Our Invisible Addicts, 2nd edition College report CR211 March 2018 Approved by: The Policy and Public Affairs Committee (PPAC) in January 2018 Due for revision: 2025 Front cover image: Untitled, 2017, acrylic on paper 40 x 50 cm, Prof Ilana Crome © 2018 The Royal College of Psychiatrists College Reports constitute College policy. They have been sanctioned by the College via the Policy and Public Affairs Committee (PPAC). For full details of reports available and how to obtain them, contact the Book Sales Assistant at the Royal College of Psychiatrists, 21 Prescot Street, London E1 8BB (tel. 020 7235 2351; fax 020 7245 1231) or visit the College website at: www.rcpsych.ac.uk/publications/collegereports.aspx The Royal College of Psychiatrists is a charity registered in England and Wales (228636) and in Scotland (SC038369). Contents Foreword 4 Acknowledgements 6 Working group 7 Executive summary 8 Key recommendations 15 Introduction 20 Notes and thoughts from a patient 23 Public health and substance misuse in older people 28 Assessment of substance misuse 43 Alcohol-related brain damage and physical complications of substance misuse 61 Treatment 68 Service delivery and implementation 90 Education and training 115 Ethical and legal considerations for older people with substance misuse 127 Research and development 147 Conclusion 152 References 158 Appendix 177 Abbreviations 179 Glossary 182 Models of service 184 College report CR211 3 Foreword The publication of Our Invisible Addicts in 2011 represented an important landmark in recognising the extent of substance-related health problems amongst older people and that the special service needs to deal with the complexity of such problems, which often involve co-morbid mental and physical health problems, polypharmacy and psychosocial adversity. Since then, our knowledge concerning the clinical and public mental health aspects of substance misuse in older people has continued to advance but substance misuse amongst older people continues to grow as the population of “baby boomers” ages, increasing both the number of older people and the percentage of the older population with experience of substance misuse. Given the further experience and knowledge we now have and the growing need, it is now timely to readdress the issue and to review and revise the original report and build on its recommendations. With this revision, we seek to build on the progress made over the past six years and to emphasise anew that including older people with substance problems in national policies is imperative and that there is a need for organisational reform to tackle this burgeoning issue. The complex constellation of risks that older people with addictions face and create can result in presentation to a variety of services such as older people’s mental health, addictions, primary care, acute hospital settings, social care, housing, criminal justice and the voluntary sector. In many cases the staff in these settings have little specialist knowledge of how to deal with such complexity. As a result, in this revision we consider and advocate the further development of a clinical workforce with the appropriate knowledge, skills and attitudes to provide identification, assessment, treatment, and assist in recovery and referral for substance misuse in an older population. In particular, we see a need to reverse the loss of multi- professional specialist training in addictions that has taken place in recent years. We also explain how the problem can be best addressed though an approach that is multi-professional, involving psychiatry, nursing, pharmacy, occupational therapy, psychology, social work and the voluntary sector (including peer support). This report also addresses the important public mental health aspect. The public is poorly informed about the relationship between drinking and health risks in older people. There is also a need to improve College report CR211 4 knowledge and awareness around the increasing use of illicit and prescription drugs, as well as the harm caused by novel psychoactive substances, substances acquired using the internet, and other addictions accompanying substance misuse such as gambling. Improving health and social outcomes for older people with substance- related disorders requires a rigorous approach and this report collates the most up-to-date information relevant to practising psychiatrists, their teams and other colleagues. There is a need for best practice to be implemented and extended to all relevant settings including the criminal justice system and end of life care. As we do so, we should continue to research the effectiveness of the different approaches taken, using both qualitative and quantitative measures to evaluate this. This report, which has been developed with representation from a patient, the Royal College of Psychiatrists, the Royal College of General Practitioners and the British Geriatrics