Rheumatology Nursing A Creative Approach 2nd edition Edited by JACKIE HILL Rheumatology Nursing Rheumatology Nursing A Creative Approach 2nd edition Edited by JACKIE HILL Copyright © 2006 Whurr Publishers Limited (a subsidiary of John Wiley & Sons Ltd) The Atrium, Southern Gate, Chichester, West Sussex PO19 8SQ, England Telephone (+44) 1243 779777 Email (for orders and customer service enquiries): [email protected] Visit our Home Page on www.wiley.com All Rights Reserved. No part of this publication may be reproduced, stored in a retrieval system or transmitted in any form or by any means, electronic, mechanical, photocopying, recording, scanning or otherwise, except under the terms of the Copyright, Designs and Patents Act 1988 or under the terms of a licence issued by the Copyright Licensing Agency Ltd, 90 Tottenham Court Road, London W1T 4LP, UK, without the permission in writing of the Publisher. 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Other Wiley Editorial Offi ces John Wiley & Sons Inc., 111 River Street, Hoboken, NJ 07030, USA Jossey-Bass, 989 Market Street, San Francisco, CA 94103-1741, USA Wiley-VCH Verlag GmbH, Boschstr. 12, D-69469 Weinheim, Germany John Wiley & Sons Australia Ltd, 42 McDougall Street, Milton, Queensland 4064, Australia John Wiley & Sons (Asia) Pte Ltd, 2 Clementi Loop #02-01, Jin Xing Distripark, Singapore 129809 John Wiley & Sons Canada Ltd, 22 Worcester Road, Etobicoke, Ontario, Canada M9W 1L1 Wiley also publishes its books in a variety of electronic formats. Some content that appears in print may not be available in electronic books. Library of Congress Cataloging-in-Publication Data Rheumatology nursing : a creative approach / edited by Jackie Hill. – 2nd ed. p. ; cm. Includes bibliographical references and index. ISBN-13: 978-0-470-01961-0 ISBN-10: 0-470-01961-1 1. Musculoskeletal system–Diseases–Nursing. 2. Arthritis–Nursing. 3. Rheumatism–Nursing. I. Hill, Jacqueline, 1946– [DNLM: 1. Rheumatic Diseases–nursing. 2. Orthopedic Nursing–methods. WY 157.6 R472 2006] RC925.5.R48 2006 616.7′23 – dc22 2005029943 British Library Cataloguing in Publication Data A catalogue record for this book is available from the British Library ISBN-13 978-0-470-01961-0 ISBN-10 0-470-01961-1 Typeset by SNP Best-set Typesetter Ltd., Hong Kong Printed and bound in Great Britain by TJ International Ltd, Padstow, Cornwall This book is printed on acid-free paper responsibly manufactured from sustainable forestry in which at least two trees are planted for each one used for paper production. Contents SECTION 1 SETTING THE SCENE This section provides an overview of the musculoskeletal system and the immune system and describes how rheumatic conditions affect them. A chapter is also devoted to the different investigations that are used to diagnose and assess the patient. The central role of the nurse caring for the rheumatic patient is discussed and the benefi ts of adopting a therapeutic rather than an exclusively supportive framework is advocated. The expanding role of the nurse within the speciality is explored, including the role of the consultant nurse, nurse-led clinics and academic nursing roles. 1 The Principles, Practice and Evolution of Rheumatology Nursing 3 Sarah Ryan and Jackie Hill 2 The Musculoskeletal System and the Rheumatic Diseases 25 Valerie Arthur and Jackie Hill 3 The Immune System and Rheumatic Disease 93 Susan Oliver 4 Biochemical, Haematological and Clinical Assessments in the Rheumatic Diseases 123 Jackie Hill SECTION 2 ADDRESSING THE PATIENT’S PROBLEMS People who have rheumatic diseases encounter many physical, psychological and social problems. This section will highlight the problems and this will enable the nurse to address them systematically using effective methods of intervention. A model based on patient problems is used as a framework to provide a logical and structured approach to care. 5 The Psychological Aspects of Rheumatic Disease 151 Sarah Ryan vi CONTENTS 6 The Effects of Rheumatic Disease on Body Image and Sexuality 173 Jackie Hill 7 The Social Implications of Rheumatic Disease 193 Sarah Ryan 8 Pain and Stiffness 217 Jackie Hill 9 Fatigue and Sleep 245 Christine White 10 The Skin and Nutrition 271 Naomi Reay, Sally Smith and Jill Byrne SECTION 3 THERAPEUTIC INTERVENTIONS The multifaceted nature of rheumatic diseases requires a combination of therapies. In addition to conventional treatments such as drug therapy and surgery, this section includes complementary therapeutic interventions such as aromatherapy and acupuncture. Continuing the theme of empowering and working in partnership with the patient, this chapter is underpinned by a chapter on patient education. 11 Multidisciplinary Team Care of the Rheumatic Patient 311 Pauline Fitzgerald 12 Medications in the Rheumatic Diseases 337 Jo White and Domini Bryer 13 Complementary Interventions 373 Anne Cawthorn and Peter Mackereth 14 Surgical Interve ntions 401 Maureen Cox 15 Patient Education 435 Jackie Hill SECTION 4 PRIMARY AND PAEDIATRIC CARE A person with a rheumatic disease is often cared for in both the primary and secondary sector. This ‘shared care’ makes an important contribution to the patient’s well-being but requires adequate support mechanisms to function effi ciently. The factors necessary to implement effective shared-care schemes CONTENTS vii are discussed in detail. The fi nal chapter concerns children and young people. Although children with rheumatic diseases share many of the problems faced by adults, they and their families also confront many discrete additional problems. The chapter on paediatric care provides a description of the clas- sifi cation of Juvenile Idiopathic Arthritis and its treatments, and describes the educational and psychological needs of this vulnerable group. 16 Seamless Primary and Secondary Care 461 Mandy Edwards 17 Paediatric Care 483 Gill Jackson Index 519