Psychological, Emotional, Social and Cognitive Aspects of Implantable Cardiac Devices PDF
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Psychological, Emotional, Social and Cognitive Aspects of Implantable Cardiac Devices Riccardo Proietti Gian Mauro Manzoni Giada Pietrabissa Gianluca Castelnuovo Editors 123 Psychological, Emotional, Social and Cognitive Aspects of Implantable Cardiac Devices Riccardo Proietti • Gian Mauro Manzoni Giada Pietrabissa • Gianluca Castelnuovo Editors Psychological, Emotional, Social and Cognitive Aspects of Implantable Cardiac Devices Editors Riccardo Proietti Gian Mauro Manzoni Cardiac Center, Morriston Hospital eCampus University Faculty of Psychology University of Swansea Novedrate (Como) Swansea Italy UK Gianluca Castelnuovo Giada Pietrabissa Department of Psychology Department of Psychology Università Cattolica del Sacro Cuore Università Cattolica del Sacro Cuore Milano Milano Italy Italy ISBN 978-3-319-55719-9 ISBN 978-3-319-55721-2 (eBook) DOI 10.1007/978-3-319-55721-2 Library of Congress Control Number: 2017945678 © Springer International Publishing AG 2017 This work is subject to copyright. All rights are reserved by the Publisher, whether the whole or part of the material is concerned, specifically the rights of translation, reprinting, reuse of illustrations, recitation, broadcasting, reproduction on microfilms or in any other physical way, and transmission or information storage and retrieval, electronic adaptation, computer software, or by similar or dissimilar methodology now known or hereafter developed. The use of general descriptive names, registered names, trademarks, service marks, etc. in this publication does not imply, even in the absence of a specific statement, that such names are exempt from the relevant protective laws and regulations and therefore free for general use. The publisher, the authors and the editors are safe to assume that the advice and information in this book are believed to be true and accurate at the date of publication. Neither the publisher nor the authors or the editors give a warranty, express or implied, with respect to the material contained herein or for any errors or omissions that may have been made. The publisher remains neutral with regard to jurisdictional claims in published maps and institutional affiliations. Printed on acid-free paper This Springer imprint is published by Springer Nature The registered company is Springer International Publishing AG The registered company address is: Gewerbestrasse 11, 6330 Cham, Switzerland Preface In 1989 I was a young research registrar at St George’s Hospital London. These were exciting times as within a few months of my arrival we started implanting the first generation of transvenous implantable defibrillator (ICD), which no longer required a thoracotomy. This change had the potential to make ICD therapy avail- able to a much wider group of patients. Psychological and emotional issues were not uppermost in our minds as we grappled with the technical challenges of these new devices with their limited shock outputs and sometimes marginal defibrillation thresholds. However, within two years I had lost two patients, one teenager to a gruesome suicide following an appropriate shock therapy, and another older patient to severe depression following over 40 inappropriate shocks for atrial fibrillation. Following these events the importance of psychological and emotional factors in ICD patients was very clear to me and my practice since then has always included pre-implant counselling and access to post-implant support. Since the 1990s there have been many technical developments in ICD therapy including biphasic shocks, improved detection algorithms, vastly increased arrhyth- mia event storage capability, and remote monitoring. However the risk of inappro- priate therapies, whilst reduced, remains and appropriate shock therapy is still the main means of sudden death prevention by the device. In addition the occurrence of a number of high profile manufacturer’s advisories, relating to leads and devices, has highlighted