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RADICAL INCLUSIVE PE DAGOGY CONNECTING DISABILITY, EDUCATION AND ACTIVISM Anat Greenstein A thesis submitted in partial fulfilment of the requirements for the degree of Doctor of Philosophy Department of Psychology Manchester Metropolitan University 2013 In loving memory of my father ריני 1 ABSTRACT This thesis combines ideas from disability studies and inclusive education debates, as well as critiques of mainstream schooling from critical pedagogy (e.g. Freire, 1972a; McLaren, 2009) and progressive education approaches (e.g. Darling & Nordenbo, 2002; Holt, 1983) to suggest a framework of radical inclusive pedagogy. The imperative for developing this framework is based on two main arguments; firstly, I argue for the understanding of education as a political process that can serve to reify or challenge the social order (Freire, 1972b; Giroux, 1981; McLaren, 2009). This view shifts debates about (inclusive) education from technical issues of resources and teaching methods to political and value-laden questions about the goals and aims of education (Slee, 1997). Secondly, adopting the social model assertion that disability is not an individual trait but rather the result of social processes of disablement (Oliver, 1990a; Thomas, 1999), I argue that educational theories and practices that are geared towards social justice and inclusion need to recognise and value the diversity of human embodiments, needs and capacities, and to foster pedagogical practices that promote rhizomatic relations of interdependency (Allan, 2008; Goodley, 2007a; Kittay, Jennings, & Wasunna, 2005), rather than focusing on independence and rationality. A key aspect of the thesis is its prefigurative approach, which stresses the need to simultaneously resist the social order and build alternatives from within (Gordon, 2008). This leads to the argument that the disabled people’s movement is in itself a site of radical inclusive pedagogy, as it supports disabled people in analysing social structures in order to resist their oppression. Further, the insistence on prefigurative research meant looking for ways to engage with disabled students in ways that resist the adult-child hierarchies of the school. The use of playful creative methods (including art, drama and comics) in workshops that were aimed at designing “the best school in the world” allowed for more flexible power relations, and provided an accessible context to foster participants’ engagement in reflexive discussions about social norms and values, thus transgressing the primacy of language and rationality in educational research. Findings from interviews with activists in the disabled people’s movement and from the ethnographic work in a “special needs unit” within a mainstream school were synthesised to suggest four key aspects of radical inclusive pedagogy: the need to value difference and resist practices that seek to make all students follow a uniform, linear and predefined educational path; the need to understand education as a complex and on-going relational process that values interdependence rather than independence; the need to contextualise learning in diverse aspects of experience as a way of supporting conscientization and accessibility; and the need to promote dialogue between teachers and students and resist authoritarian school practices. 2 ACKNOWLEDGMENTS For the opportunity to write this thesis I am thankful to many people. First and foremost I would like to thank all the participants in this research, both adults and youth, for sharing with me their experiences, views and analysis. Your ideas have been an inspiration. Second, I am thankful to my dedicated team of research supervisors, Dan Goodley, Katherine Runswick Cole and Erica Burman for their insightful comments, suggestions, patience and support; I couldn’t have done it without you. The peer support and critical debates among fellow students and researchers at the Research Institute for Health and Social Change and at the Theorizing Normalcy and the Mundane conferences had been instrumental to this work. In particular I would like to thank Jenny Slater, Chine Mills, Shaun Grech, Amanda Hynan, Lani Parker, Damian Milton, Liz Ellis and Adi Moreno. I am thankful to Craig Blyth and Rohhss Chapman, my colleagues at the Learning Disability Studies programme at the University of Manchester, for allowing me the time and space to complete this thesis. Last but not least, I am thankful to my family, for their on-going love, concern, and encouragement, without which I could not have gone through with this project. Of those I’m especially thankful to my mum, Nurit Greenstein, and to my partner, Steve Graby, who have always been there for me and extended endless material and emotional support. I love you all very much. 3 TABLE OF CONTENTS Abstract .………………………………………………………………………………….............…….2 Acknowledgments ………………………………………………………………….............…………. 3 List of figures and tables……………………………………….............……………………………….7 List of outputs and dissemination……………………………….............………………….………..…8 Chapter 1 – Introduction………………………………………............……………………..………... 9 Introduction …………………………………………………............……….……………..….9 Radical pedagogy – Thinking with critiques of mainstream education ….............……….….13 Inclusive pedagogy– thinking with disability studies ...…………………….............………..16 The structure of the thesis ……..…………………………………….............…………….…19 Outline of chapters ......……………………………………............………....……....20 Chapter 2 – Interrogating disability and normalcy …….…............…………………………..….…...27 Introduction ……………………….............…………………….…………….……….……..27 The ‘norm’ and a professional model of disability ……….......……..……….……......……..28 De-biologising disability: the emergence of ‘the social model’ and the discipline of disability studies .………..…………………………………........…………….………....…...39 Materialist perspectives on disability ....………………….......………………..........41 Feminist perspectives on disability- the role of subjectivity ……..…................……43 A sociology of impairment: poststructuralist and phenomenological approaches to disability …….……………………………………………………........………...…..47 Developing a ‘dis-ability’ perspective on social theory .......……………........……………...54 Conclusion ……..…………………………………………………………........……….……62 Chapter 3 – Reading schools through a disability perspective: Arguing for the need to develop radical inclusive pedagogy………………………………………………………........……………………….65 Introduction ………..……………………………………………….…………….............…..65 Comprehensive schooling as a modern phenomenon ………………….............………...…..67 Constructing school failure as an individual pathology ……………….............……………..73 Constructing citizens for the 'Knowledge Economy' – Neo-Liberal education reforms .........78 Radical pedagogies …………………………………………………………............………..86 Conclusion ……………………………………………………..………............…………….96 Chapter 4 – Learning in movements and learning from movements: The place of activism in radical inclusive pedagogy ……………………………………………..........................……………………..98 Introduction ………………………………………….............…………………………….....98 What movements know ………………………………………………….............