Palliative Care Within Mental Health: Care and Practice PDF
Preview Palliative Care Within Mental Health: Care and Practice
Palliative Care within Mental Health CARE AND PRACTICE Edited by DAVID B COOPER Sigma Th eta Tau International: Th e Honor Society of Nursing Award Nursing Council on Alcohol: Outstanding Contribution to Nursing Award Editor- in- Chief, Mental Health and Substance Use Author/Writer/Editor and JO COOPER Macmillan Clinical Nurse Specialist in Palliative Care (Retired) Award in Specialist Practice Author/Editor Boca Raton London New York CRC Press is an imprint of the Taylor & Francis Group, an informa business First published 2014 by Radcliffe Publishing Published 2016 by CRC Press Taylor & Francis Group 6000 Broken Sound Parkway NW, Suite 300 Boca Raton, FL 33487-2742 © 2014 David B Cooper and Jo Cooper CRC Press is an imprint of Taylor & Francis Group, an Informa business No claim to original U.S. Government works ISBN 13: 978-1-84619-891-5 (pbk) David B Cooper and Jo Cooper have asserted their right under the Copyright, Designs and Patents Act 1988 to be identified as the author of this work. Every effort has been made to ensure that the information in this book is accurate. This does not diminish the requirement to exercise clinical judgement, and neither the publisher nor the authors can accept any responsibility for its use in practice. This book contains information obtained from authentic and highly regarded sources. While all reasonable efforts have been made to publish reliable data and information, neither the author[s] nor the publisher can accept any legal responsibility or liability for any errors or omissions that may be made. The publishers wish to make clear that any views or opinions expressed in this book by individual editors, authors or contributors are personal to them and do not necessarily reflect the views/opinions of the publishers. The information or guidance contained in this book is intended for use by medical, scientific or health-care professionals and is provided strictly as a supplement to the medical or other professional’s own judgement, their knowledge of the patient’s medical history, relevant manufacturer’s instructions and the appropriate best practice guidelines. Because of the rapid advances in medical science, any information or advice on dosages, procedures or diagnoses should be independently verified. The reader is strongly urged to consult the relevant national drug formulary and the drug companies’ and device or material manufacturers’ printed instructions, and their websites, before administering or utilizing any of the drugs, devices or materials mentioned in this book. This book does not indicate whether a particular treatment is appropriate or suitable for a particular individual. Ultimately it is the sole responsibility of the medical professional to make his or her own professional judgements, so as to advise and treat patients appropriately. The authors and publishers have also attempted to trace the copyright holders of all material reproduced in this publication and apologize to copyright holders if permission to publish in this form has not been obtained. If any copyright material has not been acknowledged please write and let us know so we may rectify in any future reprint. Except as permitted under U.S. Copyright Law, no part of this book may be reprinted, reproduced, transmitted, or utilized in any form by any electronic, mechanical, or other means, now known or hereafter invented, including photocopying, microfilming, and recording, or in any information storage or retrieval system, without written permission from the publishers. Trademark Notice: Product or corporate names may be trademarks or registered trademarks, and are used only for identification and explanation without intent to infringe. Visit the Taylor & Francis Web site at http://www.taylorandfrancis.com and the CRC Press Web site at http://www.crcpress.com British Library Cataloguing in Publication Data A catalogue record for this book is available from the British Library. Typeset by Darkriver Design, Auckland, New Zealand Manufacturing managed by 21six Contents Preface v About the editors vii List of contributors viii Terminology xv Cautionary note xvii Other books by the editors xviii Acknowledgements xix Dedication xx 1 Palliative care within mental health: the need 1 Jo Cooper, David B Cooper 2 Compassion, respect and dignity 11 David B Cooper 3 Overcoming ethical dilemmas 19 Cynthia MA Geppert 4 Overcoming cultural dilemmas 