Partnership and Pragmatism Partnership and Pragmatism: Germany’s response to AIDS prevention and care provides a comprehensive overview of the most important themes in German HIV/AIDS prevention and care from the beginning of the epidemic to the present. Multidisciplinary in approach, this book highlights the unique contribu- tions of Germany to AIDS work, making available for the first time knowledge which can be applied to other countries as well as to other fields of public health practice. The innovative contributions included in this volume describe: • structural prevention, a concept which unites political and behavioural change (cid:127) the synchronistic relationship between AIDS policy and gay politics (cid:127) the dominance of love and intimacy over other ‘risk factors’ (cid:127) an approach to prevention among drug users which emphasizes human rights and accepts the using behaviour (cid:127) a unique partnership between public authorities and the voluntary sector (cid:127) services for women working in cross-national border prostitution (cid:127) an AIDS survivor syndrome among gay men (cid:127) HIV in the context of emotional risks taken by women in relationships. In addition, specifically German themes are described in detail, including the special needs of gay men from the former East Germany, the difficulties of providing adequate outpatient care for people with HIV/AIDS and the history of the AIDS prevention debate in Germany. Offering medical, nursing, public health, sociological, psychological and social work perspectives on the German response to AIDS, this book provides a valuable source of reference for researchers, teachers and professionals working in AIDS prevention and care. Rolf Rosenbrock is Professor of Public Health Policy at the Technical University of Berlin and Head of the Research Unit ‘Public Health’ at the Social Science Research Centre, Berlin. Michael T. Wrighthas been involved in HIV prevention since 1984 in the US and Germany and recently published New International Directions in HIV Prevention for Gay and Bisexual Menwith B. R. Simon Rosser and Onno de Zwart. Social aspects of AIDS Series editor: Peter Aggleton Institute of Education, University of London Editorial Advisory Board: Dominic Abrams, University of Kent at Canterbury, UK Dennis Altman, La Trobe University, Australia Maxine Ankrah, Makerere University, Uganda Mildred Blaxter, University of East Anglia, UK Manuel Carballo, Geneva, Switzerland Judith Cohen, University of California, San Francisco, USA Anthony Coxon, University of Essex, UK Peter Davies, London, UK Gary Dowsett, La Trobe University, Australia Jan Grover, St Paul, Minnesota, USA Graham Hart, MRC Social and Public Health Sciences Unit, Glasgow, UK Mukesh Kapila, Department of International Development, UK Hans Moerkerk, Ministry of Foreign Affairs, The Hague, Netherlands Cindy Patton, Temple University, USA Diane Richardson, University of Newcastle, UK Werasit Sittirai, UNAIDS, Geneva, Switzerland Ron Stall, University of California, San Francisco, USA Robert Tielman, Utrecht, Netherlands Simon Watney, London, UK Jeffrey Weeks, South Bank University, UK AIDS is not simply a concern for scientists, doctors and medical researchers, it has important social dimensions as well. These include individual, cultural and media responses to the epidemic, stigmatisation and discrimination, counselling, care and health promotion. This series of books brings together work from many disciplines including psychology, sociology, cultural and media studies, anthro- pology, education and history. The titles will be of interest to the general reader, those involved in education and social research, and scientific researchers who want to examine the social aspects of AIDS. Recent titles include: Imagine Hope Simon Watney AIDS in Europe New challenges for the social sciences Edited by Jean-Paul Moatti, Yves Souteyrand, Annick Prieur, Theo Sandfort and Peter Aggleton Social aspects of AIDS iii Dying to Care? Work, stress and burnout in HIV/AIDS David Miller Mental Health and HIV Infection Edited by José Catálan The Dutch Response to HIV Pragmatism and consensus Edited by Theo Sandfort Families and Communities Responding to AIDS Edited by Peter Aggleton, Graham Hart and Peter Davies Men Who Sell Sex International perspectives on male prostitution and AIDS Edited by Peter Aggleton Sexual Behaviour and HIV/AIDS in Europe Comparisons of national surveys Edited by Michel Hubert, Nathalie Bajos and Theo Sandfort Drug Injecting and HIV Infection Global dimensions and local responses Edited by Gerry Stimson, Don C. Des Jarlais and Andrew Ball AIDS as a Gender Issue Edited by Lorraine Sherr, Catherine Hankins and Lydia