Nurses' Knowledge and practice regarding Sickle Cell Anemia in Wad Medani, Pediatric Teaching

139 Pages·2017·1.64 MB·English

Nurses’ Knowledge and practice regarding Sickle Cell Anemia in
Wad Medani, Pediatric Teaching Hospital , Gezira State, Sudan
(2014)

BadriaYousif Ahmed Khogali

B.Sc in Nursing, Academic Medical Sciences and Technology (2005)

A Dissertation
Submitted to the University of Gezira in Partial Fulfillment of the
Requirement for the Award of the Master degree of Science,
InPediatric Nursing

Department of nursing
Faculty of applied medical sciences
2015
Nurses’ Knowledge and practice regarding Sickle Cell Anemia in
Wad Medani, Pediatric Teaching Hospital , Gezira State, Sudan
(2014)

BadriaYousif Ahmed Khojali

Supervision committee:

Name position signature
Dr. Ietmad Ibraheem Kambal AbdAlrahmanmain mainsupervisor
Dr. SydaI dress AbdAlrahman co-supervisor

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Nurses’ Knowledge and practice regarding Sickle Cell Anemia in
Wad Medani, Pediatric Teaching Hospital , Gezira State, Sudan
(2014)

BadriaYousif Ahmed Khojali

Examination committee:

Name position signature
1.Dr. Ietmad Ibraheem Kambal chair peson
2.Dr . Faiza Ali Nuser External examiner
3.Dr . Bothyna Bassyonie Elssyed Internal examiner
Date of examination:16/09/2015

1
Dedication
:

To my lovely parents
To nurses with their different specialty and
qualifications.
To anyone interested to know about nursing.

2
Acknowledgement
:
I am grateful to GeziraUniversity for creating
this opportunity. Special thanks to Dr.
IetimadKambal and Dr.SydaIdrees for their help
and effort that made these papers to see the
light. Thanks for my friends
FatimaIssa, Alwia Hamid for
AUSTAZA AUSTAZA
their help. For my family for their help and
support.

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Nurses’ Knowledge and practice regarding Sickle Cell Anemia in
Wad Medani, Pediatric Teaching Hospital , Gezira State, Sudan
(2014)
Abstract

Sickle cell anemia is consider one of the inheritance blood disease resulting from abnormal
mutations in the form of crescent (half moon)red blood cell.Nurses have vitle role
forcaring ofsickle cell anemia pediatric patients.Byempathy and their knowledge has
positive impact for supporting patients and their families, and developing plane for care.
A Descripted hospital based study was conducted in Wad MedaniPediatric Teaching
Hospital aimed at assessing nurses knowledge and practice regarding management of sickle
cell anemia pediatric patient care in Wad Madani pediatric teaching hospital, Gazira
state,Sudan.The study sample consisting of 57 nurses who work in Wad Medani pediatric
teaching hospital during the period ( june-2014-december 2014). Datawere collected by
using a questionnaires designed for the study and observation checklist, for monitoring
nurses performance during care of child with sickle cell anemia.Data was analyezed by
the Statistical Packages for Social Sciences(SPSS).The result shows that 10% of the study
sample respond with correct answers regarding ethnic affected group, and 35%of the
responded correctly regarding the causes of the spread of sickle cell anemia and 21% of
them responded correctly regarding positive and negative effect of smoking towards sickle
cell pediatric patients, 29%responded with correct answers regarding causes of spread of
sickle cell anemia. The study concluded that nurses' knowledge regarding sickle cell
anemia were inadequate. The study recommended that periodic training program for
nurses about sickle cell anemia must be done ,books and journals must be available for
nurses about sickle cell anemia in the hospital and setting guidance system for quality
control.

م

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ىفشتسمب ةيلجنملا ايمينلااب نيباصلا لافطلاا هاجت ةيضيرمتلا ةيانعلاب تاضرمملا ترااهمو كولس ةفرعم

2014
) (نادوسلا ةريزجلا ةيلاو .لافطلأل يميلعتلا يندم دو
يلجوخ دمحأ فسوي ةيردب
ةسرادلا ةصلاخ

.ءرامحلا مدلا تايرك لكش يف ةيعيبط ريغ ترافط نع ةجتانلا ةيثراولا مدلا ضرامأ دحأ ةيلجنملا ايمينلأا دعت
ريثأت اهل ضر ملاب ةيملعلا مهتفرعمو ،ةينادجولا ةكراشملاب لافطلأا نم ةيلجنملا ايمينلأا ضيرمب ةيانعلل يويح رود تاضرمملل

ةفرعملا مييقت يلإ ةيفصولا ةسرادلا هذه تفده ةيجلاعلا ةيضيرمتلا ةطخلا ريوطتو هترسأو ضيرملل يسفنلا معدلاب يباجيإ

