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Medical Humanities, Sociology and the Suffering Self: Surviving Health PDF

333 Pages·2020·6.271 MB·English
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Medical Humanities, Sociology and the Suffering Self Following criticisms of the traditionally polarised view of understanding suffering through either medicine or social justice, Lowe makes a compelling argument for how the medical humanities can help to go beyond the traditional biographical and epistemic breaks to see into the nature and properties of suffering and what is at stake. Lowe demonstrates through analysis of major healthcare workforce issues and incidence of burnout how key policies and practices influence healthcare education and experiences of both patients and health professionals. By including first person narratives from health professionals as a tool and resource, she illustrates how dominant ideas about the self enter practice as a refusal of suffering. Demonstrating the relationship between personal experience, theory and research, Lowe argues for a pedagogy of suffering that shows how the moral anguish implicit in suffering is an ethical response of the emergent self. This is an important read for all those interested in medical humanities, health professional education, person-centred care and the sociology of health and illness. Wendy Lowe is a Senior Lecturer in Medical Sociology and Medical Education at Queen Mary University of London, UK. Routledge Advances in the Medical Humanities Reconsidering Dementia Narratives Empathy, Identity and Care Rebecca A. Bitenc Moments of Rupture: The Importance of Affect in Surgical Training and Medical Education Perspectives from Professional Learning and Philosophy Arunthathi Mahendran Storytelling Encounters as Medical Education Crafting Relational Identity Sally Warmington Educating Doctors’ Senses Through the Medical Humanities “How Do I Look?” Alan Bleakley Medical Humanities, Sociology and the Suffering Self Surviving Health Wendy Lowe A Whole Person Approach to Wellbeing Building Sense of Safety Johanna Lynch Rethinking Pain in Person-Centred Health Care Around Recovery Stephen Buetow For more information about this series visit: www.routledge.com/Routledge- Advances-in-the-Medical-Humanities/book-series/RAMH Medical Humanities, Sociology and the Suffering Self Surviving Health Wendy Lowe First published 2021 by Routledge 2 Park Square, Milton Park, Abingdon, Oxon OX14 4RN and by Routledge 52 Vanderbilt Avenue, New York, NY 10017 Routledge is an imprint of the Taylor & Francis Group, an informa business © 2021 Wendy Lowe The right of Wendy Lowe to be identified as author of this work has been asserted by her in accordance with sections 77 and 78 of the Copyright, Designs and Patents Act 1988. All rights reserved. No part of this book may be reprinted or reproduced or utilised in any form or by any electronic, mechanical, or other means, now known or hereafter invented, including photocopying and recording, or in any information storage or retrieval system, without permission in writing from the publishers. Trademark notice: Product or corporate names may be trademarks or registered trademarks, and are used only for identification and explanation without intent to infringe. British Library Cataloguing-in-Publication Data A catalogue record for this book is available from the British Library Library of Congress Cataloging-in-Publication Data Names: Lowe, Wendy (Lecturer in medical sociology), author. Title: Medical humanities, sociology and the suffering self: surviving health/Wendy Lowe. Description: Abingdon, Oxon; New York, NY: Routledge, 2021. | Series: Routledge advances in medical humanities | Includes bibliographical references and index. | Contents: Stitching suffering together -- Patterns of suffering -- Suffering as foundational to health professional education -- Sorting the wood from the trees -- The suffering self and burning woman -- Pilgrimages - how can medical humanities think differently about suffering? -- Diving Down Deep. | Summary: “Following criticisms of the traditionally polarised view of understanding suffering through either medicine or social justice, Lowe argues that medical humanities can help to go beyond the traditional biographical and epistemic breaks to see into the nature and properties of suffering and what is at stake”-- Provided by publisher. Identifiers: LCCN 2020032574 (print) | LCCN 2020032575 (ebook) | ISBN 9780367321413 (hardback) | ISBN 9780367672997 (paperback) | ISBN 9780429316937 (ebook) Subjects: LCSH: Medicine and the humanities. | Suffering. Classification: LCC R702.L69 2021 (print) | LCC R702 (ebook) | DDC 610--dc23 LC record available at https://lccn.loc.gov/ 2020032574 LC ebook record available at https://lccn.loc.gov/ 2020032575 ISBN: 978-0-367-32141-3 (hbk) ISBN: 978-0-429-31693-7 (ebk) Typeset in Sabon by MPS Limited, Dehradun For Ellen and Lauren Contents List of figures viii List of tables ix List of boxes x Preface xi 1 Stitching suffering together 1 2 Patterns of suffering 51 3 Suffering as foundational to health professional education 84 4 Sorting the wood from the trees: Challenges integrating medical humanities and sociology into a medical curriculum 109 5 The suffering self and burning woman 145 6 Pilgrimages – how can medical humanities think differently about suffering? 199 7 Diving down deep 270 Appendix: Curriculum for a pedagogy of suffering 302 Index 309 Figures 0.1 Lacunae of suffering xv 1.1 Mental suffering based on observations from Ricoeur (Devisch et al., 2017) 3 1.2 Consilience of suffering (Source: Adapted from Wilson, 1998) 16 1.3 A dispositionalist approach to methodological pluralism for causal evidencing in medicine and public health (Rocco & Anjum, 2020) and relating suffering to this approach 25 1.4 Lacunae representation of theoretical framework on suffering 33 1.5 Mismatch in experiences of patients and health professionals related to musculoskeletal suffering (Lowe et al., 2014). 40 2.1 Cloisters of redemption and portals through suffering 53 2.2 A systems model of clinician burnout and professional well-being (NAM, 2020) 54 3.1 Suffering as foundational in health professional education 91 3.2 Framework of suffering 105 4.1 Lost in the woods 111 5.1 Still in the woods 152 5.2 Suffering framework with conceptual, categorical and experiential imperatives 160 6.1 Clearing in the woods 213 6.2 The deployment of the moral emotions at the centre 242 7.1 Diving deep and thinking outside a box 284 7.2 Detail of intersection of self-other and languishing- acting axes – lacunae 285 7.3 Processes of self at the zone of disorientation 288 7.4 Relationship between operational necessity of certainty and uncertainty 293 A.1 Meta-curriculum 302 Tables 1.1 Basic modes and properties of relationships (Fiske, 1993; Haslam, 2012) in relation to suffering – final column (various authors) 29 3.1 Range of experiences of suffering 90 3.2 Possible responses to suffering 94 3.3 Multimodal representations when learning about suffering 98 5.1 Levels, concepts and categories of the self 149

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