Selected Resources for Grieving Parents, Their Families, Friends, and Other Caregivers MH Selected Resources for Grieving Parents, Their Families, Friends, and Other Caregivers This documentwasdeveloped bythe U.S. Departmentof Health and Human Services, Health Resourcesand Services Administration (www.hrsa.org). Maternal and Child Health Bureau undera contractwith the National Sudden Infant Death Syndrome(SIDS)/lnfant Death Resource Center, Contract No. NIH IDIQ-263-01-D-0208. The National SIDS/Infant Death Resource Center isoperated by Circle Solutions, Inc. 2 Table of Contents Introduction 5 Resources Helping Parents, FamilyMembers, and Friends Deal with Loss 7 Resources Helping Children and Teens Dealing with Loss 13 Resources for Health Care Professionals, Caregivers, Educators, Clergy, and Funeral Directors 17 JournalArticles Dealingwith Bereavement and Grief 23 Religious Books Dealingwith Loss 25 Spanish Materials 27 Selected Organizations 31 Selected Journals and Newsletters 35 Selected Publishers 39 Selected Electronic Resources on Griefand Bereavement 41 Selected ResourcesforGrieving Parents, TheirFamilies, Friends, and OtherCaregivers 4 Introduction The death ofan infant or young child is a devastating tragedyfor parents, family members, and other caretakers.Atime ofcrisis follows which is typicallyvery overwhelming and stressful. Sometimes, loved ones mayexperience a complicated griefprocess and need emotional support and resources for bereavement. The accompanyinglist, developed bythe National SIDS/Infant Death Resource Center (NSIDRC), provides information about selected publications, organizations, and other resources developed forbereaved parents and familymembers. In addition, there are resources for caregivers and professionalswho workwith parents.We have also divided special topics into categories such as materials for children and teens, religious books, Spanish resources, journal articles, and selected publishers. Although this list is not exhaustive, it does include highly recommended materials contained in the NSIDRC collection. Experts in the field ofgriefandbereavement have made suggestions andwe welcome information about additional resources. Everyeffort is made to ensure that the details for each entryare as correct as possible. Please contact the NSIDRC staffat (866) 866-7437 or at [email protected] for further information or to provide comments. Selected Resourcesfor Grieving Parents, Their Families, Friends, and OtherCaregivers 5 I f 6 Resources Helping Parents, Family Members, and Friends Deal with Loss The Death of a Child: Reflections for Children Die, Too: A Book for Parents Who Grieving Parents Have Experienced the Death of a Child StillwellE. Chicago, IL:ACTA Publications, 2004. Revised Edition. 160p. JohnsonJ,Johnson SM. Omaha, NE: Centering Available fromACTAPublications,4848 N. Clark Corporation, 2004. 10p. Street, Chicago, IL60640-4711. (800) 397-2282 Available from Centering Corporation,P.O. Box (toll-free), (773) 271-1030, (800) 397-0079 (fax), 4600, Omaha, NE68104. (402) 553-1200, [email protected] (e-mail), (402) 553-0507 (fax), [email protected] http://www.actapublications.com (Web site). (e-mail),http://www.centering.org (Web site). ISBN 0-87946-260-4. Miscarriage: A Book for Parents A Guide for Fathers: When a Baby Dies JohnsonJ,Johnson SM, etal. Omaha, NE: Nelson T. St. Paul, MN:APlace toRemember, 2004. CenteringCorporation, 2004. 