Palliative Care Nursing: Quality Care to the End of Life, Third Edition

593 Pages·2009·8.47 MB·English

by  Marianne LaPorte Matzo GNP-BC FAAN PhD APRN

Palliative
Care
Nursing
Q uality Care to the End of Life
M arianne Matzo, PhD, GNP-BC, FPCN, FAAN, is Professor and Frances E. and A. Earl Ziegler Chair in Palliative Care
Nursing at the University of Oklahoma Health Sciences Center College of Nursing in Oklahoma City. She also is
an Adjunct Professor in the Department of Geriatric Medicine, the University of Oklahoma College of Medicine;
a member of the Doctoral Faculty at the Union Institute and University, Cincinnati, Ohio; and a Soros Scholar for
the Project on Death in America. She was awarded a doctorate in Gerontology from the University of Massachu-
setts–Boston and a master’s degree in nursing from the Gerontological Nurse Practitioner program at the University of
Massachusetts–Lowell. Her funded research explores issues of sexual health promotion and assessment in patients
receiving hospice and palliative care. Dr. Matzo has presented educational programs regionally, nationally, and
internationally on many topics related to care of the dying person, gerontological nursing, and curriculum devel-
opment. She has authored four books, including two published by Springer Publishing, 23 book chapters, and 42
peer-reviewed publications.
Deborah Witt Sherman, PhD, APRN, ANP-BC, ACHPN, FAAN, is Professor and Assistant Dean of Research at the University
of Maryland School of Nursing and Assistant Director of the Developing Center for Excellence in Palliative Care
Research. Dr. Sherman is also a member of the Palliative Care Consultation Service at the University of Maryland
Medical Center. In 2009, Dr. Sherman received the Hospice and Palliative Care Nurses Association’s “Leading the
Way Award,” which recognizes her implementation of the fi rst Palliative Care Nurse Practitioner Program in the
United States. Dr. Sherman also serves as faculty of Tenshi College in Hakkaido, Japan, where she implemented
Japan’s fi rst Palliative Care Masters Program in Nursing.
Dr. Sherman’s education includes a BSN from Mount Saint Mary’s College, Newburgh, New York; a master’s
degree from Pace University, Tarrytown, New York; a doctoral degree in nursing from New York University, and
a post-master’s certifi cate in adult health from New York University. She was awarded the Prestigious Project on
Death in America Faculty Scholars Fellowship, funded by the Soros Foundation. Dr. Sherman served for seven
years as the co-director of the Bronx VA Medical Center Interprofessional Palliative Care Fellowship Program. Dr.
Sherman received a Post-Doctoral AIDS Research Fellowship Award from the Aaron Diamond Foundation and has
had two studies funded by the National Institutes of Health. Dr. Sherman has been faculty for the End of Life Nurs-
ing Education Consortium (ELNEC), and served as a member of the steering committee in developing the National
Consensus Guidelines for Quality Palliative Care. She is a member of several nursing and palliative care editorial
boards and has published numerous data-based and other scholarly articles and books related to palliative care.
T H I R D E D I T I O N

Palliative
Care
Nursing
Q uality Care to the End of Life
Marianne Matzo,
PhD, GNP-BC, FPCN, FAAN
EDITORS
Deborah Witt Sherman,
PhD, APRN, ANP-BC, ACHPN, FAAN
NEW YORK
Copyright 2010 by Springer Publishing Company, LLC.
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E-book ISBN: 978-0-8261-5792-8
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Library of Congress Cataloging-in-Publication Data
Palliative care nursing: quality care to the end of life/Marianne LaPorte Matzo, Deborah
Witt Sherman [editors].—3rd ed.
p.; cm.
Includes bibliographical references and index. ISBN 0-8261-5794-7 (hc)
1. Terminal care. 2. Palliative treatment.
[DNLM: 1. Terminal Care. 2. Hospice Care—psychology. 3. Palliative Care. WY 152 P1677
2005] I. Matzo, Marianne. II. Sherman, Deborah Witt.
RT87.T45P343 2005
616.02[H11032]9—dc22 2005051706
Printed in the United States by Bang Printing
For LeaRose and Giuliana, you are both so precious to
me; every day is a gift to be shared. I love you.
—MM

