Psychosocial Aspects of Pediatric Oncology PDF
Preview Psychosocial Aspects of Pediatric Oncology
Psychosocial Aspects of Pediatric Oncology PsychosocialAspectsofPediatricOncology.EditedbyS.KreitlerandM.WeylBenArush &2004JohnWiley&SonsLtd:ISBN0471499390 Psychosocial Aspects of Pediatric Oncology Editors Shulamith Kreitler UniversityofTel-Aviv,Israel,and PsychooncologyUnit,Tel-AvivMedicalCenter,Israel MyriamWeyl Ben Arush MeyerChildren’sHospital,RambamMedicalCenter,Haifa,Israel Copyrightu2004 JohnWiley&SonsLtd,TheAtrium,SouthernGate,Chichester, WestSussexPO198SQ,England Telephone(+44)1243779777 Email(forordersandcustomerserviceenquiries):[email protected] VisitourHomePageonwww.wileyeurope.comorwww.wiley.com AllRightsReserved.Nopartofthispublicationmaybereproduced,storedinaretrieval systemortransmittedinanyformorbyanymeans,electronic,mechanical,photocopying, recording,scanningorotherwise,exceptunderthetermsoftheCopyright,Designsand PatentsAct1988orunderthetermsofalicenceissuedbytheCopyrightLicensingAgency Ltd,90TottenhamCourtRoad,LondonW1T4LP,UK,withoutthepermissioninwriting ofthePublisher.RequeststothePublishershouldbeaddressedtothePermissions Department,JohnWiley&SonsLtd,TheAtrium,SouthernGate,Chichester,WestSussex PO198SQ,England,[email protected],orfaxedto(+44)1243770620. Thispublicationisdesignedtoprovideaccurateandauthoritativeinformationinregardto thesubjectmattercovered.ItissoldontheunderstandingthatthePublisherisnotengaged inrenderingprofessionalservices.Ifprofessionaladviceorotherexpertassistanceis required,theservicesofacompetentprofessionalshouldbesought. OtherWileyEditorialOffices JohnWiley&SonsInc.,111RiverStreet,Hoboken,NJ07030,USA Jossey-Bass,989MarketStreet,SanFrancisco,CA94103-1741,USA Wiley-VCHVerlagGmbH,Boschstr.12,D-69469Weinheim,Germany JohnWiley&SonsAustraliaLtd,33ParkRoad,Milton,Queensland4064,Australia JohnWiley&Sons(Asia)PteLtd,2ClementiLoop#02-01,JinXingDistripark,Singapore 129809 JohnWiley&SonsCanadaLtd,22WorcesterRoad,Etobicoke,Ontario,CanadaM9W 1L1 Wileyalsopublishesitsbooksinavarietyofelectronicformats.Somecontentthatappears inprintmaynotbeavailableinelectronicbooks. BritishLibraryCataloguinginPublicationData AcataloguerecordforthisbookisavailablefromtheBritishLibrary ISBN0471499390 Typesetin10/12ptTimesbyDobbieTypesettingLtd,Tavistock,Devon PrintedandboundinGreatBritainbyTJInternationalLtd,Padstow,Cornwall Thisbookisprintedonacid-freepaperresponsiblymanufacturedfromsustainableforestry inwhichatleasttwotreesareplantedforeachoneusedforpaperproduction. Contents List of Contributors . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . ix Foreword. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . xiii Jimmie Holland, MD, Head of Psychiatric Service, Memorial Sloan-Kettering, New York Part One Medical Aspects. . . . . . . . . . . . . . . . . . . . . . . . . . . . 1 1 Cancer in Children – an Introduction . . . . . . . . . . . . . . . . . . . . . . . 3 Shai Izraeli and Gideon Rechavi 2 Neuropsychological Aspects of Medical Treatments in Children with Cancer . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 9 Raymond K. Mulhern, Holly White and Sean Phipps 3 Palliative Care for Children with Advanced Cancer . . . . . . . . . . . . . 45 Joanne Wolfe, Anne Tournay and Lonnie K. Zeltzer 4 Pain in Children with Cancer. . . . . . . . . . . . . . . . . . . . . . . . . . . . . 71 Richard D. W. Hain 5 Care of a Child Dying of Cancer. . . . . . . . . . . . . . . . . . . . . . . . . . 93 Sergey Postovsky and Myriam Weyl Ben Arush Part Two Psychosocial Aspects. . . . . . . . . . . . . . . . . . . . . . . . 109 6 The Child’s Subjective Experience of Cancer and the Relationship with Parents and Caregivers . . . . . . . . . . . . . . . . . . . . 111 Daniel Oppenheim 7 Quality of Life in Children with Cancer: Definition, Assessment and Results. . . . . . . . . . . . . . . . . . . . . . . . . 139 Shulamith Kreitler and Michal M. Kreitler 8 Psychiatric Impact of Childhood Cancer. . . . . . . . . . . . . . . . . . . . . 211 Margaret L. Stuber and Debra Seacord viii CONTENTS 9 The Family of the Child with Cancer . . . . . . . . . . . . . . . . . . . . . . 