…………...99 The disabled people’s movement: Ideologies, tactics and structures ………........................104 Ideology and goals ……………………………............……………………………107 Tactics …………………………………………………………............…………...112 Structures of organisation …………………….……………............………………126 Conclusion …………………………………………………………............……………….129 Chapter 5 – Methodology ………………………………………………………..............………….132 Introduction ……………………………………………………………............…………...132 Section 1: Epistemological and methodological frameworks …………...........……...……136 Research as a process of co-construction ……………………..........……………..136 Research as politics – commitment to social change …………..........……………141 A stance of inspiration ………………………………………..........……………...145 4 Section 2: Methods and ethical dilemmas in data collection ……….........……...…………148 Procedural ethics ………………………………………………...........…………...149 Researching with activists …………………………………….......……....……….150 The school research …………………………………………......……….....……...157 Analysis ………………………………………………………......……….....…….177 Analysis of interviews and school ethnography ….....……………....……177 Prefigurative analysis ……………………………….....………….....……179 Conclusion ………………………………………………………….......………….....…….182 Chapter 6 – Activists’ visions of education and how they may inform radical inclusive pedagogy ..............................................................................................................................................................184 Introduction ............................................................................................................................184 The politics of difference in radical inclusive pedagogy .......................................................185 Contextualising learning and resisting hierarchies ................................................................197 Education as a relational process of becoming ......................................................................206 Conclusion: Unity, diversity, and the politics of education ...................................................212 Chapter 7 – Reading one school through the perspective of radical inclusive pedagogy....................217 Introduction ............................................................................................................................217 The politics of difference ......................................................................................................219 Approaches to learning ..........................................................................................................227 Stage not age approach .............................................................................................229 Topic based curriculum ............................................................................................231 Belonging ...............................................................................................................................234 Belonging as a space .................................................................................................234 Belonging as an ongoing relational process .............................................................238 Power and authority ...............................................................................................................247 Conclusion .............................................................................................................................254 Chapter 8 – Prefigurative research: Playful methodology as a site of radical inclusive pedagogy ..............................................................................................................................................................256 Introduction ............................................................................................................................256 Playing critically – using play to ‘imagine otherwise’ ..........................................................259 Groups and rhizomes .............................................................................................................265 Multi- method: Transgressing the verbal-rationale bias of research methods .......................272 Sharing power and the ‘adult role’ .........................................................................................280 Distinguishing relations of power – power to, power with, and power among ........281 Play and the ‘least – adult role’ ................................................................................283 Sharing adult privileges.............................................................................................285 Adult responsibilities, ethical and political commitments .......................................288 Conclusion .............................................................................................................................291 Chapter 9 – Discussion .......................................................................................................................294 Introduction ............................................................................................................................294 Making the case for radical inclusive pedagogy: What have we learnt so far .......................295 A vision of radical inclusive pedagogy: Rethinking education from a dis-ability perspective .................................................................................................................................................301 Rethinking the “subject” from a dis-ability perspective: The need for rhizomatic relational understanding of education and development ..........................................302 Rethinking community from a dis-ability perspective: Valuing difference, affirming identity ......................................................................................................................306 5 Rethinking power from a dis-ability perspective: Developing relational autonomy and valuing resistance ......................................................................................................311 Rethinking knowledge from a dis-ability perspective: Supporting access and conscientization ........................................................................................................315 Prefiguring radical inclusive pedagogy – implications for research and practice .................319 Key messages .........................................................................................................................323 Bibliography .......................................................................................................................................325 Appendices .........................................................................................................................................348 Appendix 1a: Activists’ information and consent form ........................................................349 Appendix 1b: Head teacher information and consent form ...................................................352 Appendix 1c: Teacher information and consent form ...........................................................355 Appendix 1d: Parent