With deep love for my children, Ben, Rachael, and Joe,
who are the joy and the pride of my life; you have grown
into amazing adults; and for my beautiful grandson,
Austin, who reminds me of the preciousness and wonders
of life and the power of love. To my family and friends
who are always a source of love and support—may your
lives be blessed! I love you all!
— DWS
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C ontents
Contributors . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . xi
Foreword: Extending the Embrace of Palliative Nursing
by Betty Ferrell, PhD . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . xiii
Preface . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .xv
S E C T I O N I
CARING FOR THE WHOLE PERSON IN PALLIATIVE CARE
C hapter 1 Culture and Spirituality as Domains of Quality Palliative Care . . . . . . . . . . . . . . . . . . 3
Deborah Witt Sherman
Chapter 2 Holistic Integrative Therapies in Palliative Care . . . . . . . . . . . . . . . . . . . . . . . . . 39
Carla Mariano
C hapter 3 Sexual Health and Intimacy . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 65
Marianne Matzo
S E C T I O N I I
SOCIAL AND PROFESSIONAL ISSUES IN PALLIATIVE CARE
Chapter 4 Societal Perspectives Regarding Palliative Care . . . . . . . . . . . . . . . . . . . . . . . . . 75
Marilyn Bookbinder & Marlene McHugh
Chapter 5 The Nurse’s Role in Interdisciplinary and Palliative Care . . . . . . . . . . . . . . . . . . . . 97
Lisa M. Krammer, Jeanne Martinez, Eileen A. Ring-Hurn & Mary Beth Williams
vii
viii Contents
Chapter 6 Development of the Specialty of Hospice and Palliative Care Nursing . . . . . . . . . . . .107
Judy Lentz & Deborah Witt Sherman
Chapter 7 Ethical Aspects of Palliative Care . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 119
Judith Kennedy Schwartz & Anita J. Tarzian
Chapter 8 Legal Aspects of Decision Making in Palliative Care . . . . . . . . . . . . . . . . . . . . . . . . . . . 143
Kathleen Ouimet Perrin
S E C T I O N I I I
P SYCHOSOCIAL CONSIDERATIONS
Chapter 9 Communicating with Seriously Ill and Dying Patients, Their Families, and
Their Health Care Providers . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 169
Kathleen Ouimet Perrin
Chapter 10 Family Caregivers . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 187
Kay Blum
Chapter 11 Loss, Suffering, Grief, and Bereavement . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 199
Mertie L. Potter
S E C T I O N I V
PHYSICAL ASPECTS OF DYING
Chapter 12 Cancer . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 227
Amy E. Guthrie & Polly Mazanec
Chapter 13 End-Stage Heart Disease . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 249
Judith B. Dyne
Chapter 14 Chronic Lung Disease . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 271
M ary Brennan
Chapter 15 Neurological Disorders . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 285
Christine R. Kovach & Sheila Reynolds
Contents ix
Chapter 16 End-Stage Renal Disease . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 307
Lynn Noland
Chapter 17 End-Stage Liver Disease . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 323
Robert B. Davis
Chapter 18 Palliative Care for Patients with HIV/AIDS . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 337
Deborah Witt Sherman
Chapter 19 Pain Assessment and Pharmacological/Nonpharmacological Interventions. . . . . . . . . . 357
Nessa Coyle & Mary Layman-Goldstein
Chapter 20 Dyspnea . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 411
Cindy R. Balkstra
Chapter 21 Anxiety, Depression, and Delirium . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 429
Constance M. Dahlin
Chapter 22 Gastrointestinal Symptoms . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 463
Pamala D. Larsen & Laura Mallett
Chapter 23 Fatigue and Weakness Evaluation and Management . . . . . . . . . . . . . . . . . . . . . . . . . . 489
Marianne Matzo, Patsy R. Smith & Deborah Witt Sherman
Chapter 24 Skin Care Needs of Palliative Patients . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 523
Elizabeth A. Ayello, R. Gary Sibbald & Kevin Y. Woo
Chapter 25 Peri-Death Nursing Care . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 541
Marianne Matzo & Jane A. Hill
Index . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 563