ةسرا دلا تيرجأ لافطلأل يميلعتلا يندمدو يفشتسمب لافطلأا نم ةيلجنملا ايمينلأا يضرمل ةيضيرمتلا ةجلاعملل ةيلمعلاو ةيملعلا
57
نم ةرتفلا يف لافطلأل يميلعتلا يندمدو ىفشتسمب نولمعي نيذلا تاضرمملاو نيضرمملا نم نم نوكتت ةحاتم ةنيع يلع
2014 2014
مزحلا ةطساوب تانايبلا ليلحت متو تاظحلام ةمئاقو تانايبتسلإا ةطساوب تامولعملا تعمج . ربمسيد ىلإ وينوي
(SPSS)
بيصتو يثراو ضرم ةيلجنملا ايمينلأا نأب ةفرعم مهيدل تاضرمملا نأ جاتنلا ترهظأ. ةيعامتجلإا مولعلل ةيئاصحلإا
1.8 35 47 49 29.8 21
ةحيحص تاباجإ اوباجأ ةسرادلا ةنيع درافأ نم % ،% ،% ،% ،% % ةبسن تناكو ءرامحلا مدلا تايرك

جلاعلاو ضرملا اهببسي ىتلا تافعاضملاو ضرملا راشئنإ بابسأ وأ يقرع ةيلجنملا ايمينلأا مهبيصت نيذلا نم صوصخب
91 87 77
نم % ،% ،% نأو يلاوتل ىلعةيلجنملا ايمينلأا ضيرم ىلع هيعونب نيخدتلا ريثأتو ىنلاديصلا ريغو ىنلاديصلا
.يلاوتلا ىلع مدلا لقن لبق هلعف بجي ام و مللأا عم لماعتلا و ،نيديلا لسغ نأشب ةحيحص مهتاباجإ تناك ةسرا دلا ةنيع درافأ
ةيئاصحإ ةللاد تاذ ةقلاع كلانه سيل هنأ دجوو ةربخلا و لهؤملا عم تاضرمملا تامولعم نيب ةيطابترإ ةقلاع رابتخإ يرجا
0.05
تاضرمملاو نيضرملل ةبسنلاب يفرعم روصق كلانه نأ ىلإ ةسرا دلا تصلخ . نم ربكأ طابترلإا لماعم ةميق تناك ثيح
يلع يوتحت ةبتكم ريفوت و ةيرودلا ةيبيردتلا جمرا بلا ةماقإب ةسرادلا تصوأ.ةيضيرمتلا ةيانعلاو ةيلجنملا ايمينلأا ضرم نأشب

يف هيلع رداوكلا بيردتو ىضرملا عم لماعتلا ةيفيك يلع ةدوجلا طبضل يداشرإ ماظن عضوو ةيملعلا تلاجملاو بتكلا ثدحا
.يملاعلا يوتسملا يلع تراوطتلا ةبكاومل كلذو ةلعاف ةباقر راطإ

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Content
Subject Page
Dedication III
Acknowledgement IV

ABSTRACTEnglish V
ABSTRACT Arabic VI
Table of content VII
List of tables X
List of Abbreviations XIV

Chapter One
1. Introduction 1

1.1 Background 1

1.2 Problem statement 1
1.3 Justification 4
1.4Objectives 5
1.4.1 General Objective 5
1.4.2 Specific Objectives 5

Chapter Two
2. Literature Review 7
2.1 Sickle-cell disease 7
2.2 Path physiology: 7
2.3Etiology 15
2.3.1 International statistics 16
6
2.4 Causes 19
2.5 Tests and diagnosis 20
2.6 Epidemiology 22
2.7 Prognosis 23
2.8 Treatments 24
2.8.1 Medications 25
2.8.1.1 Antibiotics 25
2.8.1.2 Pain-relieving medications 25
2.8.1.3 Hydroxyilurea (Droxia, Hydrea) 25
2.8.1.4 Assessing stroke risk 26
2.8.1. Vaccinations to prevent infections 26
2.8.2 Blood transfusions 26
2.8.3 Supplemental oxygen 27
2.8.4 Stem cell transplant 27
2.8.5 Experimental treatments 27
2.8.5.1 Gene therapy 27
2.8.5.2 Nitric oxide 28
2.8.5.3 Drugs to boost fetal hemoglobin production 28
2.8.5.4 Stations 28
2.9 Complications 28
2.9.1 Stroke 28
2.9.2Acute chest syndrome 28
2.9.3Pulmonary hypertension 28
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2.9.4 Organ damage 28
2.9.5 Immediately depriving 29
2.9.6 Blindness 29
2.9.7 Skin ulcers 29
2.9.8 Gallstones 29
2.9.9 Priapism 29
2.10Treating complications 29
2.11 Prevention 29
2.12 Nursing care 32
Nursing Diagnosis 32
Planning and Goals 32
Discharge Goals 33
Managing Pain 33
Preventing and Managing Infection 33
Promoting Coping Skills 33
Increasing Knowledge 33
CHRONIC PAIN AND SUBSTANCE ABUSE 34
Promoting Home and Community Based Care 34
Evaluation 34
Expected Patient Outcomes 34
2.12.1 Patient and co-patient Education 38
2.13 Previous Studies 40
Sokoto, Nigeria. 42
RESULTS 42

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