24p. 66p. Available from CenteringCorporation,P.O. Box Available fromAPlace to Remember, 1885 4600, Omaha, NE68104. (402) 553-1200, UniversityAvenue, Suite 110,St. Paul,MN 55104. (402) 553-0507 (fax),[email protected] (612) 645-7045, (800) 631-0973 (toll-free), (e-mail),http://www.centering.org (Web site). (612) 645-4780 (fax),[email protected] ISBN 56123-007-3. (e-mail),http://www.aplacetoremember.com (Web site). When a Child Dies...The Compassionate Friends Can Help Fathers Grieve, Too: For Fathers Who Have Experienced the Death of a Child OakBrook,IL: TheCompassionateFriends,2004.2p. Available fromThe Compassionate Friends, JohnsonJ, Johnson SM, etal. Omaha, NE: P.O. Box3696, OakBrook, IL 60522-3696. CenteringCorporation, 2004. 4p. (877) 969-0010 (toll-free), (630) 990-0246, Available from CenteringCorporation, P.O. Box [email protected] 4600, Omaha,NE68104. (402) 553-1200, (e-mail),http://www.compassionatefriends.org (402) 553-0507 (fax),[email protected] (Web site). (e-mail),http://www.centering.org (Web site). ISBN 56123-116-9. Selected ResourcesforGrieving Parents, Their Families, Friends, and OtherCaregivers 7 , Life Touches Life: A Mother's Story of Heart Works: A Father's Grief Stillbirth and Healing Peterson Portland, OR: Heart Works Publishing, J. Ash L. Troutdale, OR: NewSagePress, Inc., 2004. 2003. 83p. 192p. Available from HeartWorks Publishing, Available from NewSage Press Ltd., P.O. Box 930 SE Sandy Boulevard, Portland,OR97214. 607,Troutdale,OR 97060. (503) 695-2211, (503) 236-1350, (503) 236-8555 (fax), (877) 695-2211 (toll-free), (503) 695-5406 (fax), [email protected] (e-mai1) [email protected] (e-mail), http:// http://www.heart-works-publishing.com (Website). www.newsagepress.com (Web site). ISBN 09729377-1-4. ISBN 0-93916-550-3. SIDS and Infant Death Survival Guide: When a Baby Dies: A Handbook for Healing Information and Comfort for Grieving and Helping Family and Friends and Professionals Who Seek to Help Them LimboRK, WheelerSR. La Crosse, WI: Bereavement Services, 2003. 165p. HorchlerJN, RiceR. Cheverly, MD: SIDS Available from Bereavement Services, 1910 South EducationalServices, 2003. 320p. Avenue, La Crosse,WI 54601. (800) 362-9567 Available from SIDS Educational Services, Inc., MD (toll-free), (608) 775-4747, (608) 775-5137 (fax), 2905 64thAvenue,Cheverly, 20785. [email protected] (e-mail), http:// (301) 322-2620, (877) 935-6839 (toll-free), www.bereavementprograms.com (Web site). (301) 322-9822 (fax), [email protected] (e-mail), ISBN 0-9607098-4-3. http://www.sidssurvivalguide.org (Web site). ISBN 0-9641218-2-4. Being With Parents After Their Child or Baby Dies: For Friends and Relatives of SIDS Grieving Parents Hoppenbrouwers T, HodgmanJ. LosAngeles, CA: JohnsonJ, Johnson SM, SerletM. Omaha, NE: Women’sand Children’sHospital, 2004. 93p. CenteringCorporation, 2003. 4p. Available from Dr.Toke Hoppenbrouwers, Available from CenteringCorporation, P.O. Box Women’s and Children’s Hospital, Newborn 4600, Omaha, NE68104. (402) 553-1200, (402) Division Room L919, 1240 Mission Road, 553-0507 (fax), [email protected] (e-mail), LosAngeles,CA90033. (818) 222-5375 (fax), http://www.centering.org (Web site). [email protected], http:// www.toke.hoppenbrouwers.net (Web site). Mommy, Please Don't Cry: There Are No ISBN 0742663-0-2. Tears in Heaven DeYmazL. Sisters, OR:Multnomah Gifts, 2003. 48p. Available from Multnomah Gifts, P.O. Box 1720, Sisters,OR 97759.(541) 549-1144, [email protected] (e-mail), http://www.multnomahbooks.com (Web site). ISBN 59052-151-X. 8 Resources Helping Parents, FamilyMembers, and Friends Deal with Loss