concerns about reliability. That the ICD remains an imperfect ther- apy, preventing sudden death only by waiting for it to be imminent and then striking with shock therapy, is not in question. Meanwhile the indications for device therapy have broadened with more than a million people worldwide living with an ICD. Many of these new ICD recipients are receiving the devices for primary prevention of sudden death having never suffered an arrhythmia, their potential mortality drawn starkly to their attention. Many of these patients will survive for decades as their risk of sudden death is low. To allow them to continue to lead active working, social and sexual lives requires careful consideration of and preparation for the impact of ICD therapy. The impact of device therapy spreads far beyond the patient, affecting partners and families too. v vi Preface In this book Proietti and colleagues have brought together a wide range of exper- tise in Psychological, Emotional, Social and Cognitive Aspects of Implantable Cardiac Device therapy to create a standard reference on this important topic. We owe it to all of our implantable device patients to consider this vital aspect of their care. Morriston, Swansea, UK Mark Anderson Contents 1 Cognitive Functioning in Implantable Cardioverter Defibrillator/ Pacemaker Recipients . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1 Mauro Feola and Marzia Testa 2 Neuropsychological Functioning After Implantable Cardioverter-Defibrillator Surgery . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 13 Abdullah Alabdulgader 3 Psychosocial Concerns in Patients Living with an Implantable Cardioverter Defibrillator . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 47 Ingela Thylén 4 Comparison of Health-Related Quality of Life Between Patients with Implantable Cardioverter Defibrillators and Pacemaker Recipients . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 67 Alena Kajanová, Martin Eisenberger, and Zuzana Řimnáčová 5 Psychological Indices in Patients After Multiple Shocks with Implantable Cardioverter Defibrillator (ICD) and Psychotherapy . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 85 Ludmila Peregrinova and Jochen Jordan 6 Sexual Function in Adults with Implantable Cardioverter-Defibrillators/Pacemaker Recipients . . . . . . . . . . . . . . . 101 Moshe Rav Acha and Tal Hasin 7 Critical Appraisal of Cardiac Implantable Electronic Devices: Complications and Management . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 113 Arjun D. Sharma 8 Psychological Effects of Device Recalls and Advisories in Patients with Implantable Cardioverter Defibrillators . . . . . . . . . . . . . . . . . . . 123 Bianca D’Antono, Teresa Kus, and Audrey Charneux vii viii Contents 9 ICD in Children and Youth . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 149 Abdullah Alabdulgader 10 Psycho-educational Support Interventions for Patients with an Implantable Cardioverter Defibrillator . . . . . . . . . . . . . . . . . 181 Giada Pietrabissa, Francesco Borgia, Gian Mauro Manzoni, Riccardo Proietti, Luca Alessandro Gondoni, Mariella Montano, Ferruccio Nibbio, Anna Maria Titon, Gian Andrea Bertone, and Gianluca Castelnuovo 11 eHealth and mHealth to Manage Distress in Patients with an Implantable Cardioverter- Defibrillator . . . . . . . . . . . . . . . . . 199 Gianluca Castelnuovo, Giada Pietrabissa, Gian Mauro Manzoni, Francesco Borgia, Gian Andrea Bertone, Mariella Montano, Ferruccio Nibbio, Anna Maria Titon, Luca Alessandro Gondoni, and Riccardo Proietti 12 Quality of Life of Patients Over 80 Years Old with Implantable Cardioverter-Defibrillators . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 209 Ahmed AlTurki, Riccardo Proietti, and Francesco Borgia 13 Importance of Counselling ICD Patients: The Role of Cardiac Physiologists . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 219 Parisha Khan 14 The Patient’s Informal Caregiver . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 231 Mitzi M. Saunders 15 Ethical Aspects of Withdrawing Cardiac Device Therapy at End of Life . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 243 Vilma Torres and William R. Lewis 16 Natural Kinds, Similarity, and Individual Cases: Ontological Presuppositions and Ethical Implications . . . . . . . . . . . . . . . . . . . . . . 261 Paolo Valore 17 Patient ICD Support Groups . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 271 Wendy Churchouse 18 Living with an Implantable Cardioverter Defibrillator: The Road to Resilience . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 279 Serena Santagostino, Giada Pietrabissa, Gianluca Castelnuovo, and Francesco Borgia Index . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 291 Contributors Abdullah Alabdulgader, MD, DCH (I), DCH (Edin.). Prince Sultan Cardiac Center, Al Hassa, Saudi Arabia Ahmed AlTurki, M.D. McGill University Health Center, Montreal, QC, Canada Gian Andrea Bertone Division of Cardiological Rehabilitation, Ospedale San Giuseppe, IRCCS Istituto Auxologico Italiano, Oggebbio (VCO), Italy Francesco Borgia Department of Psychology, Università Cattolica del Sacro Cuore, Milan, Italy Gianluca Castelnuovo Psychology Research Laboratory, Ospedale San Giuseppe, IRCCS Istituto Auxologico Italiano, Oggebbio (VCO), Italy Department of Psychology, Università Cattolica del Sacro Cuore, Milan, Italy Audrey Charneux, M.A. Research Center, Montreal Heart Institute, Montréal, QC, Canada Wendy Churchouse, BEM, MSc, RGN, Dip N, En(G). Cardiac Centre, Morriston Hospital, Swansea, UK Bianca D’Antono, Ph.D. Research Center, Montreal Heart Institute, Montréal, QC, Canada Department of Psychology, Université de Montréal, Montréal, QC, Canada Martin Eisenberger, M.D., Ph.D. Faculty of Health and Social Studies, University of South Bohemia in České Budějovice, České Budějovice, Czech Republic Mauro Feola, M.D., F.E.S.C. Cardiovascular Rehabilitation-Heart Failure Unit, Ospedale SS Trinità, Fossano, CN, Italy Luca Alessandro Gondoni Division of Cardiological Rehabilitation, Ospedale San Giuseppe, IRCCS Istituto Auxologico Italiano, Oggebbio (VCO), Italy ix x Contributors Tal Hasin, M.D. Department of Cardiology, Shaare Zedek Medical Center, Jerusalem, Israel Jochen Jordan Department of Psychocardiology, Kerckhoff Clinic, Bad Nauheim, Germany Alena Kajanová, Ph.D. Faculty of Health and Social Studies, University of South Bohemia in České Budějovice, České Budějovice, Czech Republic Teresa Kus, M.D., Ph.D. Cardiology Department, Hôpital du Sacré-Cœur de Montréal, Montréal, QC, Canada Pharmacology Department, Université de Montréal, Montréal, QC, Canada William R. Lewis, M.D. Department of Medicine, MetroHealth Campus of Case Western Reserve University, Cleveland, OH, USA Gian Mauro Manzoni Psychology Research Laboratory, Ospedale San Giuseppe, IRCCS Istituto Auxologico Italiano, Oggebbio (VCO), Italy Faculty of Psychology, eCampus University, Novedrate, Como, Italy Mariella Montano Department of Cardiology, Ospedale Castelli, Verbania, Italy Ferruccio Nibbio Division of Cardiological Rehabilitation, Ospedale San Giuseppe, IRCCS Istituto Auxologico Italiano, Oggebbio (VCO), Italy Ludmila Peregrinova Department of Psychocardiology, Kerckhoff Clinic, Bad Nauheim, Germany Giada Pietrabissa Psychology Research Laboratory, Ospedale San Giuseppe, IRCCS Istituto Auxologico Italiano, Oggebbio (VCO), Italy Department of Psychology, Università Cattolica del Sacro Cuore, Milan, Italy Riccardo Proietti Department of Cardiology, Ospedale Luigi Sacco, Milan, Italy McGill University Health Center, Montreal, QC, Canada Cardiac Center, Morriston Hospital, University of Swansea, Swansea, UK Moshe Rav Acha, M.D., Ph.D. Department of Cardiology, Shaare Zedek Medical Center, Jerusalem, Israel Zuzana Řimnáčová Faculty of Health and Social Studies, University of South Bohemia in České Budějovice, České Budějovice, Czech Republic Serena Santagostino Department of Psychology, Università Cattolica del Sacro Cuore, Milan, Italy Mitzi M. Saunders, R.N., Ph.D., A.C.N.S-.B.C. University of Detroit Mercy, Detroit, MI, USA Arjun D. Sharma, M.D., F.A.C.C. , St Paul, MN, USA
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