229 Dafna Meitar 10 Psychosocial Effects of Hematopoietic Cell Transplantation in Children . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 247 Ronit Elhasid, Michal M. Kreitler, Shulamith Kreitler and Myriam Weyl Ben Arush 11 The Survivors of Childhood Cancer . . . . . . . . . . . . . . . . . . . . . . . 265 Amita Mahajan and Meriel E. M. Jenney Part Three Psychosocial Interventions . . . . . . . . . . . . . . . . . . 279 12 Speaking to Children about Serious Matters . . . . . . . . . . . . . . . . . 281 Jane E. Skeen and M. Louise Webster 13 Psychosocial Interventions: the Cognitive-Behavioral Approach . . . . 313 Bob F. Last and Martha A. Grootenhuis 14 Complementary and Alternative Medicine Use in Children with Cancer . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 335 Cynthia D. Myers, Jonathan Bergman and Lonnie K. Zeltzer 15 Fantasy, Art Therapies, Humor and Pets as Psychosocial Means of Intervention . . . . . . . . . . . . . . . . . . . . . . . 351 Shulamith Kreitler, Daniel Oppenheim and Elsa Segev-Shoham 16 Psychological Intervention with the Dying Child. . . . . . . . . . . . . . . 389 Shulamith Kreitler and Elena Krivoy 17 Education of the Sick Child: Learning and Reintegration into the School. . . . . . . . . . . . . . . . . . . . . . . . . . . . 415 Ciporah S. Tadmor and Myriam Weyl Ben Arush Index. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 443 List of Contributors BERGMAN, JONATHAN David Geffen School of Medicine, UCLA Pediatric Pain Program, Department of Pediatrics, #22-464 MDCC, UCLA School of Medicine, 10833 Le Conte Avenue, Los Angeles, CA 90095-1752, USA ELHASID, RONIT Pediatric Hematology Oncology Department, Meyer Children’s Hospital, Rambam Medical Center, Bat Galim Street, Haifa 31096, ISRAEL GROOTENHUIS, EmmaKinderziekenhuis,AcademicMedicalCenter, MARTHA A. Psychosocial Department, University of Amster- dam, Meibergdreef 9, 1105 AZ Amsterdam, THE NETHERLANDS HAIN, RICHARD D.W. Department of Child Health, University of Wales College of Medicine, Llandough Hospital, Penlan Road, Cardiff CF64 2XX, Wales, UNITED KINGDOM IZRAELI, SHAI Department of Pediatric Hemato-Oncology, Safra Children Hospital, Sheba Medical Center, Tel- Hashomer 52621, ISRAEL JENNEY, MERIEL E.M. Department of Paediatric Oncology, Llandough Hospital,PenlanRoad,PenarthCF642XX,Wales, UNITED KINGDOM KREITLER, MICHAL M. Psychooncology Unit, Tel-Aviv Medical Center, 6 Weitzman Street, Tel-Aviv 64239, ISRAEL KREITLER, SHULAMITH Department of Psychology, Tel-Aviv University, Tel-Aviv 69978, ISRAEL KRIVOY, ELENA Pediatric Hematology Oncology Department, Meyer Children’s Hospital, Rambam Medical Center, Bat Galim Street, Haifa 31096, ISRAEL LAST, BOB F. EmmaKinderziekenhuis,AcademicMedicalCenter, Psychosocial Department, University of Amster- dam, Meibergdreef 9, 1105 AZ Amsterdam, THE NETHERLANDS x CONTRIBUTORS MAHAJAN, AMITA Department of Paediatric Oncology, Llandough Hospital,PenlanRoad,PenarthCF642XX,Wales, UNITED KINGDOM MEITAR, DAFNA Department of Behavioral Science, Sackler School of Medicine, Tel-Aviv University, Tel-Aviv, ISRAEL MULHERN, RAYMOND K. Division of Behavioral Medicine, St. Jude Chil- dren’s Research Hospital, 332 North Lauderdale, Memphis, Tennessee 38105-2794, USA MYERS, CYNTHIA D. David Geffen School of Medicine, UCLA Pediatric Pain Program, Department of Pediatrics, #22-464 MDCC, UCLA School of Medicine, 10833 Le Conte Avenue, Los Angeles, CA 90095-1752, USA OPPENHEIM, DANIEL Department of Pediatrics and Unit of Psycho- Oncology, Institut Gustave Roussy, 94805 Villejuif, FRANCE PHIPPS, SEAN Division of Behavioral Medicine, St. Jude Children’s Research Hospital, 332 North Lauderdale,Memphis,Tennessee38105-2794,USA POSTOVSKY, SERGEY Pediatric Hematology Oncology Department, Meyer Children’s Hospital, Rambam Medical Center, Bat Galim Street, Haifa 31096, ISRAEL RECHAVI, GIDEON Department of Pediatric Hemato-Oncology, Safra Children Hospital, Sheba Medical Center, Tel- Hashomer 52621, ISRAEL SEACORD, DEBRA Neuropsychiatric Institute, University