Participatory healthcare: a person-centered approach to healthcare transformation PDF
Preview Participatory healthcare: a person-centered approach to healthcare transformation
Participatory Healthcare A Person-Centered Approach to Healthcare Transformation Participatory Healthcare A Person-Centered Approach to Healthcare Transformation Editor, Jan Oldenburg Associate Editor, Mary P. Griskewicz Foreword by Dr. Paul Kleeberg • Afterword by Dr. Danny Sands CRC Press Taylor & Francis Group 6000 Broken Sound Parkway NW, Suite 300 Boca Raton, FL 33487-2742 © 2017 by HIMSS CRC Press is an imprint of Taylor & Francis Group, an Informa business No claim to original U.S. Government works Printed on acid-free paper Version Date: 20160426 International Standard Book Number-13: 978-1-49876962-4 (Paperback) This book contains information obtained from authentic and highly regarded sources. Reasonable efforts have been made to publish reliable data and information, but the author and publisher cannot assume responsibility for the validity of all materials or the consequences of their use. The authors and publishers have attempted to trace the copyright holders of all material reproduced in this publication and apologize to copyright holders if permission to publish in this form has not been obtained. If any copyright material has not been acknowledged please write and let us know so we may rectify in any future reprint. Except as permitted under U.S. Copyright Law, no part of this book may be reprinted, reproduced, transmitted, or utilized in any form by any electronic, mechanical, or other means, now known or hereafter invented, including photocopying, microfilming, and recording, or in any information storage or retrieval system, without written permission from the publishers. For permission to photocopy or use material electronically from this work, please access www.copyright.com (http://www.copyright.com/) or contact the Copyright Clearance Center, Inc. (CCC), 222 Rosewood Drive, Danvers, MA 01923, 978-750-8400. CCC is a not-for-profit organization that provides licenses and registration for a variety of users. For organizations that have been granted a photocopy license by the CCC, a separate system of payment has been arranged. Trademark Notice: Product or corporate names may be trademarks or registered trademarks, and are used only for identification and explanation without intent to infringe. Library of Congress Cataloging-in-Publication Data Names: Oldenburg, Jan, editor. | Griskewicz, Mary P., editor. Title: Participatory healthcare : a person-centered approach to healthcare transformation / editor, Jan Oldenburg and associate editor, Mary P. Griskewicz Description: Boca Raton : Taylor & Francis, 2016. | Includes bibliographical references and index. Identifiers: LCCN 2016003446 | ISBN 9781498769624 (hardcover : alk. paper) Subjects: | MESH: Patient Participation | Delivery of Health Care--methods | Professional-Patient Relations | Medical Informatics | Anecdotes Classification: LCC R727.3 | NLM W 85 | DDC 610.69/6--dc23 LC record available at https://lccn.loc.gov/2016003446 Visit the Taylor & Francis Web site at http://www.taylorandfrancis.com and the CRC Press Web site at http://www.crcpress.com Contents Foreword Preface Editors Contributors SECTION I ESSAYS FROM THE FIELD: HEALTHCARE REIMAGINED FROM THE PATIENT AND CAREGIVER PERSPECTIVE 1 Introduction JAN OLDENBURG, FHIMSS Participatory Medicine Online Tools Human Connection The Chapters and Authors Conclusion Notes 2 The New DIY Health Consumer JANE SARASOHN-KAHN, MA, MHSA* Introduction DIY Comes to Healthcare Health Costs Drive Health Engagement Two High Healthcare Costs Getting More Transparent: Prescription Drugs and High Deductibles Health Consumers Need Accessible and Reliable On-Ramps to Trusted Information Providers Begin to Embrace Consumers’ DIY Health Growing Need for Help with Personal Health Financial Management The Home Is the Ultimate Hub for Health Conclusion Impact Notes 3 The Science and Practice of Health Behavior Change: A Consumer- Centric, Technology-Supported Approach CATHERINE D. SERIO, MS, PhD, AND SUSAN W. BUTTERWORTH, MS, PhD Introduction Our Patients—Our Partners Misalignment Manifested Behavior Change Drivers The First Conversation Conversations That Move Us Health Coaching Motivational Interviewing (MI) Tailoring for Success Behavior Change Enabling Technology Designing for Behavior Change Wearable Devices Web-Based Interventions Big Data, Precise Tailoring Conclusion: If We Build It, Change Will Come Impact Notes 4 High-Tech and High-Touch Primary and Chronic Care JAN OLDENBURG, FHIMSS Introduction Do I Need Care? And If I Do, What Kind of Care Do I Need? Finding a Trusted Partner Getting an Appointment Consolidating Records In-Person Visits End-of-Life Care Staying Connected outside the Clinic Conclusion Impact Notes 5 Acute Care and Hospitalizations JAN OLDENBURG, FHIMSS Introduction Confusion, Fear, Anxiety Factors Contributing to Anxiety How Long Will I Have to Wait? “Wayfinding” Education before a Planned Procedure What Is Happening? Communication in the Hospital Who Is on My Care Team? What Are the Treatment Plans? Inpatient Access to a Patient Portal Making OpenNotes Available Inpatient Education Designing a Quieter, Kinder Experience How Can I Keep My Extended Family and Community Informed? Discharge and Discharge Planning Who Do I Pay and How Much? Conclusions Impact Notes 6 Achieving Whole Health MARY P. GRISKEWICZ, MS, FHIMSS Introduction What Is Alternative and Complementary Medicine? Whole Health Landscape and Key Components Physical Health and Wellness Employers’ Role Environmental Health Spiritual Health Social and Behavioral Health Financial Health Conclusion Impact Notes 7 Family Caregivers, Health Information Technology, and Culture Change MARYANNE STERLING, CEA Introduction Background Challenges Facing the Family Caregiver Today The Caregiving Information Cycle Family Caregiver Information Needs Family Caregiver Technology Needs Reality Check. We Have Technology Now What? Technology Available Now How Do We Move Forward? Culture Change: The Path Forward Key Recommendations Identify the Family Caregiver in the Medical Record Include Family Caregivers in the Conversations and Treat Them as Key Members of the Patient’s Care Team Redefine Care Coordination and Break Down the Silos of Healthcare, Social Services, and Community Supports Help Change Attitudes Technology Needs a Little Help Conclusion Impact Acknowledgments Notes 8 Programs That Work to Promote Partnership and Engagement JOHN SHARP, MA, MSSA, PMP, FHIMSS Introduction Convenience Access to Your Own Clinical Data Implementation and Engagement Strategies That Work Engagement through the Use of Mobile Devices and Apps Patient-Generated Health Data (PGHD) and Wearables Communication with Providers through Secure Messaging, Texting, and Social Media Communication with Other Patients through Online Communities and Social Media Engagement in Patient Safety and Prevention
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