Bennett AIDS Activism and alliances Edited by Peter Aggleton, Peter Davies and Graham Hart Sexual Interactions and HIV Risk New conceptual perspectives in European research Edited by Luc van Campenhoudt, Mitchell Cohen, Gustavo Guizzardi and Dominique Hausser Bisexualities and AIDS International perspectives Edited by Peter Aggleton Crossing Borders Migration, ethnicities and AIDS Edited by Mary Haour-Knipe iv Social aspects of AIDS Last Served? Gendering the HIV pandemic Cindy Patton Moral Threats and Dangerous Desires AIDS in the news media Deborah Lupton Power and Community Organizational and cultural responses to AIDS Dennis Altman Partnership and Pragmatism Germany’s response to AIDS prevention and care Edited by Rolf Rosenbrock and Michael T. Wright London and New York First published 2000 by Routledge 11 New Fetter Lane, London EC4P 4EE Simultaneously published in the USA and Canada by Routledge 29 West 35th Street, New York, NY 10001 Routledge is an imprint of the Taylor & Francis Group This edition published in the Taylor & Francis e-Library, 2001. © 2000 selection and editorial matter, Rolf Rosenbrock and Michael T. Wright; individual chapters, the contributors. All rights reserved. No part of this book may be reprinted or reproduced or utilised in any form or by any electronic, mechanical, or other means, now known or hereafter invented, including photocopying and recording, or in any information storage or retrieval system, without permission in writing from the publishers. British Library Cataloguing in Publication Data A catalogue record for this book is available from the British Library. Library of Congress Cataloging in Publication Data Partnership and Pragmatism: Germany’s response to AIDS prevention and care/[edited by] Rolf Rosenbrock and Michael T. Wright 272 pp. 15.6 x 23.4 cm Includes bibliographical references and index 1. AIDS (Disease) – Germany. I. Rosenbrock, Rolf. II. Wright, Michael T. RA644.A25 P3724 2000 362.1’969792’00943—dc 21 00-031133 ISBN 0-203-47048-6 Master e-book ISBN ISBN 0-203-77872-3 (Adobe eReader Format) ISBN 0-415-24106-5 (pbk) ISBN 0-415-24105-7 (hbk) Contents List of figures x List of tables xi List of contributors xiii Acknowledgement xvii PART I Introduction 1 1 Pragmatism and partnership: an overview of this volume 3 ROLF ROSENBROCK AND MICHAEL T. WRIGHT 2 AIDS in a German context: a primer 7 MICHAEL T. WRIGHT PART II History, policy, and epidemiology 13 3 The epidemiology of HIV and AIDS in Germany 15 ULRICH MARCUS 4 From hysteria to banality: an overview of the political response to AIDS in Germany 35 GÜNTER FRANKENBERG AND ALEXANDER HANEBECK 5 The role of the German Federal Government in fighting the epidemic 48 DORLE MIESALA-EDEL AND MARTINA SCHÖPS-POTTHOFF viii Contents 6 AIDS prevention campaigns for the general public: the work of the Federal Centre for Health Education 61 ELISABETH POTT 7 Structural prevention: the basis for a critical approach to health promotion 73 STEFAN ETGETON 8 The German AIDS self-help movement: the history and ongoing role of AIDS-Hilfe 82 RAINER SCHILLING PART III Risk perception and decision making in safer sex 91 9 Reactions of the general population to AIDS: the relationship between sociodemographic variables and lay concepts of disease aetiology 93 RÜDIGER JACOB, WILLY H. EIRMBTER AND ALOIS HAHN 10 AIDS prevention as a social systems intervention: risk taking in the context of different types of heterosexual partnerships 106 HEINRICH W. AHLEMEYER 11 The ‘risk factor love’ 119 MARTIN DANNECKER PART IV Responding to specific target groups 127 12 The response of gay German men to HIV: the national gay press surveys 1987–96 129 MICHAEL BOCHOW 13 Western-style prevention for eastern gay men? AIDS prevention in the former East Germany 143 RAINER HERRN Contents ix 14 The accepting approach to working with drug users in Germany: an overview of principles, goals and methods 160 GUNDULA BARSCH 15 The meaning of HIV prevention in the context of heterosexual relationships: what are women protecting themselves from? 171 CORNELIA HELFFERICH 16 The Umbrella Network: AIDS, STD prevention, and prostitution on the eastern border of Germany 182 ELFRIEDE STEFFAN AND MICHAEL F. KRAUS 17 Innovation versus normalisation: the reaction of Germany’s home care system to HIV and AIDS 193 DORIS SCHAEFFER 18 Defining the AIDS Survivor Syndrome and testing for symptoms in an exploratory study of gay German men 207 MICHAEL T. WRIGHT 19 AIDS policy, health policy, and gay politics 216 ROLF ROSENBROCK PART V The future of AIDS policy and practice 229 20 The normalisation of AIDS in Germany 231 ROLF ROSENBROCK, DORIS SCHAEFFER AND MARTIN MOERS Index 249
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