Men as Caregivers: Theory, Research, and Service Implications

407 Pages·2002·45.317 MB·English

by  Betty Kramer

Springer Series: Focus on Men
Jordan I. Kosberg, PhD, Series Editor
James H. Hennessy, PhD, Founding Editor
2002 Men as Caregivers: Theory, Research, and Sendee Implications
Betty }. Kramer, PhD, and Edward H, Thompson, Jr., PhD
2001 Resilience in Old Age; Widowers Speak for Themselves
Alinde }. Moore, PhD, and Dorothy C. Stmtton, MSW, ACSW
2001 Fathering at Risk: Helping Nonresidential Fathers
James R. Dudley, PhD, and Glenn Stone, PhD
1998 Family Violence and Men of Color: Healing the Wounded
Male Spirit
Ricardo Carrillo, PhD, and Jerry Tello, PhD
1997 Elderly Men: Special Problems and Professional Challenges
Jordan I. Kosberg, PhD, and Lenard W, Kaye, DSW
1996 Becoming a Father: Contemporary Social, Developmental,
and Clinical Perspectives
Jerrold Lee Shapiro, PhD, Michael}. Diamond, PhD,
and Martin Greenberg, MD
1995 Men Healing Shame: An Anthology
Roy U. Schenk, PhD, and John Everingham, PhD
1991 Fatherhood and Families in Cultural Context
Frederick W. Bozett, RN, DNS, and Shirley M, H. Hanson, RN,
PMHNP, PhD, FAAN
1989 Treating Men Who Batter: Theory, Practice, and Programs
P, Lynn Caesar, PhD, and L. Kevin Hamberger, PhD
1985 The Male Batterer: A Treatment Approach
Daniel Jay Sonkin, PhD, Del Martin, and Lenore E. Walker, EdD
1984 Men's Reproductive Health (out of print)
Janice W. Swanson, RN, PhD, and Katherine A, Forrest, MD, MPH
1982 Men in Their Forties: The Transition to Middle Age (out of print)
Lois M. Tamir, PhD
1980 Circumcision: An American Health Fallacy (out of print)
Edward Wallerstein
Betty J. Kramer, PhD, is an Associate Professor
in the School of Social Work at the Univer-
sity of Wisconsin-Madison. She received her
MSSW from the Raymond A, Kent School of
Social Work at the University of Louisville,
and her PhD in Social Welfare from the Uni-
versity of Washington (Seattle). Her research
efforts to date have enhanced understand-
ing of three aspects of caregiving that have
emerged as unique areas of inquiry: positive
aspects of caregiving, transitions in caregiving,
and men as caregivers. She is currently engaged
in research on innovations and enhancements
to end-of-life care. Her clinical experiences
have been in multiple settings including hospitals, nursing homes, fami-
ly practice clinics, and community-based social service agencies. She team
teaches a course on Family Caregiving, and teaches other graduate
social work courses on the topics of grief and loss, and gerontological
social work practice.
Edward Thompson, PhD, is a Professor of
Sociology and Director of the Gerontology
Studies Program at Holy Cross College. He
received his BA in sociology from California
State University, Sacramento, and his PhD in
sociology in 1980 from Case Western Reserve
University (Cleveland). He has long been inter-
ested in issues of gender and family life, pub-
lishes on men and masculinity, and teaches
courses on the family, sociology of men, aging
and society, sociology of mental health, and
medical sociology. Dr. Thompson studies the
social worlds of older men and has published
on men's caregiving, religious experiences
of older men, and later life masculinity. He edited the first collection of
original articles examining older men (Older Men's Lives, 1994). He serves
as the organizer of the men's issues interest group for the Gerontological
Society of America, and enjoys working closely with students.
Betty J. Kramer, PhD
Edward H. Thompson, Jr., PhD
Editors
Men as
Caregivers
Theory, Research,
and Service Implications
Springer Publishing Company
Copyright © 2002 by Springer Publishing Company, Inc.
All rights reserved
No part of this publication may be reproduced, stored in a
retrieval system, or transmitted in any form or by any means,
electronic, mechanical, photocopying, recording, or otherwise,
without the prior permission of Springer Publishing Company, Inc.
Springer Publishing Company, Inc.
536 Broadway
New York, NY 10)12-3955
Acquisitions Editor: Sheri W, Sussman
Production Editor: Jeanne Libby
Cover design by Susan Hauley
02 03 04 05 06 / 5 4 3 2 1
Library of Congress Cataloging-in-Publkation Data
Men caregivers : theory, research, and service applications /
