Misdiagnosis and Dual Diagnoses of Gifted Children and Adults: ADHD, Bipolar, OCD, Asperger’s, Depression, and Other Disorders by James T. Webb, Ph.D., ABPP-Cl Edward R. Amend, Psy.D. Nadia, E. Webb, Psy.D. Jean Goerss, M.D., M.P.H. Paul Beljan, Psy.D., ABPdN F. Richard Olenchak, Ph.D. Great Potential Press © 2005; 2012. All rights reserved. Table of Contents Foreword by Ronald E. Fox, Ph.D. Preface Introduction Chapter 1. Characteristics of Gifted Children and Adults Chapter 2. Attention-Deficit/Hyperactivity Disorder Chapter 3. Anger Diagnoses Chapter 4. Ideational and Anxiety Disorders Chapter 5. Mood Disorders Chapter 6. Learning Disabilities Chapter 7. Sleep Disorders Chapter 8. Allergies, Asthma, and Reactive Hypoglycemia Chapter 9. Relationships Issues for Gifted Children and Adults Chapter 10. Differentiating Gifted Behaviors from Pathological Behaviors Chapter 11. How to Select a Health Care Professional or Counselor for a Gifted Child or Adult Chapter 12. Resources Appendix A. Suggested Readings Endnotes References Dedication Acknowledgments About the Authors About the Publisher Copyright Try to see your child as a seed that came in a packet without a label. Your job is to provide the right environment and nutrients and to pull the weeds. You can’t decide what kind of flower you’ll get or in which season it will bloom. ~ A modern educator (cited in Mogel, 2001)1 Foreword In the Summer of 2004, while flying to the 25th reunion of the founding of the School of Professional Psychology at Wright State University in Dayton, Ohio, I struck up a conversation with a fellow passenger who turned out to be the wife of a university president. When she learned the purpose of my trip, she mentioned that she knew about Wright State University—specifically that the School of Professional Psychology happened to have a program called SENG (Supporting Emotional Needs of Gifted) that was dedicated to services for the gifted and their families and which was “a real national treasure.” Unaware that, as the founding Dean of the School, I was already familiar with the SENG program and its founder, Dr. James T. Webb, she proceeded to tell me all about it. I, of course, was more than willing to listen to her praise for my obvious good judgment in having agreed to give the program a home at Wright State, where I was Dean at the time. Her story was familiar and very much like others I had heard over the years. Her sister’s nine-year-old son, some years ago, was on the verge of being expelled from his school’s regular classroom because of poor performance, lack of attentiveness, poor homework habits, impatience with classmates, and a fascination—bordering on an obsession—with electric motors, which he insisted on pursuing regardless of what might be going on in the classroom at the time. His teacher was not only annoyed, but also quite puzzled and frustrated because the boy was highly intelligent, yet he had resisted all efforts to get him to change. Unable to control his disruptive behavior, this teacher wanted him placed in some kind of alternative program. The boy’s aunt, my fellow passenger, suggested that his mother contact a program called SENG located at a state university in Dayton, Ohio. The parents brought their son to Dayton for evaluation and advice. It was determined that the boy was so intellectually gifted that his needs were far from being met in his small-town Indiana school. The parents were apprised of resources and methods for providing appropriate intellectual stimulation and were given sound advice about how to deal with his various disruptive classroom behaviors, as well as practical recommendations regarding how to deal with his siblings. The results were quickly apparent. Despite the fact that there was no available program for the gifted in their Indiana school system at the time, the help that this family received from SENG allowed these parents to better provide for their son’s intellectual and developmental needs and to see the success of their own efforts. Over the course of just a few months, the boy was transformed from a problem student into a motivated and eager learner. There was more. The change was so dramatic that the parents of another student in the same school brought their son for somewhat similar patterns of behavior and with equally dramatic results. This encounter vividly reminded me of the early history of SENG, how it came to be housed in a new School of Professional Psychology (SOPP) at a young state university in Dayton, Ohio, and how its work resulted in the present book. The story began in 1980 with the suicide of a gifted and talented 17-year-old boy named Dallas Egbert. His parents approached Dr. James T. Webb, then an associate dean in SOPP, about possibly developing a program at Wright State University for families of gifted children. They were particularly interested in the emotional needs of such children because of their own difficulties in finding help for their son. Dr. Webb, a former Director of Psychological Services at the Children’s Medical Center in Dayton, recognized the need for such a service and rapidly outlined a program that would also meet training interests of doctoral students in the School of Professional Psychology. I approved his proposal, and we were