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Self-Tracking PDF

247 Pages·2016·1.893 MB·English
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SELF-TRACKING 10421.indb 1 5/25/16 12:24 PM The MIT Press Essential Knowledge Series Auctions, Timothy P. Hubbard and Harry J. Paarsch Understanding Beliefs, Nils J. Nilsson Cloud Computing, Nayan Ruparelia Computing: A Concise History, Paul E. Ceruzzi The Conscious Mind, Zoltan L. Torey Crowdsourcing, Daren C. Brabham Free Will, Mark Balaguer Information and the Modern Corporation, James W. Cortada Intellectual Property Strategy, John Palfrey The Internet of Things, Samuel Greengard Memes in Digital Culture, Limor Shifman Metadata, Jeffrey Pomerantz MOOCs, Jonathan Haber Open Access, Peter Suber Paradox, Margaret Cuonzo Self-Tracking, Gina Neff and Dawn Nafus Waves, Frederic Raichlen 10421.indb 2 5/25/16 12:24 PM SELF-TRACKING GINA NEFF AND DAWN NAFUS The MIT Press | Cambridge, Massachusetts | London, England 10421.indb 3 5/25/16 12:24 PM © 2016 Massachusetts Institute of Technology All rights reserved. No part of this book may be reproduced in any form by any electronic or mechanical means (including photocopying, recording, or information storage and retrieval) without permission in writing from the publisher. This book was set in Chaparral Pro by the MIT Press. Printed and bound in the United States of America. Library of Congress Cataloging-in-Publication Data Names: Neff, Gina, 1971– author. Title: Self-tracking / Neff, Gina, and Dawn Nafus. Description: Cambridge, MA : MIT Press, 2016. | Series: The MIT Press essential knowledge series | Includes bibliographical references and index. Identifiers: LCCN 2015039937 | ISBN 9780262529129 (pbk. : alk. paper) Subjects: LCSH: Patient self-monitoring. | Self-monitoring. | Self-care, Health—Technological innovations. | Medical telematics. | Medical innovations—Social aspects. | Information technology—Social aspects. Classification: LCC RA418.5.M4 N44 2016 | DDC 610.285—dc23 LC record available at http://lccn.loc.gov/2015039937 10 9 8 7 6 5 4 3 2 1 10421.indb 4 5/25/16 12:24 PM CONTENTS Series Foreword vii Acknowledgments ix 1 An Introduction to Self-Tracking 1 2 What Is at Stake? The Personal Gets Political 37 3 Making Sense of Data 69 4 Self-Tracking and the Technology Industry 105 5 Self-Tracking and Medicine 135 6 Future Directions for Self-Tracking 167 Notes 193 Glossary 205 Additional Resources 209 Index 213 10421.indb 5 5/25/16 12:24 PM 10421.indb 6 5/25/16 12:24 PM SERIES FOREWORD The MIT Press Essential Knowledge series offers acces­ sible, concise, beautifully produced pocket-size books on topics of current interest. Written by leading thinkers, the books in this series deliver expert overviews of subjects that range from the cultural and the historical to the sci­ entific and the technical. In today’s era of instant information gratification, we have ready access to opinions, rationalizations, and super­ ficial descriptions. Much harder to come by is the founda­ tional knowledge that informs a principled understanding of the world. Essential Knowledge books fill that need. Synthesizing specialized subject matter for nonspecialists and engaging critical topics through fundamentals, each of these compact volumes offers readers a point of access to complex ideas. Bruce Tidor Professor of Biological Engineering and Computer Science Massachusetts Institute of Technology 10421.indb 7 5/25/16 12:24 PM SERIES FOREWORD SERIES FOREWORD 10421.indb 8 5/25/16 12:24 PM ACKNOWLEDGMENTS One of the key points of this book is that knowledge—even about the self—is a social product. So, too, of course, is this little book, which was made possible only through the con­ tributions and efforts of many. While this book is a primer and not a work of ethnography, many people have been extraordinarily generous with their time, teaching us their perspective, sharing their views on data, and helping us understand what the stakes are. The dedication of patient advocates, data activists, and quantified-self enthusiasts inspires us with a view of what is possible when people get involved in the technologies that matter to them. Margy Avery first encouraged us to think about how to communicate the issues of self-tracking for the gen­ eral reader. Without her keen editorial instincts we would have never taken on this project. Susan Buckley and Gita Manaktala helped shape and guide it from sketchy pro­ posal to the finished product. Kathleen Caruso once again proved to be an extraordinary manuscript editor seem­ ingly capable of managing every possible contingency with grace and attention to detail, and the keen eye of co­ pyeditor Julia Collins improved this book tremendously. Shannon O’Neill and Will Lippincott at Lippincott Massie McQuilkin worked with us to clarify our ideas for the gen­ eral audience and ensured that they made it into print. For that we are both exceedingly grateful. 10421.indb 9 5/25/16 12:24 PM

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Most books are stored in the elastic cloud where traffic is expensive. For this reason, we have a limit on daily download.