Prevention, Protection & Advocacy - NASUAD

84 Pages·2013·1.02 MB·English

Administration on Intellectual and
Developmental Disabilities

Prevention, Protection and
Advocacy
Administration for Community Living
U.S. Department of Health and Human Services
Jennifer Johnson
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AIDD Organizational Chart
Office of the
Commissioner
Sharon Lewis
Commissioner
Aaron Bishop
Deputy Commissioner
President’s Committee
Office of Program Office of
for People with
Support Innovation
Intellectual Disabilities
Jennifer Johnson Madjid “MJ” Karimi
Ophelia McLain
Director
Director Team Lead
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2013 Enacted DD Budget
[Enacted after Sequester and L/HHS Rescission]
[In millions]
• State Councils on Developmental Disabilities $ 70,555
• Protection and Advocacy $ 38,559
• Projects of National Significance $ 7,882
• University Centers on Excellence in Disabilities $ 36,602

• Subtotal, Developmental
Disabilities.......................................................... $153,598

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Key Definitions
Developmental Disability
• From the DD Act
• Has evolved over time through legislation
For example, raising the age of onset from 18 to 22; switching
o
from a list of specific conditions to a more generalized approach
focused on a functional definition
Intellectual Disability
• From the American Association on Intellectual and Developmental
Disabilities (AAIDD), the oldest and largest interdisciplinary
organization of professionals and citizens concerned about intellectual
and developmental disabilities that represents developmental disability
professionals worldwide
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Developmental Disability (DD Act)
• A severe, chronic disability of an individual that:
– Is attributable to a mental or physical impairment or combination
of mental and physical impairments
– Is manifested before the individual attains age 22
– Is likely to continue indefinitely
– Results in substantial functional limitations in 3 or more of the
following areas of major life activity: self-care, receptive and
expressive language, learning, mobility, self-direction, capacity for
independent living, and economic self-sufficiency
– Reflects the individual's need for a combination and sequence of
special, interdisciplinary, or generic services, individualized
supports, or other forms of assistance that are of lifelong or
extended duration and are individually planned and coordinated
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Intellectual Disability
Intellectual disability is a disability characterized by
significant limitations both in intellectual functioning
and in adaptive behavior, which covers many
everyday social and practical skills. This disability
originates before the age of 18.
“Intellectual functioning” refers to general mental
capacity, such as learning, reasoning, problem
solving, and so on.

American Association on Intellectual and Developmental Disabilities, 2012
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The DD Act
Purpose:
• To assure that individuals with developmental
disabilities and their families participate in the
design of and have access to needed community
services, individualized supports, and other forms
of assistance that promote self-determination,
independence, productivity, and integration and
inclusion in all facets of community life
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Principles of the DD Act
• Independence: To have control
• Productivity: To work or make other contributions to a
household and community
• Integration: Right to the same opportunities, services,
community resources as all other Americans
• Inclusion: Acceptance and encouragement of
presence and participation in social, educational,
work and community environments.
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Disability Rights
• Full Participation
– Legally protected civil rights, independence and
control over one’s own life
• Integration, inclusion
• Prohibiting discrimination on the basis of disability
• Eliminating barriers imposed unnecessarily by society based
on negative attitudes and misdirected practices
• Self-Advocacy
• Evolution of terminology
– People First language

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Community Integration
“Most integrated setting”
• DD Act
– Integration and inclusion in all facets of community life

• Americans with Disabilities Act
– End isolation and segregation of individuals with disabilities

• Olmstead Decision
– "institutional placement of persons who can handle and benefit from
community settings perpetuates unwarranted assumptions that
persons so isolated are incapable of or unworthy of participating in
community life."
– "confinement in an institution severely diminishes the everyday life
activities of individuals, including family relations, social contacts,
work options, economic independence, educational advancement,
and cultural enrichment."

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