information and consent form ..............................................................357 Appendix 1d: Student information and consent form ............................................................359 Appendix 2a: Interview guide for activists ............................................................................362 Appendix 2b: Interview guide for parent activists .................................................................363 Appendix 2c: Interview guide for teachers in the SNU .........................................................364 Appendix 2d: Interview guide for middle management in the SNU .....................................365 Appendix 3a: Full list of rules used in session 3 sorting task ................................................366 6 LIST OF FIGURES AND TABLES Figure 1: Illustration from Dense & Pirson, 1993 p.5................................................31 Figure 2: Board, pawn and dice................................................................................168 Figure 3: A model of the ideal teacher......................................................................170 Figure 4: Model of the ideal student..........................................................................170 Figure 5: Model of the ideal friend............................................................................171 Figure 6: A model of the best school in the world....................................................172 Figure 7: A play of the best school in the world........................................................173 Figure 8: A play of the school from hell....................................................................174 Figure 9: Thematic network of Approaches to Learning based on interviews with activists ......................................................................................................................................180 Figure 10: Individual and environmental problems and solutions...............................221 Figure 11: A model of the best school in the world with the special unit behind reception ......................................................................................................................................223 Figure 12: The best friend loves everyone and doesn’t want to fall out......................242 Figure 13: Wedding ring and knuckle duster...............................................................242 Figure 14: Sharing space in the ideal school................................................................252 Figure 15: Fighting over space in the school from hell.................................................253 Figure 16: The best school in the world - participation through “opting out”...............279 Table 1: Summary of research questions and methods of answering them....................134 Table 2: Informed consent...............................................................................................150 Table 3: List of participants and interview modes...........................................................154 Table 4: Summary of methods in the school research......................................................159 Table 5: The “best school in the world” workshop as a site of radical inclusive pedagogy ...........................................................................................................................................258 7 LIST OF OUTPUTS AND DISSEMINATION PEER REVIEWED JOURNALS Greenstein, A. (2013). Is this inclusion? Lessons from a very “special” unit, International Journal of Inclusive Education, DOI:10.1080/13603116.2013.777130. Greenstein, A. (2013). “Today’s learning objective is to have a party”: Playing research with students in a secondary school SEN unit, Journal of Research in Special Educational Needs, DOI: 10.1111/1471-3802.12009. BOOKS Greenstein, A. (Forth coming, Aug, 2014). Radical Inclusive Pedagogy: An Interdisciplinary Approach to Education, Disability and Liberation. London: Routledge. SELECTED CONFERENCE PAPERS AND WORKSHOPS 2010- Theorising Normalcy and the Mundane, MMU Whose law? Whose order? Negotiating the role of speech and language therapy 2010 -Disability Studies Conference, Lancaster University Children and vulnerable adults: Risk, responsibility and exclusion in the life of disabled people 2011- Theorising Normalcy and the Mundane, 2nd International conference, MMU Keynote presentation: ‘Ideal world full of freaks and unusual women’: playing with contradictions in “special” education research. 2011- Transformative Difference: Disability, Culture and the Academy, Liverpool Hope University Including or Belonging? Moral conflicts in the ‘Special Needs’ Unit 2011- RIHSC Conference, MMU Making space for place: The role of the physical environment in educational relationships 2012- Theorising Normalcy and the Mundane, 3nd International conference, University of Chester Burning the blackboard: the important role of conflict and resistance in inclusive education 2013 – Time for Change? Child, Youth, Family and Disability Conference, MMU The “best ever” future worlds workshop, presented by Anat Greenstein and Jenny Slater. 8 CHAPTER 1 INTRODUCTION INTRODUCTION A long time ago in a place far far away... All good stories start like that and so does this one. It was June 2002 in Israel/Palestine and I was about to complete my first year as a speech and language therapist. From a very young age, I have always wanted to change the world and make it a better place. In my youth that commitment had translated into political activism in anti-occupation, anti-militarist and feminist movements, but when the time came to choose a professional career path, I did not want to make activism the source of my livelihood. Choosing to work with disabled children seemed like a good option for having a “practical” profession, while still making the world a better place and supporting people to live a full life. Yet, a year into my practice in a mainstream school with an “inclusion” programme for students with the label of autism, I was growing increasingly uncomfortable. Initially I was impressed with the level of service available in the school to facilitate students’ participation in mainstream education. A special educational needs (SEN) teacher and a teaching assistant (TA) were constantly available to support autistic students during lessons, as well as a special after school provision dedicated to developing students’ social, cognitive and communication skills. On top of the SEN teachers and TAs the staff also included a speech and language therapist, an occupational therapist and a psychologist. One day during an arithmetic lesson, the teacher asked the students to skip over some pages in their work books, and answer the questions on page 65. Jonathan, one of the autistic students in the 9

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inclusive pedagogy, as it supports disabled people in analysing social suggest four key aspects of radical inclusive pedagogy: the need to value hand, is one specific institutional context in which education takes place, As an anarchist feminist, I am politically committed to visions of egalitar
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