of California Los Angeles, Los Angeles 90024-1759, CA, USA SEGEV-SHOHAM, ELSA Pediatric Oncology Unit, Haemek Medical Center, Afula, ISRAEL SKEEN, JANE E. Paediatric Haematology/Oncology, Level 7, Starship Children’s Hospital, Private Bag 92024, Auckland, NEW ZEALAND STUBER, MARGARET L. Neuropsychiatric Institute, University of California Los Angeles, Los Angeles 90024-1759, CA, USA TADMOR, CIPORAH S. Pediatric Hematology Oncology Department, Rambam Medical Center, Bat Galim Street, Haifa 31096, ISRAEL CONTRIBUTORS xi TOURNAY, ANNE Division of Pediatric Neurology, University of California at Irvine, 101 The City Drive South, Bldg 2, 3rd Floor, Orange, CA 92868, USA WEBSTER, M. LOUISE Paediatric Consultation Liaison Psychiatry Team, Starship Children’s Hospital, Private Bag 92024, Auckland, NEW ZEALAND WEYL BEN ARUSH, Pediatric Hematology Oncology Department, MYRIAM Meyer Children’s Hospital, Rambam Medical Center, Technion Faculty of Medicine, Bat Galim Street, Haifa 31096, ISRAEL WHITE, HOLLY Division of Behavioral Medicine, St. Jude Children’s Research Hospital, 332 North Lauderdale,Memphis,Tennessee38105-2794,USA WOLFE, JOANNE PediatricAdvancedCareTeam,Children’sHospital Boston and the Dana-Farber Cancer Institute, Harvard School of Medicine, 44 Binney Street, Boston, MA 02115, USA ZELTZER, LONNIE K. David Geffen School of Medicine, UCLA Pediatric Pain Program, Department of Pediatrics, #22-464 MDCC, UCLA School of Medicine, 10833 Le Conte Avenue, Los Angeles, CA 90095-1752, USA Foreword The past twenty-five years have seen a remarkable increase in research and education in the psychosocial aspects of cancer, including the founding of a sub-specialty – psycho-oncology. Most of this work has addressed adult psychosocial care. However, only patchy attention has been given to the problems of children and their families. And, surely, it has been far less than appropriate,giventheemotionalpainthataccompanieslife-threateningillness in children. It is a great contribution, therefore, that the editors of this book have undertaken to collect our current knowledge and research in pediatric psychosocial oncology and publish a cohesive and comprehensive textbook that addresses these issues in the care of children with cancer. They have drawn upon an international group of experts who have summarized the current information on a range of critically important topics. Co-editorship by a pediatric oncologist and a psycho-oncologist is an added strength, which follows the principle of full integration of psychological care into medical care. The book will benefit both the primary oncology team members and psycho-oncologists and mental health professionals working in pediatriccancer.Greaterattentionneedstobegiventothisarea,andthiswork will raise awareness of the issues for public and professional audiences. It is a publicationtoinformstakeholderslikeparents,familiesandadvocacygroups, thereby creating a stronger case for expanded psychosocial resources in healthcare policy decisions. As a grandparent who has recentlylost a lovely,three-year-oldgrandson to cancer (to whom the editors have kindly dedicated this work), I can attest to theimportanceofthisbookfromdualviewpoints:professionally,asfounderof the International Psycho-oncology Society, and personally, as a grieving grandmother. I commend the editors for this global view of children’s emotional needs and guidelines for their management in the context of life- threatening illness. The contributors to this volume have elucidated the goal that,overtime,nochild’sdistressrelatedtoillnessshouldgounrecognizedand untreated. Jimmie C. Holland, MD Attending Psychiatrist, Department of Psychiatry & Behavioral Sciences Wayne E. Chapman Chair in Psychiatric Oncology Memorial Sloan-Kettering Cancer Center, New York and Professor of Psychiatry, Department of Psychiatry Weill Medical College of Cornell University, New York PARTONE MEDICAL ASPECTS PsychosocialAspectsofPediatricOncology.EditedbyS.KreitlerandM.WeylBenArush &2004JohnWiley&SonsLtd:ISBN0471499390
The list of books you might like
