Agota Szende Bas Janssen Juan Cabases Editors Self-Reported Population Health: An International Perspective based on EQ-5D Self-Reported Population Health: An International Perspective based on EQ-5D Agota Szende (cid:129) Bas Janssen Juan Cabase´s Editors Self-Reported Population Health: An International Perspective based on EQ-5D Editors AgotaSzende BasJanssen GlobalHealthEconomics EuroQolGroup andOutcomesResearch Rotterdam,TheNetherlands Covance,Leeds,UnitedKingdom JuanCabase´s PublicUniversityofNavarra Pamplona,Spain ISBN978-94-007-7595-4 ISBN978-94-007-7596-1(eBook) DOI10.1007/978-94-007-7596-1 SpringerDordrechtHeidelbergNewYorkLondon © The Editor(s) (if applicable) and the Author(s) 2014. The book is published with open access atSpringerLink.com Open Access. This book is distributed under the terms of the Creative Commons Attribution Non- commercial License which permits any noncommercial use, distribution, and reproduction in any medium,providedtheoriginalauthor(s)andsourcearecredited. All commercial rights are reserved by the Publisher, whether the whole or part of the material is concerned, specifically the rights of translation, reprinting, re-use of illustrations, recitation, broadcasting,reproductiononmicrofilmsorinanyotherway,andstorageindatabanks.Duplication ofthispublicationorpartsthereofispermittedonlyundertheprovisionsoftheCopyrightLawofthe Publisher’slocation,initscurrentversion,andpermissionforcommercialusemustalwaysbeobtained fromSpringer.PermissionsforcommercialusemaybeobtainedthroughRightsLinkattheCopyright ClearanceCenter.ViolationsareliabletoprosecutionundertherespectiveCopyrightLaw. The use of general descriptive names, registered names, trademarks, service marks, etc. in this publicationdoesnotimply,evenintheabsenceofaspecificstatement,thatsuchnamesareexempt fromtherelevantprotectivelawsandregulationsandthereforefreeforgeneraluse. While the advice and information in this book are believed to be true and accurate at the date of publication,neithertheauthorsnortheeditorsnorthepublishercanacceptanylegalresponsibilityfor anyerrorsoromissionsthatmaybemade.Thepublishermakesnowarranty,expressorimplied,with respecttothematerialcontainedherein. Printedonacid-freepaper SpringerispartofSpringerScience+BusinessMedia(www.springer.com) The EuroQol Group (cid:129) The EuroQol Group is a network of international multidisciplinary researchers devoted to the measurement of health status. Established in 1987, the EuroQol Group originally consisted of researchers from Europe, but nowadays includes members from North and South America, Asia, Africa, Australia, and New Zealand.TheGroupisresponsibleforthedevelopmentofEQ-5D,apreference- basedmeasureofhealthstatusthatisnowwidelyusedinclinicaltrials,observa- tional studies, and other health surveys. The EuroQol Group has been holding annualscientificmeetingssinceitsinceptionin1987. (cid:129) TheEuroQolGroupcanbejustifiablyproudofitscollectivescientificachieve- ments over the last 20 years. Research areas include valuation, EQ-5D use in clinical studies and in population surveys, experimentation with the EQ-5D descriptivesystem,computerizedapplications,interpretationofEQ-5Dratings, andtheroleofEQ-5Dinmeasuringsocialinequalitiesinself-reportedhealth. (cid:129) TheEuroQolGroup’swebsite(www.euroqol.org)containsdetailedinformation about EQ-5D, guidance for users, a list of available