Society, provides the latest milestone on the journey towards developing the best possible response to this important problem. Professor Wendy Burn, President Professor Colin Drummond, Chair of the Faculty of Addictions Dr Amanda Thompsell, Chair of the Faculty of Old Age Psychiatry College report CR211 5 Acknowledgements We would like to acknowledge the constant encouragement of the Faculty Chairs, Dr Amanda Thompsell and Professor Colin Drummond. Without the unstinting assistance of Kitti Kottasz, Committee Manager; Dr Adrian James, Registrar; and Thomas Denning, Policy and Standards Manager, we would have found the process far more demanding. The commitment, patience, good humour and meticulous approach of Christine Goodair ensured that we were able to meet a very tight deadline. We would like to thank Dr Cheryl Kipping (Consultant Nurse for dual diagnosis, South London and Maudsley NHS Foundation Trust) for sharing her expertise with the group and commenting on previous drafts of this report. Professor Peter Crome, Emeritus Professor of Geriatric Medicine, Keele University, contributed valuable insights, and we are appreciative of the input of Dr Marc Mandell, Consultant Liaison Psychiatrist. College report CR211 6 Working group Professor Ilana Crome and Dr Tony Rao were responsible for co-editing the report, contributing to individual chapters and coordinating its format, content and style, as well as checking for accuracy. Professor Ilana Crome Royal College of Psychiatrists (Faculty of Addictions Psychiatry), Emeritus (Co-Chair) Professor of Addiction Psychiatry, Keele University; Honorary Consultant Psychiatrist, South Staffordshire and Shropshire Healthcare NHS Foundation Trust; Honorary Professor, St George’s Hospital, University of London Dr Tony Rao Royal College of Psychiatrists (Faculty of Old Age Psychiatry), (Co-Chair) Consultant in Old Age Psychiatry, South London and Maudsley NHS Foundation Trust and Visiting Lecturer in Old Age Psychiatry, Institute of Psychiatry, Psychology and Neuroscience, London The following working group members contributed to writing individual chapters: Dr Amit Arora British Geriatrics Society, Consultant Physician/Geriatrician, University Hospitals of North Midlands NHS Trust and Honorary Clinical Lecturer, Keele University Dr Conor Barton Royal College of Psychiatrists (Faculty of Old Age Psychiatry) and Consultant in Old Age Psychiatry, Belfast Health and Social Care Trust and Honorary Lecturer at Queen’s University Belfast Dr Ed Day Royal College of Psychiatrists (Faculty of Addictions Psychiatry), Senior Clinical Lecturer in Addiction Psychiatry, Institute of Psychiatry, Psychology and Neuroscience, London and Consultant in Addiction Psychiatry, Birmingham & Solihull Mental Health NHS Foundation Trust Dr Arun Dhandayudham Royal College of Psychiatrists (Faculty of Addictions Psychiatry), Joint Chief Executive Officer and Medical Director, WDP Mrs Christine Goodair Programmes Manager (Substance Misuse), Population Health Research Institute, St George’s Hospital Medical School, University of London Ms Diane Goslar Patient Representative, Royal College of Psychiatrists Prof Steve Iliffe Royal College of General Practitioners and Emeritus Professor of Primary Care for Older People, University College London Dr Anand Ramakrishnan Royal College of Psychiatrists (Faculty of Old Age Psychiatry) and Consultant in Old Age Psychiatry, Nottinghamshire Healthcare NHS Trust College report CR211 7 Executive summary Introduction Notes and thoughts from a patient This report has harnessed the collective z Public campaigning should be expanded knowledge, skills and experience of health to reduce the stigma associated with professionals and others with experience in alcohol problems. the field of substance misuse. z There should be greater recognition of the enormity of the problem – detailed It presents an up-to-date and evidence- research and publication of statistics based revision of Our Invisible Addicts, with should be widely marketed. the following terms of reference: z Early identification of the problem z Portraying lived experience of substance should be keenly promoted through misuse training of general practitioners. z Examining public health aspects z There should be provision of more alcohol treatment centres generally z Emphasising the importance of including those specifically for older comprehensive assessment people. z Highlighting the relevance of alcohol z There should be a substantial increase related brain damage and physical in provision of aftercare services. complications z More health professionals (including old z Detailing the nature, range and benefits age psychiatrists) should be trained to of age-sensitive treatment approaches deal specifically with alcohol problems, z Exploring best practice in service and there should be more addiction delivery and implementation psychiatrists. z Developing education and training to