Betty J. Kramer, Edward H. Thompson, editors.
p. cm. — (Springer series, focus on men; v. 13)
Includes bibliographical references and index.
ISBN 0-8261-1472-5
1. Male caregivers. 2. Social work with men. I. Kramer,
Betty J. II. Thompson, Edward H. III. Series
HV1441.4.M442002
36Z.0425—dc21
2001042874
Printed in the United States of America by Sheridan Books, Inc.
This book is dedicated to Dale Bruhn, Kurt Bergen,
Hank Hoover, and Ralph Osmun, who, as caregivers,
have served as profound role models for other men caregivers
and family members; and to the other husbands, sons,
partners, friends, brothers, and fathers who haw
become providers of care.
This page intentionally left blank
Contents
Contributors ix
Acknowledgments xi
Part I Introduction
1 Men Caregivers: An Overview 3
Betty f. Kramer
2 What's Unique About Men's Caregiving? 20
Edward H. Thompson, Jr.
Part II Conceptual, Theoretical, and Methodological Insights
3 Theoretical Perspectives on Caregiving Men 51
Eleanor Palo Stoller
4 Methodological Issues in Research on Men Caregivers 69
Jamila Bookwala, Judith L. Newman, and Richard Schulz
Part III Research
5 Psychosocial Challenges and Rewards Experienced 99
by Caregiving Men; A Review of the Literature
and an Empirical Case Example
Elizabeth H. Carpenter and Baila H, Miller
6 Physiological Challenges Associated With Caregiving 127
Among Men
Karen A. Adler, Thomas L. Patterson, and Igor Grant
7 The Experiences and Relationships of Gay Male Caregivers 151
Who Provide Care for Their Partners with AIDS
Carolyn Sidwell Sipes
vii
viii Contents
8 AIDS Caregiving Stress Among HIV-Infected Men 190
Richard G. Wight
9 The Voices of Husbands and Sons Caring for a Family 213
Member With Dementia
Phyllis Braudy Harris
10 Brothers and Parent Care: An Explanation for 234
Sons' Underrepresentation
Sarah H. Matthews
11 Fathers as Caregivers for Adult Children With 250
Mental Retardation
Elizabeth L. Essex, Marsha M. Seltzer, and Marty W. Krauss
12 Differences Between Fathers and Mothers in the Care 269
of Their Children With Mental Illness
Jaw S. Greenberg
13 Husbands Caring for Wives with Cancer 294
Desires Ciambrone and Susan M. Allen
Part IV Services and Interventions
14 Professional Sensitivity to Religion-Spirituality 317
Among Male Caregivers
Jacqueline M. Stolley and Joan Chohan
15 Principles and Interventions for Working Therapeutically 337
with Caregiving Men: Responding to Challenges
Sam Femiano and Aimee Coonerty-Femiano
16 Service Utilization and Support Provision of 359
Caregiving Men
Lenard W. Kaye
Epilogue: Implications for Practice and Future Research 379
Betty /. Kramer
Index 387
Contributors
Karen A. Adler, ScB, is a third-year graduate student in the San Diego
State University, University of California, San Diego, joint Doctoral
Program in Clinical Psychology, San Diego, California.
Susan M. Allen, PhD, is an Associate Professor of Medical Science in the
Department of Community Health, at the Center for Gerontology and
Health Care Research at Brown University, Providence, Rhode Island.
Jamila Bookwala, PhD, is an Assistant Professor in the Psychology Depart-
ment at Lafayette College, Easton, Pennsylvania.
Elizabeth H, Carpenter, MSW, is a doctoral candidate at the Mandel
School of Applied Social Sciences at Case Western Reserve University,
Cleveland, Ohio.
Joan Chohan, MSN, RN, is an Assistant Professor at Trinity College of
Nursing, Moline, Illinois.
Desiree Ciambrone, PhD, is a Post Doctoral Research Fellow at the Center
for Gerontology and Health Care Research at Brown University, Provi-
dence, Rhode Island.
Aimee Coonerty-Feiniano, BA, is a graduate student in Psychology at
Boston College, Boston, Massachusetts.
Elizabeth Lehr Essex, MSS, PhD, is an Assistant Professor at the Jane
Addams College of Social Work, University of Illinois at Chicago,
Chicago, Illinois.
Sam Femiano, ThD, EdD, is a Psychologist in private practice in
Northampton, Maine.
Igor Grant, MD, is a Professor and Vice Chair of Psychiatry at the Uni-
versity of California, San Diego School of Medicine and the San Diego
Veteran's Administration Healthcare System, La Jolla, California.
Jan S. Greenberg, MSSW, PhD, is a Professor of Social Work at the Uni-
versity of Wisconsin-Madison, Madison, Wisconsin.
ix