Person-centred communication with people with dementia living in nursing homes Petra Boersma

232 Pages·2017·4.24 MB·English

Uitnodiging
Voor het bijwonen van de
openbare verdediging van het
Department of psychiatry
proefschrift:
Person-centred
communication with
people with dementia
living in nursing homes
A study into
implementation
success
and influencing factors
door
Petra Boersma
Op vrijdag 13 oktober 2017
om 13.45 uur
Person-centred communication with people
In de aula van de
with dementia living in nursing homes Vrije Universiteit
De Boelelaan 1105
Amsterdam
A study into implementation success and infuencing factors
Feestelijke borrel
na afoop in The Basket
Paranimfen
Bertie Boersma
VRIJE UNIVERSITEIT
Person-centred communication
with people with dementia living in nursing homes;
a study into implementation success and infuencing factors
ACADEMISCH PROEFSCHRIFT
ter verkrijging van de graad Doctor aan
de Vrije Universiteit Amsterdam,
op gezag van de rector magnifcus
prof.dr. V. Subramaniam,
in het openbaar te verdedigen
ten overstaan van de promotiecommissie
van de Faculteit der Geneeskunde
op vrijdag 13 oktober 2017 om 13.45 uur
in de aula van de universiteit,
De Boelelaan 1105.
door
Petra Boersma
geboren te Allingawier
promotoren: prof.dr. R. M. Dröes
prof.dr. J. C. M. van Weert
copromotor: prof.dr. B. van Meijel
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Thesis committee: prof.dr. A. L. Francke (Chair)
prof.dr. M. J. F. J. Vernooij-Dassen
prof.dr. W. P. Achterberg
prof.dr. B. Onwuteaka-Philipsen
dr. E. J. Finnema
dr. R. Gobbens
3
For reasons of consistency within this thesis, some terms and defnitions have been
standardised throughout the text. Therefore, the text in chapter two, three, four, fve and six
may differ in this respect from the published articles.

The studies presented in this thesis were conducted at the Department of Psychiatry
and within the EMGO Institute for Health and Care Research (EMGO+, www.emgo.nl) and
Amsterdam Public Health research institute of VU University Medical Center, Amsterdam,
The Netherlands.
The studies were performed with fnancial support of Inholland University of Applied
Sciences, Department of Psychiatry VUmc and department of Communication Science of
the Faculty of Social and Behavioural Sciences, UvA, Foundation Vita Valley, Foundation of
Support VCVGZ, Health Insurance agency VGZ. The implementation of the Veder Contact
Method by Foundation Theatre Veder is funded by grants from Fonds NutsOhra.
The printing of this thesis has been kindly supported by Inholland University of Applied
Sciences, Research Group Mental Health Nursing, the VU University Medical Center,
Department of Psychiatry, Alzheimer Nederland, Foundation Theatre Veder and my parents.
Nederlandse titel: Persoons-gerichte communicatie met mensen met dementie woonachtig
in verpleeghuizen; een onderzoek naar implementatie succes en beïnvloedende factoren
Cover design & photos: Fred van Mourik (www.animation.nl)
Lay-out: Pepiro Studio (www.pepiro.com)
Printed by: Gildeprint
ISBN: 978-94-6233-725-1
© 2017 by Petra Boersma, Amsterdam, The Netherlands
All rights reserved. No part of this thesis may be reproduced or transmitted in any form
or by any means, electronic or mechanical, in photocopying, or any information storage of
retrieval system, without prior written permission from the author, or when appropriate, the
publishers of the papers.
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Contents
Chapter 1 Introduction 7
The art of successful implementation of psychosocial interventions
Chapter 2 in residential dementia care: a systematic review of the literature 19
based on the RE-AIM framework
Study protocol: Implementation of the Veder Contact Method (VCM)
Chapter 3 in daily nursing home care for people with dementia: an evaluation 45
based on the RE-AIM framework
Implementation of the Veder Contact Method in daily nursing home
Chapter 4 care for people with dementia: a process analysis according to the 67
RE-AIM framework
Testing the implementation of the Veder Contact Method, a theatre-
Chapter 5 101
based communication method in dementia care
Does working with the Veder Contact Method infuence the job
Chapter 6 satisfaction of caregivers? A nonrandomized controlled trial in 129
nursing homes for people with dementia
Chapter 7 General discussion 157
Appendix 177
Summary 197
Samenvatting (Summary in Dutch) 203
Gearfetting (Summary in Frisian) 209
Dankwoord 215
About the author 221
List of publications 223
Dissertation series 225
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Chapter 1
General Introduction
“All real living is meeting.” Martin Buber (1958)
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CHAPTER 1
Dementia (major neurocognitive disorder)
In the 5th edition of the Diagnostic Manual of Mental Disorders (DSM) (2013) ‘dementia’
has been described as a ‘major neurocognitive disorder (NCD)’ with different etiological
subtypes, such as Alzheimer’s disease, vascular NCD, NCD with Lewy-Body dementia, NCD
due to Parkinson’s disease and frontotemporal NCD.
According to DSM-5, a major NCD is present when:
1. S ignifcant cognitive decline from a previous level of performance in one or more cognitive
domains (complex attention, executive function, learning and memory, language,
perceptual-motor, or social cognition) is visible, based on:
• C oncern of the individual, a knowledgeable informant, or the clinician that there has been
a signifcant decline in cognitive function; and
• A substantial impairment in cognitive performance, as a result from standardized
neuropsychological testing or another quantifed clinical assessment.
2. T he cognitive defcits interfere with independence in occupational or daily functioning.
3. T he cognitive defcits do not occur exclusively in the context of a delirium.
4. T he cognitive defcits are not explained by another mental disorder (e.g. depression,
schizophrenia).
Although we realise that the overall term dementia syndrome as a diagnostic category
may disappear in the nearby future, in this thesis, we decided to continue to use the term
dementia, as it is still generally the term used in clinical practice and dementia care research.
Prevalence of Dementia
The World Alzheimer Report (2015) shows that 46.8 million people worldwide are living with
dementia, and this number will almost double every 20 years, to 75.6 million in 2030 and
135.5 million people in 2050 (Prince et al., 2015). In the Netherlands, in 2017, there are around
270.000 people with dementia. Old age is the most important risk factor for the development
of dementia, and with the increased life expectancy of the world population, longevity is
the main cause for the growing prevalence of dementia. The second factor affecting the
prevalence of dementia is the improvement of healthcare, contributing to the higher life
expectancy for persons with one or more chronic conditions, including dementia. A third
factor, with a protective effect on the incidence of dementia, is a healthy lifestyle pursued
by a growing number of people (www.Alzheimernederland.nl). Of the 270.000 people with
dementia in the Netherlands, an estimated 50,000 live in long-term care settings, such as
care homes and nursing homes (www.volksgezondheidenzorg.info/onderwerp/dementie/
cijfers-context/incidentie-en-prevalentie#node-aantal-mensen-met-dementie). This thesis
focuses on people with dementia living in a nursing home and the communication with their
professional caregivers.
Needs of people with dementia
Personal and meaningful contact with other human beings is an essential need of each
person, and this also applies to people with dementia (Dröes et al., 2006; Hancock et al.,
2006). Other needs reported are, pleasant daytime activities, company, adequate support
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