off and running. The opportunity to work with such a special pool of children, whose needs are so often neglected in our school system, brought two things to our School—a unique addition to SOPP’s offerings for child psychology practitioners, and the opportunity to meet a real social need. The new SENG program quickly attracted students, funding, and public attention. The financial support from the Dallas Egbert Fund, as well as a local nonprofit venture and other more traditional sources, soon made it one of the School’s best-funded programs in terms of student support. An appearance of Dallas’s parents and Dr. Webb on the Phil Donahue Show in 1981 brought responses from more than 20,000 viewers across the country. It was clear that the program was addressing a real need. The SENG program was simple and directly to the point of the need. First, formal intellectual and personality assessments were provided by psychologists at the School, who then consulted individually with the gifted children and their families. Second, in response to requests from around the country, consultation services were developed for psychologists, counselors, teachers, and other professionals both individually and through workshops presented. Third, SENG developed and implemented a sequence of guided discussions with parent groups—a weekly series of 10 key topics of concern to families with gifted children. Through this experience, parents shared ideas and learned from each other. They became better able to anticipate problems, find solutions, and prevent difficulties from occurring. What was learned was that parenting a gifted child requires skills for which few parents are prepared. By any of the measures typically used to evaluate public university academic programs, SENG was a success. It met a real social need, it led to the development of new knowledge and new methods of intervention, it resulted in numerous contributions to the scientific literature, it contributed to better professional training, and it attracted outside funding. Unfortunately, as the program matured, its backers moved on to other things. Typical to the modern university, an influx of new faculty and administrators brought new priorities and new opportunities that led in other directions. SENG at Wright State University was allowed to wither and die. Fortunately, SENG reformed itself as an independent nonprofit organization (www.sengifted.org) and continues to do good works through conferences, research grants, and speaker grants, as well as through continuing education programs for psychologists. The greater issue, and the sad fact of the matter, however, is that the emotional needs of the gifted and talented have never been high on the social agenda of American education, nor have either the counseling or the health professions made it a priority. Focus on gifted children and adults seems somewhat elitist and undemocratic in a society in which the concerns of the poor and the needy seem to take precedence. Giving money and support to support programs for gifted children seems to many to be “gilding the lily” when other needs are so numerous. This is not a new phenomenon. In 1919, a psychologist named Leta Stetter Hollingworth founded the field of gifted education when she began teaching the first college-level course on the subject at Columbia University’s Teachers College. Seven years later, her pioneering work led to the publication of the fist textbook in gifted education, Gifted Children: Their Nature and Nurture (Hollingworth, 1926). In that book, Hollingworth elaborated on several themes that could well have been written by Webb and his associates almost seven decades later—public schools were failing to serve their exceptional students, gifted children are not necessarily all alike, asynchrony is inherent within giftedness, environment determines future attainments of the gifted, and children of superior intelligence may have special problems with social adjustment. Forcing a democratic society such as ours to focus attention and energy on the social and emotional needs of gifted children has been problematic since the founding of this country and is likely to continue to be so into the foreseeable future, despite the fact that such students are the “intellectual gold” of our society. Concerned, creative, and energetic parents, teachers, and other professionals, through strong advocacy for these children, can sometimes reverse the tendency of society to look the other way, but it requires constant and exhausting effort. As when pressing a finger into an inflated ball, the ball will yield to the pressure only as long as the pressure is maintained. When the finger is relaxed, the ball returns to its previous position. Without the constant pressure of groups like those represented by the authors of this book (two of whom, Dr. Ed Amend and Dr. Paul Beljan, were trained in the SENG program at Wright State University), the needs of this special group will go unmet and unacknowledged, and many gifted children and adults will be misdiagnosed as suffering from a mental disorder. The authors and their publisher, Great Potential Press, are to be commended. The legacy of Leta Hollingworth is preserved in their work, and American education as well as society at