30 Geraldine S Pearson 5 The family 47 Robin Davidson, Tracy Anderson 6 End-o f- life 62 Jo Cooper 7 Assessment 76 John R Ashcroft 8 Pain management 99 Peter Athanasos, Trevor W Mitten, Rose Neild, Charlotte de Crespigny, Lynette Cusack 9 The young person and suicide 135 Philip James iv CONTENTS 10 Long- term mental health 149 Alyna Turner, Stephanie Oak, Brian Kelly, Amanda L Baker 11 Dementia, Alzheimer’s and confusion 169 Joyce Simard 12 Creutzfeldt–Jakob disease and palliative care 187 Kay de Vries 13 Euthanasia, assisted suicide and mental health 202 David Jeffrey 14 Palliative care and substance use: special considerations 220 Rose Neild, Peter Athanasos 15 The heart of care and caring 231 David B Cooper, Jo Cooper Index 246 Preface Th e book is not just about caring for the dying within mental health but about apply- ing the quality care and practice of palliative care within mental health practice. Th e book focuses on intervention, treatment, care and practice and the similarities in practice between palliative care and mental health. Th e common ground is an excellent foundation in care and practice for integrating palliative care, now recognised as best- practice end- of- life care, into mental health care, practice and service delivery. In short, the shared practice values and vision between these two disciplines provide for a starting point for integrated interven- tion, treatment, care and practice using best practices from palliative care and mental health. Th e book came into being when we (the editors) were talking and the discussion led on to the need for more information and direction when it comes to human- ness and the issue of palliative care within mental health practice. Whilst it could be assumed that mental health has a lot to off er palliative care, we both felt that palliative care could off er more to mental health practice in that it is a neglected area. Th ere is little or no literature related to palliative care within mental health practice, and that which does exist relates to care of the dying in terms of cancer. What struck us was that several chapters covered within the Mental Health– Substance Use series of books (see Other books by the editors, p. xviii) could equally apply to palliative care within mental health care and practice. In the time it took us to drink our coff ee we had developed a contents list! As the title Palliative Care within Mental Health: care and practice suggests, the whole approach would be on the human aspects of care and practice. Is there a place for palliative care within mental health? At the mention of palliative care, there is a general assumption that: 1 the person has a cancer diagnosis and 2 the person is dying. However, this is not the true meaning of palliation. A simple understanding might be that if one has ill- health that is serious and enduring (even with periods of respite) then that person needs careful and continuous symptom management together with skilled emotional support so that she or he can achieve the best quality of life with managed symptom control as eff ectively as possible – that is palliative care. v vi PREFACE We have combined our diff erent skills (Jo – palliative care; David – mental health) to edit this book and a highly qualifi ed team were invited to contribute. We hope we have edited a thought-p rovoking and informative text on palliative care within mental health care and practice. David B Cooper and Jo Cooper June 2014 About the editors David B Cooper Sigma Th eta Tau International: Honor Society of Nursing Award Nursing Council on Alcohol: Outstanding Contribution to Nursing Award Editor- in- Chief: Mental Health and Substance Use Author/Writer/Editor Horsham, West Sussex, England David has specialised in mental health and substance use for over 34 years. He has worked as a practitioner, manager, researcher, author, lecturer and consultant. He has served as editor, or editor-i n-c hief, of several journals, and is currently editor-i n- chief of Mental Health and Substance Use. He has published widely and is ‘credited with enhancing the understanding and development of community detoxifi cation for people experiencing alcohol withdrawal’ (Nursing Council on Alcohol; Sigma Th eta Tau International citations). Seminal work includes Alcohol Home Detoxifi cation and Assessment and Alcohol Use, both published by Radcliff e Publishing, Oxford. David (2011) edited a series of six textbooks with the series title of Mental Health–Substance Use. Jo Cooper Macmillan Clinical Nurse