P1:SFK/XXX P2:SFK BLBK147-Stevens February12,2009 6:59 Palliative Nursing Across the Spectrum of Care Edited by Elaine Stevens Susan Jackson Stuart Milligan A John Wiley & Sons, Ltd., Publication iii P1:SFK/XXX P2:SFK BLBK147-Stevens February12,2009 6:59 Palliative Nursing i P1:SFK/XXX P2:SFK BLBK147-Stevens February12,2009 6:59 ii P1:SFK/XXX P2:SFK BLBK147-Stevens February12,2009 6:59 Palliative Nursing Across the Spectrum of Care Edited by Elaine Stevens Susan Jackson Stuart Milligan A John Wiley & Sons, Ltd., Publication iii P1:SFK/XXX P2:SFK BLBK147-Stevens February12,2009 6:59 Thiseditionfirstpublished2009 (cid:1)C 2009byBlackwellPublishingLtd BlackwellPublishingwasacquiredbyJohnWiley&SonsinFebruary2007.Blackwell’spublishing programmehasbeenmergedwithWiley’sglobalScientific,Technical,andMedicalbusinessto formWiley-Blackwell. 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Designationsusedbycompaniestodistinguishtheirproductsareoftenclaimedastrademarks.All brandnamesandproductnamesusedinthisbookaretradenames,servicemarks,trademarksor registeredtrademarksoftheirrespectiveowners.Thepublisherisnotassociatedwithanyproduct orvendormentionedinthisbook.Thispublicationisdesignedtoprovideaccurateand authoritativeinformationinregardtothesubjectmattercovered.Itissoldontheunderstanding thatthepublisherisnotengagedinrenderingprofessionalservices.Ifprofessionaladviceorother expertassistanceisrequired,theservicesofacompetentprofessionalshouldbesought. LibraryofCongressCataloging-in-PublicationData Palliativenursing:acrossthespectrumofcare/editedbyElaineStevens,SusanJackson, StuartMilligan. p.;cm. Includesbibliographicalreferencesandindex. ISBN978-1-4051-6997-4(pbk.:alk.paper) 1.Palliativetreatment. 2.Terminalcare. 3.Nursing. I.Stevens,ElaineM.,1960- II.Jackson,Susan. III.Milligan,Stuart. [DNLM:1.NursingCare–methods. 2.PalliativeCare–methods. 3.NursingCare–trends. WY152P16742009] RT87.T45P41 2009 616’.029–dc22 2008039844 AcataloguerecordforthisbookisavailablefromtheBritishLibrary. Setin10/12.5ptPalatinobyAptara(cid:1)R Inc.,NewDelhi,India PrintedinMalaysia 1 2009 iv P1:SFK/XXX P2:SFK BLBK147-Stevens February12,2009 6:59 Contents Contributors viii Foreword xiv Introduction xvii PARTONE ADULTPALLIATIVECARE SectionOne HistoryandEthosofPalliativeCare 1 Thehistoryofpalliativecare 5 StuartMilliganandShirleyPotts 2 Definitionsandaimsofpalliativecare 17 ElaineStevens 3 Providingpalliativecareformarginalisedand disenfranchisedpeople 35 JohnAtkinson SectionTwo PalliativeNursingAcrossCareSettings 4 Palliativenursingcareintheacutehospital 53 PhilipSaltmarsh 5 Palliativenursingcareinthecommunity 72 WendyWesson 6 Palliativenursingcareinnursing andresidentialcarehomes 86 CarolKomaromy 7 Palliativenursingcareinhospices 99 HelendeRenzie-BrettandDeniseHeals v P1:SFK/XXX P2:SFK BLBK147-Stevens February12,2009 6:59 vi Contents SectionThree PalliativeNursingCareforPeoplewithSpecificIllnesses 8 Palliativenursingcareinheartfailure 115 MargaretKendall 9 Palliativecareinchronicobstructivepulmonarydisease 125 SarahRussellandVikkiKnowles 10 Palliativecareforpeoplewhohavedementia 142 StephenD.M.Smith 11 Palliativenursingcareinotherneurologicalconditions 156 Huntington’sdisease 156 AnneThomson Motorneuronedisease 164 CaroleFerguson Multiplesclerosis 175 RichardWarner Parkinson’sdisease 181 GeorgeKernohan,FelicityHassonandDorothyHardyway 12 Palliativecareforpeoplewithendstagerenaldisease 204 HelenNoble 13 Palliativecareissuesforpeoplewithcancer 220 SusanJackson 14 Palliativenursingcareforpeoplewithhumanimmunodeficiency virus(HIV)andacquiredimmunodeficiencysyndrome(AIDS) 241 MayMcCreaddie PARTTWO PALLIATIVECAREFORCHILDREN ANDYOUNGPEOPLE 15 Thehistoryandethosofpalliativecareforchildrenand youngpeople 257 ShirleyPotts 16 Challengesofprovidingpaediatricpalliativecareinthehospital setting 269 JaneBelmore 17 Children’spalliativecareinthehospiceandthecommunity 277 Elizabeth-Anne(Libby)Gold PARTTHREE EDUCATIONANDRESEARCH 18 Palliativenursingeducationandcontinuingprofessional development 291 ElaineStevens P1:SFK/XXX P2:SFK BLBK147-Stevens February12,2009 6:59 Contents vii 19 Palliativecareresearch 312 StuartMilligan Index 325
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