language versions, EQ-5D references,andcontactdetails. (cid:129) EQ-5D is a standardized measure of health status developed by the EuroQol Group in order to provide a simple, generic measure of health for clinical and economic appraisal. Applicable to a wide range of health conditions and treatments,it provides asimpledescriptiveprofile andasingle indexvalue for healthstatusthatcanbeusedintheclinicalandeconomicevaluationofhealth careaswellasinpopulationhealthsurveys. v Acknowledgements Theeditorswishtoacknowledgethefollowingresearchersandorganizationswho contributedEQ-5Dcountrydatadescribedinthisbook. Argentina MinisteriodeSaluddeArgentina,BuenosAires,Argentina Armenia GayaneGharagebakyan,ArmeniaTransitionProgramme,Yerevan,Armenia Belgiuma ESEMeD/MHEDEA2000Investigators Canada TimCooke,HealthQualityCouncilofAlberta,Calgary,Alberta,Canada China SunSunandKristinaBurstrom,DepartmentofLearning,Informatics, ManagementandEthics,MedicalManagementCentre,Karolinska Institutet,Stockholm,Sweden J.Chen,SchoolofHealthPolicyandManagement,NanjingMedical University,Nanjing,P.R.China Denmark JanSorensen,CentreforAppliedHealthServicesResearchandTechnology Assessment,UniversityofSouthernDenmark,OdenseC,Denmark England NationalCentreforSocialResearchandUniversityCollegeLondon. DepartmentofEpidemiologyandPublicHealth Finland SeppoKoskinen,DivisionofWelfareandHealthPolicies,NationalInstitute forHealthandWelfare,Helsinki,Finland Francea ESEMeD/MHEDEA2000Investigators Germanya ESEMeD/MHEDEA2000Investigators Greece YannisYfantopoulos,UniversityofAthens,Athens,Greece Hungary AgotaSzende,GlobalHealthEconomicsandOutcomesResearch,Covance, Leeds,UnitedKingdom RenataNemeth,HungarianNationalCenterforEpidemiology,Budapest, Hungary Italya ESEMeD/MHEDEA2000Investigators Japan NaokiIkegami,KeioUniversitySchoolofMedicine,Tokyo,Japan AkiTsuchiya,UniversityofSheffield,Sheffield,UnitedKingdom Korea Yeon-KyengLee,DivisionofChronicDiseaseSurveillance,KoreaCentersfor DiseaseControlandPrevention,Seoul,Korea TheNetherlandsa ESEMeD/MHEDEA2000Investigators (continued) vii viii Acknowledgements (continued) NewZealand NancyDevlin,CityUniversity,London,UnitedKingdom PaulHansen,OtagoUniversity,Dunedin,NewZealand Slovenia ValentinaPrevolnik-Rupel,MinistryofHealth,Ljubljana,Slovenia MatejkaRebolj,DepartmentofPublicHealth,ErasmusMedicalCenter, Rotterdam,TheNetherlands Spaina ESEMeD/MHEDEA2000Investigators AnnaMompart,HealthPlanService,DepartmentofHealth,Government ofCatalonia YolandaRamalloFarin˜a,EncuestadeSaluddeCanarias2009,Servicio CanariodelaSalud,GovernmentofCanarias Sweden StefanBjo¨rk,NovoNordisk,Bagsvaerd,Denmark KristinaBurstro¨m,KarolinskaInstitute,Stockholm,Sweden Thailand SirinartTongsiri,MahasarakhamUniversity,Mahasarakham,Thailand, JohnCairns,LondonSchoolofHygieneandTropicalMedicine,London, UnitedKingdom TheUnited PaulKind,UniversityofYork,York,UnitedKingdom Kingdom TheUnited PatrickW.Sullivan,UniversityofColoradoSchoolofPharmacy, States PharmaceuticalOutcomesResearchProgram,Denver,Colorado;andthe CenterforOutcomesandEvidence,AgencyforHealthcareResearchand Quality,Rockville,Maryland Zimbabwe JenniferJelsma,UniversityofCapeTown,CapeTown,SouthAfrica aThe editors especially acknowledge the contribution of the ESEMeD/MHEDEA 2000 InvestigatorswhoprovidedrepresentativepopulationsurveyswithEQ-5D-3Ldatafor6European countriesfromtheEuropeanStudyoftheEpidemiologyofMentalDisorders. TheESEMeDInvestigatorsareasfollows: Jordi Alonso M.D., Ph.D.1, Matthias Angermeyer M.D.2, Sebastian Bernert M.Sc.2,RonnyBruffaertsPh.D.3,TraolachS.BrughaM.D.4,GiovannideGirolamo M.D.5, Ron de Graaf M.D., Ph.D.6, Koen Demyttenaere M.D., Ph.D.3, Isabelle Gasquet M.D.7; Josep Maria Haro M.D., M.P.H., Ph.D.8, Steven J. Katz M.D., Ph.D.9; Ronald C. Kessler Ph.D.10, Hans-Helmut Ko¨nig M.D., M.P.H.11, Viviane Kovess M.D., Ph.D.12, Jean Pierre Le´pine M.D., HDR13, Herbert Matschinger Ph.D.2, Johan Ormel M.A., Ph.D.14, Gabriella Polidori M.D.15, and Gemma VilagutStat1. From the 1Health Services Research Unit, IMIM – Institut Hospital del Mar d’Investigacions Me`diques, Barcelona, Spain, and CIBER en Epidemiolog´ıa y Salud Pu´blica (CIBERESP), Spain; 2Department of Psychiatry, University of Leipzig, Leipzig, Germany; 3Department of Psychiatry, University Hospital Gasthuisberg; Leuven, Belgium; 4Department of Health Sciences, University of Leicester, Leicester General Hospital, Leicester, UK; 5IRCCS Fatebenefratelli, Brescia, Italy; 6Netherlands Institute of Mental Health and Addiction (Trimbos- Instituut), Utrecht, The Netherlands; 7Public Health Department-Paul Brousse Hospital (AP-HP),Villejuif, France; 8Parc Sanitari Sant Joan de De´u, Sant Boi deLlobregat, Barcelona, Spain,CIBER enSalud Mental (CIBERSAM), Spain; 9MedicalCenterofUniversityofMichigan,AnnArbor,USA;10DepartmentofHealth Care Policy, Harvard Medical School, Boston, USA; 11Department of Medical Acknowledgements ix Sociology and Health Economics, University Medical Center Hamburg-Eppendorf, Hamburg,Germany;12EA4069,ParisDescartesUniversity,EcoledesHautesEtudes en Sante´ Publique (EHESP), Paris, France; 13Psychiatre des Hoˆpitaux, Hoˆpital FernandWidal,INSERMU705,UniversityParisDiderotandParisDescartes,Paris, France;14CenterforPsychiatricEpidemiology,DepartmentofPsychiatry,University Medical Center Groningen, Groningen,TheNetherlands;and15Istituto Superiore di Sanita`,Rome,Italy. The ESEMeD project was funded by the European Commission (Contracts QLG5-1999-01042; SANCO 2004123, EAHC 20081308); the Piedmont Region (Italy); Fondo de Investigacio´nSanitaria, Instituto de Salud Carlos III, Spain (FIS 00/0028); Ministerio de Ciencia y Tecnolog{´a, Spain (SAF 2000-158-CE); Departament de Salut, Generalitat de Catalunya, Spain; Instituto de Salud Carlos III (CIBER CB06/02/0046, RETICS RD06/0011 REM-TAP); and other local agencies and by an unrestricted educational grant from GlaxoSmithKline. The ESEMeD project is part of the World Mental Health (WMH) Surveys initiative; weareindebtedtothesupportreceivedbytheWMHConsortium. Finally,theeditorsacknowledgetheimportanceofauthorsoftheEuroQolGroup booklet ‘Measuring Self-Reported Population Health: An International Perspective based on EQ-5D’ (Szende and Williams ed. 2004). The authors of this booklet andtheirorganizationsatthetimeofpublicationincludedthefollowing: IrinaCleemput,BelgianHealthCareKnowledgeCentre,Brussels,Belgium FrankdeCharro,ErasmusUniversityRotterdam,TheNetherlands MarkOppe,ErasmusUniversityRotterdam,TheNetherlands RosalindRabin,EuroQolGroupExecutiveOffice,Rotterdam,TheNetherlands Matejka Rebolj, Department of Public Health, Erasmus Medical Center, Rotterdam,TheNetherlands AgotaSzende,Covance,Leeds,UnitedKingdom Alan Williams+, Centre for Health Economics, University of York, York, United Kingdom +AlanWilliamshasdeceased.