SPECIAL REPORT A Unified Vision for the Prevention and Management of Substance Use Disorders: Building Resiliency, Wellness and Recovery – A Shift from an Acute Care to a Sustained Care Recovery Management Model COMPILED BY: MICHAEL T. FLAHERTY PHD INSTITUTE FOR RESEARCH, EDUCATION AND TRAINING IN ADDICTIONS SPECIAL REPORT A UNIFIED VISION FOR THE PREVENTION AND MANAGEMENT OF SUBSTANCE USE DISORDERS: Building Resiliency, Wellness and Recovery — A Shift from an Acute Care to a Sustained Care Recovery Management Model Compiled by: Michael T. Flaherty, Ph.D. Institute for Research, Education and Training in Addictions (IRETA) May 2006 Institute for Research, Education and Training in Addictions In Memoriam Herman Diesenhaus, Ph.D. May 16, 2006 Table of Contents Acknowledgments ................................................................................1 1. Vision ................................................................................................2 2. Chronic or Acute — Building the Underlying Principles ................4 3. The Foundation ................................................................................8 3.1 The Model .......................................................................................9 Conclusion ..........................................................................................18 References ..........................................................................................22 © 2006 IRETA Institute for Research, Education and Training in Addictions Pittsburgh, Pennsylvania Citation of the source is appreciated. Do not reproduce or distribute this publication for a fee without specific, written authorization from the Institute for Research, Education and Training in Addictions (IRETA). For more information on obtaining copies of this publication, call 1.866.246.5344. A UNIFIED VISION FOR THE PREVENTION AND MANAGEMENT OF SUBSTANCE USE DISORDERS: Building Resiliency, Wellness and Recovery — A Shift from an Acute Care to a Sustained Care Recovery Management Model Acknowledgments We wish to acknowledge the many contributors to this work. In particu- lar, we would like to thank the staff at the Institute for Research, Educa- tion and Training in the Addictions (IRETA), Dr. Janice Pringle, Ms. Debra Langer and Ms. Amanda Brodt for their careful reviews and edits and the “Core Group” of advisors on addiction as a chronic illness that included Dr. Tom McLellan, Dr. Mark Willenbring, Mr. William White, Dr. David Lewis, Dr. Rick Rawson, Mr. Victor Capoccia, Dr. Mady Chalk, Dr. Ed Wagner, Dr. Eric Goplerud, Rick Harwood, Dr. Kevin Mulvey and, most especially, Dr. Herman Diesenhaus whose personal guidance contributed much wisdom, history and energy to this effort. Finally, we must recog- nize the many leaders or participants who actively gave of their time and knowledge to review drafts, attend meetings and ask hard and often project stopping questions. Each of these leaders is listed below and ex- tended the utmost appreciation, not as individuals who endorse this work but as individuals who are gratefully acknowledged for their contribution to it: Joann Albright, Ph.D., Johnny W. Allem, Alan Axelson, M.D., Louis E. Baxter, Sr., M.D. , FASAM, Charles Bishop, Peter Brown, M.A., Rich- ard Catalano, Ph.D., Howard Chilcoat, Sc.D., Alberto M. Colombi, M.D., M.P.H., Timothy P. Condon, Ph.D., Michael Cunningham, M.A., George DeLeon, Ph.D., Alden (Joe) Doolittle, M.H.A., Carlton Erickson, Ph.D., Bennett Fletcher, Ph.D., Martha M. Gagné, Mark Greenberg, Ph.D., Constance Horgan, Sc.D., Robert Huebner, Ph.D., Ronald J. Hunsicker, D.Min., FACATA, Davis Y. Ja, Ph.D., Jerome Jaffe, M.D., Geoffrey Laredo, M.P.A., Katharine Levit, Dennis McCarty, Ph.D., Jim McKay, Ph.D., David Mee-Lee, M.D., Cathy Nugent, M.S., M.S., LGPC, CP, Harold I. Perl, Ph.D., Harold Pincus, M.D., Wilma Pinnock, Beverly Pringle, Ph.D., David Rosenbloom, Ph.D., Christy Scott, Ph.D., Ken Segel, M.B.A., Dwayne Simpson, Ph.D., Jack Stein, Ph.D., Yury Tarnavskyj, Beverly Watts-Davis, Connie Weisner, Dr.PH., M.S.W., Bonnie Wilford, M.S., and Janet Zwick. — 1 — BUILDING RESILIENCE, WELLNESS AND RECOVERY A Shift from an Acute Care to a Sustained Care Recovery Management Model 1. Vision: In a seminal report on the practice of medicine, especially as it relates to the management of chronic illnesses, the Institute of Medicine (2001) stated that the “American health care delivery system is in need of fun- damental change.” Too often, patients do not receive care that “meets their needs and is based on the best scientific knowledge.” Further, in a survey of health care systems in five industrialized nations, adults in the US were “least satisfied with their health care system” (Commonwealth Fund, 2002). In 2004, IRETA began facilitating a leadership group1 to capitalize on the atmosphere created by the IOM report, study its assertion for the field of substance use treatment and seek to develop a common vision for the prevention and treatment of substance use disorders. Initially, the group explored the question: “Is substance dependence2 an acute or chronic condition?” They concluded, based upon the definition of a chronic illness (see Wagner, 1998), that substance dependence most often becomes a chronic illness and that the vision for a model should comprehensively address substance use disorders effectively, account- ably and in a manner similar to other chronic illnesses like depression, hepatitis C, HIV/AIDS and asthma (Institute of Medicine [IOM], 1990 and 2006a; McLellan, Lewis, O’Brien, & Kleber, 2000; RAND, 2001; Rawson, Crevecoeur, & Finnerty, et al., 2003; White, Boyle, & Loveland, 2002; Wil- lenbring, 2001; Willenbring, 2005). 