z Education at all levels should be improve workforce competencies developed. z Suggesting future areas for research z The economic impact of alcohol should and development be determined by detailed research z Clarifying the role and relevance of and publication of how it affects the ethical and legal aspects of care. economy, what revenues and what expenses are affected and by how much. Executive summary 8 Public health and substance misuse in older people z The proportion of older people with z Psychosocial factors such as social substance misuse continues to rise more isolation, financial problems, retirement, rapidly than can be explained by the rise life events, pain and insomnia have strong in the proportion of older people in the UK. associations with alcohol misuse z The “baby boomer” population born z There is strong evidence for the potential between 1946–1964 (now aged between effectiveness of minimum unit pricing in 53 and 71 years old) is at the highest risk reducing alcohol-related harm, particularly of substance misuse which is rising within in people with both harmful alcohol use the older population. and socio-economic deprivation. z The misuse of illicit drugs such as z Awareness of alcohol units among older cannabis and amphetamines, prescription people is improving but there is a general painkillers such as morphine and lack of health awareness around lower buprenorphine, as well as gabapentinoid risk drinking limits among the public. This drugs is now recognised as a growing also includes practitioners assessing older public health problem. people with alcohol misuse. z Substance misuse in older people is z There is large gap in evidence for both associated with reduced life expectancy the prevention of alcohol misuse in older and accelerated ageing, which is further people and evidence assessing the impact compounded by socio-economic of public health interventions to reduce deprivation cognitive decline or preventing dementia. z Death rates in older people with substance z Prevention of alcohol misuse needs to be misuse are higher than the general older balanced carefully against the role played population. by alcohol in maintaining social cohesion z Deaths related to poisoning from among older people. substances in older people have more than doubled over the past decade. z Recent revision of lower risk drinking guidelines for all age groups may still be too high for some older people, especially those who have accompanying physical and mental disorders and who are receiving medication. z Older people with mental disorders such as depression, anxiety, and personality disorder have higher rates of substance misuse than those without mental disorders. Executive summary 9 Assessment of substance Alcohol-related brain misuse damage and physical complications of substance misuse z When presenting to clinical services, z Current services are poorly equipped in all older people should be screened the assessment, treatment and care of for alcohol and tobacco misuse and be older people with alcohol-related brain asked about other substance use and damage (ARBD). misuse. z ARBD has a wide range of mechanisms z Older people misusing substances involved in its development, with should be offered a full assessment Wernicke-Korsakoff Syndrome and of their substance misuse in mental alcohol-related dementia being the most health services and offered referral to common clinical presentations. specialist substance misuse services, if z Rising rates of hospital admissions required. for ARBD has implications for clinical z There should be user-friendly and service provision. special consideration of older people’s z Assessment, diagnosis, harm reduction distinctive needs, with assessment and recovery require specialist skills considering the physical, psychological and involve a joint approach between and social changes consequent on health and social care professionals, as ageing. well as families, carers and Third Sector z Assessment may need to be ongoing providers. and frequently reviewed, and involve the z Reduction of, or abstinence from, collaboration of health and social care harmful drinking may be associated with professionals, families and carers over partial reversibility in cognitive function. the longer term. z Long-term care is not a substitute for z Major life events, presentation appropriate rehabilitation. with physical and psychological z Substance misuse is associated with a symptomatology (particularly if wide range of physical complications unexplained), and inconsistencies or that require appropriate assessment, contradictions in the presentation, treatment and aftercare. should prompt re-screening or assessment. z Although applying the standard criteria for the diagnosis of dependence to older people may be useful, this must be undertaken thoughtfully as they may not always be applicable. 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