Specialist in Palliative Care (retired) Author/Editor Horsham, West Sussex, England Jo spent 16 years in specialist palliative care, initially working in a hospice inpa- tient unit, then 12 years as a Macmillan Clinical Nurse Specialist in Palliative Care. She gained a Diploma in Oncology at Addenbrooke’s Hospital, Cambridge, and a BSc (Hons) in Palliative Nursing at Th e Royal Marsden, London, and an Award in Specialist Practice. Jo edited Stepping into Palliative Care (2000) and the 2nd edition, Stepping into Palliative Care 1: relationships and responses (2006) and Stepping into Palliative Care 2: care and practice (2006), both published by Radcliff e Publishing. Jo has been involved in teaching for many years and her specialist subjects include management of complex pain and symptoms, terminal agitation, communication at the end- of- life, therapeutic relationships and breaking bad news. Th e editors welcome approaches and feedback, positive and/or negative. vii List of contributors CHAPTER 1 Jo Cooper and David B Cooper See About the editors, p. vii. CHAPTER 2 David B Cooper See About the editors, p. vii. CHAPTER 3 Professor Cynthia MA Geppert Chief, Consultation Psychiatry and Ethics, New Mexico Veterans Aff airs Health Care System Professor, Department of Psychiatry and Director of Ethics and Professionalism Education, University of New Mexico School of Medicine Albuquerque, New Mexico, USA Cynthia is Chief of Consultation Psychiatry and Ethics and Integrated Ethics Program Offi cer at the New Mexico Veterans Aff airs Health Care System. She is also Associate Professor in the Department of Psychiatry and Director of Ethics Education at the University of New Mexico School of Medicine. Cynthia is board certifi ed in general psychiatry, psychosomatic medicine, hospice and palliative medicine, and addiction medicine and holds credentials in pain management. Cynthia is a fellowship and graduate-t rained bioethicist with a specialty in religious and clinical ethics and the ethics of addiction. CHAPTER 4 Professor Geraldine S Pearson Child and Adolescent Psychiatry, University of Connecticut School of Medicine Farmington, Connecticut, USA Geraldine is an Associate Professor at the University of Connecticut School of Medicine. She is the director of the HomeCare Program, a short-t erm psychiatric medication management programme for adolescents involved in juvenile justice. viii LIST OF CONTRIBUTORS ix Her education is from the University of Cincinnati (BSN & MSN) and University of Connecticut (PhD). She is the editor of Perspectives in Psychiatric Nursing and an elected member of the Committee on Publication Ethics (COPE). CHAPTER 5 Professor Robin Davidson Consultant Clinical Psychologist Department of Health, Isle of Man Belfast, Northern Ireland Robin is a Consultant Clinical Psychologist and has published widely in addictions, health psychology and psycho-o ncology. He left the Leeds Addiction Unit in 1984 to become Head of Clinical Psychology Services for the Northern Health and Social Board and then in 1997 became director of psychological services in the Belfast City Hospital. It was when with the BCH that he developed and managed the Macmillan Support and Information Centre. He has honorary appointments with Queen’s University Belfast, the University of Ulster and London South Bank University. He left the NHS several years ago and is contracted to the Isle of Man Health Psycho- oncology service. He is currently Co-c hair of GAIN (the NI equivalent of NICE) and Chair of Alcohol Research UK, formerly AERC. Dr Tracy Anderson Southern Area Hospice Services Newry, Northern Ireland Tracy is a Consultant in Palliative Medicine working in the Southern Trust, Northern Ireland. She works in two acute hospitals, a specialist palliative care unit and addition- ally has some input into the care of patients in the community. Her main role, as part of a multidisciplinary team, is to provide symptom relief and psychological support for patients with advanced progressive, incurable illness. She has a particular interest in the use of cognitive behavioural therapy (CBT) and has published on cognitive behavioural therapy techniques for anxiety and depression tailored specifi cally for palliative care. She delivers training workshops on psychological interventions in end- of- life care. CHAPTER 6 Jo Cooper See About the editors, p. vii. CHAPTER 7 Dr John R Ashcroft Consultant Psychiatrist, Th e Brooker Centre, Halton General Hospital Runcorn, England
The list of books you might like
