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On the death of a child PDF

266 Pages·2009·3.571 MB·English
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On the Death of a Child TThhiiss ppaaggee iinntteennttiioonnaallllyy lleefftt bbllaannkk On the Death of a Child THIRD EDITION CELIA HINDMARCH BA (Hons) MBACP Accredited Counsellor MBACP Accredited Supervisor Radcliffe Publishing Oxford (cid:129) New York CRC Press Taylor & Francis Group 6000 Broken Sound Parkway NW, Suite 300 Boca Raton, FL 33487-2742 © 2009 by Celia Hindmarch CRC Press is an imprint of Taylor & Francis Group, an Informa business No claim to original U.S. Government works Version Date: 20160525 International Standard Book Number-13: 978-1-138-03104-3 (eBook - PDF) This book contains information obtained from authentic and highly regarded sources. While all reasonable efforts have been made to publish reliable data and information, neither the author[s] nor the publisher can accept any legal responsibility or liability for any errors or omissions that may be made. The publishers wish to make clear that any views or opinions expressed in this book by individual editors, authors or contributors are personal to them and do not necessarily reflect the views/ opinions of the publishers. The information or guidance contained in this book is intended for use by medical, scientific or health-care professionals and is provided strictly as a supplement to the medical or other professional’s own judgement, their knowledge of the patient’s medical history, relevant manufacturer’s instructions and the appropriate best practice guidelines. Because of the rapid advances in medical science, any information or advice on dosages, procedures or diagnoses should be independently verified. The reader is strongly urged to consult the relevant national drug formulary and the drug companies’ and device or material manufacturers’ printed instructions, and their websites, before administering or utilizing any of the drugs, devices or materials mentioned in this book. This book does not indicate whether a particular treatment is appropriate or suitable for a particular individual. Ultimately it is the sole responsibility of the medical professional to make his or her own professional judgements, so as to advise and treat patients appropriately. The authors and publishers have also attempted to trace the copyright holders of all material reproduced in this publication and apologize to copyright holders if permission to publish in this form has not been obtained. If any copyright material has not been acknowledged please write and let us know so we may rectify in any future reprint. Except as permitted under U.S. Copyright Law, no part of this book may be reprinted, reproduced, transmitted, or utilized in any form by any electronic, mechanical, or other means, now known or hereafter invented, including photocopying, micro- filming, and recording, or in any information storage or retrieval system, without written permission from the publishers. For permission to photocopy or use material electronically from this work, please access www.copyright.com (http://www. copyright.com/) or contact the Copyright Clearance Center, Inc. (CCC), 222 Rosewood Drive, Danvers, MA 01923, 978-750- 8400. CCC is a not-for-profit organization that provides licenses and registration for a variety of users. For organizations that have been granted a photocopy license by the CCC, a separate system of payment has been arranged. Trademark Notice: Product or corporate names may be trademarks or registered trademarks, and are used only for identifi- cation and explanation without intent to infringe. Visit the Taylor & Francis Web site at http://www.taylorandfrancis.com and the CRC Press Web site at http://www.crcpress.com Contents Preface ix How to use this book xi About the author xiii Acknowledgements xiv SECTION 1: THEORY AND PRACTICE 1 1 Incidence and characteristics of child death 3 The death of a child is different from other bereavements 5 Sudden and accidental deaths 7 Prenatal and perinatal loss 14 Death from illness 18 Death from congenital conditions 20 Socially diffi cult deaths 23 Organ retention 26 2 Features of grief and mourning when a child dies 29 Introduction: starting from experience 29 The development of bereavement theory 31 New understandings of grief 36 What the death of a child means for different family members 43 Mourning rituals 50 SECTION 2: GOOD PRACTICE GUIDELINES 55 3 Professional roles 57 Bereavement support workers 58 Chaplains/spiritual care advisors 59 Clergy 61 Coroners 62 Counsellors 64 Funeral directors 66 General practitioners 67 Health visitors 70 Hospital doctors 72 Mortuary technicians 75 Nurses 77 Midwives 79 Paramedics 81 Pathologists 83 Police 85 Registrars of births, marriages and deaths 87 Social workers 88 Teachers 90 4 Guidelines for all 93 General principles 94 Supervision 98 Training 101 Skills 102 Helping strategies 103 Resources questionnaire 105 5 Guidelines for stressful situations 107 Breaking bad news 108 Emergency procedures and intensive care 110 After the death 113 Attending the funeral 118 On fi rst visiting the family 119 Anniversaries 120 Suicide risk assessment 121 6 Guidelines for talking with children 124 Introduction 124 Child experience of loss and bereavement 125 First principles 127 Helping children understand about terminal illness 130 Informing children of the death 131 Telling children about a murder or suicide 133 Summary of dos and don’ts 136 SECTION 3: BEREAVEMENT SUPPORT 139 7 Support for families 141 Practical support 141 Befriending 143 Counselling 145 Psychology 154 Psychiatry 154 Groups 155 Social activities 158 Support for children 159 8 Support for schools 164 How schools are affected 164 Planning and preparation 168 Psychological support: who does what and when? 172 Levels of support following critical incidents affecting schools 175 After a suicide 177 9 Support services 181 Core conditions 182 Starting a support group 183 A co- ordinated approach 186 10 Hope, meaning and resilience 190 The rippling effect 190 Some parents’ stories 193 Comment 213 APPENDIX A: Useful contacts for support organisations 217 APPENDIX B: Children’s hospices 224 APPENDIX C: Useful resources for working with children and families 232 APPENDIX D: Use of geneograms in bereavement counselling 239 Essential references 243 Further reading 245 Index 249 Preface While the death of a child is a comparatively rare event in the Western world, it remains one of the greatest challenges to anyone supporting those affected by it. Childhood is associated with hope, promise, innocence and joy, and the loss of a child is always emotive. Some high- profi le child deaths, such as the murder of Rhys Jones in Liverpool and the abusive neglect of Baby P in Haringey, bring public outrage as well as private grief. Others, such as the death of Ivan Cameron, are inspirational as well as intensely sad, in this case challenging society’s preconceptions of disability. ’Ivan’s death was tragic. His life was not.’ This life-a ffirming statement by Ivan’s father David, leader of the Conservative Party at the time of his son’s death, echoes a new dimension which I have sought to bring to this third edition. Essentially, the addition of Chapter 10, Hope, meaning and resilience, includes interviews with parents who reveal how the experience of losing a child can build resilience, derive meaning from their child’s life, and inspire hope for the future. Elsewhere in the book the reader is challenged by the tragedy of the death: here the reality is balanced by hope. These parents have found purpose in fund-r aising, public awareness, lobbying, and the development of new support resources, as legacies from their children. This is in keeping with the original inspiration for this book which came from the fi rst years of the Alder Centre, founded 20 years ago in 1989, and still going strong. The Alder Centre is situated at the Royal Liverpool Children’s NHS Trust Hospital Alder Hey. Its remit is to support all those affected by the death of a child, of whatever age and from whatever cause. The Centre was initiated by a group of bereaved parents who recognised not only their own need for support but the potential for supporting others through ix

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