1 See Acknowledgments page 1. 2 In this paper the phrase substance dependence is being used as synonymous to substance use disorder/dependence or the more colloquial term “addiction.” Addiction or substance use disorder/dependence (hereafter referred to as substance dependence) is then the later and more severe stage of substance use disorders or problematic use. Sub- stance dependence is further defined as described in the American Psychiatric Association (1994) Diagnostic Criteria from DSM-IV. — 2 — This is not to say that all individuals diagnosed with substance depen- dence will develop a chronic condition. Just like a small percentage of individuals who are diagnosed with diabetes may return to normal and stable glucose levels (Pozzilli et al., 2005; Scholin, Berne, Schvarcz, Karls- son, Bjork, 1999), a small (but varying) rate of individuals with a diagnosis of a substance use disorder (SUD), may return to asymptomatic use (Dawson, Grant, Stinson, Chou, Huang and Ruan, 2005; Vaillant and Hiller-Sturmhofel, 1996). However, one can argue that the factors that are associated with stable remission in an individual who has been diagnosed with a disease (SUD, hypertension, asthma, diabetes, etc.) typically requir- ing continuing care are the severity of the individual’s disease and the individual’s vulnerability profile (McLellan et al., 2000). Moreover, there is no consensus as of yet built from scientific inquiry regarding what types of clinical and vulnerability profiles predict with reasonable certainty (and safety) which individuals with a diagnosis of SUD may return to safe levels of drinking (Vaillant, 2003; Vaillant and Hiller-Sturmhofel, 1996). The group also believed that the vision they were developing must integrate proven strategies that prevent (see Glasgow, Orleans & Wagner, et al., 2001) the development of new (incident) cases, reduce the harm caused by con- tinued use, and prevent the recurrence of illness (i.e., movement back to earlier stages of recovery) once recovery has commenced or has been established. Finally, they believed that, in so far as possible, their vision should bridge the most valid evidence derived from science, practice and the recovery experience by both strengthening the existing links and cre- ating new links between recovery supports and treatment where possible. The group also found recent encouragement for its work in the 2006 update of the IOM Quality Chasm Series (IOM, 2006a). In the report, the IOM discusses treating substance use disorders within a chronic care model (IOM, 2006a, pp. 51-65). The report defines quality as “the degree to which health services for individuals and populations increase the likelihood of desired health outcomes and are consistent with current professional knowledge” (IOM, 2006b). The IOM report, similar to this paper, recommends that substance use disorder treatment move toward building its standards of care, performance measurement and quality, information and cost measures upon a chronic illness model rather than the current, acute illness-based, fragmented and deficient system of health care (see also McLellan, McKay, Forman, Cacciola, Kemp, 2005). — 3 — This paper reports on the process and results of building a common vi- sion for substance use disorder care and offers a model which can form the basis for this new system of care. 2. Chronic or Acute — Building the Underlying Principles: If substance dependence is indeed a chronic illness (McLellan, Lewis, O’Brien, 2000; McLellan et al., 2005; White, et al., 2002) the system of care, including treatment and funding mechanisms (Horgan, Reif, Ritter, Lee, 2001), must reflect the best methods and practices existent and proven to effectively achieve chronic illness recovery. During the consen- sus process, the contributors quickly identified that most health benefit plans and payment methodologies in America treat substance depen- dence as an acute illness (e.g., similar to pneumonia or the common cold) with limits on benefits (e.g., two treatment episodes of care in a lifetime) and treatment episodes, even if more treatment is medically nec- essary (ASAM, 2005; Kurth, 2003). The group also realized the negative effect of stigma associated with substance use disorders that prevent individuals from gaining proper and timely treatment resulting in increas- ing clinical severity that often leads to incarceration and even death. In short, America may be treating a major health problem — substance dependence — with a treatment approach not appropriate to the nature of the illness. As a result, some would suggest, the public can become sceptical of the effectiveness of treatment, using statistics on relapse and recidivism as proof of failure rather than treatment success. The skeptics ignore the fact that when the system uses the wrong medical approach (i.e., an acute care approach) to treat a chronic illness it can lead to the wrong “dose” of care and outcomes that can hardly be better than if a system treated all cancer with one dose of radiation. O’Brien and McLel- lan (1996) support this by demonstrating that when treated as a chronic illness, the compliance and relapse rates of substance dependence are as good as or better than other chronic illnesses, e.g., diabetes, hyper- tension and asthma. Moreover, as pointed out by Dr. Ed Wagner during the consensus process, substance use disorder — if defined as a chronic illness — actually expands the understanding of how to approach other — 4 —