She has a PhD in Social
Protection from the University of East Anglia, UK.
Olayinka Adeniyi is a researcher, an advocate and a barrister of the
Supreme Court of Nigeria. She is presently an OpenAIR/QEScholar
Researcher with the Center for Intellectual Property and Information
Technology Law (CIPIT), Strathmore University, Nairobi, Kenya. She has a
doctoral degree in Law from the University of Pretoria, South Africa, and
obtained her masters and first degree from the Obafemi Awolowo University,
Osun State, Nigeria. She is a 2018/2019 Research Fellow of the International
vii
viii Notes on Contributors
Centre for Women’s Research of Coady International Institute, Antigonish,
Nova Scotia, Canada. Adeniyi has certificates in Women’s Human Rights on
UN CEDAW for Change, Women Leadership for Community
Development, Action Research for Citizen Led Change, Children’s Rights,
Student Support and Academic Development and a certificate in Social
Entrepreneurship. She has several years of experience in legal practice
(Nigeria), research, lecturing and community development for the protec-
tion of women and the girl child. She has authored book chapters in the
academics and papers in accredited journals. She is the author of many secu-
lar books and has presented papers in local and international conferences
and workshops. Adeniyi is the CEO and founder of Women on the Watch
(WOW) Society Initiative, a not-for-profit registered in South Africa. Her
present research interest is the rights of vulnerable persons, particularly
women and children, in the emergence of developed technology.
Kirsty  Bastable (PhD) is a postdoctoral fellow at the Centre for
Augmentative and Alternative Communication at the University of
Pretoria. She is a speech-language pathologist with extensive experience
in working with people who are severely disabled and who may require
AAC. She was the teacher-in-residence at the Bridge School in 2009
(Hillsborough, CA) and has postgraduate training in working with AAC
and people with severe disabilities. Her research and publications con-
cern engagement and participation of people with severe disabilities.
Mark T. Carew (PhD) is a research fellow at the Leonard Cheshire
Research Centre. His experience and research interests lie in tackling
problematic issues and barriers that affect people with disabilities glob-
ally, including exclusion from sexual health. Recent publications include
the book Disability and Sexual Health (Routledge, 2018).
Gilliet  Chigunwe (PhD) is a senior lecturer at Zimbabwe Open
University, Department of Disability Studies and Special Needs
Education, Mashonaland Central Regional Campus, Zimbabwe. She is
also the founder and Director of Ruvimbo School for children with dis-
abilities. Besides PhD, she holds the following qualifications: M.Sc.
Special Needs Education; M.Ed. Psychology; B.Ed. Hearing Impairment;
B.Sc. Special Needs Education. Gilliet Chigunwe’s area of interest is
Notes on Contributors ix
inclusion of persons with disabilities; she has authored more than 28
publications in reputable journals and presented papers on disability
issues both locally and at international forum.
Shakila  Dada (PhD) is an associate professor at the Centre for
Augmentative and Alternative Communication at the University of
Pretoria. She is a speech-language pathologist and has many years’ experi-
ence in training and implementing AAC in the South African context as
well as postgraduate training in AAC implementation. Her research and
publications concern augmentative and alternative communication inter-
ventions with a particular focus on the role of graphic symbols in lan-
guage learning and facilitating participation of persons with disabilities.
Nqobani Dube completed his Master of Arts in development and human
rights at Swansea University in 2017 with the thesis on land reform and
livelihoods of people with disabilities in Africa. In the past 12 years he has
extensively worked in different roles around southern Africa for various dis-
ability organizations and the government of Zimbabwe. This further sup-
ported his research and work which revolves mostly around the intersections
of disability inclusion with development and humanitarian interventions.
Epitomized by his forthcoming publication on social media-powered dis-
ability rights activism, Nqobani continues to pursue his desire to champion
the centrality of disability issues in development. He remains interested in
representations of disability rights activism in popular culture and radical
pedagogy. In addition to graduate studies, Nqobani has a background in
community development, a commitment to grassroots activism and a love
for disruptive social media and other forms of alternative new media.
Nora Groce (PhD) is an anthropologist and Director of the UCL
International Disability Research Centre at University College London.
Professor Groce received a PhD from Brown University and then served
as Research Fellow at Harvard before joining the Yale School of Public
Health faculty in 1990. In 2008 she was appointed to the Leonard
Cheshire Chair at UCL. She is best known for her work in global health
and international development with vulnerable populations and particu-
larly for her work on people with disabilities. Groce has done applied
research on poverty, domestic violence, the impact of the HIV/AIDS and
access to health care for people with disabilities.
x Notes on Contributors
Alimata Abdul Karimu is an independent researcher and rights activist
writing and publishing on issues affecting women and persons with dis-
abilities in peer-reviewed journals. She has over ten years of experience in
rights advocacy with the African Union of the Blind, Vision Australia,
Ghana Federation of Disability Organisations, Ghana Blind Union,
among others. Some of her authored works on the sexual and reproduc-
tive health and rights of persons with disabilities are published on Taylor
and Francis Online. Alimata has a background in Educational Psychology
and holds MPhil in Guidance and Counselling from the University of
Cape Coast, Ghana, and has taught at Accra College of Education for six
years before moving into rights advocacy.
Maria  Kett is an honorary reader in Disability and International
Development at University College London (UCL). Maria has expertise in
global health, human rights, climate change, poverty alleviation and the
consequences of social exclusion. She has undertaken research in countries
across Africa and Asia, leading to a number of research programmes on dis-
ability and international development and is an author of over 90 publica-
tions. She regularly serves as a consultant for numerous bilateral and
multilateral donors, including the UK Department for International
Development (DFID), the World Bank, the Australian Department of
Finance and Trade (DFAT) and the United Nations. Maria also has a strong
research expertise in conflict and disaster-affected countries and has under-
taken policy- focused work on inclusive humanitarian responses. This
includes her work as the Global Focal Point for Disability in the 2010 revi-
sion of the Sphere Handbook on Minimum Standards in Disaster Response.
France Maphosa (PhD) is a Professor of Sociology and Anthropology at
the University of Botswana. Maphosa’s research interests include the soci-
ology of organizations, participation, disability, rural livelihoods, labour
studies and alternative dispute resolution (ADR). He has been awarded
several research grants including the ORREA Senior Scholars Research
Grant, CODESRIA Advanced Research Fellowship Grant and the
CODESRIA National Working Group Research Grant. He has more
than 15 years’ experience of university teaching. He has taught at both
undergraduate and graduate levels. He has so far successfully supervised
three PhD thesis and several Masters’ dissertations. Maphosa has written