San Jose State University SJSU ScholarWorks Master's Teses Master's Teses and Graduate Research 2009 Music in the lives of two children with autism : a case study Elizabeth Ron Fang San Jose State University Follow this and additional works at: htps://scholarworks.sjsu.edu/etd_theses Part of the Dance Commons, and the Music Commons Recommended Citation Fang, Elizabeth Ron, "Music in the lives of two children with autism : a case study" (2009). Master's Teses. 3348. DOI: htps://doi.org/10.31979/etd.z9b2-v5ss htps://scholarworks.sjsu.edu/etd_theses/3348 Tis Tesis is brought to you for free and open access by the Master's Teses and Graduate Research at SJSU ScholarWorks. It has been accepted for inclusion in Master's Teses by an authorized administrator of SJSU ScholarWorks. For more information, please contact MUSIC IN THE LIVES OF TWO CHILDREN WITH AUTISM: A CASE STUDY A Thesis Presented to The Faculty of the School of Music and Dance San José State University In Partial Fulfillment of the Requirements for the Degree Master of Arts by Elizabeth Ron Fang December 2009 © 2009 Elizabeth Ron Fang ALL RIGHTS RESERVED The Designated Thesis Committee Approves the Thesis Titled MUSIC IN THE LIVES OF TWO CHILDREN WITH AUTISM: A CASE STUDY by Elizabeth Ron Fang APPROVED FOR THE SCHOOL OF MUSIC AND DANCE SAN JOSÉ STATE UNIVERSITY December 2009 Dr. Diana Hollinger School of Music and Dance Dr. Gordon Haramaki, School of Music and Dance Prof. Kara Ireland D’Ambrosio School of Music and Dance ABSTRACT MUSIC IN THE LIVES OF TWO CHILDREN WITH AUTISM: A CASE STUDY by Elizabeth Ron Fang This thesis is a qualitative case study about two children with autism spectrum disorder and the role of music in their lives. It explores how music serves as a non- threatening medium for learning and developing skills necessary to function successfully in life. The stories of the children and their parents are shared through their personal account and the author’s observations. The literature in the field reveals that a structured/functional use of music helps communication, social interaction, appropriate behavior, motor skills, and academics in children with autism. Each child is able to actively participate in music-making within varied and appropriate settings as music accommodates different levels and abilities. With successful experiences, these children gain confidence and self-esteem, learn a skill, establish a socially appropriate hobby, and acquire outside acknowledgement and praise. Informal but functional uses of music at home, school, or elsewhere can benefit and aid children with autism. The stories of the participants show music’s potential in helping individuals with autism live a more fulfilling and promising life. ACKNOWLEDGEMENTS This thesis is a product of the combined efforts of many individuals to whom I am ever grateful. First, tremendous thanks to my participants, who are the motivation for this work. They opened their hearts and lives unselfishly for my research— offering information freely, patiently answering my inquiries, welcoming me into their homes, and dedicating themselves from beginning until the end. Their time and trust are beyond measures. Second, I sincerely thank my advisor, Dr. Diana Hollinger. In this journey, she joyfully served as my guide, leading and directing me each step of the way. Thank you for the exceptional effort, time, and energy poured without restraint, and all the sacrifices made on my behalf. I will always remember our laughs and talks with Allie prancing around us. Thank you for your unwavering confidence and faith in me. You have been the greatest! I am also grateful to the rest of the members on my committee, professors of San José State University: Dr. Gordon Haramaki and Professor Kara Ireland D’ Ambrosio. Both were towers of strength I could run to for counsel and advice. Thank you for always being there with a smile, open ears, concern, and loads of wisdom. Thank you for accepting the responsibility and burden of this task willingly despite your busy schedules. Both of you are phenomenal! Last but not least, I wish to thank my family and friends who trod this road with me —all the way. Thank you for your prayers. Your love, patience, encouragement, and v care were my constant companions in this race, pushing me onwards towards the goal. Thank you for bearing with me during this time without complaint! As the adventure comes to a close, my heart is full of thanks. I could not have finished this project without any of you. Thank you so much! The Lord bless you all. v i TABLE OF CONTENTS Chapter Page 1: INTRODUCTION..…..….……………………………………….………………..1 Background of the Study………………………………………..……………....2 Purpose of the Study….……………………………………….……………….. 5 Need for the Study…………………………………………….……………….. 6 Method of the Study………………………………………….…………………7 Limitations of the Study…………………………………….…………………..8 Nature and Size of the Sample………………………………………….8 Uniqueness of the Setting………………………….…………………....8 Time Period of the Study……………………………………………... 10 Definition of Terms……………………………………………………………10 “Child with Autism”……………………………………………...……10 Autism Spectrum Disorder (ASD)……………………………….……11 Further Terms………………………………………………………….12 Conclusion……………………………………………………………………..12 2: REVIEW OF THE LITERATURE……………….…………………………….13 Nature of Autism……………………………………………………………….13 General Characteristics………………………………………... ..….....13 History of Autism and Important Figures……………………….……..18 Music’s Influence on Health and Behavior…………………………….……....23 vi i Music and Autism………………………………………………………….….25 Responding to Music……………………………………………….….26 Why Music? ……………………………………………………….. …27 Music Therapy………………………………………………………....29 Uses of Music………………………………………………………….30 Special Education in the United States……… ………………………………..35 History of Educating Students with Disabilities……………………….36 History of Music in Special Education………………………………...38 Laws and Legislative Events Affecting Special Education……………39 Intervention Strategies………………………………………………....43 Conclusion……………………………………………………………………..50 3: METHOD AND DESIGN…………………………..…………………….....….. 52 Primary Participants……………………………………………………………54 Secondary Participants………………………………….…………….……. ….56 Research Sites…………………………………….……..…………………. ….56 Data Collection…………………………….……………..…………………….56 Interviews and Observations……….…..………………………….…...58 Artifacts……………...…………………………………………………59 Confidentiality……………….…………………………………………………60 Data Analysis ……………………………………………………………….…60 Trustworthiness………………………………………………………………...61 Summary……………….………………………………………………………62 vi ii 4: MIKE………………………………………………………………………….…64 Our First Meeting……………………………………………………………..64 His Story………………………………………………………………………68 Family Background…………………………………………………...68 Early Years……………………………………………………………70 Diagnosis and Early Interventions…………………………………….72 Mike Goes to School…………………………………………………………. 75 Mike’s Musical Journey……………………………………………………… 78 Mike at School Today…………………………………………………………80 Band Class……………………………………………………………. 80 Speech Therapy………………………………………………………..84 Lunch Time……………………………………………………………86 Electronic Music Class……………………………………………….. 89 Mike’s Life Outside of School……………………………………………….. 92 Piano Tutoring…………………………………………………………93 A Piano Lesson………………………………………………………...97 Music, Motivation, Memory…………………………………………...99 Music as Common Ground…………………………………………....100 Making Music Together………………………………………….........101 Ready, Set, Action………………………………………………….....104 Open House at Mike’s………………………………………………...105 Wendy’s Journey………………………………………………………….......109 ix