large is the better for their work. Health care professionals, as well as parents, will benefit greatly from the information in this book, and the numbers of gifted children and adults being misdiagnosed will decrease. Ronald E. Fox, Psy.D., Ph.D. Executive Director, The Consulting Group of HRC, Chapel Hill, NC Former President, American Psychological Association Preface This book describes a modern tragedy. Many of our brightest, most creative, most independent thinking children and adults are being incorrectly diagnosed as having behavioral, emotional, or mental disorders. They are then given medication and/or counseling to change their way of being so that they will be more acceptable within the school, the family, or the neighborhood, or so that they will be more content with themselves and their situation. The tragedy for these mistakenly diagnosed children and adults is that they receive needless stigmatizing labels that harm their sense of self and result in treatment that is both unnecessary and even harmful to them, their families, and society. Other equally bright children and adults experience another misfortune. Their disorders are obscured because, with their intelligence, they are able to cover up or compensate for their problems, or people mistakenly think that they are simply quirkily gifted. And there is another group of intellectually gifted children and adults who suffer from very real disorders, but neither they nor the treating professionals are aware that their disorders are related in any way to their brightness or creativity. We—the six authors of this book, all of whom are practicing clinical health care professionals—independently came to the alarming conclusion that many very bright people are suffering needlessly because of misdiagnosis and dual diagnoses. Each of us, during the past 20 or more years, became aware that in our clinical practices, we were seeing patients who were misdiagnosed by other practitioners—professionals who were well-trained and well-respected. Sometimes the characteristics of giftedness were misinterpreted. Other times the characteristics of gifted children and adults obscured the clinical disorders. And in still other situations, the diagnosis was accurate, but the giftedness component needed to be incorporated into treatment planning. In 2003, after talking informally at several professional meetings about these issues, we decided—somewhat hesitatingly—to write this book. We hesitated because we knew that our ideas were not in the mainstream of either psychology or medicine. We knew also that our ideas would be controversial to some. But we also believed that our information was accurate and would be very helpful to children, parents, and professionals. We frankly hope that our ideas will soon be more widely accepted in the health care professions. As a reader, you need to know our credentials, and you may wish to turn to the last pages of this book to read the “About the Authors” section. Here, we will just point out that we include two clinical psychologists, two neuropsychologists, one counseling psychologist, and one pediatrician. The only way we differ from other professionals in our fields is that each of us has an interest in developmentally advanced persons, as well as many years of working with gifted individuals and their families. We want to share our accumulated knowledge with others. We think that the descriptions, conceptualizations, and case studies in this book will strike chords that resonate with many parents and health care professionals and perhaps will result in a paradigm shift—a new way of looking at behavioral, educational, and health care concerns of many gifted children and adults. This book is written for two audiences. The first group consists of health care and counseling professionals—pediatricians, family practice specialists, psychiatrists, psychologists, clinical social workers, nurses, nurse practitioners, and counselors. It is also written for parents of gifted children and for bright adults who are not health care professionals. Our experience tells us that many parents of gifted children are searching eagerly— sometimes desperately—for information that might help them understand which behaviors are due to giftedness and how many of the behaviors are due to some behavioral or medical disorder. We know that many adults are searching for information to help them understand themselves and why they feel so different and out of step with their world. All of the vignettes in this book are real. They have not been modified except for clarity and to protect identities, and we believe that they represent an honest cross-section of experiences. Readers can find similar stories by parents of gifted children in chat rooms on the Internet at sites like www.hoagiesgifted.org or at http://disc.server.com/Indices/9457.html. Finally, we want you to know that half of the royalties from this book will go to support the ongoing efforts of a nonprofit organization called SENG (Supporting Emotional Needs of Gifted). This organization—which arose in 1981 from the tragic suicide of a 17-year-old highly gifted youngster—has been approved by the American Psychological Association to conduct
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